Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Brain Fog And Light Sensitivity.
0

11 posts in this topic

Hey there,

After 3 tough years I found out that I am celiac, however, I am only about 3 weeks into the gluten free diet.

I have had really horrible and non-stop brain fog for the last 3 years. I haven't had any good days with the brain fog where it is even slightly relieved, all bad days.

I'm wondering if anyone else has experienced this and also my burning desire is to know how long it took for the brain fog to disappear after being on the gluten free diet?

Does the brain fog suddenly disappear, does it slowly leave, how long does it take?

It is driving me crazy, I cannot function properly.

Thanks :(

Craven

0

Share this post


Link to post
Share on other sites


Ads by Google:

Well, there are a few options. One is that is it directly related to the gluten, in which case it could go tomorrow or take a while longer to lift. I had depression arising from gluten, and it lifted very obviously about 3 months after going gluten free (with 1 or 2 known glutenings in that time).

Other options are secondary problems. Have you had your iron and B12 levels checked? It's quite common for these to be low in people with celiac/gluten sensitivity, and both can cause brain fog. I've been deficient in both, and they definitely affected me that way, and severely

For me, I have been gluten free close to 2 years. The first 6 months of that I spent with yo-yoing iron and B12. After that I started looking into secondary food intolerances, as I found that I would usually crash with overwhelming brin fog directly after lunch (as well as other more general GI smptoms). It's been a complicated process for me, but I am about 3 weeks into a chemical elimination diet and experienced a couple of days in that time where the brain fog was totally gone. I am yet to reintroduce foods to pinpoint what is causing the brain fog, but it certainly seems food or chemical related for me.

If the brain fog continues, look in to iron and b12 (there's probably other nutrients to look at, I'm sure others can give you a more thorough list), it also wouldn't hurt to look at your thyroid if you have general tiredness as well. If nothing comes up, try a food journal to see if you can find any patterns between the fog and food.

0

Share this post


Link to post
Share on other sites

I 2nd the B12 and iron levels. I have had severe brain fog and lethargy for so long that I sank into deep depression.

My iron has been low all my life to the point that I could never donate blood. My B12 was also always low even with taking pills. I finally found a dr. that started me on B12 shots. I thought the world was a new place! The energy I had!

I now take sub lingual B12 under my tongue. I can definitely tell the difference after about 5 mins.

As for the lethargy mine is still lingering around at times but I am finding as my diet is improving (gluten free/dairy free) I am gaining a bit more energy.

Brain fog has also lifted. I find it returns if I accidentally gluten. I think it took me about 2 weeks to start feeling it lift after going gluten free and then it took another week or so to really accept the NEW feeling of being fogless. :)

Remember it took a long time for your body to get sick and it could take a while to heal as well.

0

Share this post


Link to post
Share on other sites

I'll add vitamin D to that list as well. I struggled with brain fog for a good 9-10 months into my gluten free diet and then it lifted. One day it was just gone. I suspect that my vitamin levels are at a good place and that I'm finally getting the nutrition I need from my food.

0

Share this post


Link to post
Share on other sites

I 2nd the B12 and iron levels. I have had severe brain fog and lethargy for so long that I sank into deep depression.

My iron has been low all my life to the point that I could never donate blood. My B12 was also always low even with taking pills. I finally found a dr. that started me on B12 shots. I thought the world was a new place! The energy I had!

I now take sub lingual B12 under my tongue. I can definitely tell the difference after about 5 mins.

As for the lethargy mine is still lingering around at times but I am finding as my diet is improving (gluten free/dairy free) I am gaining a bit more energy.

Brain fog has also lifted. I find it returns if I accidentally gluten. I think it took me about 2 weeks to start feeling it lift after going gluten free and then it took another week or so to really accept the NEW feeling of being fogless. :)

Remember it took a long time for your body to get sick and it could take a while to heal as well.

Thank you all for your replies, this has been really helpful. =)

Could you please tell me, at what time of the day is sublingual b12 best taken? Also, before or after a meal?

Thanks!

0

Share this post


Link to post
Share on other sites




Thank you all for your replies, this has been really helpful. =)

Could you please tell me, at what time of the day is sublingual b12 best taken? Also, before or after a meal?

Thanks!

Honestly, I take mine in the morning and then again about 2pm or so to give me just a little more edge to get through the last of the day with the kids. Since it's sub lingual dissolving under my tongue I don't have to take it with food. Hope that helps!

0

Share this post


Link to post
Share on other sites

...um.....

What exactly is "brain fog"? What does it feel like?

0

Share this post


Link to post
Share on other sites

...um.....

What exactly is "brain fog"? What does it feel like?

For me brain fog is when I have trouble thinking. My memory is shot, constantly forgetting things and I have trouble with talking. I know what I want to say but just can't get it out of my mouth. I get very frustrated very easily and also my temper will flare, perhaps not a true part of brain fog but definately an effect I get from gluten. Things that will not normally bother me a lot will easily cause tears, like something I read or see on TV. All I want to do is just sit and stare at the walls. A lot of this can be seen as symptoms of 'clinical depression' but the effects are short lived and when the antibodies have left my brain I return to normal.

Hopefully others will also reply as I think 'brain fog' can mean different things to different people.

0

Share this post


Link to post
Share on other sites

...um.....

What exactly is "brain fog"? What does it feel like?

It feels like my thought processes are lost in a heavy pea-soup fog, so that the neurons can't find each other to communicate. I get what I call 'noun-phasic', can't find the nouns I need, and the wrong ones come out instead. Input doesn't process well, or very slowly. My brain doesn't know where the rest of my body is, so I am prone to injury if I am not very careful. very frustrating, annoying, and can be frightening, too. Don't give me even simple arithmetic problems to do, as I'll switch around the numbers, and forget what I'm doing partway through. :blink:

As to what exactly is brain fog, I don't know, in terms of biochemistry and neurobiology. Not sure anyone knows. It is exacerbated for me by fatigue, eating the wrong foods, stress, high pain levels, hormone cycles, and sometimes no particular reason at all. Perhaps it is related to inflammation in the body, as eating gluten free can decrease bodily inflammatory levels.

I do know I've had less of a problem with brain fog since I've been gluten free. It was a gradual fade away, realized one day that my thinking was more clear than it had been for a long time. I still have good days and less good days, but I also deal with fibromyalgia, which also has brain fog as a symptom.

I'd like never to deal with it again, but I can dream!

0

Share this post


Link to post
Share on other sites

I second ravenwoodglass about the memory-loss and the inability to think or talk. And the sensitivity. And the just wanting to stare at the walls. It actually sounds fun when everything else seems futile. A lot of times, I can think of what I need to do but I can't react quick enough, or can't the feeling of how to follow through.

I get a similar response from caffeine withdrawal, which is why I think it has something to do with dopamine, and the immune system trying to put the ability to eat to sleep. Also, it takes about five times the caffeine to bring me to alertness after gluten, so I know there is some correlation.

To the OP, one of my first major tools for that was activated charcoal. I had a friend whose grandma said it was good for hangovers - no there's a product for that. Also, seventh day adventists use it, and people who eat burnt toast. It seems to absorb whatever chemical messenger is from the immune system to the brain. I stopped using it because it adds a lot insoluble fiber, but I was happy with it for months using it after a reaction. Not all brands seemed the same, and I guess they could make it from wheat if they wanted to, but Nature's Way Activated Charcoal, seemed to be okay.

I think I also stopped because I worried about it absorbing important nutrients. But I was able to temporarily clear the fog. Now I caffeine or other stimulants, along with lots of protein or fats, because the stimulants used to give upset, I think because they naturally promote bowel movement. In my case that triggered "pulling the plug" until I got foods that were safe enough for my gut to want to hang on to. Btw, I think stimulants can mimic allergic reaction to a degree, with a similar nervous (sympathetic) excitation. But I think they can also moderate them when used in moderation.

Hope that helps!

0

Share this post


Link to post
Share on other sites

Sounds like you have Adrenal Exhaustion. I have it- the brain fog is horrible. Do you get super tired @ 2 pm? Do you crave salt? Do you have dark circles under your eyes?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,634
    • Total Posts
      921,525
  • Topics

  • Posts

    • I've been diagnosed with celiac a few months ago I thought that I had it for a while now it runs in the family.  I found out I had it a few months back when I ate chick fi a sandwich and had to go to the ER because I couldn't stop throwing up. They didn't know what it was and it took a few more months for anyone to take me seriously and find out what's wrong   Anyways I've gone gluten free now and I still have pains whenever I eat ANYTHING. It's cramping and burning and feels like my stomach is on fire.  I also have pains...below which I'm not sure what it is.  I ate a salad today, and now i'm in pain the salad had cheese, onion on it no dressing or any breading... Maybe I should stay away from cheese, I think it may be lactose and can't eat soy.   I ate some gluten free chex the other day with rice milk and ended up in pain.. I don't know maybe it's more than just celiac. I don't know if this is normal for people just going gluten free...maybe there was some hidden gluten in those foods. I don't know.   All i know is that this pain is hurting me and I'm tired. Thanks for reading...this is my first post.
    • I found my gas issues were caused by carbs, and sugars, something about how the bacteria in my gut changed and started making me gassy and extremely bloated when they got a hold of any thing more then a tbsp of grains, beans, fruit, or starch carbs. And no amount of medicine helped. Changed to 1/4 servings of those and mostly protein, fat diet. As for vitamin supplements I found I have to take B vitamin supplements 3 times a day to not go zombie mode. I personally found Liquid Vitamins Energy & Stress and the Nero-logic from them helps along with the occasional 1/2 bottle of 5 hour. As to carbonated water I avoided it when bloated cause it made me feel worse.
    • Butterbean, do go have a read of the dermatitis herpetiformis section.  See if anyone's story sound familiar to what you're experiencing.
    • Hi all. Well, it's been around twenty days since I've been taking Gas-X like meds (with simethicone), but no relief. Maybe I should drink bigger dose... Currently, I'm taking 80 mg four times per day.
      I'm so exhausted, both mentally and physically... Anyway, I have two questions:
      First, is it good or bad to drink mineral/carbonated water if you have severe trapped gas like me?
      Second: Is it possible to regain some physical strength/relieve fatigue with vitamin supplements? Thanks in advance.
    • I have had so many issues with my teeth--I keep getting decay and I have had filling after filling.  This past week, my dentist told me I may need a crown, which is pricey. I also have two missing teeth, which was a genetic thing that runs in my family. I am sick of hygienists telling me I am not doing enough brushing, flossing rinsing.  I do all three religiously (can't even imagine how bad my mouth would be if I didn't...)  Thankfully, last time I had my teeth cleaned, the hygienist said that my mouth was the cleanest one she had seen in years. And, she said, "something happened to your teeth developmentally." I explained how I had undiagnosed celiac disease many years. I am only 31... It is really disheartening.   What do you guys do to afford all this dental care?  My insurance doesn't cover a whole lot.  Thankfully, my dentist has felt bad and gives me discounts here and there.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,637
    • Most Online
      3,093

    Newest Member
    Gracey
    Joined