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First Signs Of Dh After Going Gf?
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I've felt "glutened" now for just over a week. I had severe stomach pain, and continue to have major brain fog, fatigue, dizziness, lack of energy, bloat, stomach "problems" ect... I haven't delibrately eaten gluten but I may be eating something that is contaminated (Or maybe I just had a single contamination... :unsure:). However, today out of no where I broke out in these itchy/mosquito/blister like things. I have two on my arm (upper and elbow), a whole bunch on my leg, and one on my neck... and they just keep appearing! I never had this while eating gluten before the diet and I was just wondering if anyone ever developed DH for the first time during an accident or a contamination on the gluten free diet? I'm just trying to figure out what these things are! :blink:

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I've been doing a lot of reading on DH in the last month, and from what I've read it sounds like a very few people can begin breaking out just after they go gluten-free. Not very common though, I would go to the doc and make sure it isn't something like impetigo or an allergic reaction to something else.

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I personally had DH before being gluten-free, so I didn't really do a whole lot of reading about it when I was researching celiac disease, other than to confirm that the rash I couldn't get rid of was in fact DH. But I do have something to add here.

My kids never had DH before going gluten-free. 2 months ago my husband (the only one NOT gluten-free in our house) decided to switch to ZOOM! whole wheat hot cereal for his breakfast. At about the same time he also relaxed on his kitchen skills and we got contaminated. After about a week of him eating this cereal and all of us being sick I convinced him to toss the cereal and he switched to grits (which are gluten-free). Now the point of my story is that what finally convinced him to stop is when my DH came back and he couldn't deny that I had been glutened (the digestive symptoms he passed off as a virus!), but even worse my daughter broke out with DH on her scalp. This is the first place I break out too, and it was very obvious to me that the bistery bumps on her head was DH. I wouldn't have thought you could suddenly develop it after being gluten-free, but maybe a large enough dose of gluten could trigger it. It takes more than a casual microscopic particle of gluten to trigger my DH (but not my digestive symptoms, those can't handle even the tiniest particle!). So it would have had to been a lot of repeat contamination over that week.

It would probably be a good idea to go to the doctor anyhow just to make sure...

And keep looking to see if there is something new that you have recently started using that has gluten, or something that might have changed their formula and added gluten.

God bless,

Mariann

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Thanks for your replies :)

I have had a few suspicions of things around my house being contaminated like my peanut butter for example, since I'm the only gluten-free person in my house (I'm trying to get to the bottom of it). I'm going to have to clearly label things from now on B) However, I have tried a new product in the last week that said gluten free/wheat free on the label... so maybe it is contaminated... ??

Or....I may be having an allergic reaction to something else... I sure hope not though ;) I'll have to go see my doc if I don't start feeling better soon though.

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Mariann- What does your daughter's DH on her scalp look like? Does is get scabby or is it more like little pimples ??

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They were raised blisters about 1/8 of an inch round, very itchy, a little bit reddish around the base and a liquidy center. To me it almost look like a large chickenpox blister. Here is a picture of a lot of DH blisters. Hers looked just like them, but only three blisters (that we could find) separated by inches on her scalp. They pop easily and then scab over.

http://wwwils.nlm.nih.gov/medlineplus/ency...llsize/1406.jpg

God bless,

Mariann

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Medaka,

I totally understand what your going through. Since being diagnosed with Celiac your so much more in tune with your body and know when your getting reactions from the bad stuff. What I have to do in my house is put printed labels with Mom's name on it or I get those color dots and tell everyone that they're off limits. Just think when you spread anything with a knife & you stick it back in the jar ex. peanut butter, mayo or mustard, your getting exposed. Get you a toaster just for you. I always tease my husband and tell him he's trying to make me sick on purpose. Hahaha. One of the things about DH is that you body is trying to get the exposure out of it quick. When this happens to me I drink lots of water eventhough I really feel bad and don't want any but it helps and I double up on my Reliv shakes which will push all those toxins out of your system.

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Eloisa, Thanks for your reply and for your advise.

My spots are almost gone and my symptoms are getting better. I ended up giving my peanut butter away to the rest of the family and buying a new one. I have clearly labeled the new peanut butter, mayo, and margerine! Hopefully this helps ;) And I eliminated that product that I just started eating just in case that was the problem.

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That's great. Peanut butter is a funny thing and we sometimes have problems just because its made from peanuts. I always have problems eating M&M peanuts and I always feel funny when I eat peanut butter.

Take care,

Eloisa

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are you allergic to peanuts?

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No, but sometimes I wish I was so I wouldn't eat so many of those good M&M's.

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This is an interesting thread... I've never had DH before, to my knowledge, and have been gluten-free for 18 months.

At about the same time I went gluten-free, monthly acne outbreaks became a problem. I'm not a vain person, I work with dogs, they don't care what I look like! :lol: However, the acne did start to scar my chin and it was also painful. I finally decided to start a topical treatment and began using a product called Clear Logix. It works quite well, but quite honestly I never checked with the manufacturer to see if it is gluten-free! :unsure:

Not long after I started using this, I developed an occasional blister (almost cold sore like) on my top lip. My doctor called it peri-oral dermatitis and prescribed a ridiculously expensive drug that I declined. Next visit she gave me samples of Rosasol which is gluten-free, but didn't do anything for me.

