Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Blood Sugar Question
0

9 posts in this topic

For the past 3 or 4 weeks I've been having bad headaches, dizziness, brain fog. This is much worse than my usual issues with these symptoms. Anyway, I went to the dr and she ran a bunch of tests including a 3 hr glucose. I felt terrible after the 2 hr blood draw. I got an excruciating headache, felt faint and out of it, and was freezing. I heard back from my doctor the other day and she said everything came back normal except my blood sugar. Here's what she told me:

Fasting 90

1 Hour 90 (or so, she said it didn't change)

2 Hour 64

3 Hour 78

She didn't know what to make of my blood sugar not rising from the glucose. She said she it looked like I was hypoglycemic. She faxed my results to my Endocrinologist that I see for my Thyroid. I'm calling this AM to make an appt but I'm sure it won't be soon. I know my BG went even lower than 64 after 2 hours because I felt so-so when she drew the blood but soon after is when I really went downhill.

So, my question is does anyone know what this could mean, regarding no rise in blood sugar? I'm not sure exactly how to change my diet yet. I know to cut out the sugar but besides that there's so much info out there about about cutting this, adding more of that. I'm confused and don't know what to do. I have been eating every 2 1/2 hours which helps a lot and I've been eating more protein. I don't eat much processed food anyway.

I'm asking this here because it looks like there are others who deal with blood sugar issues here too and I'm not sure who else to ask. Also, do you think this could be a result of a change in diet? I'm thinking I've had this for a LONG time just not to this degree.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Very interesting, makes you wonder where that glucose went. I didn't check to see your gluten-free status-how long, what kind of DX but I wonder if you are having malabsorbtion problems. I wish I had some answers. Have you checked this site to see if you could find some answers?

http://bloodsugar101.com/

I know that those feelings that you described though. Not fun. I have had many of the same symptoms.

0

Share this post


Link to post
Share on other sites

Very interesting, makes you wonder where that glucose went. I didn't check to see your gluten-free status-how long, what kind of DX but I wonder if you are having malabsorbtion problems. I wish I had some answers. Have you checked this site to see if you could find some answers?

http://bloodsugar101.com/

I know that those feelings that you described though. Not fun. I have had many of the same symptoms.

I know, that's what I was thinking (about the glucose)! I've been gluten-free for 4 months, diagnosed with Celiac in February. Interesting idea about the malabsorption problem. I hadn't really thought of it like that. I quickly looked at that site last night but I'll to look through it some more tonight. Thanks!

0

Share this post


Link to post
Share on other sites

Your results are similar to a glucose tolerance I had done years ago. I worked in a medical lab at the time and the pattern was referred to as a dumping curve with no clear explanation. In older tests they would do fasting then sometimes a 15 min sample, a 1/2 hr sample then hourly for up to 5 hrs. Your result is an unusal pattern for a diabetic but common in people with symptoms of hypoglycemia - more or less what you described. I found ways to cope by always eating a high protein food with carbohydrates. Ice cream and peanuts was one of my favorites. I would always feel weak after pancakes and syrup even if I had eggs and sausages. I couldn't eat apples or apple juice by themselves - apples and cheese was better but no bread or crackers with the cheese. When I was about 50 I began doing natural healing programs - parasite herbs, kidney and liver cleanses, detoxification and liver support programs and the hypoglycemia-like symptoms ( and symptoms of my undiagnosed celiac disease) became less of a problem. I still have a low tolerance for carbs. One diet I have found helpful is the Specific Carbohydrate Diet. The carbohydrates on their legal food list are more slowly broken down than other carbs - and any carbs when broken down are just sugar - so a person gets a slower release into the body.

0

Share this post


Link to post
Share on other sites

Hi Mac55. I experienced the same blood sugar (or as I like to call BS) problems for over 20 years before enough malabsorption kicked in that my doctors and I concluded Celiac. The pattern of your BS is reflective of Reactive Hypoglycemia. Your body over responds to glucose and sends out too much insulin. Then, once the insulin has done its' job, there is too much left over, so it sends your blood sugar spiraling. There is also an issue where your blood sugar drops too fast. This is part of Reactive Hypo, but most doctors wouldn't know enough to explain it. This might show up on glucose screenings as being in the normal range, but your BS is dropping at such a high speed that Hypo symptoms kick in. The only way to catch this is to test your blood sugar every few minutes during an episode.

I am now cured of my BS problems. I went on the Paleo diet. I eat a ridiculous amount of lean protein (150g/day), upped my fat considerably (I even drink olive oil sometimes), added tons of fruit and veggies, nuts and eggs. You said you eat little processed foods and that's good. Not sure what diet changes you could make, but consider even more protein and good oil fats. Before going Paleo, I was sooooo sensitive to anything containing sugar that I couldn't even eat fruit. Now, I can eat as much as I want with zero problems.

Hope you get some relief soon! Mine would dip below 55 several times during one day. It was like running a marathon...exhausting and sooooo frustrating. My endocronologist kept monitoring me because she was sure I'd eventually be diabetic (Hypo can lead to insulin resistance :( ) But, luckily we figured out the culprit before it got there. Is there any chance you could be getting cross-contaminated?

0

Share this post


Link to post
Share on other sites




Your results are similar to a glucose tolerance I had done years ago. I worked in a medical lab at the time and the pattern was referred to as a dumping curve with no clear explanation. In older tests they would do fasting then sometimes a 15 min sample, a 1/2 hr sample then hourly for up to 5 hrs. Your result is an unusal pattern for a diabetic but common in people with symptoms of hypoglycemia - more or less what you described. I found ways to cope by always eating a high protein food with carbohydrates. Ice cream and peanuts was one of my favorites. I would always feel weak after pancakes and syrup even if I had eggs and sausages. I couldn't eat apples or apple juice by themselves - apples and cheese was better but no bread or crackers with the cheese. When I was about 50 I began doing natural healing programs - parasite herbs, kidney and liver cleanses, detoxification and liver support programs and the hypoglycemia-like symptoms ( and symptoms of my undiagnosed celiac disease) became less of a problem. I still have a low tolerance for carbs. One diet I have found helpful is the Specific Carbohydrate Diet. The carbohydrates on their legal food list are more slowly broken down than other carbs - and any carbs when broken down are just sugar - so a person gets a slower release into the body.

Thanks so much for your reply! That makes a lot of sense. I looked into the dumping syndrome and it's very possible. Thanks for the suggestions for specific foods to eat and with what others. That's exactly what I'm looking for. I tried eating some of those combos and I'm having much better results. Thanks so much for your help!!

0

Share this post


Link to post
Share on other sites

Hi Mac55. I experienced the same blood sugar (or as I like to call BS) problems for over 20 years before enough malabsorption kicked in that my doctors and I concluded Celiac. The pattern of your BS is reflective of Reactive Hypoglycemia. Your body over responds to glucose and sends out too much insulin. Then, once the insulin has done its' job, there is too much left over, so it sends your blood sugar spiraling. There is also an issue where your blood sugar drops too fast. This is part of Reactive Hypo, but most doctors wouldn't know enough to explain it. This might show up on glucose screenings as being in the normal range, but your BS is dropping at such a high speed that Hypo symptoms kick in. The only way to catch this is to test your blood sugar every few minutes during an episode.

I am now cured of my BS problems. I went on the Paleo diet. I eat a ridiculous amount of lean protein (150g/day), upped my fat considerably (I even drink olive oil sometimes), added tons of fruit and veggies, nuts and eggs. You said you eat little processed foods and that's good. Not sure what diet changes you could make, but consider even more protein and good oil fats. Before going Paleo, I was sooooo sensitive to anything containing sugar that I couldn't even eat fruit. Now, I can eat as much as I want with zero problems.

Hope you get some relief soon! Mine would dip below 55 several times during one day. It was like running a marathon...exhausting and sooooo frustrating. My endocronologist kept monitoring me because she was sure I'd eventually be diabetic (Hypo can lead to insulin resistance :( ) But, luckily we figured out the culprit before it got there. Is there any chance you could be getting cross-contaminated?

Thank you SOOO much for this info!! I looked up the Paleo diet after you posted about it. A lot of the things you're not supposed to eat are things I already knew I reacted to or suspected I did. It just made a lot of sense to try it. Today I really upped my protein and fat and I feel SO much better than I have the past few days. I actually started using the MyPlate food tracker on LiveStrong.com so I can see exactly how much I'm getting.

I'm not sure about the cross-contamination thing. I double check everything I eat, also vitamins, meds, lotions, etc. Maybe I'll go through everything again. We have a gluten-free kitchen but I do not have a gluten-free husband. He tries to be very good about washing his hands when he comes in and not kissing me until he's washed up. I always wonder whether I'm getting something from him, as I've caught him a couple of times not washing after eating, etc. Don't get me wrong, I'm not blaming him. He really tries and has never complained about the food changes around the house.

Do you think this could be a sign of CC? I felt awesome for a month after going gluten-free but then slowly started not feeling as great. Then this whole thing sidelined me over the past month. Still trying to figure it out and wonder whether to call the GI or wait til after my Endo appt.

0

Share this post


Link to post
Share on other sites

Gosh Mac55, I'm not sure about the CC. You guys seem to have such a good system. And kuddos to the hubby for being such a good sport. Mine is the same way. Sure makes going gluten-free easier when everyone at home is onboard!

My only guess would be you are still reacting to something. Maybe sugar in fruits? You could be fructose sensitive. Otherwise, check back with the doctor because low blood sugar is serious. Oh wait, what about your absorption? Are you absorbing nutrients well that you know of? That was the underlying condition to my hypo. I wasn't absorbing protein because of Celiac, therefore nothing was stabalizing my sugar/insulin. Hmmm, maybe?

If you have an Endo, I would consult with them. But, I'd also follow up with my GI. My GI was far more informative about my low blood sugar than my Endo because it was directly correlated to my Celiac. He was the one who explained how malabsorption in the intestines leads to mismanagement of all nutrients, etc...

Hope this helps and good luck!

0

Share this post


Link to post
Share on other sites

Thank you SOOO much for this info!! I looked up the Paleo diet after you posted about it. A lot of the things you're not supposed to eat are things I already knew I reacted to or suspected I did. It just made a lot of sense to try it. Today I really upped my protein and fat and I feel SO much better than I have the past few days. I actually started using the MyPlate food tracker on LiveStrong.com so I can see exactly how much I'm getting.

Oh and thanks for the MyPlate suggestion. I'm going to start tracking my intake!! :D

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,665
    • Total Posts
      921,656
  • Topics

  • Posts

    • You're welcome! Yes, I too, hate waiting for lab results. Ugh!
    • I understand this is not a doctor's office and that I need proper testing done to rule out Celiac disease, however, I am stuck waiting until November to even see a GI doctor. So I need some suggestions soon on which test to go for first and what to do as I wait. Also do note, I am 28 years old.

      Right now, the most suspecting culprits to my symptoms have been Gallbadder, Celiac disease, and IBS. I have also been recently diagnosed with pre-diabetes and I am obese.  My Ultrasound and CT scan have all come up as normal and no signs of gallstones. However, I was in extreme pain as my upper abdomen was examined during the ultra sound. My white blood cell count also seems to be high at 12,000 but all blood work came back normal for liver and everything else.

      Symptoms included are: diarrhea
      yellow-stools (Sometimes foul smelling but always sink)
      light gnawing pain in area a few inches above belly button
      burning in chest
      sometimes pain below upper right rib cage.
      Tenderness all around the upper abdomen, but more so on the right and center.
      burping frequently after meals
      Gassy
      bloating in abdomen The pains used to come and go for the past few years as something very mild, but then the yellow stools happen at least four months ago and at a constant rate. Everyday it is either yellow or orange.  Sometimes the stools are lose and other times they are not. Two months in, I was finally diagnosed with pre-diabetes and have been having a strict low calorie and non fatty diet.

      So far the upper right pain has subsided but the pain above my belly button would continue. The gassy and bloated feeling would come and go as well. I get severe heart burn after almost every meal. But I felt it especially after eating whole wheat sandwiches or whole wheat pasta. I however don't feel it when I eat a Nature Valley granola bar, or pack of peanut butter crackers. I also had a chicken and vegetable stir fry with soy sauce cooked in that also had little effect on me. A bowl of cereal also made the heart burn act up pretty bad. I sometimes feel numb or light headed after various meals. Especially larger ones. In fact, it seems the more I eat, the worse I feel. But the less in the stomach, the more the pain above my belly button starts to act up.

      It is usually in the morning and afternoon I feel the most with gas and bloating. Especially after any large meals from the previous day. Despite the diet and work outs I have had, nothing has changed the stools. However, taking fish oil pills has greatly reduced the pain in my upper abdomen as well as the pain  in the the area above my belly button. My question now is, is there a very likely chance of this being celiac disease? Should I go on a gluten free diet to test since I Have to wait so long? Also, which test should I ask the doctor for first, as it will take a GREAT deal of time to pay off each one. Colonoscopy, HIDA scan, or endoscopy. 

      Again, I understand this isn't a site to get compete medical advice or to know exactly what my illness is, but I am trying to narrow down the possibility or what is most likely. If this has a chance of being celiac disease, I would rather know sooner than later.
    • Thank you very much for all the info Squirmingitch. The doctor told me as we were talking he was going to order some tests with urine so I don't know why he didn't mark that. Maybe he forgot as we were talking? Duly noted about the bladder Cancer to watch out for too. Doctor said it will take about a week to get the lab results back usually from this lab. The wait will seem like forever I'm sure. Yes I will press to have the other tests done too if this one comes back negative.
    • http://www.cureceliacdisease.org/screening/ Was your hubs tested for total IgA to see if he's IgA deficient? Read this thread: http://www.mayomedicallaboratories.com/test-catalog/Clinical+and+Interpretive/83660
    • Yes, bone density problems are all part of the celiac "umbrella" so to speak and yes, osteoporosis tends to happen more rapidly and at earlier ages than normal when malabsorption is happening. At age 43, it's not normal to have osteoporosis as you describe so that's another part of the jigsaw puzzle. Time to receive blood test results back from the doc are entirely dependent on the particular lab they were sent to. Yep, it's time for you to start keeping a very close check on the PSA in light of your father having had prostrate cancer. I would think you should get a PSA every year. I really would have liked to see him do a urinalysis. With the prostrate cancer your father had, it would seem a close watch should be kept on you for bladder cancer as well. The first symptom of that is blood in the urine but it's generally microscopic before you're ever able to actually see it. That happens to be the 8th most common cancer in men & it's moving up in the rankings. I know this because my hubs had it. The good news is that it's also one of the easiest and most successfully treated provided it's caught early. Certainly starting @ age 50, men should see a urologist every year. BTW, in the last year before I found out I was celiac, I turned up with microscopic blood in my urine. I got it checked out thoroughly since I know about bladder cancer & all tests, ultrasounds, cystoscopy, CT scan etc... turned out fine. The docs were stumped & finally said, "apparently that's just what your body does". Guess what? That's not "just" what MY body does. Once I went gluten-free, I have had no more microscopic blood in my urine. Interesting eh? Before now I didn't realize you are in Canada. The doc didn't do the full celiac panel but I understand the initial screening protocols in Canada only order the TTG but if that comes back negative be sure & press for the full panel as cyclinglady said. We have several here who tested like cyclinglady so it's not a rare thing, it's just not the norm. I'm glad he's doing the B-12 & Ferritin -- those can be big clues.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,663
    • Most Online
      3,093

    Newest Member
    Steph0903
    Joined