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Weird Heart Problem
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I've seen posts here re. things like tachycardia that was caused by gluten, and I must say that my mild tachycardia has improved quite a bit since going g.f. back in March. But starting about a month before that, about early Feb. I think, I noticed that my heart would sometimes skip a beat. When I saw my doc in March I told her about it and she listened to it, but of course it wouldn't do it while she was listening. So that was when she said that she was sure that most of my many health problems were caused by gluten--they were all classic symptoms, and that I should do the challenge for a month. So I did, and several things began improving quite a bit within a few weeks, including the tachycardia.

But the skipping-a-beat thing has gotten much worse. Since my doc close at noon today, and besides she's an N.D. so I doubt she has an EKG machine---I went to another doc and had an EKG done. Although right now it's skipping beats about every 15 seconds, of course then it didn't. But it did when the nurse took my pulse and when the doc listened to it. She ordered blood work done because she thinks it may be due to a potassium or electrolyte imbalance.

Has anyone had this particular problem before going g.f.? And did it resolve after going g.f.? Like I said, mine's gotten worse, so perhaps it is e. or p. imbalances. I thought I'd be smart and start drinking something with eletrolytes right away, reasoning that it won't do me any harm (the tests are due back Wed. next week). So I went to the store and looked at the label on a bottle of Pedialyte and one of the main ingredients was dextrose. Are they kidding me? I can't drink sugar water! Dextrose is a form of sugar, right? Does anyone know how else I can get electrolytes, without consuming a bunch of sugar? I would get a potassium supplement, but I'm afraid of raising it if it's already normal. And since going g.f., fruit causes tons of stomach pain and diarrhea, so things like bananas and kiwis are out.

Any suggestions? This thing is really driving me nuts.

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For what it's worth, I have pretty much determined that my weird heart problems are caused by lectins in foods, including tachycardia, early and late beats, skipped beats, etc. As long as I avoid high-lectin containing foods (my intolerances are nightshades, legumes, soy, corn - gluten, of course - peanuts, and at one point citric acid) the symptoms go away. :)

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Does anyone know how else I can get electrolytes, without consuming a bunch of sugar? I would get a potassium supplement, but I'm afraid of raising it if it's already normal. And since going g.f., fruit causes tons of stomach pain and diarrhea, so things like bananas and kiwis are out.

Any suggestions? This thing is really driving me nuts.

I haven't had any major tachycardia issues, but I have a blood pressure issue (too low) that requires me to stay well hydrated and get lots of electrolytes. One part of my solution (aside from eating salty food because that's what the doctors tell me to do!) is to drink SmartWater. It is just water with electrolytes in it. Back when my BP issue got diagnosed, it was almost impossible to find but now you will find it in the water or soda/juice section of most every store. It tastes a little odd but it does a good job of replacing electrolytes for me.. And gluten-free, of course!

P.S. It will almost certainly make you need to pee more often--you've been warned! ;-)

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You can get potassium from eating Banana's. I would be careful, though... because you don't know if yours is high or low and either can cause problems. Most likely, it is low, but I would just hate to tell you to go eat a bunch of bananas and it be the other way around. ;)

If you aren't already, I would cut out the caffeine and take a good, quality multi vitamin. Also, the bad thing about palpitations is that stress will make it worse. If they continue to worsen or if they start to happen one after the other, then go to the hospital. 6 or more per minute is cause to treat if they are pre-ventricular contractions, but without an EKG-- you won't know the source. Generally, they are benign, but definitely something to look into and make sure they aren't from a heart problem.

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My tachycardia was related to my ferritin being so low. I have since gotten it up some that now it is not so bothersome. I still get it occasionally. Last bout was due to too much thyroid meds since I was absorbing them better. My one med was lowered and symptoms went away.

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Hey, thanks everyone! Smart Water....I think that's the same brand someone else mentioned to me. I'm going to look for it. In the meantime, after I posted last night, I remember coconut water. I happened to see it once while shopping and was reading on the can about how it's supposedly the perfect natural sports drink, as it was so refreshing and loaded with electrolytes. I bought it to try, as I was doing a rather tough workout at the time. I didn't like it though, which was odd, because I'm crazy about anything coconut! So I never bought it again, but last night when I thought about it, my husband went and got me some. This was a different brand, and good. I hated to have to drink it though because I'm eating very low-carb...mostly lean meats and lots of veggies, and this stuff is very high-carb. :( But I thought, instead of drinking a whole "serving" at once, I'll divide it up into smaller servings, and drink it a few times a day. I drank about 6 oz. last night before bed and my heart didn't but me as much as the night before. Then I drank a few more oz. late this morning, and my gosh, it's much better! It's amazing! But really, if I can get the Smart Water (which should be low-carb, right?) I rather drink that.

I should know by Wed. exactly what's going on, when the tests come back.

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"I've seen posts here re. things like tachycardia that was caused by gluten, and I must say that my mild tachycardia has improved quite a bit since going g.f. back in March. But starting about a month before that, about early Feb. I think, I noticed that my heart would sometimes skip a beat."

Years ago I would have times when my hear seemed to be pounding and it felt like it was skipping beats and with an uneven rythem. I have a mitral valve stenosis (heart murmur) and thought it was related to that so had ekgs done which were completely normal. The murmur is so mild it does not give me any problems but the apparent skipping beats and pounding turned out to be spasms in my small intestine and that was one of the problems which cleared up on the gluten-free diet. I still get some spasms but nothing like the strong symptoms I had earlier and would sometimes keep we awake all night. If this is the cause of your problem you may want to do some 'home remedies' to improve your digestive system and help your intestine heal from the celiac disease damage. Liver cleanses to get out gall stones may help, see my profile page for the book I use.

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Hulda Clark....I've heard of her. I'm going to check out that book, thanks!

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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