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Recently Gone gluten-free But Getting Cramps, Pain...help!
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Read on here that gluten-free grains can be hard on the stomach when first new to gluten-free diet and I think that must be why I am in pain almost every night no matter what I eat - dairy made me throw up (could have been soy) and even a salad gave me stomach pain which starts as an uncomfortable intestine, then stomach pain.

Our son who just turns 4 was diag with a slight low tone issue and since a year ago we have been getting speech therapy and it has been great. Recently a woman with an autistc son I met suggested I remove gluten from our son's diet and what a difference! His speech has improved, his exzema (which was a fairly recent thing) is almost gone and his moods are a little better. No gastro issues and none for my husband who was told years ago my a cranial sacral therapist that he was likely gluten intolerant.

Of course we have splurged on gluten-free packaged goods and since we eat a lot of read and have found Udi's I am eating a lot of it, but as of until his week (we have been gluten-free free for about a month and only rcently have I been more adamant for myself (I mistakenly thought I was the one who was the healthiest and could still eat gluten if I wanted to!) I have been fine. This week for 4/5 nights I have gotten intestinal cramps and stomach pain intermittent for several hours and then it goes away. Some times I have diahhrea, some times like now I am constipated and each time it is at night. Today for instance I had Udi's bread and part of their lemon muffin and water with 2 eggs and no problems. Then later int he day I had just 2 soft boiled eggs (thinking it would be easy to digest) and within 30 minutes I got cramping and pain. Previous times I had dairy and actually threw up from the dairy...

I am rambling now but what can I eat where my guts won't b so messed up? Someone had said bananas, applesauce, rice and something else for 4-6 mths until mh intestines heal -anything else I can eat? I am overweight due to a thyroid issue and some past almost starvation months, although I take thyroxine. Other huge issue is that I need to get enough protein or I feel crappy so I have a non denatured whey protein - haven't had it latly so I am worried how my body will take it...

Lastly I have a huge issue not eating - my body hangs onto my fat stores and nt let them go so I am malnourished although I am overweight. It is an emotional, self-care issue and I am seeing a therapist who is helping me with that and childhood abuse issues. Other supplements I take for anxiety inlcude B vitamins and a tiny dose of lithium.

Thanks in advance for any help!

Tara

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I'm somewhat new to all this, but you need to get some gastro health testing done. Look up Enterolab and check out the Comprehensive Digestive Stool Analysis as well is the complete food sensetivity test. You'll have an easier time treating yourself if you know what you are treating.

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I'm somewhat new to all this, but you need to get some gastro health testing done. Look up Enterolab and check out the Comprehensive Digestive Stool Analysis as well is the complete food sensetivity test. You'll have an easier time treating yourself if you know what you are treating.

thanks Apache- great advice...so an update - went to Multicare and they gave me some vicodin for my extreme nightime pain and took stool, blood and urine testing - sice stool takes a few days I was hoping it was a parasite until I heard back today that it isn't. So backtrack - the niht I went to Multicare, I was avoiding dairy and of course gluten and still starts getting pain - so I took a vicodin (what Multicare prescribed) and slept better than I had in days. Next day felt good and no issues - that night hubby gave

me a tiny bit of sour cream and I had 2 spoonful of yogurt with my son and zero problems at all - slept great in fact. Next day I eat no gluten or dairy until nighttime - my hubby took our son for ice cream and I

had a little - no immediate issues so later last night I thought "must not be dairy" and I had cereal and milk. 3 hours later in the night - whammo again! Pain so intense I couldn't breathe and so had to take

vicodin again...

Multicare called today to say no parasites so hey want me to go to a GI....in the meantime I am worrid about getting enough protein and without t hurting my stomach - any suggestions? I am str

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Sorry - not sure what happened there! I need a good source of easy to digest protein - worried about eggs as well. Suggestions? Also, another question - do our digestive systems work a lot at night? Wonder why all my pain is at night..

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Popping back in to see if anyone else can help?

Sorry - not sure what happened there! I need a good source of easy to digest protein - worried about eggs as well. Suggestions? Also, another question - do our digestive systems work a lot at night? Wonder why all my pain is at night..

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Sour cream and yogurt have little lactose, the sugar in milk. Milk and ice cream have a lot of lactose. You may be lactose intolerant.

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    • What if it were something else that glutened you?  Maybe you ate too much of a good thing?  I once (three months post dx) ate too much gluten-free fried chicken, vomited, passed out and fractured my back (osteoporosis) in the process.  Paramedics, ER doc and Cardio all thought I was having a heart attack.   No.  It was sheer gluttony and bad bones.  Not good to overload with a damaged gut.    Maybe you did get some contaminated nuts.  Afterall, anything processed is suspect.  What might be well tolerated by some, might be too much for others.  We all have our various levels of gluten intolerance.   The old 20 parts per million is just a guideline, but science does not really know (lack of funding......doe anyone really care enough to find out?)  My hubby has been gluten-free for 15 years.  When I was first diagnosed, I tried to eat the gluten-free foods that I normally gave him.   Problem was he was healed and I was not.  Things like Xanthan Gum in commercial processed gluten-free breads make me feel like I have been glutened, but it is just (and still is) an intolerance.  So no bread for me unless I make it myself using a different gum.   Too lazy, so I do without.   so, ask your doctor if you really want to know or lay off the cashews and test them again in a month using a certified gluten-free nut.  I wish this was easier!    
    • I have intolerances to a few foods now, so I was wondering about that.. I love cashews though, and a month or two ago I was eating them all the time with no problems at all. I mean, could I really have developed an intolerance to them since then? I don't know if they're made on shared lines (it didn't say on the package so I assumed they weren't), but I'll give them a call. I'm really, really sensitive to cross contamination. Even if something is just made in the same facility (but not on shared lines) it will make me sick. If that's not it, then I'm not really sure
    • Research with KP and find a celiac-savvy GI in your area ( read the biographies). and ask your PCP/GP for a referral to that specific GI (not his buddy).  Ask the GI for the rest  of the celiac panel or proceed with an endoscopy/biopsies -- 4 to six.  Keep eating gluten daily until all testing is complete.  Document and request in writing.  Do not worry about symptoms.  There are over 300 of them and some celiacs have none!   Research all that you can about celiac disease.  The University of Chicago has a great celiac website that has testing Information etc.   Poet me know how it works out.  Hope you feel better soon!  
    • I react to both wheat and barley.  I've opted to just go completely gluten free, for the sake of simplicity and my sanity.  I don't have a diagnosis of celiac disease, but I strongly suspect it.  Unfortunately, I'm not willing to endure the misery of staying on gluten long enough to pursue further testing.  I just know I need to avoid the gluten grains, so I do.  
    • I think that we have to remember that celiacs often develop intolerances due to our  damaged guts.  Our guts do not ncessarily heal either (usually adults) for  a variety of reasons even if their symptoms improve (see links below).   Nuts are just plain hard to digest.   I can not tolerate almonds, but can handle walnuts and cashews in small amounts.  I can eat peanuts too, but resort to Peanutbutter after a Glutening as it is easier to digest (maybe I have to learn to chew better!  😀)  My nut symptoms have  nothing to do with gluten as I have purchased certified gluten-free nuts and suffered with the same symptoms.  .   https://www.verywell.com/celiac-disease-when-will-your-small-intestine-recover-562341 http://www.cureceliacdisease.org/treatment/ http://www.ncbi.nlm.nih.gov/pubmed/23936873 i call the manufacturer when I suspect the manufacturer is sharing the line or if I just want to know.  I bought some Black English walnuts and called the company.  Those are the only nuts they process and they do not have any flavored nuts.   if you really want to test your theory out, buy some nuts from Nuts.com (certified gluten-free).   See if you get a reaction or ask your GI to retest your antibodies (which should be done annually anyway).   I just hate to have Planters get a bum rap when you do not really know for sure.......😥    
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