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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Recurrent Miscarriage And Celiac
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12 posts in this topic

I know UNTREATED Celiac can cause recurrent m/c but what about treated celiac? My labs show I'm not suffering from malnutrition and I'm following the diet perfectly but I just had my 3rd m/c in the last 2 years. Could celiac be to blame?

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If the damage has not completely healed and your immune system is still compromised, then Yes, unfortunately even treated celiac disease can still cause miscarriage.

I'm so sorry for your losses. I too had several miscarriages, all of mine were prior to being dx, and my subsequent pregnancy was full of complications, so you will want to make sure you have an OB/GYN that will search out all possible causes.

I don't think that any Dr. truly knows what causes miscarriages to occur, but try to keep the faith that you will have a happy healthy pregnancy. Just be sure your Dr. is well aware of the history and risks and monitors you appropriately. Good Luck :)

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Once the damage to the villi is healed and you are adhering to the diet I believe your chances of miscarriages decrease to that of the normal population.

I'm sorry for your losses and what you have gone through

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I think we all wish we had something of more help to say to you, but we all feel your frustration and have you in our thoughts. I wonder if your thyroid is functioning normally, that can really affect prenancies. Also, keep stress levels in mind, and not just emotional, physical too. I wish you all the best and hope you know we are all pulling for you!

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I'm sorry for your losses. I had a miscarriage, when I was 17 and too young to be pregnant anyway, so I didn't really investigate it much. I haven't been pregnant any other time and wonder if this happening was connected to my gluten intolerance and poor immune system or if it was just something that happened. I was undiagnosed at the time.

Stephanie

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It's a difficult thing to go through and I'm sorry for your loss.

I also had a miscarriage and both my childrens preganacies were threatened with miscarriage the whole time i was pregnant.

The stress was enormous and the grief is often not acknowledged by others.

This was before I knew I was celiac but I had all the symptoms.

I know often miscarriages occur for no known reason but they can be associated with celiacs disease. It may be for a reason other than celiac though, as you are gluten-free and not malnourshed. in the mean time surround yourself with supportive people and a good doctor, don't give up hope

louie

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I wish I had wisdom for you, but I don't... I can't imagine what it must feel like to have a miscarriage. I am so sorry you have had to go through this several times. I also hope your perserverance will be rewarded with a child. Prayers for you...

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First let me say how sorry I am for your loss. Our second pregnancy was twins and we lost one of them in the 11th week. I was an undiagnosed Celiac at the time. I know that hormone imbalances can cause miscarriage. Particularily progesterone deficiency. Have you had your vitamin and progesterone levels checked? I will keep you in my prayers to conceive a happy and healthy child!

Hugs,

Twister

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I'm very sorry you are going through this. My first pregnancy ended in miscarriage, and this site was extremely helpful to me during the miscarriage, after, and while TTC: http://www.pregnancyloss.info/

There is also a board where you can talk to other recurrent miscarriers, and discuss any issues or ask questions. There are many reasons why miscarriages occur, it's it probably time you consulted a specialist, such as a perinatologist.

I definitely recommend visiting the site so that you can get the information and support you need.

Wishing you best of luck.

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I'm very sorry you are going through this. My first pregnancy ended in miscarriage, and this site was extremely helpful to me during the miscarriage, after, and while TTC: http://www.pregnancyloss.info/

There is also a board where you can talk to other recurrent miscarriers, and discuss any issues or ask questions. There are many reasons why miscarriages occur, it's it probably time you consulted a specialist, such as a perinatologist.

I definitely recommend visiting the site so that you can get the information and support you need.

Wishing you best of luck.

Thanks kess for the website. I just had a miscarriage and logged onto this referenced site and it looks to be of value to me.

I'm trying to believe that my m/c had nothing to do with being celiac. I've been gluten-free since Feb., 2005. I'm an RN and I asked a MD that i worked with if there was any harm to the baby if I accidentally got glutened and he said that the antibodies wouldn't be able to cross the placental barrier. However, that they could cross to the baby through breast milk. :(

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Hello,

I am very sorry for your loss. I just found out at 26 that i have Celiac disease. I am trying to learn everything that I can so my husband and I can still try to have a child. I am sorry that i do not have any advise. However, I am seeking information out for myself and I will pass any along that I find.

Nicole2

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I'm so sorry for your loss. Just wondering - do you drink a lot of milk or use a lot of soy?

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    • Newbie: mother to coeliac kids
      Research indicates that the celiac disease blood test results do not necessarily correlate with intestinal damage.  My blood tests were "barely positive" yet I had a Marsh Stage 3B (moderate to severe damage).   But that's not important.  Your boy's health is more important!   I can see why he is suffering so much.  The good news is that he should feel well much faster because he is young.  My heart goes out to you and your family!  
    • Newbie: mother to coeliac kids
      Sorry, but I would have to remind you and those who are newbies, that a whole foods, well-cooked diet is probably best.  Avoid all processed foods.  If you have severe intestinal damage, the villi tips are so damaged (or non-existent) that they can not release all the necessary enzymes, etc. to help a person digest and absorb food well or barely!!!  Many celiacs are lactose intolerant until healing occurs (for life if you are genetically lactose intolerant like many Asians, for example).  Many celiacs have developed additional foods intolerances, so it is recommended that you keep a food and symptom journal.   Some folks might be corn intolerant and other might have issues with nightshades (like potatoes).  Others might have issues with even a good veggie like cauliflower.  I personally can not digest cauliflower after a good glutening for some unknown wacky reason.  What I am trying to say, is that everyone has to figure it out on their own because we all have different issues related to celiac damage.  Lactose intolerance is the most common and a good place to start especially with SEVERE intestinal damage like Marsh Stage 4.   
    • need advice
      Welcome!  The only way to find out if you have celiac disease is to get tested.  Here are the tests that your GP can order for you: http://www.cureceliacdisease.org/screening/ https://celiac.org/celiac-disease/diagnosing-celiac-disease/screening/ THIS IS IMPORTANT!  YOU MUST BE CONSUMING GLUTEN DAILY FOR THE BLOOD TESTS TO BE ACCURATE.  THIS ALSO INCLUDES THE ENDOSCOPY (BIOPSIES) WHICH ARE DONE BY A GI.   Anxiety can be a symptom for celiac disease.  Please do some more research so that you can get a proper diagnosis.  Can you go gluten free?  Sure.  That's what my hubby did 15 years ago per the very poor advice of my allergist and his GP.   Twelve years later, I was diagnosed.  Weird, huh?  Anyway, hubby will tell you that I get way more support.  He get's a lot of eye rolling.  Plus, our kid (and my folks and siblings) get screened every few years because I have a diagnosis.  My kid gets tested every couple of years even without symptoms because you can be symptom free and still have celiac disease.  celiac disease is genetic.   It is an autoimmune disorder triggered by gluten.  It is the only autoimmune disorder that is triggered by something known.  If you have RA, MS or Lupus, for example, doctors do not know what actually triggers these other autoimmune disorders.   So, Keep researching.  
    • Newbie: mother to coeliac kids
      If I am rembering correctly,  Marsh 4 is the worst damage.  So he should avoid dairy products like cheese, milk, butter, cows milk ice cream for a couple of months. celiac damages the tips of the villa that help to digest lactose ( which is in most dairy).  Being unable to digest dairy will lead to more bloating, gas, etc.. 
    • need advice
      I'll keep this as short as possible, sigh. I remember having constipation all the time till i was 10 or 11 then i started getting diarrhea all the time. Ive never been able to pin my diarrhea to a certain type of food it always has been at random. Or it seemed that way. Sometimes ill have normal BMs for a couple weeks then diarrhea for a week or normal for a day or two diarrhea for a day or 2. I started getting tingly numb hands this year, i get sick all the time, i had one rash on my stomach i couldnt get rid of for years the doc said was dermatitis. So many more symptoms that line up with celiac. Heres the beef though- 7 months ago i had my first panic attack ever. I thought it was triggered by giving up chewing tobacco and the withdrawals coupled with stress at work and being a new dad but after reading about the connection between gluten im not so sure. The past 7 or 8 months have been hell. Constant anxiety, i dont get as kany panic attacks as i did in the beginning but now im suffering from depression. So, i started gluten free 2 days ago. The second day i started having horrible anxiety and a panic attack like my first one. Extremely intense.  Is that a sign that maybe i do have celiac or intolerance that coming off would make symptoms worse? I want to get tested but ive been to the ER 3 times and seen so many docs, psychiatrists and therapists trying to figure out a cause, i cant afford anymore. I dont think i can just one day bam! Have all this anxiety without a cause. Can i just do my best to stay gluten free and see what happens or is it very important to be tested? Also, will any gastro be able to test me? If i go to a gastro should i even bring up the anxiety and depression? Everytime i do i get a response similar to " its all in your head " and they just want to throw pills at me. I'm so lost to how my life got so messed up in 7 months. I need this to be the answer.
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