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Back Again (This Time For My 3 Year Old)

nw0528

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nw0528 Apprentice
nw0528
Posted

I was a member of this group about a year ago when I was being tested for celiac. My bloodwork and endoscopy/biopsies were all negative for celiac. However, there seems to be some level of gluten sensitivity, as when I reduce the amount of gluten in my diet, my GI symptoms (severe IBS) are considerably better.

Now, here I am back again, because my 3 year old son may have celiac.

In November, around his 3rd birthday, he started having large volumes of liquid stool each day (two - four PINTS of liquid stool) and making anywhere between 8 and 20 trips to the toilet each day. We did stool samples for parasites and bacteria (negative), eliminated milk, and then all dairy (no improvement), eliminated all juice and citrus fruits (no improvement) and did bloodwork and an xray. Unfortunately, at some point during this time, my son became slightly constipated and a ped. GI put him on laxatimes, which did not work and he ended up with a complete blockage four weeks ago which we resolved at home with enemas (followup xray shows blockage gone). He is being weaned off the laxatives the GI had him on and we are switching GIs because today, at our ped. appt. to discuss seasonal allergies and the ongoing GI issues, the ped. pulled out the bloodwork results (from MARCH) that the GI had sent him and said, What about this part of the celiac panel that came up positive for celiac??? HUH? the GI told me just last week the celiac bloodwork had been fine/negative. My ped. showed me the report and it said across from one number, "consider patient positive for celiac disease." All the other parts of the panel were fine. Could be lab error - at the very least we will be repeating it (when we get to our new GI).

So right now we are weaning off of the laxatives, and waiting for the new GI consult. If bloodwork again has a section that is positive for celiac, we will be going the endoscopy route to find out for sure.

I am sure I am going to have a lot of questions to be posting in the coming weeks.

Nicole

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      Trying to read my lab results

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      Hi Scott, yes I have had symptoms for years and this is the second GI I have seen and he could not believe I have never been tested. He called later today and I am scheduled for an endoscopy. Is there a way to tell how severe my potential celiac is from the results above? What are the chances I will have the biopsy and come back negative and we have to keep searching for a cause? 
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      Constant low back, abdominal and pelvic pain!

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      I agree christina, there is definitely many contributing factors! I have the pain today, my pelvis, hips and thighs ache! No idea why. But i have been sitting at work for 3 days so im thinking its my back. This disease is very mysterious (and frustrating) but not always to blame for every pain. 
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      "her stool study showed she had extreme reactions to everything achievement on it long course of microbials to treat that." The wording of this part of the sentence does not make any sense at all. I don't mean to insult you, but is English your first language? This part of the sentence sounds like it was generated by translation software.
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      Why?

      By trents · Posted

      What kind of stool test was done? Can you be more specific? 
    • mishyj
      Why?

      By mishyj · Posted

      Perhaps I should also have said that in addition to showing a very high response to gluten, her stool study showed that she had extreme reactions to everything achievement on it long course of microbials to treat that.
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