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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Could Constipation And Bloating Be Symptoms?
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9 posts in this topic

HI,

I'M RUNNING OUT OF OPTIONS. FIRST, I ELIMINATED MILK PRODUCTS FROM MY DIET AND I'M STILL EXHIBITING CONSTIPATION, GAS, AND BLOATING ;) . COULD A GLUTEN INTOLORANCE BE AS A RESULT OR ARE THE SYMPTOMS OF GLUTEN INTOLORANCE MORE SEVERE? :unsure: THANKS

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When I eat gluten I gain weight, get gas and bloating. The symptoms of gluten intolerance can vary widely from one person to the next. Have you eliminated all gluten from your diet?

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HI,

I'M RUNNING OUT OF OPTIONS. FIRST, I ELIMINATED MILK PRODUCTS FROM MY DIET AND I'M STILL EXHIBITING CONSTIPATION, GAS, AND BLOATING ;) . COULD A GLUTEN INTOLORANCE BE AS A RESULT OR ARE THE SYMPTOMS OF GLUTEN INTOLORANCE MORE SEVERE? :unsure: THANKS

There are over 200 symptoms associated with celiac. Each person is different and may have different symptoms. They are both symptoms that can come with it. I get constipation along with some other symptoms when I am glutened.

Have you been tested for celiac? Have you tried being off of gluten? Make sure when you test you keep on gluten.

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These are the same symptoms I have, and I had positive blood work. Still two more weeks till I get a definitive diagnose, but I definitely think these can be symptoms.

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These were my symptoms also. Look to see if it happens more frequently after eating. I was bloated non-stop but it would get worse after my huge morning bowl of All Bran, man was i killing myself or what.

My symptoms did get worse over time, but that was how this whole thing got started.

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Those were exactly my symptoms as well. I had positive bloodwork, and I just got a biopsy done last week. I started a Gluten free diet before getting the biopsy, so I know it will be inaccurate, but being gluten-free is the ONLY thing that has worked for me. Actually, I am on a special gluten-free diet, the Specific Carbohydrate Diet (www.breakingtheviciouscycle.com). So far, so good!

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UCLANGEL:

Me, too! When I told my doc about my lifelong constipation and increasing gas, bloating and intestinal pain, she labeled me 'IBS' and gave me the IBS diet sheet which suggested eating more whole grains and bran cereals. So I faithfully ate my Shredded Wheat with Bran and Lactaid Milk every morning. Little did I know that I was gluten AND CASEIN intolerant. So avoiding lactose did nothing to relieve my symptoms and following my doc's advice did everything to exacerbate my symptoms. :o I later tested positive for gluten and casein intolerance and the celiac gene through Enterolab. So I showed those test results to my doc at my next exam. She told me 'ibs' was an 'elimination' label. If docs think they have eliminated all other sources of abdominal symptoms, they give patients the 'ibs' label. Unfortunately she and most docs don't do much 'elimination' research before labeling their patients' symptoms as IBS. <_<

Although following a gluten-free/df/sf (I'm soy intolerant too) diet has eliminated most of my symptoms, I'm still paranoid about constipation which can happen if I accidentally consume dairy (more so than gluten). Before I was diagnosed with celiac disease, my longterm constipation caused painful hemorrhoids which necessitated even more painful hemorrhoid surgery and recovery.

Abstaining from dairy also resolved my lifelong sinus allergies and infections. All those years I was told I was allergic to plants, trees, grasses, molds, dust, etc. We even bought a special vacuum cleaner which actually collects the particles rather than blowing them back into the room. Now we're lucky if the house gets vacuumed once a month and I can BREATHE all summer long with only occasional sneezing. :D

BURDEE

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I'm going to be scoped next week, and I thought this conversation was interesting, because I've always thought diarrhea and wasting was indicative of celiac disease. I experience constipation whenever I eat wheat or rye, and I also gain weight. The more I eat, the worse it gets. I'm bulking up on wheat products prior to the scopes, and I'm really getting bloated!

Judy

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Hey guys,

Thanks for all fo the replies.

I'm FINALLY getting a blood test done tomorrow and i can't wait. I'll let ya kno. :D

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    • Blood results - odd
      My results were similar – Low ferritin but normal B12. Although my ferritin levels were low, my Iron serum levels were normal. So might be worth getting your iron levels checked out to see if you have any deficiency in Iron. Also I was deficient in Vitamin D, which is perhaps more of a problem in England rather than the US - Our milk isn’t supplemented with vit D and we obviously have less sunshine.
    • How do you know what's causing what?
      Hi Kam, If you are going to continue the celiac testing with an endoscopy, you need to keep eating gluten until it's done. It can be hard for vegetarians to keep their vitamin D levels up.   This Vitamin D  Council link has some good info on ways to boost your levels. https://www.vitamindcouncil.org/about-vitamin-d/
    • Blood results - odd
      Your ferritin was very low!  My result was a 2 when I was diagnosed.    I hard a hard time breathing and the fatigue was awful due to low hemoglobin levels.  But after going gluten free and taking iron for a few months, I quickly recovered from iron-deficiency anemia.  I still have hemologobin levels that are slightly below range due to Thalassemia which is genetic and my body has adjusted for it.   My B12 and folate levels are  super high.  My B12 is over 2000!  Yeah, I googled and ruled out cancers, etc.  Looks like some of us do not process man-made B12 often included in supplements.  I opted for natural sources of B-12 and folate and my levels have come down a bit.   Let us know your results.  Read the Newbie 101 section under "Coping" within this forum for tips.   Be patient.  It can take months, to years to feel good.  But it will happen!    
    • How do you know what's causing what?
      Welcome to the forum!   Well.....in theory you should be able to heal within a few months (grow new villi, etc.).  The reality is that it takes so much longer -- like a year or two (I kid you not!)  Why?  celiac disease can damage more than just the gut.  Depending on what was damaged (nerves, bones, etc) can impact healing time.  The gluten-free diet has a very steep learning curve.  It's not just giving up gluten.  It's avoiding cross contamination.  Becoming an expert in reading labels.  Learning to avoid foods processed on shared lines in a facility.  Then there are intolerances that most celiacs develop.  The most common ones is lactose.  Why?  The villi tips release the enzymes to digest lactose.  No villi tips?  Then you can not digest lactose.  Often this is temporary, but if you are one of the many adults in this world, you might already be lactose intolerant or might become so as you age.   Other intolerances that members often report include corn or soy.   Some celiacs react to oats, even gluten free.  So avoid oats for six months.  So, try cutting out dairy for a few days and see how you feel.  Then add in those items that have the least lactose:  hard cheese, butter, yogurt and see how you feel.   Avoid eating out for six months until you have seen some improvement.   Read our Newbie 101 thread under coping for more ideas!  Hope you feel better soon.   
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      I am having my endoscopy on Tuesday. I want to begin to heal my gut asap. I spent this morning in the ER with stabbing pain in my right shoulder blade, pain to the left of my belly button and vomiting. It's referred pain from my small intestine. I couldn't move or breathe hardly it hurt so bad. I NEED to get everything together to heal my gut asap. I don't want to ever go through this again. What are your recommendations? I've been reading a bit on leaky gut - anyone have good experience/links Or would the autoimmune diet be better? Are they one in the same? I know I am also reacting to casein and possibly potatoes. 
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