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I Bottomed Out!


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#16 Korwyn

 
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Posted 08 June 2010 - 11:17 AM

Connie,

Have you met with an [b]MD/ND and dietitian][/b about possibly a high-protein, high-fat, low-carb, low glycemic index diet to treat your hypoglycemia? Insulin secretion is critical to the processing of carbs, but not critical to the processing of fats and proteins. If your body is burning ketone bodies as fuel instead of glucose then the insulin and glycemic response is less critical.

http://www.mercola.c..._low_grains.htm

Take a look at Dr. Mercola's research too.
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Undiagnosed for 20 years since first symptoms.
March 2009 - Negative Blood work
April 24, 2009 - Gluten-free
April 29, 2009 - Notably positive response to gluten-free Diet.
May 2, 2009 Dairy Free
May 6, 2009, Soy Free
May 27, 2009 Enterolab Results: Positive Anti-gliadin IgA, tTG IgA, Casein, HLA DQ2.2, HLA DQ8
June 4, 2009 Refined sugar free (except Raw Honey, pure Maple syrup)
June 29, 2009, Dad diagnosed Celiac by GI specialist via blood work and dietary response.
July 2009, Dad's gene test: double DQ8! Thanks Dad - I'll try to get you something nice for Christmas! :)
August 8, 2009 Really Soy free this time - Thanks Blue Diamond for the soy lecithin in the almond milk! :(

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#17 ravenwoodglass

 
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Posted 08 June 2010 - 11:21 AM

Ok, the doctor that I used to work for is a GP. This is so stupid, but here's the story. When I left there for a better job, after years, which liked to kilt me, the girl he hired to take my place, well, she doesn't like me. Why, I don't know, she doesn't like me because I used to work there and she's sick and tired of hearing about the great and powerful legacy of Connie oh please. My best friend there was Teresa, and we are still best friends.

Well, yesterday when this happened, my daughter called him but teresa wasn't there and the new girl, as soon as she heard my name, said, "if she's sick, tell her to go to the er" and my daughter said, "put Dr. *** on the phone please" and she refused so my daughter hung up on her. Well I just talked to Teresa and she is ticked off to say the least. Dr *** is FURIOUS and he is sending me for a 5 hour blood glucose test and then I'm going to see him and he also wants to check my hormones, because that can screw with your glucose - ? Never heard of that before, but.....we're at least getting on the road.


I am sooooo glad you got in touch with the doctor. I would not be surprised if the 'girl' that took your place finds herself looking for a new job. The doctor was justified in being furious. Do bring a book with you for the glucose test as they may not let you leave the hospital between draws. Sometimes they will but not always. Keep us posted on how things go.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#18 conniebky

 
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Posted 08 June 2010 - 11:36 AM

I am sooooo glad you got in touch with the doctor. I would not be surprised if the 'girl' that took your place finds herself looking for a new job. The doctor was justified in being furious. Do bring a book with you for the glucose test as they may not let you leave the hospital between draws. Sometimes they will but not always. Keep us posted on how things go.


Yeah, he already told me that he's putting on the order that I'm not to leave for the five hours and I have to bring someone with me. LOL, Teresa looked all the way back in my chart. He's been my doctor since 1974 :o

He kind of took on the role of a second dad to me when my daddy passed, we are very very close, mostly like family. Also, he doesn't know about the whole gluten thing, I haven't told him that yet so tomorrow I'm going to take my cell phone out at lunch and call his cell phone and explain all that to him and then he may order more testing too. I mean, I think he needs to know everything so he can help me, and I think that's a pretty big thing to leave out. Or is that overload?
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Be kind to each person that you meet, for everyone is fighting a great battle

#19 Smithk6

 
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Posted 08 June 2010 - 11:40 AM

Glad you are feeling better. And super glad you stocked up on items to carry around with you at all times!! Best wishes
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Kathleen

#20 ravenwoodglass

 
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Posted 08 June 2010 - 11:46 AM

Yeah, he already told me that he's putting on the order that I'm not to leave for the five hours and I have to bring someone with me. LOL, Teresa looked all the way back in my chart. He's been my doctor since 1974 :o

He kind of took on the role of a second dad to me when my daddy passed, we are very very close, mostly like family. Also, he doesn't know about the whole gluten thing, I haven't told him that yet so tomorrow I'm going to take my cell phone out at lunch and call his cell phone and explain all that to him and then he may order more testing too. I mean, I think he needs to know everything so he can help me, and I think that's a pretty big thing to leave out. Or is that overload?



No that is not overload and he does need to know. Anything they give you needs to be gluten free including the glucose that you will be given for the test.
  • 0
Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#21 vbecton

 
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Posted 08 June 2010 - 02:56 PM

Hey Connie. Glad you are feeling better and survived that horrific experience. I have lived with SEVERE reactive hypoglycemia for over 20 years. Mine will dip below 55 several times per day. I never considered Celiac Disease was the true culprit. I've been gluten-free for about 2 months and haven't had any issues with blood sugar. SERIOUSLY...20 years of near fatal lows and I'm totally fine now. Well, minus the possible diabetes later on :)

My only advice is this. Stay away from processed carbs. They wreak havoc on your system when you have hypo. I now, after 2 months, allow myself a single slice of Udi's bread a couple times per week. Other than that, my carbs come from all natural sources like fruit & veggies. Rice & corn are super high on the glycemic index, so those will shoot your sugar way up, then make it crash fast. Not good for hypos.

And yes, hypo is related to hormones in that it's the insulin causing the problems. Insulin is a hormone.

I know you've gotten some great suggestions for bars and such, but take an apple and almond butter instead (if you can have nuts), or maybe some avocado and olive oil & a pear to snack on. Otherwise, high protein (higher than most "high-protein" diets), moderate fat and low carb. Lots of the gluten-free choices are made with rice or corn, and that's a no-no for hypo's.

Hope it gets better!!!!
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Diagnosed with Celiac Disease, July 2010, after 20 years of chronic low blood sugar and GI issues. I blame undiagnosed Celiac Disease for not becoming a professional marathon runner and being such a pathetic athlete in college. I was robbed :)

Gluten Free 04/2010
Dairy Free 06/2010
Soy Free 05/2010
Legume Free 05/2010
Caffeine Free 05/2007

#22 Juliebove

 
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Posted 08 June 2010 - 03:09 PM

I'm a type 2 diabetic but spent most of my life as a hypoglycemic. I can remember fainting while waiting for some eggs to boil. I had just moved to a new house. Brought the eggs with me and had no other food in the house.

I can also remember as a diabetic, thinking I was fine and delaying my meal a bit because I felt I needed to do something, then passing out. I once passed out in the refrigerator. I knew to go there, but didn't know what to do once I go there. And when roused from a passed out state, I can be very combative and refuse to eat. So that's not good.

Currently am having the opposite problem and am having trouble getting my high blood sugar back down where it should be despite two meds and two kinds of insulin.

One thing I know if you suffer from hypoglycemia is that you need to be aware of reactive hypoglycemia. That means you can't take in too many carbs at once. If you do, your blood sugar could spike. If you are not diabetic, a spike for you isn't going to be huge. But the blood sugar will go up a bit, then plummet. That's when you feel really sick. So you want to avoid quickly digesting foods like rice, at least in large quantities. You can eat a small amount say, in a soup or along with a protein.

I used to carry things with me that I could eat in small bites throughout the day. One thing I liked was Panda red licorice but that has wheat in it, so no good for you. Another thing I might take was a piece of fruit leather or those little chewy fruit snacks that kids like. I would just eat a piece or two between meals. And I made my own trail mix. Nuts, seeds, coconut, perhaps a small amount of dried fruit, chocolate or carob chips. I kept this in covered candy dishes throughout the house and also kept a bag in my purse. Having this meant never an excuse to skip a meal.
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#23 Juliebove

 
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Posted 08 June 2010 - 03:29 PM

Also remember that beans are an ideal food. Assuming you digest them well. They provide slow acting carbs plus protein. I eat them in some form pretty much every day.
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