Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Bottomed Out!
0

23 posts in this topic

So I get up this morning, don't feel terrific, feel tired and yucky (not gluten yucky)drive to work, remember I need celery for work, go in the store, get the celery.

Drive down the road a bit and become totally disoriented. Literally, I wanted to pull over and literally could not figure out how to. So I made a dangerous turn and got pulled into a lot, called my daughter, she didn't answer.

I said, oh, cool, Im going to faint in this car and the sun will come up and cook me.

So I get back out in traffic, get across the street to Walgreens. I walked in there and couldn't figure out where they would possibly keep their orange juice. So I go up to this man I go, "can you get me some oj I'm diabetic. Been there done that with the hypoglycemia thing - diabetic is a word people understand.

He goes and gets me some orange juice. I drink it and keep feeling worse. My daughter called me back, she's on her way, I was sitting by this Kodak machine it was to my right side and I kept thinking what is that bright light shining, it was bugging me.

After another whole hour, no better. Then this man that works there (BTW, I'm writing Walgreens a letter about how helpful everyone was) anyway, this man that works there, bless his heart, brought me some peanut butter crackers and said, "here, eat these, these will help" bless his heart, what a sweet man. I said, through sudden tears, I can't eat those"

They end up rolling me out front and get in my daughter's car, she brought me peanut butter I tried to eat that but when I get like that, I can't eat, but I got some down....she drove me to the hospital where she works, they got me signed in, then we waited for about 20 minutes, I was drinking oj and eating PB, and I go, "ok! I feel better, let's go!"

Well, she's a nursing assistant and knows all about blood sugar and all that, and she made me write down what I ate all weekend, and it was downright scary. rice. 4 cookies. some more rice. that's literally all I ate this weekend. I might have had a piece of chicken on Friday, but I can't remember.

So I got the lecture of all lectures and we went over moms for lunch and I couldn't eat that, neither. Karen G, you said something about your son -- you would give him enough juice so that he could eat, and when I read that, I thought, well, that's how I get, like I can't eat...

Anyway, then we went to the grocery and I'm stocked now. I got those bars you all were telling me about and lots of things to throw in my purse. She got me a huge bag of chicken breasts and a huge thing of frozen sirloin burgers so I can just throw 'em in a skillet right quick.

I also didn't eat supper last night or breakfast this morning, so, yeah, I learned my lesson. But my hypog. has NEVER been this bad. I literally couldn't walk, my legs felt like rubber and they felt cold, too. She took my vitals but never told me what they were. She wanted to call 911 but I said seriously, hon, we both know what this is and I'm not in peril.

Never ever ever again will I do that to myself (or my family) It's like my body doesn't store food anymore, like the breads were a sponge that hung around longer or something...I've lost 5 pounds, tomorrow is 3 weeks gluten-free for me. Mom says that's ok with the weight loss, she said anything more than 1.5 pounds a week the doctors don't like.

I just find it SO hard to believe that skipping a meal or two could put you on the floor. After we went to the market, we went over her house and cooked a burger on a plate and I drank a bunch of milk and a special K protein thing and now I feel better but not like myself, but not scary anymore.

She wants me to go to an internist and tell them all this and get me on a straight track. She says I'm trying to do too much all at once, without dr supervision.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Connie,

Please keep something close to you at all times. Hypoglycemia left untreated can cause seizures as well as a diabetic like coma. It is not something to fool around with. Make sure you eat something every 2 to 3 hours. DO Not and I will repeat DO NOT skip evening and breakfast meals. (My mother hen attitude coming out here, lol) Even if you don't feel like eating you need to eat a little something. You were a very lucky lady today.

Stay well.

0

Share this post


Link to post
Share on other sites

You poor thing. I know it's so very easy to forget to eat anything, I have a "flatline" appetite in the few weeks I have been gluten/casein free and experiencing some "withdrawal". (It's actually been the best thing about this for me who needs to drop a few pounds). But I also know I feel BETTER when I do eat something agreeable, especially protein like chicken breast, so please don't forget to eat!!!! ;)

0

Share this post


Link to post
Share on other sites

Connie (stern look),

Sometimes we want someone to take care of us, but really we have to do it ourselves. If you need to, sit quietly with some paper and make a plan. That's the thing with Celiac and sugar problems, we must think about food ahead. Nothing is spontaneous. On to a new reality, my friend.

