Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Borland-Grover Clinic Said Ok To Be Off Gluten And Get Tested


Not2sure

Recommended Posts

Not2sure Rookie

I'm a newbie trying to figure out what to do. I've experienced diarrhea for a few months now along with greasy/oily stool, and have lost weight, which I didn't need to do. I've had fecal fat, bacteria and parasite testing done on my stool and they all came back normal. So the Doctor's PA and I spoke about the possibility of Celiac Disease and she's ordered blood work to test for it. The doctor's assistant and I spoke today as I wanted to know what type of test would be ordered and she said that it's a test for Celiac and that they draw blood, freeze and send to a lab in South Florida to be tested. I asked her if it would matter that I'd been off of gluten for about 2 weeks and she said no, it wouldn't matter.

So I'm confused as I've read on the forum that a person should be on gluten when getting tested. I want to know what others think. She said that they test for antibodies and if I have them they would show up whether I've eaten gluten or not.

Let me know what you think, so that I have a clear understanding of what to do before I get tested.

I also wanted to say that my bowels have cleared up tremendously since getting off gluten with no diarrhea and no obvious oil in my stool.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I'm a newbie trying to figure out what to do. I've experienced diarrhea for a few months now along with greasy/oily stool, and have lost weight, which I didn't need to do. I've had fecal fat, bacteria and parasite testing done on my stool and they all came back normal. So the Doctor's PA and I spoke about the possibility of Celiac Disease and she's ordered blood work to test for it. The doctor's assistant and I spoke today as I wanted to know what type of test would be ordered and she said that it's a test for Celiac and that they draw blood, freeze and send to a lab in South Florida to be tested. I asked her if it would matter that I'd been off of gluten for about 2 weeks and she said no, it wouldn't matter.

So I'm confused as I've read on the forum that a person should be on gluten when getting tested. I want to know what others think. She said that they test for antibodies and if I have them they would show up whether I've eaten gluten or not.

Let me know what you think, so that I have a clear understanding of what to do before I get tested.

I also wanted to say that my bowels have cleared up tremendously since getting off gluten with no diarrhea and no obvious oil in my stool.

You need to be on a full out gluten diet for the test to yield an accurate result. I'm not sure how much healing you would have done in only 2 weeks--symptom improvement isn't always in line with actual intestinal healing.

You have already done a perfectly valid test with your own body, in that your symptoms improved greatly after cutting out gluten. You could just take that for your answer and stay gluten-free. If you feel you want an official diagnosis I would suggest postponing the test and going back on gluten for a month at the rate of 3-4 slices of bread a day. I'm sure that the thought of making yourself sick all over again sounds awful and I would agree.

It's a personal decision about which way to go.

Link to comment
Share on other sites
siglfritsch Newbie

You need to be on a full out gluten diet for the test to yield an accurate result. I'm not sure how much healing you would have done in only 2 weeks--symptom improvement isn't always in line with actual intestinal healing.

You have already done a perfectly valid test with your own body, in that your symptoms improved greatly after cutting out gluten. You could just take that for your answer and stay gluten-free. If you feel you want an official diagnosis I would suggest postponing the test and going back on gluten for a month at the rate of 3-4 slices of bread a day. I'm sure that the thought of making yourself sick all over again sounds awful and I would agree.

It's a personal decision about which way to go.

I agree. I was tested after being off gluten for 3 weeks and everything came back negative, although, like you my stools finally were normal. It used to be I could see everything I ate the day before in my stool, so much undigested food and the stool was light tan colored. My doc said the same thing, that not a lot of healing would happen in 3 weeks, but according to a Dr. Green's book on celiac you have to eat the equivilant of 4 pieces of bread for 1-3 months right up to the test. My results were negative but now I'll always wonder if it was an accurate test. A huge waste of 400 bucks and I'm not repeating them. Even if it still came back negative after re-testing I would'nt eat gluten because it makes me sick, so what's the point? The really one positive thing about having celiac is that you can eat what you want, yot can treat yourself and don't have to have a docs prescription for anything.

Link to comment
Share on other sites
O.N. Rookie

I'm a newbie trying to figure out what to do. I've experienced diarrhea for a few months now along with greasy/oily stool, and have lost weight, which I didn't need to do. I've had fecal fat, bacteria and parasite testing done on my stool and they all came back normal. So the Doctor's PA and I spoke about the possibility of Celiac Disease and she's ordered blood work to test for it. The doctor's assistant and I spoke today as I wanted to know what type of test would be ordered and she said that it's a test for Celiac and that they draw blood, freeze and send to a lab in South Florida to be tested. I asked her if it would matter that I'd been off of gluten for about 2 weeks and she said no, it wouldn't matter.

So I'm confused as I've read on the forum that a person should be on gluten when getting tested. I want to know what others think. She said that they test for antibodies and if I have them they would show up whether I've eaten gluten or not.

Let me know what you think, so that I have a clear understanding of what to do before I get tested.

I also wanted to say that my bowels have cleared up tremendously since getting off gluten with no diarrhea and no obvious oil in my stool.

I was gluten-free for almost 2 months when my celiac blood test was done. It was my BIG mistake to let them do the test. I had doubts about it, but my doctor was sure that such a short period of time wouldn

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,181
    • Most Online (within 30 mins)
      7,748

    KarolRmz
    Newest Member
    KarolRmz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      That's a good idea. It can at least establish the potential for developing celiac disease and can help people decided between a celiac diagnosis and NCGS (Non Celiac Gluten Sensitivity). And it doesn't require a gluten challenge and can be had without a doctor's prescription.
    • awright24
      I have my endoscopy on Thursday, has anyone had the procedure done with a cough? I don't have a continuous cough, but every now and then throughout the day I have sort of coughing episodes. They are a lot better than they were but I called endoscopy and they said to speak to my gp and my gp got back to me and said I need to ask endoscopy if its ok if I have it done still.  Help!
    • MMH13
      Thank you so much, everyone. For the moment my doctor just has me taking iron but hopefully we can reconnect soon. I'm going to look into genetic testing, too. Great advice all around and I appreciate it--and you can bet I'm going off the PPIs!
    • Eldene
      I walk fast for fitness, 4 to 6 km per day. I am also 74 years old. Apart from the Celiac challenge, my lifestyle is healthy. I had a sciatiac nerve pinching under my one foot, with inflamation in my whole shin. It was almost cured, when the other shin started paining and burning. I do stretches, use a natural cooling gel and rest my feet. Can Celiac cause muscle pains/inflamation, or is it just over-excercising?
    • LovintheGFlife
      I recently started shopping at a nearby Trader Joe's store. I was surprised at the number and variety of (healthy) gluten-free options sold there. I must admit their low prices are also quite tempting. However, I am curious as to the labeling on all their packages. While none of their products are certified as gluten-free, many are identified as 'GLUTEN FREE' on the packaging. Are these items safe for celiacs? Has anyone tried Trader Joe's products and have there been any adverse reactions?
×
×
  • Create New...