Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

How Many Are Not Gluten Free
0

10 posts in this topic

I was wondering how many people on here are not gluten free, but have a loved one that is? I am not gluten free, but I got on the forum because my hubby was diagnosed with Celiac's. I knew I would be in the minority here but sometimes I feel like I am the only one on here that is not gluten free. Just wondering.

1

Share this post


Link to post
Share on other sites


Ads by Google:

I'm not one of them, but there are quite a few members, including two of the moderators, who are not gluten-free, but have a child with celiac disease.

1

Share this post


Link to post
Share on other sites

It's so nice of you to join a group like this to learn about celiac for your hubby!

2

Share this post


Link to post
Share on other sites

I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)

1

Share this post


Link to post
Share on other sites

I am in your boat. DH is gluten free, I am not.

1

Share this post


Link to post
Share on other sites




I'm the same as you. Hubby has celiac disease.

This is a great board with lots of people willing to help you out.

1

Share this post


Link to post
Share on other sites

I'm not gluten free.

My daughter was diagnosed 3 years ago and as it's not realistic to expect a (then) 6 year old to shop or cook for herself . . . not only did she not have a large enough allowance to pay for her groceries, she wasn't allowed to turn on the stove . . . :P:lol:

I've learned a LOT in the last three years!!!

1

Share this post


Link to post
Share on other sites

I am not 100% gluten free. My 2 year old son is diagnosed Celaic. Our household is 99% gluten while at home. The only time we are not gluten free is when we eat out (which is not often). So nope you are not alone here ;)

This describes me best.

Hubby and 1 of my sons have celiac disease. I'm gluten-free 95% of the time (mainly because it's easier)...but do eat gluten if I eat out :D

0

Share this post


Link to post
Share on other sites

Hi Friends, This is my first post because this simple question hit home for me. My Mom has lived with my husband and me for the last 5 years. She is almost 91 and has a long list of health issues. This summer she began to have diarrhea that would clear up and then return. Long story short, she has been diagnosed with Celiac Disease. As her caretaker, I have immersed myself in research on this disease that no one in my family had ever heard of and have returned again and again to this site for information. I am very grateful for everything I have learned here here and congratulate all you wonderful folks for all the help and hope you give to others like me.

Hindsight being what it is, I can see how many of her health issues may be related to a long standing gluten problem that her doctors where she used to live never picked up on. She has many of the listed symptoms of the disease except this recent diarrhea was the first gastro intestinal issue that she can recall. When an emergency doctor recommended that she be tested for celiac disease, her primary agreed immediately. We began eliminating gluten at the end of June (I say began as everyone here knows how long it takes to recognize all the possible sources.) We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

Back to the question: My celiac disease test was negative, so neither my husband nor I are gluten-free although we are very careful about cross contamination. Our Golden Retriever, Ruby, is not gluten free either, but as my mom's best friend, you can all bet the puppy treats she gets from Mom sure are!

Thanks for being here.

0

Share this post


Link to post
Share on other sites

We are currently trying to figure out if she is also lactose intolerant or if the abdominal pain she sometimes experiences is part of the healing process.

.

Linda,

Stomach pains from consuming dairy, if she does not get stomach pains foam gluten, sounds like lactose intolerance. Give her lactase before she eats dairy and see if it solves the problem. It might be possible than she has a problem with the protein, casien. If this is the case, it is like gluten. Avoidance is the cure.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,092
    • Total Posts
      920,314
  • Topics

  • Posts

    • WOW.  That looks eerily familiar.  Last December the temporary provider here at my local (rural) clinic gave me doxycycline to experiment with, but it was a mere ten milligrams.  Lol, no wonder it didn't help!  I'm glad you're feeling better.
    • I got cross contaminated some time ago & the rash came back pretty badly. I've attached a photo taken on June 11th of my back. It was also in my scalp, around my neck, on my front, shoulders, inner wrists and more.   Tonight I am not itching at all! I haven't itched all day long!!!! I can't take Dapsone because I'm allergic to sulfa drugs & Dapsone is a sulfa drug. Obviously that means I also can't take any of the other sulfa drugs that are used to treat dh after Dapsone is not an option. After those comes tetracycline. I really needed some relief! I began researching the dosage & particulars on tetracycline for dh. Extensive & exhaustive research did not pan out. The best I could find was treating Bullous phemphigoid. That said something like 500mg of tetracycline 4 times per day and about an equal amount of niacinimide. I really didn't want to take that much medication and in such strong doses. So my doctor (my PC doc) & I began experimenting. We tried Doxycycline 100mg twice a day. It seemed to be helping some but it just wasn't enough. Then we upped it to 200mg Doxycycline twice per day. It has taken about 5 days of that & I sit here not itching all day for the first time in a long, long time! This may not work for everyone. I did want to post it though as it is, at present, working for me. I am not thrilled at taking it but I have toughed this rash out before for years with no meds and I just couldn't do it again.
    • I laughed out loud at the 'little notebook' comment!😂 It has been interesting to see how much progress has actually been made over the past 10 years that there is even a notebook to be offered or a restaurant to eat in that will accommodate our 'allergy'. 10 years ago I feared that I would never eat in a restaurant again.  But the notebook comment is spot on.  Hopefully within the next 10 years restaurants will evolve enough to offer us a menu that clearly lists the delicious and extensive offerings that they have lovingly prepared just for us...and not just an ingredient list with nutritional values that take longer to read than War and Peace.   I am grateful that there are places to go that at least make the effort.  Who knows?  Eventually there may be restaurants which will have to offer menus with GLUTEN options available!
    • Thanks for posting this Adrien, it's a great list and I and others will appreciate the effort and the thought behind it. I loved my time in Malaysia and I'm glad I sampled all the food I could whilst I was still on an unrestricted diet. The good thing is that, like you say, some of the nice Malay foods are still ok. As a backpacker I survived on a lot of nasi goreng and laksa, nice to think if I return there I could still do the same Terima kasih!
    • I have posted on here before. DQ2, brother with celiac, DGP iGA was the only mildly elevated test. Was gluten-free so did 6 week challenge last winter. Negative biopsy. I am gluten-free now but do go out to eat. Prior to the challenge my health was good. Since then I have: Chest pain, pain between shoulder blades, periods of shortness of breath, heart palpitations, one instance of a heart arrythmia episode, neck is tender to touch on one side (they kept saying sinuses or TMJ which my dentist vetoed) ear ache, bowels never sink. Numbness and tingling. Blood pressure variations. Could be doing chores and feel dizzy and it might be 84/52.  not super low, but not typical for me if I'm running around the house.While other days I am mildly hypertensive. Recently lost 5 lbs in 8 days without trying. Recently electrolytes were low, alkaline phosphatese was low. Ferritin started dropping so started liquid iron 2-3 times per day 4 months ago. Primary watching that, I am not anemic but we are nowhere near iron overload either.  GI doc was a dick. Did not even know DGP replaced older tests and he was very condescending When I begged him for help recently and told me to get a second opinion which is exactly what I plan on doing.  I now have pain in my upper GI area. It is tender to touch. I had my gallbladder out in 97 along with a stone and infection in my bile duct. It hurts in this area. Pancreatic enzymes look fine, liver enzymes fine. Pancreatic ultrasound fine. I will now be doing a EUS Soon to look at bile duct, pancreas and liver.   so a typical day for me is that I might feel fine for a while and then suddenly feel like I'm going to pass out. really dizzy, numbness in odd places, like my body has been hijacked. I will typically eat a bunch of food something high protein and in about an hour or so I start to feel better. However, then my upper stomach starts to hurt in place of the passing out feeling. blood sugars are also normal. After getting the " it must be panic attacks" and condescending looks a million times my primary finally ordered an ultrasound of my sore neck and there is an abnormality in my thyroid which she says looks like possibly Hashti's. Except for one time, all my serum TSH tests were normal. We have more blood work on Monday. As I have not put on any weight and there are other symptoms that are closer to Graves.  Has anyone else had any thyroid issues that followed doing a gluten challenge?  where is your stomach pain? Do you have it above or below your belly button? Mine feels like it's in the pancreas area, like 2-3 inches above the belly button and when I push on it it's tender, but not all the time. sometimes i feel it in my back. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,123
    • Most Online
      1,763

    Newest Member
    ForeverYoung&GlutenFree
    Joined