Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Starting To Regress
0

3 posts in this topic

Hi all!

I've been having a lot of trouble lately with pain returning in my stomach. I was diagnosed in March of 2010, and I was really improving on the gluten free diet (4 months gluten-free).

However, lately I'm having lots of pain at night and it only seems to get worse each passing day. Now during the day I have this constant ache. I'm almost certain it's a gluten problem, but I watch my diet very closely, checking labels, etc... The only place I could be getting it is from cross-contamination, but why is it all of the sudden effecting me so badly. And how do I avoid it if I react so badly to it? It's almost impossible to avoid it all, especially living with a family member who has IBS and eats gluten like it's going out of season. I also have a handful of people who cook for me who are extremely cautious, but could be cross-contaminating. I've begun to lose my appetite again because I'm afraid of anything I put in my mouth.

Any helpful ideas, suggestions would be great.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I got more sensitive to smaller amounts of gluten as time went on. I have read about others too. Can you do all your own cooking so that you can be really careful yourself? Some of us have problems with grain cross contamination. Some of us have problems with things made on shared lines. It sounds like you need to clean up your diet a bit. Maybe first try cooking for yourself. If that doesn't do it, then avoid the shared lines, then the shared facilities, then processed grains. I hope you feel better.

0

Share this post


Link to post
Share on other sites

If you had blood tests before, you should have them again--to compare and see if you're still getting gluten in your diet. It could be from shared cooking equipment, products that were cc'd in factory, pet foods, beauty supplies/shampoo, etc., craft or home improvement material, drinks (like flavored coffee), medications and supplements--if you're still getting gluten, you have have to look outside of food to find other sources.

It's common to get more sensitive in the early stages of the diet. If you continue to have problems, you'll need to revisit your doc to discuss other things (it may not even be celiac-related.) It may also be that you're reacting to other foods (other temporary allergies and intolerances will crop up as you heal.) In that case you may want to have testing done to rule out these.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,094
    • Total Posts
      920,326
  • Topics

  • Posts

    • I don't care what she specializes in, you MAKE her do a dh biopsy. I'm not being mean. Please understand that. It's just that I've heard this a thousand times before - no, a thousand one hundred!  Here's another thing ~~~ get her to order a eTG aka TG3 serum (blood test). That is specific for dh.  Oh gosh! Don't you just hate the ones in your ears???!!!!! Nah, we hate ALL of them! I swear though, when those suckers get going in & on your ears it just drives you stark raving mad!!!!! You've convinced me there is more than ample reason to strongly suspect it's dh.  Here's a tip..... the patterning the lab will be looking for is very easily destroyed by scratching so pick you out some prime places that are new & maybe, just maybe you haven't scratched them to smithereens thus far, and make some super thick gauze bandages & place them over those places so even if you reach to scratch (& we know you will! right?) the gauze will remind you & hopefully help to protect it. The biopsy needs to be taken from a clear area adjacent to a fresh lesion. No steroid creams okay? Not till after the biopsy. BTW, if she wants to put you on steroids after the biopsy be warned, 99% of the time there is such a backlash of the rash the moment you go off the steroid that you will wish you were never born. A dx of dh IS a dx of celiac disease & no further testing is needed. Please come back & update us after you see her tomorrow. In the meantime you have my heartfelt sympathy. Take those cold showers & grit your teeth. Hopefully you will soon be able to go gluten free & start getting some relief.   
    • Extremely itchy and keeps me up at night to the point I was taking cold showers at 3am.   Currently my ears, scalp, feet, and chin just will not stop itching, my elbows have the rash and look purple. Eventually the rash will heal and leaves scars that seem to be purplish in color. I have not tried gluten free diet yet.  Waiting for all the testing to stop.  The new allergist i am seeing tomorrow specializes in skin disorders.
    • I am so sorry for your suffering.  Your story drives home the point that having Celiac Disease drives us all to do our own research and try to find a doc to help--if we are lucky. I wish you a speedy recovery and my most earnest wish that you are NEVER cross-contaminated again! You are a real trooper (little comfort, I know).  Wish I could do more.
    • Tell us how it acts please. Just looking at pictures doesn't give much info. It could be, it could not be. The best way to find out is if you're eating a gluten diet to go to a derm & INSIST, INSIST on getting a dh biopsy. Make sure they do it right. Read a couple of threads here & you'll find links to info. that tells exactly how it's to be done and it's NOT ON a lesion so make sure they don't pull that little number on you. They work for YOU, not the other way around. Make them prove it isn't dh by doing a biopsy the correct way. Do NOT take any oral steroids or get steroid shots within 2 months prior. You're going to have to be extremely firm with them but don't let them deter you from the course. Challenge them to prove what it isn't because they can't prove it's contact dermatitis.
    • Karen is right.  Do the research.  Have you been tested for celiac disease? Here is more info..... http://www.cureceliacdisease.org/screening/
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,128
    • Most Online
      1,763

    Newest Member
    kierra.morris11@gmail.com
    Joined