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Possiable Celiac Disease Diagnosis
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Hi, I am new to this site but I have already found it useful. I just got back my blood work tests from my doctor and she has refered me to a GI. I am a little confuse though as to what the results mean. Here is what it says:

Gliadin AB IGA

<20 units negative

20-30 units weak positive

>30 units Moderate to Strong Positive

Gliadin AB IGG

<20 units negative

20-30 units weak positive

>30 units Moderate to Strong Positive

Could someone help me understand what that means? Also, I have stopped eating gluten containing foods for two days now since the results came back and I am wondering if my GI does a biopsy will it come up negative because I haven't been eating anything containing gluten eventhough I may actually have celiac disease?

Another question is that I am not under weight, in fact I am a bit over weight so can I really have celiac disease? I have a lot of the symptoms but weight loss is not one of them. Could I really have IBS not celiac disease?

If anyone could offer me any advise as to what to do or how to make sure I get all the proper tests done to find out what I really have I would greatly appreciate it. Thank you so much!!! :)

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Hi klea83, welcome!!! :D

Looking at the numbers you posted it only looks like you listed the ranges and not your actual test results. Look at your labwork, on mine to the right of the "test" is the number (results).

If you are going to have a biopsy or other blood test you should still be on gluten until they are over or the results will not be accurate.

Not everyone is underweight that has celiac disease, I was a bit overweight until I lost 40lbs in two months because of celiac disease but not everyone has weightloss as a symptom. If you have improved on a gluten-free chances are you have celiac disease/gluten sensitivity.

If your bloodwork and biopsy turns out to be negative you could still have celiac disease. My suggestion is to order a stool panel test from Enterolab. The testing is more sensitive than blood and VERY accurate and you DO NOT have to be on gluten for the results.

I hope I have answered your questions and I do hope you find answers soon! :)

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Hi- first of all, what you posted on your message is the reference values for the gliadin antibody tests...these are not YOUR results! Somewhere on the page nearby those values should read your own results.

Secondly, antigliadin antibodies are not the best or most accurate way to detect Celiac Disease (celiac disease) anymore. A more specific test that needs to be done is anti-endomysial antibodies (EMA) or tissue transglutaminase (TTG). If one of these is negative, then the chances of having celiac disease at this time is very low (you could still develop it at a later time, though). Some people will have the biopsy done - this is considered the standard of diagnosis, but also can be inaccurate depending on the skill of the doctor reading the biopsy slides.

It is important to continue having gluten in your diet until your testing is complete - if you go gluten free now, you will mess up your results.

The "classic" symptoms of celiac disease are weight loss and malnutrition, however, MANY people do not have those symptoms and still have celiac disease (I am one of those non-classic CDers!)

Hope this answers your questions.... my best advice is go get testing done from someone who has experience with celiac disease (yes, its OK to ask your doctor that question). Don't panic ....you may not have celiac disease, and if you do...join the club...we'll help!

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Thanks guys for the info! I looked at the test results agian and it says 59 under the the Gliadin AB IGG, it is in the "Out of Range" catagory. Do you know what this means? Thanks! :)

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It means that you might have celiac disease and you might not. A lot of doctors will tell youu that you tested negative for celiac disease, but really the results are inconclusive. All three of my kids tested positive on the IgG Gliadin and negative on all the other tests. The problem is that IgG could be elevated for another reason, other that celiac disease. It warrants further testing. My insurance won't cover better blood testing and gene testing, so I opted to have my kids tested at Enterolab . This is where I had my testing done as well. It is much cheaper. My biopsy came back negative, but I know the lab they used wasn't very skilled at testing for celiac disease, so I don't put too much weight into the negative results. I feel much better on the gluten-free diet, so that is the solid evidence in my mind, combined with the positive gene & antibody tests from Enterolab, I know the truth. My doctor still won't believe me. I had one doctor tell me I couldn't possibly have Celiac because I am overweight, and ALL Celiac are severely underweight. Well that is just not true. Us Celiacs come in all different sizes! :rolleyes: and it also depends on how your body handles the malnutrition and the stage of damage you have in your intestines. It is a very confusing disease for doctors to diagnose, since everyones symptoms are a little bit different. Oh, and I was told I had IBS for more than 16 years! I've had symptoms since I was 4 years old and I'll be 32 next week. That is almost 28 years of symptoms before I figured out what was wrong with me. And each year I would get sicker. I hope the GI you were referred to does more for you than mine. She looked at my chart and my negative test results and said it was just IBS and I needed to eat more WHEAT fiber! I don't think so. I hope that you get more testing soon, but do not go gluten free until you are done testing, since it can mess up your results.

God bless,

Mariann

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    • You're welcome! Yes, I too, hate waiting for lab results. Ugh!
    • I understand this is not a doctor's office and that I need proper testing done to rule out Celiac disease, however, I am stuck waiting until November to even see a GI doctor. So I need some suggestions soon on which test to go for first and what to do as I wait. Also do note, I am 28 years old.

      Right now, the most suspecting culprits to my symptoms have been Gallbadder, Celiac disease, and IBS. I have also been recently diagnosed with pre-diabetes and I am obese.  My Ultrasound and CT scan have all come up as normal and no signs of gallstones. However, I was in extreme pain as my upper abdomen was examined during the ultra sound. My white blood cell count also seems to be high at 12,000 but all blood work came back normal for liver and everything else.

      Symptoms included are: diarrhea
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      light gnawing pain in area a few inches above belly button
      burning in chest
      sometimes pain below upper right rib cage.
      Tenderness all around the upper abdomen, but more so on the right and center.
      burping frequently after meals
      Gassy
      bloating in abdomen The pains used to come and go for the past few years as something very mild, but then the yellow stools happen at least four months ago and at a constant rate. Everyday it is either yellow or orange.  Sometimes the stools are lose and other times they are not. Two months in, I was finally diagnosed with pre-diabetes and have been having a strict low calorie and non fatty diet.

      So far the upper right pain has subsided but the pain above my belly button would continue. The gassy and bloated feeling would come and go as well. I get severe heart burn after almost every meal. But I felt it especially after eating whole wheat sandwiches or whole wheat pasta. I however don't feel it when I eat a Nature Valley granola bar, or pack of peanut butter crackers. I also had a chicken and vegetable stir fry with soy sauce cooked in that also had little effect on me. A bowl of cereal also made the heart burn act up pretty bad. I sometimes feel numb or light headed after various meals. Especially larger ones. In fact, it seems the more I eat, the worse I feel. But the less in the stomach, the more the pain above my belly button starts to act up.

      It is usually in the morning and afternoon I feel the most with gas and bloating. Especially after any large meals from the previous day. Despite the diet and work outs I have had, nothing has changed the stools. However, taking fish oil pills has greatly reduced the pain in my upper abdomen as well as the pain  in the the area above my belly button. My question now is, is there a very likely chance of this being celiac disease? Should I go on a gluten free diet to test since I Have to wait so long? Also, which test should I ask the doctor for first, as it will take a GREAT deal of time to pay off each one. Colonoscopy, HIDA scan, or endoscopy. 

      Again, I understand this isn't a site to get compete medical advice or to know exactly what my illness is, but I am trying to narrow down the possibility or what is most likely. If this has a chance of being celiac disease, I would rather know sooner than later.
    • Thank you very much for all the info Squirmingitch. The doctor told me as we were talking he was going to order some tests with urine so I don't know why he didn't mark that. Maybe he forgot as we were talking? Duly noted about the bladder Cancer to watch out for too. Doctor said it will take about a week to get the lab results back usually from this lab. The wait will seem like forever I'm sure. Yes I will press to have the other tests done too if this one comes back negative.
    • http://www.cureceliacdisease.org/screening/ Was your hubs tested for total IgA to see if he's IgA deficient? Read this thread: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/83660
    • Yes, bone density problems are all part of the celiac "umbrella" so to speak and yes, osteoporosis tends to happen more rapidly and at earlier ages than normal when malabsorption is happening. At age 43, it's not normal to have osteoporosis as you describe so that's another part of the jigsaw puzzle. Time to receive blood test results back from the doc are entirely dependent on the particular lab they were sent to. Yep, it's time for you to start keeping a very close check on the PSA in light of your father having had prostrate cancer. I would think you should get a PSA every year. I really would have liked to see him do a urinalysis. With the prostrate cancer your father had, it would seem a close watch should be kept on you for bladder cancer as well. The first symptom of that is blood in the urine but it's generally microscopic before you're ever able to actually see it. That happens to be the 8th most common cancer in men & it's moving up in the rankings. I know this because my hubs had it. The good news is that it's also one of the easiest and most successfully treated provided it's caught early. Certainly starting @ age 50, men should see a urologist every year. BTW, in the last year before I found out I was celiac, I turned up with microscopic blood in my urine. I got it checked out thoroughly since I know about bladder cancer & all tests, ultrasounds, cystoscopy, CT scan etc... turned out fine. The docs were stumped & finally said, "apparently that's just what your body does". Guess what? That's not "just" what MY body does. Once I went gluten-free, I have had no more microscopic blood in my urine. Interesting eh? Before now I didn't realize you are in Canada. The doc didn't do the full celiac panel but I understand the initial screening protocols in Canada only order the TTG but if that comes back negative be sure & press for the full panel as cyclinglady said. We have several here who tested like cyclinglady so it's not a rare thing, it's just not the norm. I'm glad he's doing the B-12 & Ferritin -- those can be big clues.
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