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How Many Are Not Gluten Free


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9 replies to this topic

#1 4boysmom

 
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Posted 18 June 2010 - 10:09 AM

I was wondering how many people on here are not gluten free, but have a loved one that is? I am not gluten free, but I got on the forum because my hubby was diagnosed with Celiac's. I knew I would be in the minority here but sometimes I feel like I am the only one on here that is not gluten free. Just wondering.
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Hubby diagnosed with Celiac May 2010

"If you haven't found something strange during the day, it hasn't been much of a day." John A. Wheeler

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#2 psawyer

 
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Posted 18 June 2010 - 10:42 AM

I'm not one of them, but there are quite a few members, including two of the moderators, who are not gluten-free, but have a child with celiac disease.
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Peter
Diagnosis by biopsy of practically non-existent villi; gluten-free since July 2000.
Type 1 (autoimmune) diabetes diagnosed in March 1986
Markham, Ontario (borders on Toronto)

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#3 Skylark

 
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Posted 18 June 2010 - 11:01 AM

It's so nice of you to join a group like this to learn about celiac for your hubby!
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#4 scarlett77

 
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Posted 29 June 2010 - 02:45 PM

I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)
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Mommy to James, who is Celiac diagnosis by blood test and confirmed by endoscopy on 9/29/2009. Our household has been gluten free since.

#5 halfrunner

 
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Posted 07 August 2010 - 02:57 PM

I am in your boat. DH is gluten free, I am not.
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#6 MindytheOrganist

 
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Posted 17 August 2010 - 12:52 PM

I'm the same as you. Hubby has celiac disease.

This is a great board with lots of people willing to help you out.
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#7 Darn210

 
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Posted 17 August 2010 - 02:41 PM

I'm not gluten free.

My daughter was diagnosed 3 years ago and as it's not realistic to expect a (then) 6 year old to shop or cook for herself . . . not only did she not have a large enough allowance to pay for her groceries, she wasn't allowed to turn on the stove . . . :P :lol:

I've learned a LOT in the last three years!!!
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Janet

Experience is what you get when you didn't get what you wanted.


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#8 nikki-uk

 
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Posted 19 August 2010 - 12:48 PM

I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)


This describes me best.

Hubby and 1 of my sons have celiac disease. I'm gluten-free 95% of the time (mainly because it's easier)...but do eat gluten if I eat out :D
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It's not enough that we do our best; sometimes we have to do what's required - Sir Winston Churchill

Nikki



Son diagnosed with Coeliac Disease Oct 2006 by biopsy (at age 13yrs)

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#9 Linda L

 
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Posted 20 August 2010 - 07:48 AM

Hi Friends, This is my first post because this simple question hit home for me. My Mom has lived with my husband and me for the last 5 years. She is almost 91 and has a long list of health issues. This summer she began to have diarrhea that would clear up and then return. Long story short, she has been diagnosed with Celiac Disease. As her caretaker, I have immersed myself in research on this disease that no one in my family had ever heard of and have returned again and again to this site for information. I am very grateful for everything I have learned here here and congratulate all you wonderful folks for all the help and hope you give to others like me.

Hindsight being what it is, I can see how many of her health issues may be related to a long standing gluten problem that her doctors where she used to live never picked up on. She has many of the listed symptoms of the disease except this recent diarrhea was the first gastro intestinal issue that she can recall. When an emergency doctor recommended that she be tested for celiac disease, her primary agreed immediately. We began eliminating gluten at the end of June (I say began as everyone here knows how long it takes to recognize all the possible sources.) We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

Back to the question: My celiac disease test was negative, so neither my husband nor I are gluten-free although we are very careful about cross contamination. Our Golden Retriever, Ruby, is not gluten free either, but as my mom's best friend, you can all bet the puppy treats she gets from Mom sure are!

Thanks for being here.
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#10 Steve Moody

 
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Posted 24 August 2010 - 02:44 PM

We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.
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Linda,

Stomach pains from consuming dairy, if she does not get stomach pains foam gluten, sounds like lactose intolerance. Give her lactase before she eats dairy and see if it solves the problem. It might be possible than she has a problem with the protein, casien. If this is the case, it is like gluten. Avoidance is the cure.
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Diagnostic Gluten Intolerant Feb 2010.
Celiac blood test was negative. Small intestine biopsy was negative. Gene test positive.




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