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Anyone From The Kansas City Area
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I was just wondering if there was anyone from the Kansas City area on here. I am new with Celiac Disease. My 7 year old daughter has it, and I have no clue what I am doing!!

Thanks

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I was just wondering if there was anyone from the Kansas City area on here. I am new with Celiac Disease. My 7 year old daughter has it, and I have no clue what I am doing!!

Thanks

Me! Me! Some would say I don't know what I'm doing though. I live in Johnson county, KS

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Me! Me! Some would say I don't know what I'm doing though. I live in Johnson county, KS

I live in Johnson County Ks also!!!!! Did you just recently get diagnosed? Just curious as to why some people would say you didn't know what you were doing. LOL I am in that boat right now. I am still learning everything for my daughter. Where in Johnson county do you live?

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I live in Johnson County Ks also!!!!! Did you just recently get diagnosed? Just curious as to why some people would say you didn't know what you were doing. LOL I am in that boat right now. I am still learning everything for my daughter. Where in Johnson county do you live?

I was being funny. Didn't work? I'll IM you.

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I was being funny. Didn't work? I'll IM you.

Oh no. LOL I kinda figured, but I wasn't for sure. LOL I am new to this, so I will try and IM you back. Thanks!

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I'm over in Blue Springs, just SouthEast of the big city and have had an allergy to Gluten all my life, but only found out about two years ago what I was trying to fight. I've learned alot in this time and so if you need anything, please don't hesitate to drop me a line.

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Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?

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Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?

If you have a Hy-Vee in your area, most of them have newly expanded their Health Market sections, complete with a Gluten-Free section. I live just a few miles north of downtown K.C., and the Hy-Vee I shop at is great. They carry a very full line of Bob's Red Mill gluten-free flours and mixes, Pamela's baking mixes, lots of cookies and breads (including Udi's, which is the best pre-made gluten-free bread you can get), crackers, pastas, soups and gravy mixes all gluten-free, and really a lot of stuff I wouldn't have time to list. Although the prices can get pretty high is you are purchasing too many pre-made items. Best to buy the flours and learn how to make your own. There are tons of other great gluten-free blogs (Gluten Free Goddess, Gluten Free Mommy, Gluten Free Cooking School...just a few of my faves) from where I've really learned to bake some great muffins, cakes, casseroles, etc. Even my husband will eat some of these things, and he thinks going gluten-free is a waste of time. :-) I don't have Celiac, but I do have a very sensitive digestive system (blood type AB, we are complicated) and found that switching to a gluten-free lifestyle really helped a lot...AND I lost weight.

Try (Company Name Removed - They Spammed This Forum and are Banned) for purchasing Bob's Red Mill and other great gluten-free flours and mixes in bulk at discount prices...Amazon offers free shipping for orders over $25. I believe this how some of the serious bakers can really afford to do all the gluten-free treats and breads.

I would also be interested in a support/meet-up group. Has anyone tried searching the MeetUp groups? Or maybe put out a Craigslist ad to try and get one together on your side of the city.

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Kansas City here too! Way out in the boonies in Platte County. (By Snow Creek)

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Hi everyone! I live in Shawnee and am also newly diagnosed (3 months) and am dying to find some other people in my same situation! I'm struggling to find places to eat out, where the best places to do grocery shopping are, hidden gluten-free gems, and people to talk with in general! Do any of you go to a support group or what is the best way you've found to manage a gluten-free lifestyle?

My favorites are Whole Foods (the one on 91st and Metcalf seems more gluten-friendly) and Hyvee. Their new gluten-free section is amazing. Walmart brand stuff also will say "naturally gluten free" on it most of the time. So helpful!

Where do you go?

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My favorites are Whole Foods (the one on 91st and Metcalf seems more gluten-friendly) and Hyvee. Their new gluten-free section is amazing. Walmart brand stuff also will say "naturally gluten free" on it most of the time. So helpful!

Where do you go?

I live by you! I usually go to the WF on 119 th just for bread. I go to Hy Vee on Stateline or 135 th & Antioch for most stuff. Target, Walmart & Hen House have a few things like pasta to grab while I'm there.

I just saw that Minsky's is doing gluten-free pizza but I haven't quizzed them yet on topping procedures.

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Hi; I just joined the forum. I'm in Grandview!

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I've been looking for people in the Kansas City area too! I'm in Prairie Village and wonder if there is any support group in town.

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I'm jealous...I wanna move to Kansas City! :lol:

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I've been looking for people in the Kansas City area too! I'm in Prairie Village and wonder if there is any support group in town.

There is but...I never go :ph34r:

http://www.csakansascity.org/

I'm jealous...I wanna move to Kansas City! :lol:

Come on! I'll help you find an apartment. Actually,, oldest son is going off to college....

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Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

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Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

Welcome, Lee's Summit!

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Hi! :D I'm new to the forum. I live in Lees Summit!

I am not diagnosed with anything yet... But I am in the process of trying to get things figured out...

Yes. welcome from STL, cross state neighbor.

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    • hey! Wondering if I can get some good info/help from you guys! I just signed up for this website couple weeks ago. Whenever I would Google things this was always the first to pop up and I always found info on things I googled. I am pretty new to the gluten free thing. I had a hernia surgery back in Jan and after that I kept throwing up after eating, the DR. told me it was probably acid reflex caused from surgery but all the meds I tried nothing helped. I went back and was told to cut gluten out. I have been doing so since. When I first started I felt like I had it under control and didn't throw up for 3 weeks, now I find it happening more often. I do buy gluten-free things and read labels to the best I can. My frustration comes from not knowing what its from. How do you know if its from the day before or what you just ate? I hate not knowing. Especially when I haven't had gluten (or so I think) I have been keeping a journal but I just find it so hard. I get this feeling in my stomach and can feel it in my throat. Sometimes I puke once sometimes 5 times! Yesterday for lunch I made an omlet with chicken mushrooms and feta cheese. I threw up almost 20 min after. I have also tried the no dairy thing and it doesn't seem to make a difference so I don't think dairy is an issue as well.
    • I have been on a gluten-free diet for exactly one-year. During that time, I have had no stomach issues or problems when I inadvertently ingested gluten. The other day, I had GI discomfort (no vomiting or diarrhea) and my blood pressure spiked t0 200/98 (normally 119/75). As my GI discomfort subsided, my pressure crept back to normal. This took about 16-hours. I know that I ingested something with gluten, which I had thought was gluten-free.  It never bothered me before. Should I expect that the longer I'm gluten-free, the more susceptible I will be to having a pronounced reaction to inadvertent gluten exposure? Has anyone else had similar experiences with blood pressure spikes?
    • If this is helpful: My local public library had a copy of Breaking the Vicious Cycle by Elaine Gottschall.  There is a Facebook group, I believe it is easily found by searching SCD Diet, and it's a closed group.  If you go directly to the official website of Breaking the Vicious Cycle, there's lots of information for free available, including the basics about the intro diet and beyond.  I would go to the original source of this diet rather than go to other groups/books who have perhaps veered away from Elaine Gottschall's fundamentals. Best wishes to you!
    • AdrienJ, thank you so much! I dream of traveling more one day. I have spondylitis too. I'm so glad that a gluten free and casein free diet is helping you feel your best!
    • Hi Lisa, I completely understand why you didn't do a biopsy on your daughter.  I went through the appendix thing myself...not fun!  I was diagnosed with just bloodwork and no biopsy, but did have the full panel.  I would go back to your PCP and ask for a full panel to include TTG, EMA and DGP tests.  Since she was already willing to test you, I'm sure she would be willing to order these.  Good luck!
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