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Hair Loss


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#16 naiiad

 
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Posted 06 September 2010 - 07:46 AM

Thank you Superfudge :) I'm glad that you're husbands hair loss corrected itself. I wish I could say the same for mine!

I've been to three different dermatologists within the past year (two before I went wheat-free, and one after). The first dermatologists suspected an auto-immune disease (specifically lupus) which was tested for, and nothing. The second barely looked at me and told me that it was probably stress, and that my hair would correct itself after a few months, which it did... for a few months. The third attributed my hair loss to wheat, and he just told me to stick to a clean diet. I'm not a particularity stressed out person, and when my hair falls out my scalp is red, inflamed and itchy (something that all three dermatologists noticed). So I'm not sure where to go from here. If my hair doesn't improve in a few weeks with my improved diet, I'm definitely going to find another dermatologist.

@DixieBell thank you for the article! It was very helpful. I just wish there were more effective treatments for my hair loss D:
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#17 WheatChef

 
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Posted 06 September 2010 - 10:48 AM

The issues that cause autoimmune conditions cause stress, not the other way around. After about 2 months I had noticeable improvement in my scalp's inflammation on the gluten-free diet. Unfortunately after a recent increase in dairy products (what that's not healthy either?!?!?) I had another flare up of inflammation.

While not long term by any means, short term treatment of inflammatory flare ups is as simple as either some aspirin/alleve/advil or some hydrocortisone. The inflammation that you're experiencing up top is an immune system response and the two above compound classes (NSAIDs and corticosteroids) both suppress the immune system. They're not necessarily good ideas to use for very long term situations so it's always best to focus on preventing the cause.
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Receiving a qualified diagnosis of Irritable Bowel Syndrome is as useful as a Psychiatrist giving you a diagnosis of "Doesn't Think Right".

#18 naiiad

 
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Posted 13 September 2010 - 01:13 PM

Thank you so much wheat chef, it helped a lot. I too am discovering an issue with dairy. I've cut out lactose (which got rid of the stomach issues it was causing me), but after reading your post, do you suggest I should cut all dairy out? (Including lactose-free milk and cheese).

Unfortunately, I've been about 2 weeks on a "clean" diet, and my hair loss is only getting worse. My hair is so. friggn. thin. I feel so unnatractive and sickly. This hair loss is effecting every area in my life - I just want to lock myself up in my room and not face the world. As I've said before, the only thing that keeps me going is knowing that I have a bit of money saved up from my last job should I need a wig.

I guess I'm going to make an appointment with my doctor, yet again. Doubt it'l help.
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#19 ravenwoodglass

 
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Posted 13 September 2010 - 01:51 PM

I guess I'm going to make an appointment with my doctor, yet again. Doubt it'l help.


I would make an appointment with a derm. If you still have lesions on your scalp ask the derm to test for DH while you are there. I know how frustrated and upset you must be. I hope the doctor can help you with this. Just in case it is DH, have you eliminated iodine from your diet? Iodine in salt and seafood can keep the antibodies active.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#20 MelindaLee

 
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Posted 13 September 2010 - 08:13 PM

A year ago (and for the 19 years of my life before that) I had very long, very thick healthy hair. Around this time last summer it started falling out - in chunks. It was really dry and brittle and my roots where thin and white. Within a few months more then half had fallen out and I had to wear hats and different hair styles to cover the thinning patch at the top. I switched to washing my hair with 1 part baby shampoo and 1 part sage tea. After 6 months my hair stopped falling out and it grew back, but not to its original thickness and health.

Anyway, it was at this time that other symptoms started popping up, and doctors had no idea what was going on, but I eventually discovered celiacs. (*Note that I haven't been tested... cant see a specialist for 6 months, I'm also not sure that the hair loss is wheat-related, even though it seems highly likely).

Recently I've been noticing that my hair is thinning again. My roots are dry and brittle and I'm loosing way more hairs then I should be. I first noticed this when I switched to a Revlon shampoo for two weeks and my hair was falling out excessively. When I realized that wheat was a listed ingredient, I immediately threw out the bottle and started using baby shampoo. My hair seemed to improve a little bit, but since then it's been getting progressively worse. I'm so terrified, I don't want to go through the anxiety of losing my hair again.

I'm aware that I've been sneaking small amounts of wheat into my diet - a handful of non-gluten-free rice crackers here, a few potato chips there - foods that I know give me a small reaction but don't contain significant amounts of wheat gluten. Currently ive stopped "cheating" on my wheat-free diet. I hope that helps.

Does anyone have any experience with celiac related hair loss? Any suggestions as to what else I should be doing to preserve my hair?


My friend has just been newly diagnosed with Celiac. One of her major issues has been excessive hair loss which seems to be related to severe anemia (which can be prevelent with celiac). It might be something you might want to ask the doctor about.
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#21 WheatChef

 
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Posted 14 September 2010 - 03:03 PM

Only quit the dairy if you think you might be having a specific issue with it. I merely mentioned it as an aside about how difficult it can be to pin all of this stuff down. Since then however I've tried testing it and believe it may have just been an issue with the increased sugar consumption that was accompanying the increased dairy consumption.

Considering that there is an elevated chance for someone with a gluten problem to have unbalanced microbes (internal, external bacteria/yeast) and yeast infections are more likely/frequent in such cases, it is possible that you may also be experiencing some issues with seborrheic dermatitis or another similar microbe overgrowth which can easily cause the inflammation. In such a case just going on the diet won't alleviate your problems in such a short time as the immune system will take a while to get a hold on the overgrowth. Other issues can exacerbate these problems as well, such as potentially an increase in sugar consumption which can easily occur if you start switching over to gluten-free baked goods which are jam packed full of sugar.

Have you tried any shampoos specifically meant to deal with the inflammation?

As mentioned by others, in addition to the inflammation issues you're experiencing, low levels of certain vitamins/minerals can negatively affect hair growth/vigor. This would also take a decent while to right itself after going gluten-free.
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Receiving a qualified diagnosis of Irritable Bowel Syndrome is as useful as a Psychiatrist giving you a diagnosis of "Doesn't Think Right".

#22 celiacmom2

 
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Posted 15 September 2010 - 06:21 AM

I know this is probably just pulling stuff out of the air but I have read up on Dr. Weil and his advice of hair thinning, he reccommends Black Currant oil or evening Primrose oil(GLA's), I just bought some although some of my hair is already growing on the front top of my head as I was fearing male pattern baldness as a women...ugh...so anyway the gluten free diet is helping but I go through seasons of thinning...and I was on Warfarin(blood thinners) for 6 months which can cause hair to "thin" or fall out...so anyway Dr. Weil said to look for bottles that contain 500mg of Black Currant Oil and at least 45mg of GLA. Take one capsule 2 times a day. Oh and start with one a day for a few days to make sure you don't get digestive issues from it(everybody is different) and work your way up(my advice)...it can take up to 6 weeks to 8 weeks before you may see results and he doesn't guarantee it will work depending on what its caused form but had good results with people before..I bought the NOW brand that is wheat and gluten free. Also good for pms and autoimmune diseases, skin, hair, nails, dry skin, eczema, inflammatory disorders etc. I know I am going to take it to help as I have dry skin issues on my scalp and somewhat thin hair already. Hopefully I helped a little. :)
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#23 WheatChef

 
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Posted 16 September 2010 - 01:54 AM

Not at all out of thin air. Both of those products, black currant oil and primrose oil, are antifungal in nature (ie: antiyeast) and pretty much all antifungal compounds are good for hair growth. Tea Tree oil, green tea, grape seed extract, clove, cumin, turmeric, coconut oil, coal tar, ketaconazole, all of these have been shown in different studies to have some effect on hair loss (although not in everyone). All of those are antifungals.
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Receiving a qualified diagnosis of Irritable Bowel Syndrome is as useful as a Psychiatrist giving you a diagnosis of "Doesn't Think Right".

#24 naiiad

 
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Posted 16 September 2010 - 03:06 PM

Woah a candida overgrowth makes so much sense!! I just read a few articles regarding candida related and hair loss, and finally, something that seems to fit with my type of hair loss! Considering I've been having problems with yeast and sores since I developed a problem with gluten, I can't believe I didn't make the connection before.

I'm going to start mixing tea tree oil into my shampoo, and using tea tree oil soap for the skin rashes. I'm going to try an anti-candida diet too. I hope this works!
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#25 WheatChef

 
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Posted 16 September 2010 - 09:43 PM

"Yeast overgrowth" would technically be the more accurate description. There are many different microbe which can cause problems once they reach a certain threshold in the body. Candida is but one of a handful of different yeasts (single celled fungi) that are theorized to be behind things like eczema, bowel/skin/hair issues. If you are having quite a bit of irritation on your skin, attempt a topical anti-fungal. Fungi are ridiculously similar in design to humans (technically) so things that destroy them can also harm us, as opposed to antibiotics which only really damage us by causing an imbalance of our beneficial bacteria. Because of this you should never take a systemic anti-fungal medicine without doctor consultation/prescription (unless you really don't like your liver), however topic anti-fungals are much safer in application as absorption doesn't reach the major organs. I'm not sure you can buy any systemic anti-fungal medicine over-the-counter though so that may be a moot point

If you're looking for some fast relief go with any of the following: Nizoral shampoo (ketaconazole), T-gel shampoo (Coal Tar), Athelete's foot ointment (miconazole), vagistat (tioconazole). Pretty much that whole family of drugs ends in onazole so if you see something for athelete's foot, yeast infections or even dandruff that has an active ingredient ending in onazole then you're looking at the right stuff. Because the species you're dealing with can vary, if the first form of treatment doesn't work then try one of the others.

Certainly though attempt the diet, it will help the medication and the medication will help the diet. Additionally probiotics work wonders in these cases, as the good bacteria naturally produce antifungals as well. Tea tree oil is supposed to help, but it's been my experience that its efficacy is far behind the OTC medication I mentioned above.
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Receiving a qualified diagnosis of Irritable Bowel Syndrome is as useful as a Psychiatrist giving you a diagnosis of "Doesn't Think Right".

#26 naiiad

 
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Posted 21 September 2010 - 10:20 AM

I've been adding tea tree oil to glycerine for shampoo, and rinsing my scap with a nighttime primrose oil soap bar. I can honestly say that after only a week, its been helping wonders. The swelling on my scalp has gone down and my hair doesn't seem to be falling out at an alarming rate. I'll definitely look into the OTC. Thanks!
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#27 WheatChef

 
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Posted 21 September 2010 - 12:36 PM

Having an itchy scalp can be so maddening. It's good to see you've found some relief!
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Receiving a qualified diagnosis of Irritable Bowel Syndrome is as useful as a Psychiatrist giving you a diagnosis of "Doesn't Think Right".

#28 angelikness

 
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Posted 13 December 2010 - 11:08 PM

Thank you so much wheat chef, it helped a lot. I too am discovering an issue with dairy. I've cut out lactose (which got rid of the stomach issues it was causing me), but after reading your post, do you suggest I should cut all dairy out? (Including lactose-free milk and cheese).

Unfortunately, I've been about 2 weeks on a "clean" diet, and my hair loss is only getting worse. My hair is so. friggn. thin. I feel so unnatractive and sickly. This hair loss is effecting every area in my life - I just want to lock myself up in my room and not face the world. As I've said before, the only thing that keeps me going is knowing that I have a bit of money saved up from my last job should I need a wig.

I guess I'm going to make an appointment with my doctor, yet again. Doubt it'l help.


Naiiad, I know what your going through. At 24 my extremely thick hair started falling out like CRAZY. I knew something was very wrong. My hair never fell out before. I might lose a couple in my hairbrush, but nothing more. I'm now 29 and my hair is still falling out. Thank heavens I had a lot to begin with or I would be bald. I'm getting there though. I've struggled watching my hair grow thinner and thinner. I saw dermatologists and they said it was either stress (and should let up soon) or it was genetic and I'd lose most of it. NICE! Well, it's still falling out almost 2 years since last dermatologist appt. My ponytail used to be about 2.5" across when gathered. It is now the size of a nickel. I had psoriasis as a child that mysteriously went away and it came back just last year (about 20 years later). I've tried Nioxin shampoos and Rogaine. I've tried soaking my head in herbal teas. I've even bought all the herbs that were supposed to be for hair loss and encapsulated them, taking them daily. Nothing helped. I know your anxiety and fear over this. I really do understand. It is not easy to stand by helplessly and watch as you lose your hair. It's been a difficult road. My oldest daughter was just diagnosed with gluten sensitivities and I get tested next week. We did go gluten-free for one month several months (to see if we noticed any health improvements) ago and my psoriasis was 100% gone on day 2!! At about week 3 I ate some wheat thins purposfully to see if I'd have a reaction and ..... nothing. I remained on a strict gluten-free diet. But, a week later my psoriasis came back like I had never seen it. We'll be going gluten-free for good now and I pray my hair stops falling out after a few weeks. You REALLY do have to be 100% with it or your wasting your time and effort. There are things you wouldn't even think of that contain gluten like shampoos, toothpaste, and even the stickies on envelopes! Call the manufacturer #'s on the back of the bottles and ask them if it is gluten-free. Cecelia's Marketplace sells gluten shopping guides that are AWESOME. They made our month of gluten-free so much easier. Even meats can have gluten in them. Turkies are sometimes put into broth which contains gluten. You can't use anything that gluten has touched. For example, if your gluten-free peanut butter has had a knife dipped into it that touched regular bread...the peanut butter is contaminated. We buy 2 and write gluten-free on top of lid in marker so everyone knows not to contaminate it. You definetley need your own toaster. A crumb of gluten in your system can be just as bad as a loaf of bread to your body.
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#29 depechemead

 
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Posted 03 October 2013 - 02:39 PM

A year ago (and for the 19 years of my life before that) I had very long, very thick healthy hair. Around this time last summer it started falling out - in chunks. It was really dry and brittle and my roots where thin and white. Within a few months more then half had fallen out and I had to wear hats and different hair styles to cover the thinning patch at the top. I switched to washing my hair with 1 part baby shampoo and 1 part sage tea. After 6 months my hair stopped falling out and it grew back, but not to its original thickness and health.

Anyway, it was at this time that other symptoms started popping up, and doctors had no idea what was going on, but I eventually discovered celiacs. (*Note that I haven't been tested... cant see a specialist for 6 months, I'm also not sure that the hair loss is wheat-related, even though it seems highly likely).

Recently I've been noticing that my hair is thinning again. My roots are dry and brittle and I'm loosing way more hairs then I should be. I first noticed this when I switched to a Revlon shampoo for two weeks and my hair was falling out excessively. When I realized that wheat was a listed ingredient, I immediately threw out the bottle and started using baby shampoo. My hair seemed to improve a little bit, but since then it's been getting progressively worse. I'm so terrified, I don't want to go through the anxiety of losing my hair again.

I'm aware that I've been sneaking small amounts of wheat into my diet - a handful of non-gluten-free rice crackers here, a few potato chips there - foods that I know give me a small reaction but don't contain significant amounts of wheat gluten. Currently ive stopped "cheating" on my wheat-free diet. I hope that helps.

Does anyone have any experience with celiac related hair loss? Any suggestions as to what else I should be doing to preserve my hair?

Yes, I have experienced the exact same thing. I am really upset about it. My hair had to be chopped off at my chin because I loss so much. I have regrowth now, but I think it is still thinning. I haven't cheated on my diet, but I've noticed here and there things containing gluten. For example, I started taking a pytovitamin and noticed after about 3 months that gluten was an ingredient. I think that is what caused my intial hair loss and 3 months later I am finally rebounding. I am perplexed and the other things. I have break outs of acne more now than ever too.


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#30 nvsmom

 
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Posted 03 October 2013 - 08:17 PM

I had pretty bad hair loss too. It continued while gluten-free because thyroid issues were causing it as well. It takes a while to balance out.  :)

 

BTW, this thread is a few years old and the member you are responding to hasn't visited the board in over two years so they may not respond.


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