Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

First Signs Of Dh After Going Gf?
0

14 posts in this topic

I've felt "glutened" now for just over a week. I had severe stomach pain, and continue to have major brain fog, fatigue, dizziness, lack of energy, bloat, stomach "problems" ect... I haven't delibrately eaten gluten but I may be eating something that is contaminated (Or maybe I just had a single contamination... :unsure:). However, today out of no where I broke out in these itchy/mosquito/blister like things. I have two on my arm (upper and elbow), a whole bunch on my leg, and one on my neck... and they just keep appearing! I never had this while eating gluten before the diet and I was just wondering if anyone ever developed DH for the first time during an accident or a contamination on the gluten free diet? I'm just trying to figure out what these things are! :blink:

0

Share this post


Link to post
Share on other sites


Ads by Google:

I've been doing a lot of reading on DH in the last month, and from what I've read it sounds like a very few people can begin breaking out just after they go gluten-free. Not very common though, I would go to the doc and make sure it isn't something like impetigo or an allergic reaction to something else.

0

Share this post


Link to post
Share on other sites

I personally had DH before being gluten-free, so I didn't really do a whole lot of reading about it when I was researching celiac disease, other than to confirm that the rash I couldn't get rid of was in fact DH. But I do have something to add here.

My kids never had DH before going gluten-free. 2 months ago my husband (the only one NOT gluten-free in our house) decided to switch to ZOOM! whole wheat hot cereal for his breakfast. At about the same time he also relaxed on his kitchen skills and we got contaminated. After about a week of him eating this cereal and all of us being sick I convinced him to toss the cereal and he switched to grits (which are gluten-free). Now the point of my story is that what finally convinced him to stop is when my DH came back and he couldn't deny that I had been glutened (the digestive symptoms he passed off as a virus!), but even worse my daughter broke out with DH on her scalp. This is the first place I break out too, and it was very obvious to me that the bistery bumps on her head was DH. I wouldn't have thought you could suddenly develop it after being gluten-free, but maybe a large enough dose of gluten could trigger it. It takes more than a casual microscopic particle of gluten to trigger my DH (but not my digestive symptoms, those can't handle even the tiniest particle!). So it would have had to been a lot of repeat contamination over that week.

It would probably be a good idea to go to the doctor anyhow just to make sure...

And keep looking to see if there is something new that you have recently started using that has gluten, or something that might have changed their formula and added gluten.

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Thanks for your replies :)

I have had a few suspicions of things around my house being contaminated like my peanut butter for example, since I'm the only gluten-free person in my house (I'm trying to get to the bottom of it). I'm going to have to clearly label things from now on B) However, I have tried a new product in the last week that said gluten free/wheat free on the label... so maybe it is contaminated... ??

Or....I may be having an allergic reaction to something else... I sure hope not though ;) I'll have to go see my doc if I don't start feeling better soon though.

0

Share this post


Link to post
Share on other sites

Mariann- What does your daughter's DH on her scalp look like? Does is get scabby or is it more like little pimples ??

0

Share this post


Link to post
Share on other sites




They were raised blisters about 1/8 of an inch round, very itchy, a little bit reddish around the base and a liquidy center. To me it almost look like a large chickenpox blister. Here is a picture of a lot of DH blisters. Hers looked just like them, but only three blisters (that we could find) separated by inches on her scalp. They pop easily and then scab over.

http://wwwils.nlm.nih.gov/medlineplus/ency...llsize/1406.jpg

God bless,

Mariann

0

Share this post


Link to post
Share on other sites

Medaka,

I totally understand what your going through. Since being diagnosed with Celiac your so much more in tune with your body and know when your getting reactions from the bad stuff. What I have to do in my house is put printed labels with Mom's name on it or I get those color dots and tell everyone that they're off limits. Just think when you spread anything with a knife & you stick it back in the jar ex. peanut butter, mayo or mustard, your getting exposed. Get you a toaster just for you. I always tease my husband and tell him he's trying to make me sick on purpose. Hahaha. One of the things about DH is that you body is trying to get the exposure out of it quick. When this happens to me I drink lots of water eventhough I really feel bad and don't want any but it helps and I double up on my Reliv shakes which will push all those toxins out of your system.

