Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Strokes And Tia's (Transient Ischemic Attacks)
0

17 posts in this topic

New research suggests a link between celiac disease and strokes and TIA's (transient ischemic attacks).

El Moutawakil B; Chourkani N; Sibai M; Moutaouakil F; Rafai M; Bourezgui M; Slassi I

Celiac disease and ischemic stroke, Revue Neurologique [Paris] 2009 Nov; Vol. 165 (11), pp. 962-6.

Neurological manifestations of celiac disease are various. An association with ischemic stroke is not common and has not been well documented. We report two cases. OBSERVATIONS: The first patient had experienced several transient ischemic strokes in the past 2 years and then had an acute ischemic stroke involving the territory of the right posterior cerebral artery. Investigations revealed celiac disease with no other recognizable etiology. The clinical course was marked by persistent visual aftereffects, but no new vascular event. The second patient had been followed since 1998 for celiac disease confirmed by pathology and serology tests. She was on a gluten-free diet. The patient had an ischemic stroke involving the territory of the left middle cerebral artery. Apart from a positive serology for celiac disease and iron deficiency anemia, the etiological work-up was negative. DISCUSSION: The mechanisms of vascular involvement in celiac disease are controversial. The most widely incriminated factor is autoimmune central nervous system vasculitis, in which tissue transglutaminase, the main auto-antigen contributing to maintaining the integrity of endothelium tissue, plays a major role. Other mechanisms are still debated, mainly vitamin deficiency. CONCLUSION: Being a potentially treatable cause of ischemic stroke, celiac disease must be considered as a potential etiology of stroke of unknown cause, particularly in young patients, and even without gastrointestinal manifestations.

Lohi S, Maki M, Rissanen H, Knekt P, Reunanen A, Kaukinen K.

Prognosis of unrecognized coeliac disease as regards mortality: A population-based cohort study.

Ann Med. 2009 Jun 23:1-8.

Background and aim. Clinically diagnosed coeliac disease patients carry an increased risk of mortality. As coeliac disease is markedly underdiagnosed, we aimed to quantify the risk of mortality in subjects with unrecognized and thus untreated coeliac disease. Method. Blood samples from 6,987 Finnish adults were drawn in 1978-80, and sera were tested for immunoglobulin A (IgA)-class tissue transglutaminase antibodies (Eu-tTG) in 2001. Positive sera were further analysed for endomysial (EMA) and tissue transglutaminase antibodies by another test (Celikey tTG). EMA- and Celikey tTG-positive cases were compared to negatives as regards mortality in up to 28 years of surveillance, yielding a total follow-up of 147,646 person years. Dates and causes of death were extracted from the nation-wide database. Results. Altogether 74 (1.1%) of the participants were EMA- and 204 (2.9%) Celikey tTG-positive. The age- and sex-adjusted relative risk of overall mortality was not increased in either EMA (0.78, 95% CI 0.52-1.18) or Celikey tTG (1.19, 95% CI 0.99-1.42) -positive subjects. However, antibody-positive cases evinced a tendency to die from lymphoma, stroke, and diseases of the respiratory system. Conclusions. The prognosis of unrecognized coeliac disease was good as regards overall mortality, which does not support screening of asymptomatic coeliac disease cases.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Certainly would explain the stroke I had years ago. No known causes and no reason to have had one.

0

Share this post


Link to post
Share on other sites

Why do I keep seeing celiac as being the possible causitive origin of so many present day maladies? Just thinking out loud here....

0

Share this post


Link to post
Share on other sites

When I had a TIA last fall I wanted to know if it was related to my newly diagnosed gluten intolerance. I found these articles and ran them by my GP, neurologist, and gastroenterologist (a celiac disease specialist). Each of them took the information seriously. Of course, this hardly proves gluten intolerance was the cause of my TIA. But given the utter lack of any other possibilities, I now have a powerful incentive to remain gluten-free

0

Share this post


Link to post
Share on other sites

So the second person was gluten free and still had the stroke??

I had a stroke in Nov. at 25 years old, had a WHOLE work up done. Nothing was found, but I pushed for Celiac testing and found that I most likely do indeed have Celiac and for sure a gluten intolerance. I also was found to have the gene linked with neurological side effects. My neurologist thinks it was most likely the cause of my stroke.

Just made me nervous that the second person was off gluten, guess that just proves how careful you need to be in avoiding gluten.

0

Share this post


Link to post
Share on other sites




So the second person was gluten free and still had the stroke??

I had my stoke before going gluten free.

0

Share this post


Link to post
Share on other sites

I would wonder if perhaps the celaic is a secondary immunilogical problem and that the primary problem is the root of both the stroke & the celiacs in that second person.