0

Share this post


Link to post
Share on other sites

I would make sure you are getting more protein. Looks like with the rice you weren't getting any to speak of. I just made a quick two day trip to NYC where I took as much food as I could with me. I ate all the time and still lost 10 percent of my body weight in 48 hours. Keep those calories up as your body is very busy healing at this point. When I eat lots of carbs I get hungrier by the second. When I eat lots of protein the appetite really calms down. Lucky for you your daughter is there for you. Glad you are here writing about surviving this!

0

Share this post


Link to post
Share on other sites




It was so interesting last night when we went to the gluten-free section of the market. I was OH! they (you all) said get this! Oh! they said get this! Most everything you all suggested was there and those Lara bars were 10 for $10. I had to scoot around there in one of those drive around carts, she wouldn't let me walk and I surely didn't feel like it.

Jif makes little "to go" cups so we got those to throw in my purse. And Cocoa Puffs listed wheat as an ingredient! no kidding!

Well, we never did pay for that orange juice at Walgreens, I'm going back today to thank them and pay for the orange juice.

My daughter said, "geez ma, you'll go a long way to shoplift a little bit of juice". :D

0

Share this post


Link to post
Share on other sites

I am glad your okay. I do agree that you should make an appointment with your doctor and get things checked out though. Just to be on the safe side you should get a fasting blood sugar and an A1C. Let's make sure you are not going from being hypoglycemic to diabetic okay?

0

Share this post


Link to post
Share on other sites

Connie, what a scary situation you went through and I'm glad it turned out well.

General Mills now has Nature Valley Almond Crunch bars if you can eat nuts (box is marked gluten free). They contain roasted almonds, peanuts and sunflower seeds and have 6 gams of protein per bar. Very yummy. I picked up a box at my local Wal-Mart last week for $2.68 (pack of 6 bars). Handy to have on hand for something quick to eat.

0

Share this post


Link to post
Share on other sites

I know my situation isn't exactly the same. But I'm going through something simmilar. Only I get nauseated when I go hypo too. I don't know what to do about it. I've got like no food at home and I have to eat contantly. I don't understand. And I'm so hungry and sick feeling and there is a plate of banana muffins my mom made on the counter that I can't eat. And I just want to eat one. I want to cry.

Thank you for sharing your post with me. I'm glad to know that my experience is simmilar to yours. I hope you feel better soon!

0

Share this post


Link to post
Share on other sites

I know my situation isn't exactly the same. But I'm going through something simmilar. Only I get nauseated when I go hypo too. I don't know what to do about it. I've got like no food at home and I have to eat contantly. I don't understand. And I'm so hungry and sick feeling and there is a plate of banana muffins my mom made on the counter that I can't eat. And I just want to eat one. I want to cry.

Thank you for sharing your post with me. I'm glad to know that my experience is simmilar to yours. I hope you feel better soon!

Let's see, I got nauseated, blurred vision, complete body weakness, sweating, shaking, things like that. I just looked up hypoglycemia (which I have already been dx'd with and I wish I hadn't done that because they had all kinds of scary things to say about the pancreas.

but one thing it said was "an autoimmune disorder lowers sugar levels in the blood by changing insulin secretion or by some other means"

0

Share this post


Link to post
Share on other sites

I'm right there with you. I literally cannot force food down when i have a full on attack. Last week i had symptoms every day for 6 days. My neuro problems were so bad i couldn't get up the stairs. I didn't eat any food for three days. All I could do was lay in bed and twitch and sweat oil. I stopped taking my blood pressure med, ate only raw food, and am beginning to improve. This is the second time that a prescription refill has put me down drain.

I too keep something with me, but it takes quite a while to get appetite back after a good dosing.

Hang in there - I was ready to toss in the towel at 4am monday morning - i've been obsessively gluten free since diagnosis 2 years ago, and i haven't had more than a week at a time where i wasn't sick in that whole time.

0

Share this post


Link to post
Share on other sites

ok, i am going to be the "witch"....do you realize that you could lose your drivers license? Driving while impaired! no, i am not kidding....PLEASE! you need to commit to a dietary regimen and stick to it or dont drive, every other person on the road was in danger from you! so...if you cant do it for yourself, do it for the rest of us.

0

Share this post


Link to post
Share on other sites

ok, i am going to be the "witch"....do you realize that you could lose your drivers license? Driving while impaired! no, i am not kidding....PLEASE! you need to commit to a dietary regimen and stick to it or dont drive, every other person on the road was in danger from you! so...if you cant do it for yourself, do it for the rest of us.

