Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Ads by Google:
Celiac.com Sponsor:                                    


Photo
- - - - -

Do You React To Different Gluten Sources Differently?


  • Please log in to reply

5 replies to this topic

#1 ellie10

 
ellie10

    New Community Member

  • Members
  • Pip
  • 4 posts
 

Posted 28 June 2010 - 09:20 PM

Hi everyone,

I have been suffering from sinusitis for years off and on, but this last time has been particularly maddening since my head will not completely drain like it would before. My head has not been clear like before in over two years this time. I have tried everything and still keep coming back to food intolerance and possible additional problems with candida due to previous antibiotic use. Not to be gross, but I have strings of stuff that is just now draining after trying to reduce gluten and taking probiotics, but I still can't get 'back to normal'. I went to western-minded docs (incl. ENT) and they said they couldn't find anything except a maxillary cyst (which they said couldn't cause problems) but 'they love to do surgery' and if things didn't improve I could do that. Um.....no thanks. Anyway, my family thinks I am insane because I am trying to avoid gluten most of the time (and sometimes dairy as well) and they even say things like 'well, I LOVE gluten - I will eat mine with EXTRA gluten'. Like I said, they think I'm nuts.

Sometimes I do cave in on Friday nights when they order pizza (a nationwide chain). I just get so discouraged because I don't have the money to test at Enterolab yet, and I get tired of trying to fight upstream against everything sometimes. I know I feel bad after eating pizza but I have noticed a weird thing going on. If I eat the hash rounds at Burger King (which I just now found out have wheat - I thought they were gluten-free in a dedicated fryer like the fries which don't really bother me) I get TERRIBLE leg cramps (like charlie horses). Only SOMETIMES do I get these same weird leg cramps when I eat pizza. One time I made a bunch of muffins and ate 3 before going to bed, and I woke up screaming in the middle of the night with the worst and longest-lasting charlie horse I have ever had in my life.

My questions are:
Why is it that hash rounds/potato cakes and muffins can cause pain but not always pizza? It seems to me the pizza crust would have WAY more gluten than what is on the hash rounds (although there is the cc issue).

Do any of you only react SOMETIMES to gluten and only to particular sources?

Is it possible I have some other weird intolerance going on like soy instead, or even in addition to gluten problems (I do suspect dairy)?

Thanks!!
  • 0

Celiac.com Sponsor:

#2 Marz

 
Marz

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 339 posts
 

Posted 29 June 2010 - 04:14 AM

Is it possible I have some other weird intolerance going on like soy instead, or even in addition to gluten problems (I do suspect dairy)?


It's quite possible you have a dairy intolerance. Dairy makes my nose run like mad. When I eliminated it in a trial a few years ago, my constant nasal drip disappeared within a day. Eating/drinking dairy afterward had a very noticeable reaction within a few hours. So yes, diary can cause sinusitis or make nasal drip a lot worse. Pity I can't give it up, I just put up with the nose running :) If I consistently eat the same amount of dairy each day, I find the symptoms do get milder, as if your body gets used to it, but it might not be worth it for you.

Also look into histamine intolerance - do you get migraines or headaches, jaw pain, sinus pain after eating chocolate, cheese, avocados or wine? With me if I eat a lot of chocolate, like an entire slab, I'll guaranteed be off sick the next day or two with a sinus infection/nasty cold! Somehow the chocolate releases a ton of histamine in my body, or possibly drives down my immune system so that I'm susceptible to getting sick. Chocolate in small amounts seems to be fine :)

I found these connections by keeping a food journal daily, keeping track of food eaten and symptoms. The chocolate/getting sick connection came up very quickly. I also found out I had a severe GI intolerance to chicken, so it was *definitely* worth a few minutes a day doing it :)

As for your gluten questions - I never saw any link between my gluten consumption and symptoms in my food journal way back. My other diary/chocolate symptoms are clear as *night* and *day*, I swear! :) I think the only way to know for sure is to keep a strict gluten-free diet for at least a month and see how you feel. It can take a while to get rid of all the gluten poison running around your body, and your gut takes time to heal, if it's damaged.

Also, it's only when I went off gluten completely that I really started reacting badly to small amounts of gluten. There's a "masking" effect in place when you're eating wheat all the time, similar to the dairy thing I think, where you don't feel so bad, but take it away and you really get sensitive to it.

