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It's Starting To Sink In.
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7 posts in this topic

My daughter was diagnosed with celiac disease one week ago. My doctor wants to test me also since I have so many of the symptoms.

I decided to just read up on celiac disease and lactose intolerance because that seems to be the most common things that bother us.

Today is the 1st day that I haven't had a stomach ache in a very long time. :) My daughter is showing significant improvement also. She's 11 years old.

It's so hard to change the way you think about food. But I know in time I'll get better at this.

I appreciate some comments I've read here about cross-contamination. I just used the same knife for me and dh's peanut butter and jelly sandwiches. :o Mine was on a gluten-free rice cake - his was on wheat bread. Live and learn. :)

So...any tips on making my home more safe for us would be greatly appreciated.

{{{yawn}}} It's late...I'll come back and chat with everyone tomorrow. ;)

Mysti

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Welcome to the site! It is a great resource!

BTW, if you still need to get testing YOU should NOT be gluten-free yet. You need to be consuming gluten for the tests to be accurate.

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Welcome to the board!

If you have any questions just ask..there are so many knowledgable people on this site. You will find great information and support

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Some things that help: use separate toasters for gluten-free and non gluten-free bread. At restaurants, when ordering salads, ask for no croutons. Check shampoos and make-up for possible ingredients. Basically just be really careful. Good luck, and as time goes on it does get a lot easier.

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Welcome!

So...any tips on making my home more safe for us would be greatly appreciated.

*Label things like butter, peanut butter, mayonnaise, jam, dip, ect. "gluten free".

*Be careful when using non-stick pans that have cuts on them, gluten can get trapped inside the cracks.

*Get rid of wooden cooking utensils/cutting boards that were used to handle food containing gluten.

*You would also need a new and separate deep fryer.

*Wash all surfaces before placing food on them.

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Thanks for the tips. I didn't know I needed to still be eating gluten for the test. I've been gluten-free for 3 or 4 days. I'm getting tested tomorrow...should I eat something with gluten today?

Did any of you change your whole family over to gluten-free eating to make things simpler?

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For the blood test? Sure...can't hurt.

For endoscopy/biopsy, yes, but don't eat or drink after midnight for purposes of testing. If you're having that test done, the hospital has probably told you this.

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    • I'm glad I found these forums!  I will spend some more time this evening reading through them.  But I wanted to get my question out there just to see if anyone else might have answers quicker than I can sift through the forum for them.      I've been feeling terrible for about a year, and after an elimination diet last month, figured out that if nothing else, gluten/wheat is a problem.  After lots of research, I abandoned the elimination diet and added gluten back in, so that I could get tested for Celiac.   I was off gluten for 3 weeks, from mid-June until early July.  I've had it back in my diet for almost 3 weeks now.    My question is this: Since I was off gluten for 3 weeks, and now back on for almost 3, is that enough time on to yield a positive Celiac blood test, if that indeed is what I have?  All the research I've done says 4-6 weeks for a gluten challenge, but is that really necessary if I was only not eating it for 3 weeks?  I am desperate to get this testing done and over with.  I feel terrible all the time and getting through the day is a struggle.  My doctor ran allergy panels already and everything came back clear except for a mild wheat allergy.  So if nothing else, I'll have to give up wheat for sure at the end of all this.  I get the feeling she doesn't know a ton about Celiac though, so I'm doing a lot of the research on my own. Any advice or information would be so appreciated! 
    • Hi Michael, That's quite a spike in blood pressure!  I haven't tested that myself and don't want to if it means I have to eat gluten.  Blood pressure testing to identify food reactions is something that has come up before.  It sounds like it might be possible but I don't know how much study has been done on it.  Probably not much since it is such a simple, straight forward idea. Welcome to the forum!
    • Hi Megan, Did the doctor test you for celiac disease?  You really shouldn't go gluten-free until all the testing for celiac disease is completed.  It is a little odd for a doctor to tell you to go gluten-free for no reason IMHO.  Did he/she explain the reason for it? Personally, I have learned over the years what I can eat safely and what I can't.  Occasionally I get hit but it is rare.  Simplifying your diet is a good first step.  Avoiding processed foods for a while and dairy also is good.  I suggest any change you make last for a month at least. Then try the food again. If you are eating 100 random ingredients/foods each day it is hard to figure these things out.  If you reduce it to a much smaller number of foods then things become simpler. Welcome to the forum!
    • Finally, proof that non-celiac gluten sensitivity is real. ... for the 30 percent of consumers who choose to buy gluten-free products and the 41 percent of ... View the full article
    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
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