You're not being a witch, I totally agree with you. I thought about that when I got in bed last night....very disturbing. :(

0

Share this post


Link to post
Share on other sites

Connie,

Really scary experience! It sounds like it may be a starting point for you to make different choices about your diet. FOOD is powerful!

That's why I suggest also slowly starting to add non-processed foods to your diet. For example, instead of a store-bought bar, try a banana or a 1/2 cup of berries. A diet based in whole foods would do wonders for your hypoglycemia (it did for me) and help you prevent diabetes.

When you see your doctor, maybe s/he could refer you to a nutritionist.

Best of luck. Keep us informed!

lucia

0

Share this post


Link to post
Share on other sites

Ok, the doctor that I used to work for is a GP. This is so stupid, but here's the story. When I left there for a better job, after years, which liked to kilt me, the girl he hired to take my place, well, she doesn't like me. Why, I don't know, she doesn't like me because I used to work there and she's sick and tired of hearing about the great and powerful legacy of Connie oh please. My best friend there was Teresa, and we are still best friends.

Well, yesterday when this happened, my daughter called him but teresa wasn't there and the new girl, as soon as she heard my name, said, "if she's sick, tell her to go to the er" and my daughter said, "put Dr. *** on the phone please" and she refused so my daughter hung up on her. Well I just talked to Teresa and she is ticked off to say the least. Dr *** is FURIOUS and he is sending me for a 5 hour blood glucose test and then I'm going to see him and he also wants to check my hormones, because that can screw with your glucose - ? Never heard of that before, but.....we're at least getting on the road.

0

Share this post


Link to post
Share on other sites

Connie,

Have you met with an MD/ND and dietitian][/b about possibly a high-protein, high-fat, low-carb, low glycemic index diet to treat your hypoglycemia? Insulin secretion is critical to the processing of carbs, but not critical to the processing of fats and proteins. If your body is burning ketone bodies as fuel instead of glucose then the insulin and glycemic response is less critical.

http://www.mercola.com/article/carbohydrates/scientific_evidence_low_grains.htm

Take a look at Dr. Mercola's research too.

0

Share this post


Link to post
Share on other sites

Ok, the doctor that I used to work for is a GP. This is so stupid, but here's the story. When I left there for a better job, after years, which liked to kilt me, the girl he hired to take my place, well, she doesn't like me. Why, I don't know, she doesn't like me because I used to work there and she's sick and tired of hearing about the great and powerful legacy of Connie oh please. My best friend there was Teresa, and we are still best friends.

Well, yesterday when this happened, my daughter called him but teresa wasn't there and the new girl, as soon as she heard my name, said, "if she's sick, tell her to go to the er" and my daughter said, "put Dr. *** on the phone please" and she refused so my daughter hung up on her. Well I just talked to Teresa and she is ticked off to say the least. Dr *** is FURIOUS and he is sending me for a 5 hour blood glucose test and then I'm going to see him and he also wants to check my hormones, because that can screw with your glucose - ? Never heard of that before, but.....we're at least getting on the road.

I am sooooo glad you got in touch with the doctor. I would not be surprised if the 'girl' that took your place finds herself looking for a new job. The doctor was justified in being furious. Do bring a book with you for the glucose test as they may not let you leave the hospital between draws. Sometimes they will but not always. Keep us posted on how things go.

0

Share this post


Link to post
Share on other sites

I am sooooo glad you got in touch with the doctor. I would not be surprised if the 'girl' that took your place finds herself looking for a new job. The doctor was justified in being furious. Do bring a book with you for the glucose test as they may not let you leave the hospital between draws. Sometimes they will but not always. Keep us posted on how things go.

Yeah, he already told me that he's putting on the order that I'm not to leave for the five hours and I have to bring someone with me. LOL, Teresa looked all the way back in my chart. He's been my doctor since 1974 :o

He kind of took on the role of a second dad to me when my daddy passed, we are very very close, mostly like family. Also, he doesn't know about the whole gluten thing, I haven't told him that yet so tomorrow I'm going to take my cell phone out at lunch and call his cell phone and explain all that to him and then he may order more testing too. I mean, I think he needs to know everything so he can help me, and I think that's a pretty big thing to leave out. Or is that overload?