Is it possible that this little blister is DH? It doesn't hurt, itch, or last very long. It has appeared on occasion even after I stopped using the Clear Logix so I'm thinking that had nothing to do with it. I know it's not a cold sore, for some strange reason I'm immune to cold sores! :rolleyes:

Any suggestions?? I'm on the waiting list to see a dermatologist, however in the meantime my doctor prescribed the antibiotic Minocycline which unfortunately is not guaranteed gluten-free! :angry: Since the top side effect is diarhea I've decided not to try it since I wouldn't know if I was getting diarhea from the possible gluten, or the side effect! :blink:

So, any suggestions for the acne?? I'm in a wedding party next month and would love to get a handle on it! Also, any suggestions on my little blister? Does it sound like it could be DH?

Carriefaith, I found it helpful to label my cupboards at home too! I have SAFE cupboards for the things we share that are gluten-free, gluten-free Products ONLY cupboard to help me keep track of my inventory of specialty foods, and a NOT SAFE cupboard for my hubby's stuff! For margarine, we use completely different brands, so there isn't any mix up, lids getting swapped etc. I have also gone to squeeze bottles for mayo and such to eliminate contamination from spoons and knives going into the bottles.

Hope this helps you! :)

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I think that it is possible that the Clear Logix may have had gluten and caused the blister. For acne, I've of people using birth control pills to control their bad acne. Just a suggestion :)

Thanks for the info! I try and keep my stuff separated in cupboards, but it's hard when you're living with people who eat gluten! I just recently bought a squeeze mayo bottle too! I thought that would help if someone accidently used mine instead of theirs!

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I sometimes get DH blisters on my face. They are like little pimples, but the top layer of skin sort of sloughs off. They don't really hurt, They heal very quickly. The blisters are most often on my forehead and close to my hairline. I don't use anything on them except astringent to dry them up. As for the squeeeze bottles: don't forget jelly. I don't share any jars with the rest of my family.

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    • So far I've had no problems with gluten-free Cherrios and I've been eating them since they started producing the gluten-free line. Generally I will have some reaction to gluten if there is contamination in the product I'm eating. But I'm sure someone has gotten a bad batch or is simply very sensitive to trace amounts of gluten. It's up to each individual to decide whether you want to chance trying them. The article mentioned by squirmingitch sheds light on the problem with anything listed as gluten-free. Contamination can occur at any point in the harvest or processing, and testing may miss it. I also eat Chex, Nature's Path cereals and have tried other brands w/o any problems. I do miss gluten-free Rice Krispies, they made for a nice addition to meat loaf, shame they discontinued the item.
    • Here is another point.  My hubby went gluten-free per the poor advice of his GP and my allergist.  It worked.  A tough first year, but he got well.  Thirteen years later, I got diagnosed with celiac disease.  I was shocked!  😱.   Does he have celiac disease?  We will never know because we can not afford to have him do a challenge.  He refuses and I can not blame him.  He knows he will be very sick!   The point?  I am so lucky that we both can not have gluten.  I never worry about him making me sick or vice versa. We made the house completely gluten free for  1) our health and 2) the fact that our kid started helping in the kitchen. Kids make mistakes and I personally need a safe haven.  She wants gluten?  I buy prepackaged stuff and she takes it to school.  All parties and events at my house are gluten free.  Lots of work, but we stay healthy.  She does not have celiac disease.  When she is preparing for a celiac test,  I send her on the porch to eat cookies or bread or whatever floats her boat.  We travel in a gluten-free RV.  I have five sizes of ice chests.  We just have to be prepared for any event.   How can we live this way?   We love feeling good.
    • Freize is right, you need to think about your environment.   Based on that a study I posted for you, you will note that the patients who were diagnosed with refractory celiac disease and THOUGHT they were diet compliant found that they WERE NOT diet compliant.  How is this possible?   This is way out there, but unless you are growing all your own food, you don't really know if it is gluten free.  In the US, we do have laws to help protect our food supplies (no perfect, but a start).    I can not speak for India.  For example, what about your soy?  It can be contaminated by the farmer as it is often rotated with wheat.  Here is an article by Jane Anderson who has celiac disease.  She is very strict as she has DH (celiac rash), but she cites Trisha Thompson who tests foods for gluton contamination, The gluten-free WatchDog (like Consumer reports).  She found that soy which is naturally gluten free, but can be cross contaminated by wheat: https://www.verywell.com/is-soy-gluten-free-562371 so, start thinking about your food supply. As far as a negative TTG IGA or TTG IGG?  I test negative to both.  Only the DGP IGA has ever been elevated in my blood tests (even repeats), yet I had a Marsh Stage IIIIB on my biopsy.  Have you had a DGP IGG?  (I do not see this in your posting).   http://www.cureceliacdisease.org/screening/ These additonal celiac tests might help you feel confident that you have celiac disease and not something else that is damaging your villi.  But remember, some  folks have celiac disease even with negative blood.  I am not IGA deficient, so this is an area I have not researched.  Not to mention that some celiac researchers do not think that the celiac  antibodies tests are good for diet compliancy.   I wish I had better answers for you.  Try a grain free, whole foods diet of meats, fish, eggs, and vegetables for a while.  All food prepared by you. Who cooks your food now?  Is your home gluten free?  Cross contamination at home?  Kissing a loved one.  We had a doctor with celiac disease who was getting glutened by her little children who were consuming gluten!  
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