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Hi everyone, I just stumbled across this sight today and joined up. I was diagnosed with celiac disease around 2 years ago. I was 24 years old when I was diagnosed, and needless to say it was a shock. I am 6'2" and was always very skinny despite the fact that I ate everything in sight. The weeks prior to me being diagnosed I was loosing weight very rapidly, I got down to 119 lbs. Long story short, I have been very strict about my food intake, and currently weigh 210 pounds. I look forward to being a participant on this board. From the few posts that I have read so far it looks like there are some people on here with a very good understanding of being a celiac.

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Hello

I just joined too. I found almost 2 weeks ago that I have celiac disease, and have been on the gluten-free diet now since 2-23-04. (Just starting.) I already feel better.

I have noticed that people say different things on different boards, about what is safe and what is not. It's kind of frustrating for a newly diagnosed person! At first I thought I couldn't have any soda that is brown colored because of the caramel coloring, but companies like Coca Cola and Pepsi say they are gluten-free.

It gets easier as I learn what is safe and what is not. I carry a binder with me when I go shopping, and have to keep looking things up on my lists!

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Welcome Taylor and Blackheartedwolf!!!

We are glad you found us :D This is a wonderful place filled with a lot of information!

I am glad to hear that the both of you are feeling better on the gluten-free diet! I know I could tell a difference within just a couple of days, it was AMAZING! I never knew that something called "gluten" could cause that much abdominal pain and other symptoms!

I thought I would share a few links that have been helpful to me over the last 6 months, I hope they are helpful to you as well....

Mainstream gluten-free products

celiac disease Support Groups

What it's like having celiac disease

Kinnikinnick Foods - which has wonderful gluten-free bread and bagels!!!!!

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I too felt better almost instantly. I was very worried at first that I was not going to be able to eat anything. I found out pretty quick that my diet did not have to be changed too drastically. I am a meat and potatoes guy anyway, so my diet stays pretty bland. I travel quite a lot, so that was a challenge at first. I always try to find an Outback Steakhouse close to my hotel when I am out of town. I like that they have a special gluten free menu. I don't eat any fast food just to stay on the safe side. If I go to a fancier retaraunt I just talk to the chef, and they are always able to accomidate you.

Blackheartedwolf- I don't drink a lot if pop, but I was glad to see I could still drink the kinds I like. I am not sure if Pepsi products are gluten free. I know most of the Coke products are.

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Hi,

I especially like the sodas I drink, and wonder if perhaps drinking certain sodas is something that each person has to test out themselves, just to see how they react?

I have learned that I can drink Diet Rite Raspberry soda, Diet Caffeine Free Dr. Pepper, A&W Diet Root Beer, and Canfield's Diet Chocolate Soda (which is really a blessing because milk chocolate is on my list of forbidden foods).

There may be others which I could tolerate, but those are the ones I've chosen so far. I've had Celiac for the past 51 years, so have had a lot of time to test certain foods out. I've learned that all grains, milk, dairy, casein, whey, egg whites, and yeast get to me.

Hope you all thrive on your new diets! Welda

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ToBlackheartedwolf. My son and I are working on wireless site http://www.safetoeat.net so you can leave your binder home. It is free and can be used on any web enabled cell phone. The database is constantly growing as I am working on it in my spare time. Good Luck!

KathyB

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Hi. I'm new to the site. I have been searching for any help and support for gluten intloerance, and instead found problem intolerance! No one wants to know or help! I hope I can find what I need here. Since going gluten-free on Valentine's Day, my health has drastically improved, so I am not going back!

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I have been reading and reading and reading, and decided that I love this site! I learned that Pria bars are not gluten-free, (but too late, I already ate several before learning) and that others have the same frustrations and problems. Thank you for being here! :rolleyes:

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    • Welcome!   You were smart to think about cross contamination.  Although it is great that there are so many gluten-free options out there, in the beginning it is best to try a whole foods diet, until your son feels a bit better.  The learning curve for the gluten-free diet is steep.  It is better for you to get everything down before letting others feed him.   When I was diagnosed, my hubby had been gluten free for 12 years.  I thought I knew the drill and converted right over to those gluten-free goodies I baked him.  Turned out, like many of us, I had some food inolerances not related to gluten but as a result of gut damage.  So, additives like Xantham gum made me think I was getting glutened, but I was not.  So, again, try to stick to naturally gluten free foods that are less processed for a while.  When you do venture out, I use "find me gluten free" and read the reviews from celiacs (not a person who thinks gluten-free is a way to lose weight! )   Here are some great tips from out Newbie 101 thread:  
    • I have the same problem. Was told it was psoriasis but no treatments worked even injections. I was daignosed celiac in may, and noticed a year ago the palm of my hand would itch intensely then get small blisters. I believe they are both dh. Have been gluten-free since diagnosis but still have issues with both areas. Thankful digestive issues cleared but would love to know how long before they clear up? I hope we both get feed back and best wishes to you!
    • Yes it most certainly could be a false negative, and I would bet you a dozen donuts that it is (gluten free, of course.   )  At the very least you can be sure it is related to gluten.  These gluten rashes take forever to clear up.  I don't know about you, but whenever I start to doubt my gluten intolerance, I just look at my skin, and the old blood stains on my sheets, and I am reassured that it's not all in my head, and I need to avoid gluten as if it were a bucket of battery acid.
    • Hello, My fiance and I are going to Singapore for our honeymoon next year and I was wondering if anyone knew any cafes/restaurants etc that have gluten-free dishes? We previously went two years ago and enjoyed ourselves so much that we definitely wanted to go back our our honeymoon. Catch is I got diagnosed as being gluten intolerant a few months ago, negative for Coeliac though. If I eat gluten I have bad nausea, bloating, diarrhea etc. Not pretty for a honeymoon :-) I am more than happy to eat fruit at breakfast and make do with steamed rice at dinner etc but if anyone has any ideas on anywhere I can safely eat that would be much appreciated. I don't care how much it costs! Also is it possible for me to bring packaged gluten-free food into Singapore from Australia? I am not sure on the rules. Thank you!!
    • Went in and talked to the manager of our pm and asked about the gluten free pizza, and he told me he can't guarantee its 100% gluten free because of the flour in the air from the other crusts being made.  I value the honesty.   The other employee also mentioned changing gloves.   I was thinking wow great, until I walked out and got to thinking about cross contamination from everyone grabbing the toppings out of the same bins and spreading the sauce with the same utensils.    My son was just diagnosed this week so we are new to the whole lifestyle.   So any help or info is greatly appreciated.    Thanks  
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