0

Share this post


Link to post
Share on other sites

Glad you are feeling better. And super glad you stocked up on items to carry around with you at all times!! Best wishes

0

Share this post


Link to post
Share on other sites

Yeah, he already told me that he's putting on the order that I'm not to leave for the five hours and I have to bring someone with me. LOL, Teresa looked all the way back in my chart. He's been my doctor since 1974 :o

He kind of took on the role of a second dad to me when my daddy passed, we are very very close, mostly like family. Also, he doesn't know about the whole gluten thing, I haven't told him that yet so tomorrow I'm going to take my cell phone out at lunch and call his cell phone and explain all that to him and then he may order more testing too. I mean, I think he needs to know everything so he can help me, and I think that's a pretty big thing to leave out. Or is that overload?

No that is not overload and he does need to know. Anything they give you needs to be gluten free including the glucose that you will be given for the test.

0

Share this post


Link to post
Share on other sites

Hey Connie. Glad you are feeling better and survived that horrific experience. I have lived with SEVERE reactive hypoglycemia for over 20 years. Mine will dip below 55 several times per day. I never considered Celiac Disease was the true culprit. I've been gluten-free for about 2 months and haven't had any issues with blood sugar. SERIOUSLY...20 years of near fatal lows and I'm totally fine now. Well, minus the possible diabetes later on :)

My only advice is this. Stay away from processed carbs. They wreak havoc on your system when you have hypo. I now, after 2 months, allow myself a single slice of Udi's bread a couple times per week. Other than that, my carbs come from all natural sources like fruit & veggies. Rice & corn are super high on the glycemic index, so those will shoot your sugar way up, then make it crash fast. Not good for hypos.

And yes, hypo is related to hormones in that it's the insulin causing the problems. Insulin is a hormone.

I know you've gotten some great suggestions for bars and such, but take an apple and almond butter instead (if you can have nuts), or maybe some avocado and olive oil & a pear to snack on. Otherwise, high protein (higher than most "high-protein" diets), moderate fat and low carb. Lots of the gluten-free choices are made with rice or corn, and that's a no-no for hypo's.

Hope it gets better!!!!

0

Share this post


Link to post
Share on other sites

I'm a type 2 diabetic but spent most of my life as a hypoglycemic. I can remember fainting while waiting for some eggs to boil. I had just moved to a new house. Brought the eggs with me and had no other food in the house.

I can also remember as a diabetic, thinking I was fine and delaying my meal a bit because I felt I needed to do something, then passing out. I once passed out in the refrigerator. I knew to go there, but didn't know what to do once I go there. And when roused from a passed out state, I can be very combative and refuse to eat. So that's not good.

Currently am having the opposite problem and am having trouble getting my high blood sugar back down where it should be despite two meds and two kinds of insulin.

One thing I know if you suffer from hypoglycemia is that you need to be aware of reactive hypoglycemia. That means you can't take in too many carbs at once. If you do, your blood sugar could spike. If you are not diabetic, a spike for you isn't going to be huge. But the blood sugar will go up a bit, then plummet. That's when you feel really sick. So you want to avoid quickly digesting foods like rice, at least in large quantities. You can eat a small amount say, in a soup or along with a protein.

I used to carry things with me that I could eat in small bites throughout the day. One thing I liked was Panda red licorice but that has wheat in it, so no good for you. Another thing I might take was a piece of fruit leather or those little chewy fruit snacks that kids like. I would just eat a piece or two between meals. And I made my own trail mix. Nuts, seeds, coconut, perhaps a small amount of dried fruit, chocolate or carob chips. I kept this in covered candy dishes throughout the house and also kept a bag in my purse. Having this meant never an excuse to skip a meal.

1

Share this post


Link to post
Share on other sites

Also remember that beans are an ideal food. Assuming you digest them well. They provide slow acting carbs plus protein. I eat them in some form pretty much every day.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,695
    • Total Posts
      921,779
  • Topics

