Very Strange/scary Sleep 'tremors'
Posted 06 June 2010 - 05:23 PM
Posted 06 June 2010 - 06:17 PM
Celiac.com - Celiac Disease Board Moderator
Someone told me I was delusional. I almost fell off my unicorn.
Posted 06 June 2010 - 07:15 PM
I haven't had it happen since high school, but it was very frightening. I don't remember if I had the vibrating, but everything else you described was exactly what happened to me.
When I would tell my mom what happened she thought I was just dreaming or something, but I know that it really happened and she believes me now. If I were you I would make an appointment with a doctor right away.
Please let me know if you figure anything out. I had just been thinking about this a couple of weeks ago and wondered if it could have been the gluten thing that had been undiagnosed.
I hope you find out what's going on, because I know from experience how scary it is.
Posted 06 June 2010 - 08:12 PM
Start here and you can find much information online. See if this matches up to what you're experiencing.
2010-Doctor diagnosed me as Celiac then took diagnoses back, then said avoid gluten for life
2009 – Low T3 thyroid hormone, muscle twitching and adrenal fatigue
2006- Elevated Speckled ANA. GI suggested Celiac. Started gluten-free diet, but sloppily
2005 - Thought I had wheat "allergy." Stopped eating bread, oats problem too
College years - Still vegan -sickest point in life. Every classic celiac symptom
Teenage years - Stomach pain prompted veganism -> BIG mistake!
Child - Awful gas, D, C. Chronic infections, appendix and tonsils removed
Posted 06 June 2010 - 08:12 PM
I thought it might be connected to a combination of meds I was taking - a muscle relaxant and a valium at bedtime for sleep, so cut out the muscle relaxant, and it didn't happen again, but it was scary stuff, because I was by myself, staying in my mom's house while she was in hospital with terminal cancer.
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 07 June 2010 - 09:46 AM
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas!
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk!
Posted 07 June 2010 - 07:16 PM
I have had this happen a lot and it continued (even got worse in some ways) after being diagnosed. It feels to me almost like an electric current is running through my body. It is (for me) adrenal caused. Soy triggers it also, probably because soy triggers an adrenaline rush with the panic attacks. I'm being treated for borderline extreme adrenal fatigue, and I was convinced it was mostly all in my head so I stopped the treatments for two months. I'm back on them.
Wow! So comforting to hear. Thank you very much. I went to Urgent Care today and the doctor I saw didn't even know what Celiac Disease was. He said, "You've been diagnosed for a while, you should know how going off the diet will effect you." I was so frustrated! And, I was only diagnosed in February... Anyway, thanks so much!
Posted 17 June 2010 - 08:58 AM
I was diagnosed with celiac disease about 5 months ago and have been trying my hardest to be gluten free since then. I have had a few times where I have accidently ingested gluten and paid for it, but lately I'm not sure what's going on. I ate at a lot of restaurants the past week because my friend was visiting, and since she left I have done nothing but sleep for the past 3 days. However, while I sleep I have been having this crazy feeling that I can only describe as a seizure... although I have never had one I would imagine it would be like this. I am awake but cannot move at all and cannot speak. My insides feel like they are vibrating from my chest to my head and I can't move. I can HEAR the vibration inside me. The worst part is, I want so badly to be able to scream for help and/or nudge my sleeping boyfriend. I am worried, and really not even sure if this is related to celiac or not. Has this happened to anyone else? Or does anyone know what this could be called?
Chele8198, I signed up just so I could reply to this! I have had the exact same thing occur to me on many occasions, it was scary the first time, not so much anymore because I can overcome the paralysis if I focus my mind enough. Basically, what you just described is part of what is referred to as "out-of-body" experiences by new age types. Some of us like to just "pop out" of our bodies while sleeping and wander the universe in spirit form (seeing, feeling or hearing other beings while in this state is also common), usually not aware of doing so or remembering what we do. Some people do remember where they go, and can do this consciously, whenever they want to. What you felt is what happens afterwards, as your soul is coming back into your body--I call it "settling back in" and it is a strong vibrating sensation in chest/abdomen area mostly accompanied by inability to move or speak. Once you are "back in" fully you can move and speak normally again. This is a very typical sensation amongst out-of-body travelers.
I am not at all certain it has anything to do with gluten nor that it is a disorder of any sort, although it certainly can be scary at first. It may be indirectly related, due to heightened sensitivity of nervous system from glutening... or even insomnia, as I suspect most people sleep through this without any recall.
On some occasions I have been able to interact with other beings--notably friendly animal spirits, who were definitely not in this physical plane of reality---while in this state. It is weird, true, but imo not dangerous.
I know others who have experienced it also--if they don't like it, usually they can just ask their angels or god to make it stop and it does. Again this makes me doubt that it is gluten, or only gluten, that causes it.
So I know that sounds all very woo-woo and all, and I hope everyone out there doesn't go into judgment over this, just thought you might want a different perspective on it.
Thanks to everyone for sharing. I have been gluten-free for 4 months with excellent results, self-diagnosed at age 45, your posts are helping me get it all sorted out, diet-wise.
Posted 17 June 2010 - 10:10 AM
I never really thought about it because, so far, it hasn't been REALLY scary. I have had panic attacks in my sleep which really stinks because you know you're having one, but can't wake up out of it. Apparently this is more common (panic attacks while sleeping) in African Americans, but I'm Irish. Go figure!
I just did a little research on it and read about sleep paralysis and that's what it sounds like. It recommends good diet, regular sleeping schedule, no alcohol, keep stress at a minimum (easy for them to say!).
Can you keep a daily journal of what you eat, when/how much you exercise, any stresses and see if there is some relationship. Doing this has always helped me figure out what causes what.
Regardless, I hope it ends and you feel better soon!
Gluten free since 2005
In the midst of winter, I found there was within me an invincible summer.
Posted 01 July 2010 - 09:51 AM
Posted 01 July 2010 - 02:10 PM
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Posted 01 July 2010 - 02:43 PM
Inconclusive Blood Tests, Positive Dietary Results, No Endoscopy
G.F. - September 2003; C.F. - July 2004
Hiker, Yoga Teacher, Engineer, Painter, Be-er of Me
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