Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Negative For Celiac, Positive For Genetic Markers
0

6 posts in this topic

Hello

I am new to this site.

My brother was diagnosed with celiac disease in October of 2009.

I tested negative for celiac, but postive for the genetic markers.

I am deciding whether or not to embrace the celiac life style.

Any advice??

MGMG

0

Share this post


Link to post
Share on other sites


Ads by Google:

Tough decision.

Your gene could be active and silent, active later in life, or never at all. I am not sure of your sex but you can pass it down to your children and not exposing them to gluten for the first year of their life, greatly helps the chance of activation.

A gluten free diet is tedious, expensive, and inconvenient, I do not wish it upon anyone, and NO one goes into it lightly. In my opinion, it is hard to follow if you don't have symptom, the symptoms are what keep you from cheating ;) It would be great to support your brother and understand his needs even if you choose not to follow the diet for yourself:)

Do you have any symptoms or medical problems?

0

Share this post


Link to post
Share on other sites

I saw a talk by Dr. Markku M

0

Share this post


Link to post
Share on other sites

If your having symptoms then yes do give the diet a shot.

0

Share this post


Link to post
Share on other sites

Thank you for your quick response.

I am able to tolerate gluten-containing products. The only symptom I present with is abdominal bloating at times.I have tried to embrace the gluten-free diet and after a few days I have significantly less abdominal bloating. I also lost a few pounds while following the gluten-free diet!! It is extremely difficult to follow when eating in restaurants.

MGMG

0

Share this post


Link to post
Share on other sites




Thank you for your quick response.

I am able to tolerate gluten-containing products. The only symptom I present with is abdominal bloating at times.I have tried to embrace the gluten-free diet and after a few days I have significantly less abdominal bloating. I also lost a few pounds while following the gluten-free diet!! It is extremely difficult to follow when eating in restaurants.

MGMG

Certainly sounds like your body is reacting to the gluten. Since its normally a constant chronic exposure in a regular diet it can be hard to tell just all of what changes the gluten is causing in your body. I'm at the 2.5 month mark now and weekly notice a new thing that apparently was abnormal in me because it's now fixed but before I didn't even realize that it wasn't supposed to be that way (this week's discovery, not everyone has dermatographism and now neither do I!). You may be tolerating gluten less than you think. The bloating thing is definitely easy to notice however, one of the first changes that happened with me upon going gluten-free was losing 10 pounds and going down 2" in waist size.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,090
    • Total Posts
      920,308
  • Topics

  • Posts

    • Hi, No, I do not have celiac  disease. I have an ankylosing spondylitis which is an auto-immune disease provoking an inflammation of the joints. Under the advice and supervision of my doctor and the professor at the hospital I follow a gluten free & casein free diet, which is extremely successful in preventing inflammatory events. And I've been doing so, strictly, for more than 6 years. So I'm not Celiac, but I can tell you that I react strongly every time I take gluten even in small amounts. Even soya sauce, which according to this website has an almost zero dose of gluten, is a lot too much for me. Nevertheless I allow myself to eat food which has been processed in a factory which processes gluten. To conclude, I would say that when you are travelling, especially in a country where celiac disease is scarcely known, you should be twice as careful as when you're going out at home. In the end you can never guarantee that the cook has cleaned his pan after using soya sauce and so on... You can only bet
    • Along those lines, many Americans are now pursuing gluten-free eating. Gluten ... Diagnosis of celiac disease typically requires a history and physical ... View the full article
    • No!  Once you fill the tub, if you sit in it for 3 minutes or you stay for 10... It doesn't change the amount or cost of the water.  That's only relevant if you have 3 kids to cycle thru that same water.  Is your hub bathing in the same water after you? Lol  And even if you add some more hot and stay longer....well...it's much cheaper than perscription meds, vodka or a substance that is legal in a few states.     Of course this only pertains to those of use with running water.... If you make your hub haul water from the creek or well and heat it over a fire....
    • Whether it is bona fide dermatitis herpetiformis, or severe eczema or hives or what have you, we all want to know how to stop the incessant itching.  Through all my research, the solution comes down to one thing: a good long soak in the tub-- with baking soda or Epsom salts or some kind of herbal tea, followed by a rub down in thick expensive lotion.  I don't know about you, but I was brought up to "get in, get done get out."  A long soak in the bath was a frivolous luxury, and a waste of time and hot water.  So now I'm having this awful breakout from forgetting to read a label and got wheated.  And every night I've been soaking in a baking soda bath to relieve the itching and aid my recovery.  And it's been hard! (But it's been very helpful too)  It has been hard to reconcile this "frivolous luxury and waste of time" as medically necessary!  Fortunately I've had no judging, and only support from my husband, who has had a similar upbringing.  Does anyone else struggle with this?
    • His son, Eli, had been misdiagnosed with celiac disease, so the family tried some gluten-free foods. After adding quinoa (KEEN-wah) to their diet, ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,117
    • Most Online
      1,763

    Newest Member
    cdliac3855
    Joined