Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Label Says Wheat But No Reaction?


Stylo

Recommended Posts

Stylo Rookie

I've been living gluten free since April, and I feel great. I have lost 30 pounds, I feel good.

I have had some issues where I've reacted and had diarrhea, this was from usually cross contamination or having something that I would assume was gluten free but wasn't. I believe mine is more of an intolerance then a alergy because my reactions are nothing compared to my friends.

My friend is a Celiac, who will vomit and get diarrhea at the same time. He also reacts to whiskey when I don't.

We have both eaten hot dogs that say they have wheat on them on the label, but neither of us react. We didn't know about the wheat at the time either.

We can also get away with eating chicken strips without reactions (for the most part). A friend of mine says it has something to do with the deep fry process, but I'm not sure I believe that as I haven't heard that elsewhere.

I'm curious if anyone has any information on this? Why do some foods have no reaction with us?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Sounds like you girls are experimenting. Everyone reacts differently. What you might not react, your friends might react terribly too. Nothing is exact, when you are dealing with Celiac.

The variations can come from time healed, time exposed, extend of damage, how strict you are and many times there are secondary intolerances which may come into play.

I am a firm believer that Celiac can go into remission and then appear when you let you guard down. So please choose carefully. ;)

AND, "deep-frying process" is a no-brainer - don't even go there, with your friend. :)

(frying cannot kill the gluten)

Link to comment
Share on other sites
GlutenFreeManna Rising Star

You may not have an immediate reaction to something with a very small amount of gluten, but that doesn't mean that it isn't doing damage. You could also have a delayed reaction. I very rarely react immediately to small amounts or cc. I always feel sick the next day or sometimes even two days later. Large amounts or certain foods I will know right away, though.

Link to comment
Share on other sites
ravenwoodglass Mentor

I am a firm believer that Celiac can go into remission and then appear when you let you guard down. So please choose carefully. ;)

This is found in some young people and doctors call it the 'Honeymoon Effect' and it is why they used to think kids would outgrow celiac. However, and the however is a biggie, they now know that celiac can not be 'outgrown'. The symptoms may lessen but damage is still being done. GI symptoms may seem to resolve but the autoimmune attack will continue sometimes working on different organs like the brain and liver. IMHO playing with not being gluten free after a firm diagnosis is playing with fire. Eventually you will get burned and when you do it may be in a way you can't go back from, like lymphoma.

Link to comment
Share on other sites
Stylo Rookie

Thanks for all the information guys!

Yeah, I think my friend is full of c**p when she said the thing about the deep fryer making it okay. It's her boyfriend who is my friend as well who has celiac. She doesn't, but I think she trys to stay knowledgeable for his sake because he doesn't always think before he eats. Him and I both had negative blood test results but positive reaction to diet, as well as our mom's both have cut out gluten due to constant stomach issues.

My doctor never had much information so I go based off of what Mike has learnt and I learn myself by doing my own research.

Knowing this, I'll be careful going forward. Just because I don't react to those hot dogs they may still do damage which is good to know.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,212
    • Most Online (within 30 mins)
      7,748

    Sue Barnett
    Newest Member
    Sue Barnett
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
    • Bayb
      Hi, I received my labs via email yesterday and have not heard back from my doctor yet. Can anyone tell me if these results indicate I have Celiac?      Endomysial Antibody IgAPositive  Ft-Transglutaminase (tTG) IgA6  H0-3 (U/mL) - Negative 0 - 3 - Weak Positive 4 - 10 - Positive >10 - Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten-sensitive enteropathy. FImmunoglobulin A, Qn, Serum55  L87-352 (mg/dL) Ft-Transglutaminase (tTG) IgG183  H0-5 (U/mL) - Negative 0 - 5 - Weak Positive 6 - 9 - Positive >9
    • Aussienae
      Mine is definitely triggered by inflammation and stress! I do also have arthritis in my spine, but the pain is more in my pelvic area. Im sure i have other food intolerances or other autoimmune isues but the more I focus on it and see doctor after doctor, it just gets worse.  Best thing is get of Gluten! (I also avoid lactose). Try to limit stress and anything that causes inflammation in your body.
    • ButWhatCanIEat
      Good morning,   I got an email about replies to this post. Some of my doctors had blamed a slipped disc for the pain I had and that contributes, but after meeting with a gastroenterologist AGAIN and trying some lifestyle modifications, I found out I have IBS and can't tolerate corn or excessive fructose to any degree. Cutting out corn AFTER having cut out all gluten containing products was a real pain but I feel much better now!
    • trents
      So, I contacted Scott Adams, the author of that article and also the creator/admin of this website, and pointed out to him the need to clarify the information in the paragraph in question. He has now updated the paragraph and it is clear that the DGP-IGA does serve the purpose of circumventing the false negatives that IGA deficiencies can generate in the tTG-IGA antibody test.
×
×
  • Create New...