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Sensitivities To Chemicals Or Medications?
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6 posts in this topic

Does anyone else have sensitivities to other chemicals or medications thought to be tied to their gluten intolerance/allergy? Anyone have a strong (I mean STRONG) sense of smell? I can smell things that my family cannot smell at ALL! I also have an Italian nose, but its been stronger in the last year, so I don't think I can blame it on the schnaze.

And, did anyone notice if these sensitivities go away when they went gluten free?

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Yes, and yes!! For years the slightest perfume was debilitating to me, even if I couldn't smell it. I did have a very sensitive sense of smell too. Now, sometimes other people smell perfume and complain about it and I don't even notice!!! It's been 3 years since diagnosis. Good luck!

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Yes, and yes!! For years the slightest perfume was debilitating to me, even if I couldn't smell it. I did have a very sensitive sense of smell too. Now, sometimes other people smell perfume and complain about it and I don't even notice!!! It's been 3 years since diagnosis. Good luck!

Thanks for replying! Did you ever feel like you could taste the smells on your tongue and you couldn't get rid of them unless you went out of the house for a while and took in fresh air or you spit out the "taste"?

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I've definitely had to go outside. Once I was in a car and someone in it seemed to be wearing a huge ton of perfume. Even right by the open window, I couldn't stand it. I got out. Fortunately my husband came with me. We were in Mexico City and I had no idea where I was and I don't speak the language well. He couldn't smell anything. My friend in the car discussed it and it ended up that her friend was maybe wearing a scarf that she had worn before when she was wearing perfume. That day she wasn't wearing any. We got back to the hotel O.K. That was before I started having the uncontrollable D. At that time I was just having stomach pain. Smell and taste are very interrelated.

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Does anyone else have sensitivities to other chemicals or medications thought to be tied to their gluten intolerance/allergy? Anyone have a strong (I mean STRONG) sense of smell? I can smell things that my family cannot smell at ALL! I also have an Italian nose, but its been stronger in the last year, so I don't think I can blame it on the schnaze.

And, did anyone notice if these sensitivities go away when they went gluten free?

I have a strong sense of smell and very acute hearing. It does seem that since I went gluten free that smells don't bother me as much. I don't react to fragrances as much as I use to.

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I'm extremely sensitive to scents. I have to be very careful to use unscented products because most fragrances that are added to products will give me migraines.

I get neurological symptoms with chemical additives in foods, can't tolerate any artificial sweeteners at all.

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    • Thanks Stephanie & Gemini for the info. that the 4 of 5 doesn't apply to children. I wasn't aware of that until now. 
    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
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