Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Hair Loss
0

32 posts in this topic

I've been adding tea tree oil to glycerine for shampoo, and rinsing my scap with a nighttime primrose oil soap bar. I can honestly say that after only a week, its been helping wonders. The swelling on my scalp has gone down and my hair doesn't seem to be falling out at an alarming rate. I'll definitely look into the OTC. Thanks!

0

Share this post


Link to post
Share on other sites


Ads by Google:

Having an itchy scalp can be so maddening. It's good to see you've found some relief!

0

Share this post


Link to post
Share on other sites

Thank you so much wheat chef, it helped a lot. I too am discovering an issue with dairy. I've cut out lactose (which got rid of the stomach issues it was causing me), but after reading your post, do you suggest I should cut all dairy out? (Including lactose-free milk and cheese).

Unfortunately, I've been about 2 weeks on a "clean" diet, and my hair loss is only getting worse. My hair is so. friggn. thin. I feel so unnatractive and sickly. This hair loss is effecting every area in my life - I just want to lock myself up in my room and not face the world. As I've said before, the only thing that keeps me going is knowing that I have a bit of money saved up from my last job should I need a wig.

I guess I'm going to make an appointment with my doctor, yet again. Doubt it'l help.

Naiiad, I know what your going through. At 24 my extremely thick hair started falling out like CRAZY. I knew something was very wrong. My hair never fell out before. I might lose a couple in my hairbrush, but nothing more. I'm now 29 and my hair is still falling out. Thank heavens I had a lot to begin with or I would be bald. I'm getting there though. I've struggled watching my hair grow thinner and thinner. I saw dermatologists and they said it was either stress (and should let up soon) or it was genetic and I'd lose most of it. NICE! Well, it's still falling out almost 2 years since last dermatologist appt. My ponytail used to be about 2.5" across when gathered. It is now the size of a nickel. I had psoriasis as a child that mysteriously went away and it came back just last year (about 20 years later). I've tried Nioxin shampoos and Rogaine. I've tried soaking my head in herbal teas. I've even bought all the herbs that were supposed to be for hair loss and encapsulated them, taking them daily. Nothing helped. I know your anxiety and fear over this. I really do understand. It is not easy to stand by helplessly and watch as you lose your hair. It's been a difficult road. My oldest daughter was just diagnosed with gluten sensitivities and I get tested next week. We did go gluten-free for one month several months (to see if we noticed any health improvements) ago and my psoriasis was 100% gone on day 2!! At about week 3 I ate some wheat thins purposfully to see if I'd have a reaction and ..... nothing. I remained on a strict gluten-free diet. But, a week later my psoriasis came back like I had never seen it. We'll be going gluten-free for good now and I pray my hair stops falling out after a few weeks. You REALLY do have to be 100% with it or your wasting your time and effort. There are things you wouldn't even think of that contain gluten like shampoos, toothpaste, and even the stickies on envelopes! Call the manufacturer #'s on the back of the bottles and ask them if it is gluten-free. Cecelia's Marketplace sells gluten shopping guides that are AWESOME. They made our month of gluten-free so much easier. Even meats can have gluten in them. Turkies are sometimes put into broth which contains gluten. You can't use anything that gluten has touched. For example, if your gluten-free peanut butter has had a knife dipped into it that touched regular bread...the peanut butter is contaminated. We buy 2 and write gluten-free on top of lid in marker so everyone knows not to contaminate it. You definetley need your own toaster. A crumb of gluten in your system can be just as bad as a loaf of bread to your body.

0

Share this post


Link to post
Share on other sites

A year ago (and for the 19 years of my life before that) I had very long, very thick healthy hair. Around this time last summer it started falling out - in chunks. It was really dry and brittle and my roots where thin and white. Within a few months more then half had fallen out and I had to wear hats and different hair styles to cover the thinning patch at the top. I switched to washing my hair with 1 part baby shampoo and 1 part sage tea. After 6 months my hair stopped falling out and it grew back, but not to its original thickness and health.

Anyway, it was at this time that other symptoms started popping up, and doctors had no idea what was going on, but I eventually discovered celiacs. (*Note that I haven't been tested... cant see a specialist for 6 months, I'm also not sure that the hair loss is wheat-related, even though it seems highly likely).

Recently I've been noticing that my hair is thinning again. My roots are dry and brittle and I'm loosing way more hairs then I should be. I first noticed this when I switched to a Revlon shampoo for two weeks and my hair was falling out excessively. When I realized that wheat was a listed ingredient, I immediately threw out the bottle and started using baby shampoo. My hair seemed to improve a little bit, but since then it's been getting progressively worse. I'm so terrified, I don't want to go through the anxiety of losing my hair again.

I'm aware that I've been sneaking small amounts of wheat into my diet - a handful of non-gluten-free rice crackers here, a few potato chips there - foods that I know give me a small reaction but don't contain significant amounts of wheat gluten. Currently ive stopped "cheating" on my wheat-free diet. I hope that helps.

Does anyone have any experience with celiac related hair loss? Any suggestions as to what else I should be doing to preserve my hair?

Yes, I have experienced the exact same thing. I am really upset about it. My hair had to be chopped off at my chin because I loss so much. I have regrowth now, but I think it is still thinning. I haven't cheated on my diet, but I've noticed here and there things containing gluten. For example, I started taking a pytovitamin and noticed after about 3 months that gluten was an ingredient. I think that is what caused my intial hair loss and 3 months later I am finally rebounding. I am perplexed and the other things. I have break outs of acne more now than ever too.

0

Share this post


Link to post
Share on other sites

I had pretty bad hair loss too. It continued while gluten-free because thyroid issues were causing it as well. It takes a while to balance out.  :)

 

BTW, this thread is a few years old and the member you are responding to hasn't visited the board in over two years so they may not respond.

0

Share this post


Link to post
Share on other sites




 even the stickies on envelopes

 

 

 

Wow..  I did not know this.  I wonder if Post it Notes are gluten free?  I use them all the time at work.

 

---

 

My hair also thinned significantly right before I found out I was gluten sensitive.  I also just found out I -have- to be more careful with my own eating habits too.   

 

I know your scalp is itchy and sore, so you probably won't want to try this until it is healed..  But I have been using an apple cider vinegar rinse for a few months and I believe I am seeing more hair coming back!   I tend to have an oily scalp, and I think the rinse (1 third vinegar, 2 thirds water) is helping!  I typically use my shampoo, rinse with water, and then I use my vinegar rinse.  I work it into my scalp, especially the top and front.  Keeping my head tilted back to avoid getting it in my eyes.  I then rinse out the vinegar and use some conditioner.  The vinegar does not feel like it strips the hair.  It actually feels smooth/silky.  This may or may not help you, but it does seem to be helping me.

 

I hope your diet & lifestyle changes will help your hair come back!   

0

Share this post


Link to post
Share on other sites

There is no Gluten in glue on envelopes!!!.

 

Colleen

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,351
    • Total Posts
      920,500
  • Topics

  • Posts

    • Thankyou both! I was wondering if my high levels left much doubt on the diagnosis. I don't see the GI until the 15th Sep and I don't think I can stand to eat gluten in that time. If he tells me to I will do so after then. After 25 years of symptoms I don't think there is much chance of healing my bowel In a couple of weeks. I'm actually terrified of the damage they might find. But I think I will need the endo since there may be other things going on with me. So great they didn't put your son through the biopsy! Once I have a formal diagnosis I have my kids to worry about also. I can't even stand the thought of my daughter having a blood test. I think she would need to be sedated as she is so fearful and pain sensitive. My son is not yet 2 so I don't think they will test him. I'm feeling so off at the moment. I think I have some anxiety and reflux going on complicating things quite a bit.
    • My son's antibodies were 300. Based on his extremely high levels, his pediatric GI suggested genetic testing instead of the biopsy. Genetic testing can't diagnose celiac on its own but combined with such high levels, the gi dr was confident a positive genetic test would confidently diagnose celiac. He warned that biopsies are small snapshots of the intestine and can miss damage. He said this is an approach used very often in Europe but not as much in the US. What sold me on that approach was the ability to put my son directly on a gluten free diet instead of waiting three weeks for the biopsy, during which time he would continue to eat gluten and feel terrible. I'm not sure if this is more common with younger patients though (our son is two), based on the idea that he's had less time to inflict damage that would show in a biopsy? We are very happy that we immediately started the gluten free diet and chose the genetic testing. Our son got the proper diagnosis and his recent number shows a drop to 71 after only 4.5 months gluten free! Not sure if this helps. Good luck and I hope you feel better soon!
    • We have been off gluten for a while now, and symptoms return when I've allowed gluten full meals… so something still isn't sitting right with me.  Checking with her doc about seeing a pediactric GI although I'm not sure how long that will take since we live in small town America. I know she didn't get at least one of the recommended full panel tests but maybe two, can someone help clarify, or is she missing two? DGP for sure and possibly EMA? And if I understand what I'm reading in other posts that the DGP can be more accurate? Thanks Her blood panel results: Ttg ab iga <.5u/ml ttg igg <.8u/ml aga ab iga <.2 u/ml aga an igg <.7u/ml iga 61mg/dL  
    • I was tested for the full panel, I believe. I had normal values for t-transglutaminase (ttg) igg,t-transglutaminase (ttg) iga, deamidated gliadin abs igg, deamidated gliadin abs iga, and immunoglobulin a qn serum.  
    • Would you review this on Find Me Gluten free?  You can  use the app or just go to it on line. If the restaurant isn't listed, there is a way to suggest it.  I have done that and it works.  Many of us look at that site/ app
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      61,415
    • Most Online
      1,763

    Newest Member
    Ails123
    Joined