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Is This Normal?


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#1 Becksabec

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Posted 05 July 2010 - 10:23 AM

I was only diagnosed a couple months ago, and in the beginning, I found myself kind of depressed about being on the gluten-free diet. I missed being able to eat whatever I wanted, and it was even worse when I saw my friends and family eat things I couldn't have, in front of me.

But now, I feel like I don't even miss it. I was the grocery store with my roommate a few days ago, and the guy in line in front of us was buying two loaves of wheat bread. My roommate said, "Does that bother you?". My response was, Not only does it not bother me, but I no longer have a desire for it. I've found that the cravings are no longer there, especially since I've become so much more healthier since being gluten-free.

I had so many different health issues before. I felt like my life was a constant doctor appointment, and I always being tested for things, and never really finding out the cause. I had pretty bad anemia, and it got to the point where some days I couldn't even get out of bed. I wasn't able to work or go to school due to it. Now that I'm healthier, I was able to go back to college and do all of the things I wasn't able to before.
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~ Becky
Diagnosed Celiac/DH in April 2010.
Gluten and dairy-free since 4/26/10.

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#2 kareng

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Posted 05 July 2010 - 10:30 AM

I still miss being spontaneous and eating at any place at any time. But the food doesn't bother me otherwise. Some of it is that I have found substitutes that I really like. Hub made glutenfull pancakes today. They made the house smell wonderful but I didn't want any. I've actually discovered things to eat that I didn't know about. We like the rice tortillas for some things better than the whole wheat ones we used to get.
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#3 Becksabec

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Posted 05 July 2010 - 10:35 AM

I still miss being spontaneous and eating at any place at any time. But the food doesn't bother me otherwise. Some of it is that I have found substitutes that I really like. Hub made glutenfull pancakes today. They made the house smell wonderful but I didn't want any. I've actually discovered things to eat that I didn't know about. We like the rice tortillas for some things better than the whole wheat ones we used to get.


Oh yeah, I've actually had fun trying to discover all the possible substitutes. I do buy some of the alternative products, and I've done a lot of experimenting with baking. Actually, I think it was the baking that kept me sane in the beginning.
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~ Becky
Diagnosed Celiac/DH in April 2010.
Gluten and dairy-free since 4/26/10.

#4 burdee

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Posted 05 July 2010 - 11:19 AM

I was only diagnosed a couple months ago, and in the beginning, I found myself kind of depressed about being on the gluten-free diet. I missed being able to eat whatever I wanted, and it was even worse when I saw my friends and family eat things I couldn't have, in front of me.

But now, I feel like I don't even miss it. I was the grocery store with my roommate a few days ago, and the guy in line in front of us was buying two loaves of wheat bread. My roommate said, "Does that bother you?". My response was, Not only does it not bother me, but I no longer have a desire for it. I've found that the cravings are no longer there, especially since I've become so much more healthier since being gluten-free.


My reaction to the gluten free diet was very similar to yours. I was soooo glad to learn what caused and how to prevent my excruciating gut pain that I didn't miss gluten, because I didn't miss the pain. Also I was coached during my first few days by a friend whose husband has celiac disease. She told me what foods and brands that I could substitute for all the gluten containing foods I previously ate.

Then I joined a local celiac support group and purchased a few books about gluten free living and cooking, which taught me even more. When the leader of my group resigned, I assumed leadership of that group for the next 3 years. As leader, I received many free samples of gluten free foods from companies which wanted me to introduce their foods to my group. I also organized and managed 2 celiac awareness walks and gluten free food fairs in my city. Being actively involved in the celiac community and learning as much as I could about gluten free living prevented me from 'missing' any gluten containing foods.

However, I had more difficulty adjusting to my other 6 food allergies (dairy, soy, egg, cane sugar, vanilla and nutmeg) . Nevertheless, as I found substitutes (and companies made new, tasty substitutes) for foods which contained my allergens, I no longer missed those foods. Even with 7 food restrictions, I have many delicious choices, so that I never miss any foods which contain my allergens.

SUE
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Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.


#5 Saz36

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Posted 06 July 2010 - 01:26 AM

My reaction to the gluten free diet was very similar to yours. I was soooo glad to learn what caused and how to prevent my excruciating gut pain that I didn't miss gluten, because I didn't miss the pain. Also I was coached during my first few days by a friend whose husband has celiac disease. She told me what foods and brands that I could substitute for all the gluten containing foods I previously ate.

Then I joined a local celiac support group and purchased a few books about gluten free living and cooking, which taught me even more. When the leader of my group resigned, I assumed leadership of that group for the next 3 years. As leader, I received many free samples of gluten free foods from companies which wanted me to introduce their foods to my group. I also organized and managed 2 celiac awareness walks and gluten free food fairs in my city. Being actively involved in the celiac community and learning as much as I could about gluten free living prevented me from 'missing' any gluten containing foods.

However, I had more difficulty adjusting to my other 6 food allergies (dairy, soy, egg, cane sugar, vanilla and nutmeg) . Nevertheless, as I found substitutes (and companies made new, tasty substitutes) for foods which contained my allergens, I no longer missed those foods. Even with 7 food restrictions, I have many delicious choices, so that I never miss any foods which contain my allergens.









SUE

Hi, i was diagonised celiac in january and at first found the diet really easy, managed to avoid dairy, sugar and yeast successfully to, but then came the soya intolerance and it took weeks to get my head round but i finally managed it, Then just when i thought things were improving bang comes the corn allergy and i cannot get my head round it. I spectacularly came off the wagon for a couple of weeks because ijust reacted to anything i ate so i figured i would eat whatever i wanted. Very stupid i know. I am now back to eating meat/fish/poultry/ limited fruit and veg and gingerly trying eggs. I feel worse and more lethargic eating tese foods than i did when i ae all my intolerances. I read on here about people baking and replacing their favourite foods but it always seems to contain some of my problem foods. The thought of six to twelve months on this diet doesn't sound appealing and i'm scared that when i have the cravings i haven't the willpower to resist. How does everyone else cope??? or are your symptons so severe they put you off???? I am scared that when i get this corn/fructose thing sorted that something else is gonna rear its ugly head and i will be left with nothing to eat.
Sorry for the rant but no one i know has any answers and the doctors are rubbish although i am back at the hospital tomorrow, i don't hold out much hope.
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