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Celiac Disease And Weight Loss
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Do you have weight loss issues too?   13 members have voted

  1. 1. Do you have uncontrolable weight loss too

    • yes
      7
    • no
      6

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4 posts in this topic

I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

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I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

Hi and welcome! It can take time to feel better and begin to absorb your foods correctly. Do you eat a fairly balanced diet? 10 pounds in 3 days is something that I would definitely ask my doctor about.

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Lost scary weight very fast when I went gluten-free and then even more drastic when I went paleo.. the thing is the weight loss was body fat as I was gaining considerable strength back during that time. I lost 40 pounds in the first three months or so and most felt I didn't have any margin for weight loss in the first place. I knew differently though. I have never felt healthier, even though I still have endurance and recovery issues when I don't get enough protein. The body is busy healing and operating so the calories you need have to do double duty and if you have considerable gut damage you need to eat nutrients that the body can readily assimilate... simple foods as natural as can be. I found I couldn't handle raw veggies at first but now I prefer them as my gut can handle it. I am snacking on cauliflower and carrots presently. If I keep the protein intake high my appetite settles down. I thought I would pour on the raw fruits for a while but encountered way too many problems with bloating and discomfort. When I cut back and went with fruits that I don't consume the peel or rind... especially apples, strawberries and oranges.. (I would have a waxy residue chronically on my hand from peeling oranges and wondered if there was a gluten issue with that) sticking with bananas and fresh pineapple.. things settled down considerably. I took a trip to NYC and thought I had packed enough food for my two days.. lost ten pounds on that trip and am still trying to gain it back, so I sympathize with you.

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I was diagnosed with celiac disease about 4 months ago after suffering with it for almost 3 years with no answers from any of the Dr's I seen. Finally went to Mayo clinic in Mn and got some answers and now that I have got on the gluten free diet I am only having maybe 1 or 2 attacks a month but Im still losing weight like crazy. Is this pretty common with the disease or something I need to be contacting my Dr about? For example: I have lost a pound and a half just since last night and I will go a week or two not losing anything and then bam I have lost 10lbs in 3 days. I weigh every morning first thing so I can keep track of my weight because it really bothers me how fast its coming off and I like to know exactly whats going on with my weight so I can tell the Dr if needed. Also I eat all the time so its not that I am not getting enough to eat. I am also not extremly active. I have 3 kids who are 4, 6, and 1 that I have to chase around but other then that I dont play any sports or do any regular exercise mostly cause I am scared it will just speed up the weight loss more. So what do you think is this normal or something else to be looked into? TIA

Yes, I lose weight quickly too when I accidently eat gluten. Normally when I get sick I will lose around 5 lbs and I am skinny already. I find it very dishearting because I feel like I am wasting away. But when I am healthy on my strick gluten-free diet my weight slowly comes back. Your body is not absorbing what it needs so it takes it from the reserve. I would see your doctor about the rapid weight loss, maybe they can give you vitamins so at least you get some nutrients. Hang in there and stick to your diet.

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    • Do you mean something like a protein powder you could mix up?  A lot of them in the US seem to be gluten free.  Maybe just go to your local store and read all the labels?
    • Yeah I ended up allergic to corn, olives, sesame, whey, and peanuts and intolerant to dairy, soy, yeast, enzyme issues with breaking down meats, and egg yolks, along with extreme bloat with any kind of carbs/sugars in moderate amounts. And very adverse reactions to certain artificial sweeteners. So your not alone in all the other issues cropping up, it happens as our bodies adjust.  I eat a bunch of stir frys with veggies, egg whites, plenty of  avocados, and toasted and raw forms of almonds, coconut, cashews, walnuts, hemp seeds, pumpkin seeds, flax seeds, sancha inchi seeds, chia seeds, and sunflower seeds in all forms including making them into butters, spreads, and incorporating them into sauces.   Most meals are forms of soups, omelettes, and stir frys. I do the seeds and nuts on rotation same with my veggies and snack on fruits in small amounts along with some homemade baked goods I make for markets. I do suggest a rotation of foods, my dietician said I need to rotate my foods to prevent more issues, making sure I am off one one for at least 7-14 days at a time completely. I find changing up the spices and rotating my cuisine base works well. I also make puddings, and protein shakes along with nut/seed milks, and different bases and extract flavorings to get my random cravings Taken care of. Guess take what you can from this and and see how it can help you,    As to the tinging, I ended up with both B vitamin and magnesium deficiency issues, the magnesium one caused a fire like tingling in my arms, legs and back, along with muscle pain. Ended up on a doctors best powder form of it so I can dose it out right, and found epsom salt bathes helped.  
    • Hi, I've gained so much knowledge on this forum over the past few months, which I am so thankful for. I can see how much hell people are going through with this disease and it's so lovely to see how much support and advice people give to others on here. I'd like a little bit of reassurance and advice myself from anyone that can help. I've been gluten free for six months. Two weeks after going gluten free I realised I also had a problem with corn so cut out processed food. Over the following weeks and months I continually had problems with food; fruit, dairy, a lot of vegetables, nuts, soya....it's basically dwindled down to just eating potatoes (not white potatoes), cucumber, lettuce, small amounts of red onion, spring onion, sprouts and beetroot. There may be more things I could be okay with but to be honest I'm too scared to try.  Is this all normal? Am I an extreme case? I've been taking some digestive enzymes and probiotics for about six weeks, my acid reflux has dramatically decreased but I always have a lot of loud noises going on in my guts, I'm guessing this is the probiotics working.  I've lost nearly 3st in weight since this started - which I'm not complaining about as I was overweight due to thyroid problems. I've had loads of blood tests done recently, all organs are working 'great' according to my doctor, the only thing they've picked up on is ketones, I seem to be having a glucose problem, which might explain my exhaustion and weight loss. I also have permanent numbness and sometimes tingling in one of my legs and sometimes hands and one shoulder, I thought it could have vitamin B12 deficiency but that's okay according to blood tests. I would be greatful for any replies. Thanks for reading.
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    • Hey there just wanted to warn anyone that has other allergies- these crackers may not be a good choice! I'm mildly sensitive to MSG- I only react if there's a giant amount like in Chinese food or Ramen noodles, etc.  I literally have a to eat TONS of a the offending food before reacting.  Anyway, I was excited to try these Trader Joes pumpkin crackers, kept hearing about them on the radio .... and they're gluten free!  (I have Hashi's).  I ate about 3/4 of the box last night. Woke up this morning with a red itchy face and nasal congestion, headache, anxiety. Hallmark symptoms for me of high MSG intake. (It does say yeast extract on the side but it's pretty far down the list). So if you're sensitive.... stay away! Apparently these particular crackers are loaded with it. 
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