Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Many Are Not Gluten Free
0

10 posts in this topic

I was wondering how many people on here are not gluten free, but have a loved one that is? I am not gluten free, but I got on the forum because my hubby was diagnosed with Celiac's. I knew I would be in the minority here but sometimes I feel like I am the only one on here that is not gluten free. Just wondering.

1

Share this post


Link to post
Share on other sites


Ads by Google:

I'm not one of them, but there are quite a few members, including two of the moderators, who are not gluten-free, but have a child with celiac disease.

1

Share this post


Link to post
Share on other sites

It's so nice of you to join a group like this to learn about celiac for your hubby!

2

Share this post


Link to post
Share on other sites

I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)

1

Share this post


Link to post
Share on other sites

I am in your boat. DH is gluten free, I am not.

1

Share this post


Link to post
Share on other sites




I'm the same as you. Hubby has celiac disease.

This is a great board with lots of people willing to help you out.

1

Share this post


Link to post
Share on other sites

I'm not gluten free.

My daughter was diagnosed 3 years ago and as it's not realistic to expect a (then) 6 year old to shop or cook for herself . . . not only did she not have a large enough allowance to pay for her groceries, she wasn't allowed to turn on the stove . . . :P:lol:

I've learned a LOT in the last three years!!!

1

Share this post


Link to post
Share on other sites

I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)

This describes me best.

Hubby and 1 of my sons have celiac disease. I'm gluten-free 95% of the time (mainly because it's easier)...but do eat gluten if I eat out :D

0

Share this post


Link to post
Share on other sites

Hi Friends, This is my first post because this simple question hit home for me. My Mom has lived with my husband and me for the last 5 years. She is almost 91 and has a long list of health issues. This summer she began to have diarrhea that would clear up and then return. Long story short, she has been diagnosed with Celiac Disease. As her caretaker, I have immersed myself in research on this disease that no one in my family had ever heard of and have returned again and again to this site for information. I am very grateful for everything I have learned here here and congratulate all you wonderful folks for all the help and hope you give to others like me.

Hindsight being what it is, I can see how many of her health issues may be related to a long standing gluten problem that her doctors where she used to live never picked up on. She has many of the listed symptoms of the disease except this recent diarrhea was the first gastro intestinal issue that she can recall. When an emergency doctor recommended that she be tested for celiac disease, her primary agreed immediately. We began eliminating gluten at the end of June (I say began as everyone here knows how long it takes to recognize all the possible sources.) We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

Back to the question: My celiac disease test was negative, so neither my husband nor I are gluten-free although we are very careful about cross contamination. Our Golden Retriever, Ruby, is not gluten free either, but as my mom's best friend, you can all bet the puppy treats she gets from Mom sure are!

Thanks for being here.

0

Share this post


Link to post
Share on other sites

We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

.

Linda,

Stomach pains from consuming dairy, if she does not get stomach pains foam gluten, sounds like lactose intolerance. Give her lactase before she eats dairy and see if it solves the problem. It might be possible than she has a problem with the protein, casien. If this is the case, it is like gluten. Avoidance is the cure.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,131
    • Total Posts
      919,522
  • Topics

  • Posts

    • Cyclinglady is absolutely correct, after hours of internet research the only gluten-free food available at JNB is a fast food chain called 'Nandos'. I was hoping for a bit more variety, but I'll take what I get.   
    • I'm so confused about my daughter's diagnosis.  I hope somebody can help.   My 4 year old daughter has a swollen belly, stomachaches, and lots of gas.  She does not have diarrhea or delayed growth.  Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac.   She was weak positive for TTG (IGA)  and strong positive for DGP (IGG)   TTG (IGA)  8   (0-3 neg, 4-10 weak positive, greater than 10 positive) TTG (IGG)  2   EMA: Negative DGP (IGG)  47  (0-19 negative, 20-30 weak positive, greater than 30 positive) Last week, she had her endoscopy.  The doctor found inflammation and little holes or bumps on her duodenum.  He started her on prevacid and said based on his observations, he was suspicious of celiac, but he would not be able to confirm until the biopsy came back. The biopsy showed no signs of celiac disease.  He said that he could not diagnose her with celiac without the biopsy report saying there was celiac damage.  He said he would categorize her as a potential celiac, keep her on a gluten diet and redo the endoscopy in a year or two to check for damage again.  My questions are: 1.)  If it is not celiac, something is causing her duodenum to be inflamed and have little holes or bumps on it, right?  Could it be a wheat allergy or gluten sensitivity?  What else could it be and how do they test for it?  Given her elevated celiac antibodies, how likely is it to be anything besides celiac causing the damage?  2.)  How likely are false positives for TTG and DGP?  I've heard they are pretty sensitive and specific.  Does getting two positives make false positives less likely? 3.) What have you done in this situation?  I want her to have an official diagnosis to make things easier at school and to feel confident that we are eliminating gluten permanently for a worthy reason, etc.  But, I'm having a hard time imagining keeping her on gluten and waiting for her to get more sick and have more intestinal damage just for a diagnosis.     Thanks in advance for your help.  I'm so overwhelmed and confused.  I hope someone has some insight and experience that will help clear things up for me.            
    • Yeah I actually live in Japan which is pretty similar, because Coeliac disease is rare over here so is the understanding and accommodating it. When I mention Gluten to some restaurants they think I am talking in English and they are unfamiliar with the word in Japanese.    So it seems I can write off my chances of getting some authentic Chinese gluten-free food at the airport, but at least there is a Thai restaurant in T3 so I won't starve. Its called  'Phrik Thai' for future reference. http://en-shopping.bcia.com.cn/store/739.html  
    • While in Boston I found Cheer's  Bloody Mary mix that says gluten-free on the bottle and have had no issues and  tastes pretty good 
    • I always assumed plain coffee was, but I have seen some controversy online about this. I know someone who is gluten free and only buys whole beans and grinds them herself because she doesn't trust how the grounds are processed.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,167
    • Most Online
      1,763

    Newest Member
    Cristina17
    Joined