  • Posts

    • Advil (ibuprofen) is gluten-free, but can be a stomach irritant, especially if taken on an empty stomach. That said, I will also place my bet on the garlic and onions. As Raven said, eating more than once a day may also help. An empty stomach is likely to be an irritable stomach.
    • Another link: http://naldc.nal.usda.gov/download/7351/PDF
    • Thanks for posting.  I know it is difficult to talk about these sorts of things even on a webforum.  It is good thing for people to be aware though about celiac disease and that it can cause mental problems.  Gluten can cause brain damage and it can cause anxiety. If the brain does heal it may take a long time. I know that gluten can cause anxiety and obsessive thoughts.  My experience has been similar to your experience. When I first quit eating gluten I had a similar constant loop and strong negative feelings. There are lots of people on this forum who get anxiety when they eat gluten. Some people also experience gluten withdrawl where they experience anxiety after giving up gluten. It can take a long time for the body to heal and for obsessive thoughts to go away.
       It is normal for people to socialize with each other and to be comfortable about it. You said you have problems still socializing and being around people. It might be a depressing thought but it sounds to me like you still have problems with anxiety.  I would recommend considering what options you have available to treat the anxiety. When I quit eating Gluten I still had some symptoms, even though I felt much better. I have been slowly recovering over a period of about three years. I had obsessive thoughts even after I quit eating gluten.  Now I very rarely if at all think about those things. My experience is that my mind would latch on to certain things that caused me anxiety and focus on those things. Sometimes my focus would shift and I would latch onto other things. My ability to socialize has also improved greatly with time. I have made some dietary changes which I believe have helped greatly. It sounds to me like you have obsessive thoughts about things and maybe some brain damage. My experience has been that my obsessive thoughts about different things went away with time. I feel my obsessive thoughts were caused by gluten and not by what people did around me or any events. As my brain healed I became more self aware and things became less stressful.  I can't give medical advice on this forum but I can talk about my current diet and my experience with celiac disease. My experience with gluten is different from a lot of other people so it is a good idea to ask other people and to talk to a doctor.  I avoid oats and avoid almost all processed foods. I buy certified gluten free food. I eat healthy and I exercise every day. I take st John's Wort as I have read studies that say it may be as effective as some other anti-depressants for treating certain types of anxiety. It is available over the counter. I started with a small dosage and then stepped it up over time. I think it helps a lot.  This is also something that you should talk to a doctor about first. https://www.researchgate.net/profile/Martin_Mahoney2/publication/7426926_St._John's_wort/links/540d8acc0cf2f2b29a386673.pdf A lot of people with celiac disease have vitamin deficiencies.  Vitamin b deficiency can cause anxiety. Some people do not process the synthetic form of vitamin b (from normal pills)  very well, and do better on an activated form of vitamin b. I take:
      1 activated vitamin b12 daily
      1 activated vitamin b6 every once in a while. 1 regular vitamin b multivitamin
      1 magnesium pill every day.
      St Johns Wort daily.
      1 zinc vitamin daily
      I drink lots of Chamomile tea and decaf coffee. I avoid most caffeine. 
      I think each of these helps lower my anxiety level.  I eat fruit with every meal. Canned fruit from walmart is cheap and good for you. I eat salad and and vegetables and avoid dairy.  I eat frozen fish often as it has healthy proteins. Eating healthy is very important. I eat potatoes and rice. http://www.livestrong.com/article/454179-what-is-methyl-b12/ I avoid eating soy sauce, soy, cheese, aged meats and fermented foods (I do drink certain types of alcohol in moderate amounts.) These foods contain lots of Tyramine. I might (or might not) have "monoaine oxidase deficiency" and if so high Tyramine foods should be avoided.  I thought I might have problems with elevated ammonia in my blood, but I am not convinced of that anymore. I limited my consumption of meat for a while as well as dairy but I am not sure if i helped.  I have heard that Celiac disease can effect other organs besides the brain and those organs can have an effect on the brain.  My current diet is working so I am going to stick with it for now. I try not to worry about things that are outside of my control. Be patient as it took me a long time to recover.  Let me know if you have any questions. There is a lot of information on this site and people who are willing to help.
       
    • Thank you. This is really helpful. I will call around next week.  I just want to heal! 
    • My endoscopy showed i had decreased folds in my duodenum. The biopsy came back and showed that my villi were fine... i have been on a gluten free diet for 6 years because i was just told i was intolerant but never had any testing before. when i eat gluten i get sick for 2 weeks. i came down with issues of other foods in march so they were trying to figure out why and wanted to know if i had celiac are not because that would explain why dairy and fructose are a problem.. both intolerant test for both were negative but the fructose test made me extremely sick but it was negative...      Im trying to figure out why i have decreased  folds in the first place. my Gi doctor is stumped on that to why the endoscopy would show damage but the under the microscope are fine. She is going to call the dr who did my scope and then is supposed to get back to  me..    would being gluten free for 6 year make it so there was damage and then my vili are now fine but still cant be seen in the endoscope?
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,701
    • Most Online
      3,093

    Newest Member
    Dtroutmann
    Joined