My daughter had a stroke at birth. We are still searching for answers.

:(

Just made me nervous that the second person was off gluten, guess that just proves how careful you need to be in avoiding gluten.

0

Share this post


Link to post
Share on other sites

Why do I keep seeing celiac as being the possible causitive origin of so many present day maladies? Just thinking out loud here....

Most likely because untreated Celiac Disease produces extreme inflammation all over the body. Inflammation is responsible for the initiation of many disease processes.

0

Share this post


Link to post
Share on other sites

I had an unexplained mini stroke too a few years ago, although I am sure it was caused by taking max dose of Advil for 6 days in a row from very painful neck-back.It turns out Advil thickens the blood and so strongly, that it negates even strong blood thinners. As I researched, I found one more possible link -migraines. On the other hand people with migraines are more likely to take many painkillers.

Maybe gluten added to the mix?

0

Share this post


Link to post
Share on other sites

OMG???

 

I had TWO TIAs!!!! Nov 2004 and Jan 2005 however it was following a DVT and they found I had a PFO (small hole in my heart) and THAT was deemed the cause and I had the hole closed.

 

This is all starting to be too much to take in...and all blamed on bad eating habits and even when I was eating better it was just deemed I must be lying since I was still over weight. I am so over being brushed off by medical professionals because of my weight I once saw a pulmonologists for shortness of breathe and he said "I knew your problem as soon as I saw your chart said you weighed 350lbs" I said well doctor I once weighed over 500lbs and never had this problem, so now what??? Grrrrrrrrrrrrrrrrrr.

0

Share this post


Link to post
Share on other sites

Wow, Ive been reading through the forums for info and stumbled upon this. When I began to have celiac symptoms, I had the weirdest black out in the middle of the night along with passing out, anxiety and other odd symptoms- went the ER and  blood work indicated a clot. Since that particular time, I could no longer consume gluten, it was like a switch had turned on and I was no longer able to eat wheat etc. Each time Ive been accidentally glutened, I have a similar but less severe response.  

 

I wonder if I had a transient ischemic attack due to gluten? This makes me feel like Im not crazy after all! 

0

Share this post


Link to post
Share on other sites

Welcome to the forum! :) No, you are not crazy!

 

I had a TIA that was directly related to gluten. The gluten caused severe chronic headaches (and I was a person who wasn't prone to frequent headaches and had no history of migraines before my gluten challenge) and the headaches led to the TIA. I had numbness on my right side and speech difficulties. I went to the ER and they diagnosed it as a TIA and told me that it meant that I had an elevated risk for stroke.

 

After I quit the gluten, I saw my doctor and he told me that he didn't think that further neurological tests were needed and that staying away from gluten was the best treatment. He was right--as soon as I stopped the gluten (which was immediately after my trip to the ER) my headaches started improving. After a few days, I felt completely normal and I have never had any recurrence. 

 

That episode though absolutely cemented the fact that I will never be doing a gluten trial again. It's just not worth the risk of having a full blown stroke!

 

I wish that I had more concrete information on the risk of TIA/stroke while on a gluten free diet for those who had gluten related ones previously.

0

Share this post


Link to post
Share on other sites

Super scary! Its definitely not worth any risk to ever consume gluten if that is going to happen. 

0

Share this post


Link to post
Share on other sites

Nope! Definitely not worth it. 

 

I wouldn't do another gluten challenge for a million dollars!

0

Share this post


Link to post
Share on other sites

I wonder if something like this is what happened to my cousin. When she was in grade 5, she started getting really bad migraines. One time in class she got one, and then her speech started slurring and one side of her face got all droopy. She was taken to hospital but they didn't find anything. It happened a second time too.

My cousin has never been tested for celiac but I suspect she could have it. She says she's tired all the time, and sometimes she gets stomachaches after eating certain things. One time she got stomach pain after pizza and she blamed it on too much cheese on the pizza. She's in grade 8 now.

0

Share this post


Link to post
Share on other sites

My sister was a coeliac, diagnosed 18 years ago at the age of 30. She had been gluten free as much as possible over that time but was recently involved in a study where she was required to consume gluten and record the results. This caused severe cramping, diarrhoea and vomiting. She eventually, on the day of the test, had a major stroke in the PONS area of the brain and died 13 days later. I would be interested in collecting as much research as possible to do with links between consumption of gluten of diagnosed coeliacs and strokes or, as this post has, stroke and undiagnosed coeliacs.  Her death will be the subject of a coroner's report some time this year. Any links to research can be sent directly to jeff@bilbyweb.com.au

With thanks in anticipation.

0

Share this post


Link to post
Share on other sites

Wow, that is terrible! :(

 

So sorry for your loss. 

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,588
    • Total Posts
      918,278
  • Topics

  • Posts

    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      I agree Katie, the gluten challenge isn't worthwhile for some people.  Regardless of your test results, I think you know the answer is not to eat gluten anymore.  I hope you recover quickly from the damage.
    • Last posted 2013 - Improving health
      I am glad you are feeling so much better!  Your posting will encourage others.  Thank you!
    • Last posted 2013 - Improving health
      When I first started this journey, roughly 11 yrs ago with symptoms, I had no clue. Eventually, having no luck with doctors (hypochondriac or psychosomatic), I googled my symptoms over and over looking for something... ANYTHING... that would give me a clue. Among other issues, my insides would not move, I was turning gray, felt like death, and had a persistent cough. I can't remember who but someone had posted on the forum and I found some of my symptoms. Eureka, I immediately began a gluten-free diet to see if it made any difference. Of course that was a journey, not realizing what products contained gluten. Long story shorter – first I went gluten-free, symptoms began to reappear, then it was soy (first organic was okay, then not), symptoms reappeared, took out corn, symptoms reappeared, then it was all grains. So the last couple of years I have been grain-free plus no sulphates. Actually, truth be told, my Celiac pharmacist gave me the recipe for health. I asked her if she liked a certain product. She answered, “I don't know, I have never tried it.” I asked her what she did use. She replied, “Nothing out of a box, a bag, or a bottle.” And that has pretty much been my life for the last couple of years. There is the odd product I try but it always has an after effect and I have to way the consequences against the enjoyment of it. I am one of those who react to 1 crumb in the butter, flour dust in the air, sulphates in anything, sometimes things that don't even seem like they would be a problem, like avocados and blueberries when I am contaminated. January 2016 I began this recitation. It is now May 5th, 2016 - Here I am 4 months later and I feel like screaming to anyone who will listen, “Things are improving!! My gut is healing!!” So what happened?? Someone suggested digestive enzymes. My insides were so compromised that I couldn't eat much besides fruit, veggies, and meat; all plain, all without being touched by people other than me. I could barely stand salt at times when I was compromised. Haven't been to a restaurant in years since I am not in a city that would have one to cater or understand this much of a problem. I started digestive enzymes but I read the label wrong and started with 5 first thing in the morning. Whatever... I began to notice improvements in what I could eat. Not anything different but just that I could eat without feeling ill or having my gut shut down. I stayed on those for a month and a half.. then I picked up a parasite from someone living in a very unclean apartment and visiting there and helping to clean. Well, that was a huge battle. I had to eat to discourage parasites. But in the process my insides began to heal dramatically. I was eating blackberries, drinking garlic keefir (which I couldn't have done 5 mths ago and gave me the first clue my insides had improved substantially), drinking oil of oregano or peppermint oil drops in a glasses of water, eating cabbage and green roughage. Drinking water with apple cider vinegar in it and Aloe Vera juice. After a couple of weeks my insides were a whole different story. I had a feeling of wellness that I hadn't had for years! I FELT like trying to eat something different. So I decided to try Gluten-free Rice Chex. Haven't had them in years.... and I am so happy! I can eat them!! (Not to say they are healthy, cause they are processed crap) but I didn't get sick and that was the amazing part. So now I am beginning to try a few things that would have set me back previously, I have made my own crème brulee because I have always been able to eat eggs. But the sugar was causing problems, but now it's okay. The issue I have now is that I want to try things too fast so I am having to exercise restraint. So here is it – parasites are very common, everyone has them however whether they cause problems depends on your immune system. Does it not makes sense that they would cause leaky gut? An over abundance in the gut would destroy gut tissue and take nutrients from a person and possibly put holes in the gut leading to food reactions? Digestive enzymes help to destroy the protective coating around parasites. Foods that discourage them or kill them are blackberries, garlic, cabbage, oil of oregano, peppermint oil, aloe vera juice, Braggs apple cider vinegar and more (google to find). I found medication didn't do anything so I turned to all the other. So this is how it is today. I don't suggest it is the answer to anyone else's problems but when I found this site, hidden in the posts was the beginning of the answers for me.  I may still be gluten, soy, corn intolerant but I am feeling so good now and I just thought I would tell someone.  I just wanted to share. Thanks for reading.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      Not to mention my hips and knees are killing me and I have really bad calf pains and horrible bloating after just 3 days of glutening. I don't think I could live like this for a whole week.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      I saw my gi today and he said to not worry about eating gluten. I have abdominal pain in the small intestine area and referred pain in my back, indicating pretty bad damage. So I'll just go without the gluten and do the genetic testing if needed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,685
    • Most Online
      1,763

    Newest Member
    Cathy D
    Joined