Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Celiac Disease And Weight Loss
0

Do you have weight loss issues too?   13 members have voted

  1. 1. Do you have uncontrolable weight loss too

    • yes
      7
    • no
      6

Please sign in or register to vote in this poll.

4 posts in this topic

I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

0

Share this post


Link to post
Share on other sites


Ads by Google:

I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

Hi and welcome! It can take time to feel better and begin to absorb your foods correctly. Do you eat a fairly balanced diet? 10 pounds in 3 days is something that I would definitely ask my doctor about.

0

Share this post


Link to post
Share on other sites

Lost scary weight very fast when I went gluten-free and then even more drastic when I went paleo.. the thing is the weight loss was body fat as I was gaining considerable strength back during that time. I lost 40 pounds in the first three months or so and most felt I didn't have any margin for weight loss in the first place. I knew differently though. I have never felt healthier, even though I still have endurance and recovery issues when I don't get enough protein. The body is busy healing and operating so the calories you need have to do double duty and if you have considerable gut damage you need to eat nutrients that the body can readily assimilate... simple foods as natural as can be. I found I couldn't handle raw veggies at first but now I prefer them as my gut can handle it. I am snacking on cauliflower and carrots presently. If I keep the protein intake high my appetite settles down. I thought I would pour on the raw fruits for a while but encountered way too many problems with bloating and discomfort. When I cut back and went with fruits that I don't consume the peel or rind... especially apples, strawberries and oranges.. (I would have a waxy residue chronically on my hand from peeling oranges and wondered if there was a gluten issue with that) sticking with bananas and fresh pineapple.. things settled down considerably. I took a trip to NYC and thought I had packed enough food for my two days.. lost ten pounds on that trip and am still trying to gain it back, so I sympathize with you.

0

Share this post


Link to post
Share on other sites

I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

Yes, I lose weight quickly too when I accidently eat gluten. Normally when I get sick I will lose around 5 lbs and I am skinny already. I find it very dishearting because I feel like I am wasting away. But when I am healthy on my strick gluten-free diet my weight slowly comes back. Your body is not absorbing what it needs so it takes it from the reserve. I would see your doctor about the rapid weight loss, maybe they can give you vitamins so at least you get some nutrients. Hang in there and stick to your diet.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,096
    • Total Posts
      920,333
  • Topics

  • Posts

    • I've had a range of symptoms in the last 2 months and in the past few weeks I have discovered that my TTG abs (igA) levels were 41 (my igA tests were fine). The doctor said that he is pretty much certain that it is celiac disease and I am awaiting an endoscopy to confirm it.  Before I found out that my TTG abs (igA) levels were high, I noticed that my body was reacting really badly to dairy products. I went on an elimination diet and stopped all gluten and dairy products and felt much better. I carried this on after my results and thought that I must have developed a dairy intolerance due to my celiac. 2 days ago I accidentally consumed a glass of wine which I thought was dairy free but it contained Milk. I have not had any gluten.  I am currently in the middle of a flare up. All of a sudden rashes have started to appear on my hands and my anxiety has returned (usually not a anxious person). No diarhhoea, vomiting or digestive issues. I am currently suffering from muscle twitching, rashes predominantly on hands and feet, brain fog, pins and needles/numbness on hands, feet and arms. However, I have been tested for milk allergy and this came back negative. Is it possible that it is dairy that is causing my symptoms/autoimmune reaction and could this be a reason for elevetated TTG abs (igA) levels. Or has the doctor only picked up my celiac and missing something else. If it was dairy intolerance then I would have digestive issues but I don't seem to have any. Could it be the casein protein?  Anyone been in a similar situation or can anyone provide some insight? 
    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
    • Hi.  I have been reading your post and thinking about how my pain was around diagnosis.  It was above the belly button, I think where you are describing.  At the time I assumed I had a stomach ulcer.   I had been taking Neurofen for an ear problem and assumed it was the NSAID that had caused my stomach ulcer (which I actually didn't have, when I had an endoscopy a few weeks later my stomach was looking great! My small intestine was not!).   Going back to the pain, it was a burning feeling.   My doctor prescribed Omeprazole but it didn't touch it.   In fact I ended up with bad D. which eventually lead to me having all the tests for Celiac Disease.   I still get that pain if I eat oats (pure oats) that are supposed to be OK for most Celiacs.     I get various pains in different places in my digestive tract from time to time, but that burning pain is something I won't forget. The other thing I had that you mention was that pain between the shoulder blades.  I had that - I felt almost like someone was pushing my shoulders down.  So odd. I get palpitations when I am anemic.    I hope you get some answers soon.  It is pretty tough having to keep going from one doctor to another, but sometimes it is the only way.   
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,132
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined