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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Feeling Sick After Eating Anything.
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17 posts in this topic

Lately I have been feeling sick after everything I eat. I don't get my gluten symptoms (bloating, D, vomit, etc) but I just feel really nauseated and my migraines are triggered. My depression and anxiety have been horrible lately. I have my own gluten-free kitchen (with the bf's occasional beer) so no utensils or anything are contaminated. Here is what I ate for dinner:

Salmon with lemon

Rice

Cooked carrots and peas

I don't know what could possibly bother me with that. For breakfast I had a rice cake and some turkey bacon, which has never bothered me before. Should I go back on an elimination diet? Keep a food diary? I don't really know how to keep a food diary, just write down what you eat?

Any ideas are appreciated!

Devon-Anne

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Sometimes rice gives me GI problems. Other times it's fine. I try to rotate my starches so that I'm not eating rice too often. If you've been eating a lot of rice lately, you could try a rice-free week and see if your symptoms improve.

And yeah, a food diary is pretty much just writing down everything you eat and when in the hopes of pinpointing problem sources. Easiest way is probably a small notebook that you can carry in your purse or pocket.

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A food journal would be a good thing. Make note of when bf drinks beer. Many people here say they are cross contaminated from kissing and from body fluids from people who consume gluten. Any new medications or new personal care products should be noted. Keep an eye out for oat contamination.

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Yeah, I'd do a food log, too. Write down what you eat, at what time, and EVERY ingredient. Brand names of the foods can help, too, as some brands may have different processes, suppliers, etc... that affect your reactions. Then note every reaction and what time for that, too. After a couple weeks, or less, you may start to see a pattern. Maybe think about eating only certain foods for a couple days, then switch to completely different foods another day, see if it affects the reactions? (and you'd need different salt (one of them should be non-iodized), different oils, etc... for this to work well)

Rice could definitely do it to me, even though I was always told that rice was safe! It seems to be a little less safe for some of us celiacs, allergy-wise

I'd also look at anything else that might be in common in many of your meals?

--Was there salt in both meals? It can have anti-caking agents or corn for stabilizing, if it's iodized.

--Any oils that you used with both meals? Those are often problems for people developing seed or nut issues, due to cross-contamination. Nuts are ones that often give headaches, too.

--Oh! Do you have any allergies to antibiotics? I did, and once I went gluten free I started getting more sensitive to antibiotic residues in animal products! Farm raised fish has HIGH levels of residue, but bacon would probably have a little of it, too.

--Also, you might check out sulfite reactions and fructose malabsorption on-line. Those conditions can react to a wide range of foods, so it feels like reacting to everything.

Good luck - so sorry you are having difficulty!

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Bummer. So sorry to hear you're depressed and anxious. I hate feeling like that.

Did you start any new meds lately, or start taking any supplements?

You do have a "big 8" allergen on that meal, the fish. A food diary is writing down everything you eat and how you felt that day. You look for patterns. It's hard to sort out delayed reactions though because you might have to sift through three days of foods. Did you feel better on your elimination diet? Maybe you missed a food you are reacting to because the reaction was delayed.

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Lately I have been feeling sick after everything I eat. I don't get my gluten symptoms (bloating, D, vomit, etc) but I just feel really nauseated and my migraines are triggered. My depression and anxiety have been horrible lately. I have my own gluten-free kitchen (with the bf's occasional beer) so no utensils or anything are contaminated. Here is what I ate for dinner:

Salmon with lemon

Rice

Cooked carrots and peas

I don't know what could possibly bother me with that. For breakfast I had a rice cake and some turkey bacon, which has never bothered me before. Should I go back on an elimination diet? Keep a food diary? I don't really know how to keep a food diary, just write down what you eat?

Any ideas are appreciated!

Devon-Anne

I know exactly the feeling you are describing. My stomach is horrible after I eat ANYTHING. I am trying to pin point what the issue is but I haven't found the cause as of yet. It is very frustrating.

Cory

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I good way to track your diet is using livestrong.com. Go to my plate and you can enter what you eat. There is a list of lots of brands, which is very helpful. It keeps track of calories, carbs, fats, etc. There is also a daily diary where you can enter how you feel, how you slept, notate what foods you suspect are bothering you, etc.

I used this when I was on an elimination diet and it was very helpful. It was a great way for me to keep track of how I felt. I was underweight and was able to consume enough calories each day because everything was calculated for me.

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Thanks, I'm going to have to try all of this. For breakfast I had an apple and a plum and felt sick for hours. D came later at work. wtf?

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Apple and plum have fructose. Maybe you have fructose malabsorption. Try looking up a low FODMAP diet.

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Apples are a big no-no with Fructose malabsorption. Plums are a stone fruit and should be ok.

But with fructose malabsorption it's all about the loading. When you eat something high in fructose, it may or may not be tolerated by you depending on how much other high fructose foods you have already eaten that day. This makes it hard to track down. Plus, everyone's tolerances are different.

Fructose malabsorption affects an estimated 33% of the population to some degree so it is quite possible this is your issue.

Try avoiding apples, pears, tomatoes, onions, garlic, artificial sweeteners and wheat (not that this is relevant to you anymore) for a while and see if it makes a difference.

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I good way to track your diet is using livestrong.com. Go to my plate and you can enter what you eat.

Thank you so much for suggesting this site. I have been looking for something like this online to track my food diary! :)

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Plums are a stone fruit and should be ok

Plums and the other stone fruits contain sorbitol which can bother you if you have a fructose intolerance. If you follow the FODMAP diet this is a fruit you'd avoid too.

FODMAP safe fruits: ripe bananas, strawberries, blueberries, raspberries (but not blackberries), oranges, mandarins, grapefruit, lemon, lime. Avocados and fresh tomatoes (in moderation) are ok too though we tend to think of them as veggies and not fruit.

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This happens to me too. I am a year and half gluten free. I just went to the Celiac Center in Columbia and my bloodwork is SO GOOD!!! No antigens showing I am ingesting gluten by cross contamination (or cheating as they would say). It doesnt show an immune response. All my vitamin defieciences were corrected!! I only need the mulit vitamin. So it all looked good, why so nauseos after eating???? They dont know. I had all kinds of tests done. My last endoscopy showed my intestines are still all scalloped but the doc said that is normal for only a year or so into diet. She also said not everyone heals a whole lot or at the same rates and they dont know why.

I guess the bottom line is they dont know why. Celiac has such varied symptoms......

Just wanted to share so you knew you werent alone

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Thanks Kathleen, it's always nice to know that we're not alone in all this. So for those who are on the FODMAP diet, gluten-free obviously, Soy-free, Dairy-free, and gonna try maybe corn and rice free...what do you eat? Rice cakes have been my saviour through this year and a half..and rice noodles, rice paper, rice tortillas, rice bread....

Are most veggies ok? If not, which ones are no-nos?

And thanks for the food list Kayo, anybody else want to add?

Thanks so much for your replies, doctors don't seem to be extremely helpful when I bring up this issue and I definitely don't have the money for a nutritionist (let alone for food itself lol), but I find that y'all know more from experience than these people anyways!

Muchly Appreciated :)

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My mom has fructose malabsorption. She eats a lot of potatoes and white rice for starch. Also homemade cornbread or spoonbread with no added sugar. Brown rice has enough fructans to bother her. She eats a lot of leafy greens like kale and chard, and salads with limited amounts of other veggies with a little more fructose. Meats, nuts, eggs, and seeds are fine, and she can eat small servings of legumes with a little BeanZyme. She can also eat low-lactose dairy.

This is the best article I can find for you on a quick Google search.

http://health.glam.com/blogs/healthhypecom/low_fructose_diet_in_fructose_malabsorption/?cat=Health

It's partly about fructose load, which is why figuring out fructose malabsorption can be confusing. Half a plum with some cottage cheese might be perfectly fine, while a handful of prunes can be way too much sorbitol for your gut to handle. Mom can eat a bite or two of a high fructose food, but if she eats too much she's miserable all evening.

Mom also pays attention to the fructose:glucose ratio mentioned in the article. She keeps bulk dextrose around and can do things like sweeten her coffee with dextrose and then have a little fruit with breakfast.

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I have a similar story, but may or may not be related. I couldn't eat anything either. I had been gluten free for over a year, seeing a lot of improvement. However, in the last year, I was still sick far too often for it to be a cc issue. Food that was safe months previous would make me sick. Eating became like a minefield again. Becoming desperate & losing will to live, I read everything I could find that could possibly cause these terrible symptoms, and documented everything I ate. I went to see other specialists and asked a lot of questions. I was tired of having no good answer from my GI, who seemed to think it was not an allergy issue at all.

With a blood test, my new doc confirmed 'Mastocytosis' which sends my 'Oral Allergy Syndrome' thru the roof. My symptoms from that are very much like glutening. Gut anaphylaxis, with bloating, belching, vomitting, D, nausea, abdominal & musculoskeletal pain, immediate anxiety & depression. It's been a godsend to finally have a clue. For me, it's a 'seasonal' allergy to certain many fruit/veggies, etc. depending on what 'pollen' is in the air. Finally can eat, gaining weight again. Good luck to you!

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