I sympathize with the family comments - just ignore them and do what's right for you. Celiac disease is hereditary, so chances are they're also suffering and you've found the key to make you feel better! I think people feel threatened by others with "special" diets, they want you to eat what they're eating to justify their diet, pigging out on bread etc. They can't understand that it's not a "fad", we're really sick and desperate to try anything to feel better. :/

By the way, if you haven't already, I'd highly recommend seeing a GP and getting a blood test for celiac done before going gluten-free (Just make sure they test IgA, not IgE levels!) Don't take no for an answer! If you are diagnostically celiac (and it can happen without any GI problems at all!), then you've got something to justify your diet to your family, and they may need to go for testing as well!

Hope this long answer helps, and good luck with finding the cause of your issues!
  • 0
Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

#3 RiceGuy

 
RiceGuy

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 3,520 posts
 

Posted 29 June 2010 - 05:52 AM

I think it might be the fact that potatoes are a nightshade. I not only had terrible leg pains from potatoes, but I literally couldn't walk for about two weeks after eating them. The alkaloids in nightshades are actually toxic to everyone, but most people have a high enough tolerance so as to not notice any effect. But with a leaky gut (which Celiac tends to cause), those toxins can more easily pass into the bloodstream. Candida overgrowth can also cause or accompany a leaky gut.

Try taro root instead of potatoes. They are white inside, and can be fried, baked, mashed, boiled, etc just like potatoes. I've even made chips out of them. The flavor is very similar too, though I actually prefer the taste of taro over potato. It's slightly sweeter, with a hint of what many describe as tasting like water chestnut.
  • 0
A spherical meteorite 10 km in diameter traveling at 20 km/s has the kinetic energy equal to the calories in 550,000,000,000,000,000 Twinkies.

#4 nora_n

 
nora_n

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 1,489 posts
 

Posted 29 June 2010 - 08:25 AM

I and someone else also noticed more reactions to small gluten sources than to huge gluten sources. Happens sometimes.
  • 0
gluten-free since may 06 after neg. biopsy symptoms went away and DH symptoms which I had since 03 got gradually better.
daughter officially diagnosed celiac and casein intolerant.
non-DQ2 or DQ8. Maybe DQ1? Updated: Yes, double DQ5
Hypothyroid since 2000, thyroxine first started to work well 06 on a low-carb and gluten-free diet
Lost 20 kg after going gluten-free and weighing 53 kg now. neg. biopsy for DH. Found out afterwards from this forum that it should have been taken during an outbreak but it was taken two weeks after. vitaminD was 57 nmol/l in may08)

#5 Mari

 
Mari

    Advanced Community Member

  • Advanced Members
  • PipPipPipPipPipPip
  • 287 posts
 

Posted 30 June 2010 - 06:59 PM

I had a problen with my neck vertabrae being slightly out of line and after seeing a chiropractor learned to re-align the vertabrae and when I did that my sinuses would drain. From another chiro. - he said that whenever we are exposed to something we react to that our head instinctively jerks back and this may cause a misalingment. I also feel better, not so fog headed and the ringing in my ears is much less, I think it restores good circulation to the brain.

One reason for leg cramps and stiff muscles is that your body may be too acid rather than the normal slightly alkaline. You can get pH strips and test the saliva first thing in the morning before brushing teeth or putting anything in your mouth and if it is acid you can correct it. I read up on this and I find if I eat more vegetables than carbs amd high protein foods such as meat it's unusual for me to have leg cramps and still muscles. Search for 'acid forming foods'. I always try to add enough alkaline forming food anytime I eat acid forming foods. 3 muffins with nothing to balance them would give me cramps.
  • 0
DQ6/DQ8
HLA-DQ B allele 1 *0602: HLA-DQ B allele 2 *0302
Gluten free and Cow Dairy free since 2006

#6 ellie10

 
ellie10

    New Community Member

  • Members
  • Pip
  • 4 posts
 

Posted 30 June 2010 - 09:39 PM

Wow! Thank you so much to all of you for your responses so far - these are great ideas!
  • 0




0 user(s) are reading this topic

0 members, 0 guests, 0 anonymous users

Celiac.com Sponsors: