Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Newbie - Not Sure What Is Going On!


Tgowland

Recommended Posts

Tgowland Newbie

Hello all,

Posted this in a different forum but didn't get many responses...I am a 38 yo woman who is recently gluten-free (self diagnosed) - I took our 4 yo off gluten on the advice of a friend whose son is autistic (ours is not) and I have seen a big improvement on his speech etc. So we all went gluten-free - I never thought I had any issues until after a few weeks of limited gluten I had a piece of bread and I got cramps and mucus - not pleasant. Went away after a few hours and was OK after that. No problems before this, no intestinal issues at all - the only hint was that I took Colon Cleanse pills once and thought I would die and after pregnancy they gave me another and the pain was unbearable then too, but this was years ago. No problems with dairy etc etc.

So after the bread incident, I knew to stay away from gluten but had a little here and there with no problems at all. Then a week ago and I go for sushi and have a milk-based drink and within a few hours my intestines are in knots and I vomit. Pain goes away after a few hours. Next day, no thinking it is milk, I have cereal late at night and a few hours later I have the same pain and vomit again. Next day I did no gluten and no dairy, and at night I had a big salad and within a few hours, my pain came back again but no vomiting.

Next day (Friday), I am weak and jittery and shaky - I figure eggs are safe so I have a couple of soft boiled eggs and within 30 minutes my stomach and intestines hurt - not like before - but they still hurt.

Then I went to the clinic and they tested for everything - they didn't think it was a food issue but thought staying off dairy would be a good idea...at this point I was convinced it was not food but a parasite or virus. Then the next day I eat a little sour cream and yogurt and no problems, so I think "OK, I can have dairy then" and so the next day I have a little ice cream with our son and then have cereal at night (this was last night) and I am screaming in pain again. The clinic thank god gave me some vicodin for the pain and this was the worst pain night yet, so I took some...

Then this morning I get a call from the clinic and there are no parasites, so now I am assuming it is the milk giving me the problems...I have no problems going off of dairy or wheat, but I need some help in figuring out what proteins I can have that are digested easily...Although I am overweight, I have a real problem with food - as in not eating enough calories and food is often unappetizing to me, so my go-to foods have always been centered around dairy. (When I was pregnant that is all I could eat was dairy)...

The last bit of info (thanks for reading so far!) is that I now have an appointment in 10 days with a GI specialist and in 1 month our son and I are going to an allergist who is also a DO for food allergy testing...Oh, and I am low thyroid and been in thyroxine for as long as I can remember...

Thanks everyone - any and all advice is welcome..

Tara

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

Wow - what a saga! Good question. I'm vegetarian and used to avoid all dairy, so I've looked into this.

The easiest protein-based food to digest is beans. When you cook them, add some kombu to the pot, if you can get ahold of it. Kombu is a seaweed that you should be able to get at a natural foods store such as a coop or Whole Foods. It helps break down the beans to make them even easier to digest.

Another idea is to make use of a vegetarian protein shake (I think the best are by Nature's Plus) and blend a scoop with some juice everyday. You can add a banana and other fruit too. They're really quite delicious, and you'll know you're getting the protein you need.

Link to comment
Share on other sites
Jestgar Rising Star

I would skip any shake made of soy. Soy can be very hard to digest also.

Stick with cooked veggies, no dairy. Do you eat meat? Chicken is pretty digestible.

Link to comment
Share on other sites
frieze Community Regular

make sure your gallbladder is checked out....

Link to comment
Share on other sites
conniebky Collaborator

my mom is VERY lactose intolerant. She can't have dairy, lactose or caseinate which all are just different words for dairy.

She has a terrible time with it, and I'll tell ya, sometimes she'll be in the powder room all day on Wednesday and swears she had no dairy and then she'll remember, oh, yeah, last Sunday we went to that new restaurant....something along those lines.

The dairy reaction doesn't always happen immediately. Sometimes it's days before the stuff hits the fan. I don't know if that helps, but I hope so. :)

Link to comment
Share on other sites
lucia Enthusiast

I would skip any shake made of soy. Soy can be very hard to digest also.

Stick with cooked veggies, no dairy. Do you eat meat? Chicken is pretty digestible.

The "Fruitein" line by Nature's Plus has a base that is a mix of rice, pea, and soy protein. They sell them in single-servings, if you wanted to try it out.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Bayb replied to Bayb's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Trying to read my lab results

    2. - Aussienae replied to Aussienae's topic in Coping with Celiac Disease
      65

      Constant low back, abdominal and pelvic pain!

    3. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    4. - trents replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?

    5. - mishyj replied to mishyj's topic in Coping with Celiac Disease
      3

      Why?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,219
    • Most Online (within 30 mins)
      7,748

    SoCalSuzy
    Newest Member
    SoCalSuzy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Bayb
      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
    • Aussienae
      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
    • trents
      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
    • trents
      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
×
×
  • Create New...