0

Share this post


Link to post
Share on other sites

Eloisa, Thanks for your reply and for your advise.

My spots are almost gone and my symptoms are getting better. I ended up giving my peanut butter away to the rest of the family and buying a new one. I have clearly labeled the new peanut butter, mayo, and margerine! Hopefully this helps ;) And I eliminated that product that I just started eating just in case that was the problem.

0

Share this post


Link to post
Share on other sites

That's great. Peanut butter is a funny thing and we sometimes have problems just because its made from peanuts. I always have problems eating M&M peanuts and I always feel funny when I eat peanut butter.

Take care,

Eloisa

0

Share this post


Link to post
Share on other sites

are you allergic to peanuts?

0

Share this post


Link to post
Share on other sites

No, but sometimes I wish I was so I wouldn't eat so many of those good M&M's.

0

Share this post


Link to post
Share on other sites

This is an interesting thread... I've never had DH before, to my knowledge, and have been gluten-free for 18 months.

At about the same time I went gluten-free, monthly acne outbreaks became a problem. I'm not a vain person, I work with dogs, they don't care what I look like! :lol: However, the acne did start to scar my chin and it was also painful. I finally decided to start a topical treatment and began using a product called Clear Logix. It works quite well, but quite honestly I never checked with the manufacturer to see if it is gluten-free! :unsure:

Not long after I started using this, I developed an occasional blister (almost cold sore like) on my top lip. My doctor called it peri-oral dermatitis and prescribed a ridiculously expensive drug that I declined. Next visit she gave me samples of Rosasol which is gluten-free, but didn't do anything for me.

Is it possible that this little blister is DH? It doesn't hurt, itch, or last very long. It has appeared on occasion even after I stopped using the Clear Logix so I'm thinking that had nothing to do with it. I know it's not a cold sore, for some strange reason I'm immune to cold sores! :rolleyes:

Any suggestions?? I'm on the waiting list to see a dermatologist, however in the meantime my doctor prescribed the antibiotic Minocycline which unfortunately is not guaranteed gluten-free! :angry: Since the top side effect is diarhea I've decided not to try it since I wouldn't know if I was getting diarhea from the possible gluten, or the side effect! :blink:

So, any suggestions for the acne?? I'm in a wedding party next month and would love to get a handle on it! Also, any suggestions on my little blister? Does it sound like it could be DH?

Carriefaith, I found it helpful to label my cupboards at home too! I have SAFE cupboards for the things we share that are gluten-free, gluten-free Products ONLY cupboard to help me keep track of my inventory of specialty foods, and a NOT SAFE cupboard for my hubby's stuff! For margarine, we use completely different brands, so there isn't any mix up, lids getting swapped etc. I have also gone to squeeze bottles for mayo and such to eliminate contamination from spoons and knives going into the bottles.

Hope this helps you! :)

0

Share this post


Link to post
Share on other sites

I think that it is possible that the Clear Logix may have had gluten and caused the blister. For acne, I've of people using birth control pills to control their bad acne. Just a suggestion :)

Thanks for the info! I try and keep my stuff separated in cupboards, but it's hard when you're living with people who eat gluten! I just recently bought a squeeze mayo bottle too! I thought that would help if someone accidently used mine instead of theirs!

0

Share this post


Link to post
Share on other sites

I sometimes get DH blisters on my face. They are like little pimples, but the top layer of skin sort of sloughs off. They don't really hurt, They heal very quickly. The blisters are most often on my forehead and close to my hairline. I don't use anything on them except astringent to dry them up. As for the squeeeze bottles: don't forget jelly. I don't share any jars with the rest of my family.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined