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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Anyone From The Kansas City Area
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18 posts in this topic

I was just wondering if there was anyone from the Kansas City area on here. I am new with Celiac Disease. My 7 year old daughter has it, and I have no clue what I am doing!!

Thanks

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I was just wondering if there was anyone from the Kansas City area on here. I am new with Celiac Disease. My 7 year old daughter has it, and I have no clue what I am doing!!

Thanks

Me! Me! Some would say I don't know what I'm doing though. I live in Johnson county, KS

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Me! Me! Some would say I don't know what I'm doing though. I live in Johnson county, KS

I live in Johnson County Ks also!!!!! Did you just recently get diagnosed? Just curious as to why some people would say you didn't know what you were doing. LOL I am in that boat right now. I am still learning everything for my daughter. Where in Johnson county do you live?

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I live in Johnson County Ks also!!!!! Did you just recently get diagnosed? Just curious as to why some people would say you didn't know what you were doing. LOL I am in that boat right now. I am still learning everything for my daughter. Where in Johnson county do you live?

I was being funny. Didn't work? I'll IM you.

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I was being funny. Didn't work? I'll IM you.

Oh no. LOL I kinda figured, but I wasn't for sure. LOL I am new to this, so I will try and IM you back. Thanks!

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I'm over in Blue Springs, just SouthEast of the big city and have had an allergy to Gluten all my life, but only found out about two years ago what I was trying to fight. I've learned alot in this time and so if you need anything, please don't hesitate to drop me a line.

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Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?

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Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?

If you have a Hy-Vee in your area, most of them have newly expanded their Health Market sections, complete with a Gluten-Free section. I live just a few miles north of downtown K.C., and the Hy-Vee I shop at is great. They carry a very full line of Bob's Red Mill gluten-free flours and mixes, Pamela's baking mixes, lots of cookies and breads (including Udi's, which is the best pre-made gluten-free bread you can get), crackers, pastas, soups and gravy mixes all gluten-free, and really a lot of stuff I wouldn't have time to list. Although the prices can get pretty high is you are purchasing too many pre-made items. Best to buy the flours and learn how to make your own. There are tons of other great gluten-free blogs (Gluten Free Goddess, Gluten Free Mommy, Gluten Free Cooking School...just a few of my faves) from where I've really learned to bake some great muffins, cakes, casseroles, etc. Even my husband will eat some of these things, and he thinks going gluten-free is a waste of time. :-) I don't have Celiac, but I do have a very sensitive digestive system (blood type AB, we are complicated) and found that switching to a gluten-free lifestyle really helped a lot...AND I lost weight.

Try (Company Name Removed - They Spammed This Forum and are Banned) for purchasing Bob's Red Mill and other great gluten-free flours and mixes in bulk at discount prices...Amazon offers free shipping for orders over $25. I believe this how some of the serious bakers can really afford to do all the gluten-free treats and breads.

I would also be interested in a support/meet-up group. Has anyone tried searching the MeetUp groups? Or maybe put out a Craigslist ad to try and get one together on your side of the city.

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Kansas City here too! Way out in the boonies in Platte County. (By Snow Creek)

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Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?

My favorites are Whole Foods (the one on 91st and Metcalf seems more gluten-friendly) and Hyvee. Their new gluten-free section is amazing. Walmart brand stuff also will say "naturally gluten free" on it most of the time. So helpful!

Where do you go?

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My favorites are Whole Foods (the one on 91st and Metcalf seems more gluten-friendly) and Hyvee. Their new gluten-free section is amazing. Walmart brand stuff also will say "naturally gluten free" on it most of the time. So helpful!

Where do you go?

I live by you! I usually go to the WF on 119 th just for bread. I go to Hy Vee on Stateline or 135 th & Antioch for most stuff. Target, Walmart & Hen House have a few things like pasta to grab while I'm there.

I just saw that Minsky's is doing gluten-free pizza but I haven't quizzed them yet on topping procedures.

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I've been looking for people in the Kansas City area too! I'm in Prairie Village and wonder if there is any support group in town.

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I'm jealous...I wanna move to Kansas City! :lol:

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I've been looking for people in the Kansas City area too! I'm in Prairie Village and wonder if there is any support group in town.

There is but...I never go :ph34r:

http://www.csakansascity.org/

I'm jealous...I wanna move to Kansas City! :lol:

Come on! I'll help you find an apartment. Actually,, oldest son is going off to college....

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Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

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Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

Welcome, Lee's Summit!

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Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

Yes. welcome from STL, cross state neighbor.

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    • Second Panel has come back...advice?
      Update!  I went to my follow up with my gastro. He's hesitant to diagnose celiac without an endo, but said he will redo the blood work after I'm several months gluten free. My DGP IGA should drop after being gluten free, right? This could confirm the suspicion? I know the TTG levels drop, but want to be sure the DGP also drops on the diet.  Thanks! I've already replaced all kitchen equipment and pantry/fridge items. Early on I didn't realize the potential for cross contamination in restaurants. Now I do, so eating out has been put on halt for a bit. 
    • does your diet have to be like a perfection?
      Yes.  You have to be 100% gluten abstinent when you have Celiac Disorder.  It gets easier to be gluten abstinent, not because you get used to it but because of the negative effects that ingesting gluten causes when you accidentally eat something with gluten.  Nothing tastes good enough to go through a glutening.  As your system heals it will become less tolerant of your occasional lapses into gluten consumption--accidental or otherwise. You have to take this seriously.  You get used to it and there are some wonderful gluten-free options out there.  But you can't go back to gluten and stay healthy.  It just doesn't work that way. Good luck.
    • does your diet have to be like a perfection?
      I  think you need to watch where you get your medical info!    Of course you can't introduce gluten back in. And  of course you have to be strictly gluten-free and not intentionally eat gluten.   "The gluten-free diet is a lifetime requirement. Eating any gluten, no matter how small an amount, can damage your intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. It can take weeks for antibody levels (indicating intestinal damage) to normalize after a person with celiac disease has consumed gluten. Depending on a person’s age at diagnosis, some problems, such as delayed growth and tooth discoloration, may not improve. The gluten-free diet requires a completely new approach to eating. You have to be extremely careful about what you buy for lunch at school or work, eat at cocktail parties, or grab from the refrigerator for a midnight snack. Eating out and traveling can be challenging as you learn to scrutinize menus for foods with gluten, question the waiter or chef about possible hidden sources of gluten, and search for safe options at airports or on the road. However, with practice, identifying potential sources of gluten becomes second nature and you’ll learn to recognize which foods are safe and which are off limits." http://www.cureceliacdisease.org/living-with-celiac/guide/treatment    
    • does your diet have to be like a perfection?
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    • does your diet have to be like a perfection?
      Not sure what you mean by perfecting your diet? Do you mean accidentally eating gluten?   As to re-introducing gluten again, if you have celiac disease, please DO NOT ever re-introduce gluten again. It's an auto-immune disease, not a food intolerance. It will damage your gut again if you do.  Hope this helps.
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