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Hi everyone, I just stumbled across this sight today and joined up. I was diagnosed with celiac disease around 2 years ago. I was 24 years old when I was diagnosed, and needless to say it was a shock. I am 6'2" and was always very skinny despite the fact that I ate everything in sight. The weeks prior to me being diagnosed I was loosing weight very rapidly, I got down to 119 lbs. Long story short, I have been very strict about my food intake, and currently weigh 210 pounds. I look forward to being a participant on this board. From the few posts that I have read so far it looks like there are some people on here with a very good understanding of being a celiac.

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Hello

I just joined too. I found almost 2 weeks ago that I have celiac disease, and have been on the gluten-free diet now since 2-23-04. (Just starting.) I already feel better.

I have noticed that people say different things on different boards, about what is safe and what is not. It's kind of frustrating for a newly diagnosed person! At first I thought I couldn't have any soda that is brown colored because of the caramel coloring, but companies like Coca Cola and Pepsi say they are gluten-free.

It gets easier as I learn what is safe and what is not. I carry a binder with me when I go shopping, and have to keep looking things up on my lists!

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Welcome Taylor and Blackheartedwolf!!!

We are glad you found us :D This is a wonderful place filled with a lot of information!

I am glad to hear that the both of you are feeling better on the gluten-free diet! I know I could tell a difference within just a couple of days, it was AMAZING! I never knew that something called "gluten" could cause that much abdominal pain and other symptoms!

I thought I would share a few links that have been helpful to me over the last 6 months, I hope they are helpful to you as well....

Mainstream gluten-free products

celiac disease Support Groups

What it's like having celiac disease

Kinnikinnick Foods - which has wonderful gluten-free bread and bagels!!!!!

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I too felt better almost instantly. I was very worried at first that I was not going to be able to eat anything. I found out pretty quick that my diet did not have to be changed too drastically. I am a meat and potatoes guy anyway, so my diet stays pretty bland. I travel quite a lot, so that was a challenge at first. I always try to find an Outback Steakhouse close to my hotel when I am out of town. I like that they have a special gluten free menu. I don't eat any fast food just to stay on the safe side. If I go to a fancier retaraunt I just talk to the chef, and they are always able to accomidate you.

Blackheartedwolf- I don't drink a lot if pop, but I was glad to see I could still drink the kinds I like. I am not sure if Pepsi products are gluten free. I know most of the Coke products are.

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Hi,

I especially like the sodas I drink, and wonder if perhaps drinking certain sodas is something that each person has to test out themselves, just to see how they react?

I have learned that I can drink Diet Rite Raspberry soda, Diet Caffeine Free Dr. Pepper, A&W Diet Root Beer, and Canfield's Diet Chocolate Soda (which is really a blessing because milk chocolate is on my list of forbidden foods).

There may be others which I could tolerate, but those are the ones I've chosen so far. I've had Celiac for the past 51 years, so have had a lot of time to test certain foods out. I've learned that all grains, milk, dairy, casein, whey, egg whites, and yeast get to me.

Hope you all thrive on your new diets! Welda

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ToBlackheartedwolf. My son and I are working on wireless site http://www.safetoeat.net so you can leave your binder home. It is free and can be used on any web enabled cell phone. The database is constantly growing as I am working on it in my spare time. Good Luck!

KathyB

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Hi. I'm new to the site. I have been searching for any help and support for gluten intloerance, and instead found problem intolerance! No one wants to know or help! I hope I can find what I need here. Since going gluten-free on Valentine's Day, my health has drastically improved, so I am not going back!

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I have been reading and reading and reading, and decided that I love this site! I learned that Pria bars are not gluten-free, (but too late, I already ate several before learning) and that others have the same frustrations and problems. Thank you for being here! :rolleyes:

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    • I eat them with no issues and know several other Celiacs that eat them with no issue.
    • I am sorry that you are sick! i think you need to really adhere to a gluten free diet that consists of ONLY whole foods (no processed gluten-free foods) and do not go out to eat, until you start to see improvement.  Each tiny gluten exposure can set you back.  It sounds like you really became even more ill after the gluten challenge.   I was just anemic when diagnosed.  I waited seven weeks for my endoscopy due to work issues, so i took the time to consume lots of gluten.  Like a loaf of sourdough per day not to mention all the cakes, cookies that I loved.  (Okay, I just ate a few out of each package......)  by the end of seven weeks, I knew I had celiac disease.  I had a bloated stomach visible under my left rib cage, pinching when I bent over, indigestion, etc.  Not to mention some weird Fibro pain my my shoulders, tingly legs, etc.   Most resolved, but it took about two years. If you  ask for thyroid panel, be sure it includes testing for thyroid antibodies.   
    • My daughter, who is almost 21 and has celiac disease, was diagnosed with Epilepsy a year ago. Hindsight being 20/20, we realized she had been having seizure since she was a teenager but the random passing out and feelings of being 'out of it' were attributed to dehydration or poor nutrition and sleep habits during numerous trips to the emergency room. In our reading about Epilepsy, I have found some mention of celiac and gluten issue connections and even where a strict adherence to a gluten-free diet provided a lot of improve the with frequency and severity of seizures.  I would be interested to know if anyone else shares this experience.
    • I have also reacted to various Planters products, believing them to be safe because gluten is not listed in the allergens but have had almost identical reactions to yours.  It did not occur to me that I might be getting zapped from them until just recently when I ate some of their Salt and Vinegar almonds and became really ill and then recognized that I had reacted to them before. I have notice in the past few months that the 'Hermans' brand nuts, which have never mentioned wheat in their allergens now carries the 'processed in a plant that processes wheat' disclaimer.  It makes me wonder if all nuts are processed in the same manner and if all nuts and nut products should be considered unsafe? I know that I will not trust the Planters brand any longer regardless of whether wheat is listed or not.
    • I've heard some people say that they're gluten free, and some say they're not.. I had a container of planter's cashews that I ate a few days ago and I haven't been feeling that great since then. I thought I was fine, but yesterday I woke up with a headache and was feeling really gassy all day. Then since last night, every once in a while I'll have some stomach cramps. They last for a few minutes and then go away.. that has happened 3 or 4 times since last night. It seems weird that I wouldn't have a reaction right away though.. or at least within a few hours of eating them. I ate some on thursday and on friday, and I didn't really start to feel sick until saturday. It's been a while since I last got glutened though, so maybe my reaction has changed? Or maybe I'm being paranoid and I just ate too many cashews haha. But that's the only thing I've eaten in the past like 2 weeks that was different. Has anyone else had a problem with planter's nuts?
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