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Different "glutening" Different Symptoms? And How To Deal When Someone You Love Is Trying To Kill You With Gluten?


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11 replies to this topic

#1 hungrydammit!

 
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Posted 03 August 2010 - 04:36 AM

So, To make things simple: I have a family member who likes glutening me, and then explaining it away as something else.

Two weeks ago, he added soy sauce to a recipe, without telling me. I just got really bloated and had severe stomach cramps for about 48 hours. I had low energy working out, but that might have been more related to the whole pooping-my-brains-out thing.


four nights ago, he rinced his pasta in a colandar, and then threw my gluten-free pasta in, after using the same wooden spoon to stir both pots. since then, i've been slow, achey, depressed, and I get bloated every time I eat (I do get hungry, though). stomach cramps aren't really happening this time.


The former experience is more typical for me... but I realized that most glutening in my life comes from soy sauce, and this is the first time that the effects have lasted so long and are so mild/un explainable.


Two issues here:
Do other people get different symptoms when glutened in different ways? I know that things in which the gluten source is likely to be at least partially fermented (like soy sauce or beer), I feel somewhat differently than when I get glutened by straight up wheat. That being said, I'm always glutened via sauces or cross-contamination --- I don't eat anything that would likely contain any amount of gluten that could be measured by a kitchen utensil.

Also, this person doesn't believe I have a problem, keeps giving me gluten, and then gets pissed because I get sick, but explains it as something else. I figured he'd eventually figure it out, but he's not, and I feel like poop at least once a week from inadvertant or purposeful glutening. I realized after 3 weeks of going gluten free on my then-doc's suggestion that I felt better than I had in 4 years -- my joint pain and constant athletic injuries were greatly reduced or gone and I had more energy and was more active. I haven't had the blood test / biopsy. Without those tests he won't believe that this is gluten related -- [I started going to yoga after my joints stopped hurting so much, and he thinks yoga stopped all my bodily pains]. How do I convince someone that I actually am sick from being glutened -- by him!! I know eventually, I'll have to get the tests to prove it, but health care is expensive and I'm currently uninsured and live in rural america.... but it seems stupid to get a test that is considerably less reliable than the results of eating gluten-free for over a year, now.
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#2 K8ling

 
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Posted 03 August 2010 - 05:38 AM

Depending on how much gluten you get I do think you can have different reactions. If I ate a piece of wheat bread, I would feel horrible immediately. But if I used the same colander to rinse my pasta or got CC'd with a spoon, It would take a little longer. Soy sauce? Instant bathroom run. CC'd gluten-free crackers? Takes me a few days.

I have to say, my husband kept cc'ing me to "test it" when I first got sick. It took about 3 weeks (and MANY angry posts on this board lol) for him to finally "get it". I bought a book for him too. Once he saw how much healthier I was he hopped on board. Now he is INCREDIBLY supportive, and even protective of me when other people ask stupid questions. He just had to have it click. Some people are like that.

I am so sorry you had to deal with this, and I hope it gets better soon. I suggest making your own meals and not letting the food offender near your food.
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Diagnosed with Gluten Allergy April 2010. Family history of Celiac disease and bowel cancers. Already feeling a billion times better since going gluten free.

#3 Dixiebell

 
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Posted 03 August 2010 - 05:49 AM

I would throw all the gluten containing food away or donate it to someone and then replace with gluten free items.
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#4 kitgordon

 
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Posted 03 August 2010 - 05:59 AM

Probably you should fix your own food, and refuse to touch ANYTHING prepared by this person. Do you live with him? Your health is non-negotiable - let him know that and calmly take whatever steps are necessary to protect yourself. Tell him you are sorry you cannot trust him to respect your needs but since that is the case, you will not be eating anything he has touched. Please don't let anyone poison you or make you feel guilty for doing what you need to do!
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#5 kareng

 
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Posted 03 August 2010 - 06:59 AM

Sounds like you live with him. Consider not living with him if he cares so little for you that he purposefully is trying to hurt you. If he was hitting you, I hope you wouldn't keep him around. He is poisoning you.

If you think he will come around or is worth keeping for some reason, then I would not let him cook for you. I might even consider locking up your food and pans & colanders, etc.

I would think that fact that the doctor told you to try this diet would be official enough.
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#6 txplowgirl

 
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Posted 03 August 2010 - 08:07 AM

I ended an 8 yr relationship a couple of months ago because he kept cross contaminating me. He believed I couldn't eat it but he just couldn't get the fact that cross contamination was an issue. Also, it woke me up to the fact that he had control issues. I didn't realize or kept myself in denial because of that and I was miserable for a long time.
You constantly being glutened is causing depression as well as other issues. I finally decided my health was more important than keeping him happy. I'll love that man until the day I die but I can't live with him anymore.
All, I can say is try to get some facts for him to read but from I have read here, it's not gonna do any good. He has his thoughts and there's no changing them. Just my opinion mind you.
I hope you start feeling better.
Vicky
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Lupus, Connective Tissue Disease with Fibro type symptoms, Anemia, Anxiety, Depression, RA, Rynauds Syndrome, Chronic Fatigue Syndrome, Erosive Gastritis, Osteoporosis, Degenerative Disc Disease, Scoliosis, Bulging discs in lower back and neck, Pinched Nerves.

 

Soy free, MSG free, mostly Dairy free. Endoscopy shows blunted Villi which dr states as gluten sensitivity, so goin back to being gluten free


#7 GlutenFreeManna

 
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Posted 03 August 2010 - 09:26 AM

I have had different reactions depending on the amount of gluten. I don't know about the different forms. If it's something that is heavily laced with gluten I will get nauseous and throw up about 30 minutes to an hour after I eat it. If it's just CC, then I don't throw up and my symptoms last for much longer (up to a week).

As far as your family situation, how old are you? Are you still living at home? If this is your brother or dad or someone that you can't just cut out of your life, then you may need to get testing to prove to them that you can't eat gluten. You can be super careful and try to make all your own food, but if this person doesn't believe they may try to sabotage your gluten-free food. If I were in that situation I would try to be careful and save up money for an Enterolab test. There is controversy on this board on whether they are too sensitive of a test, but from what I understand you don't have to be on gluten to get a positive test result. So you can get that and show the results to your skeptical family member if you really need to.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#8 Skylark

 
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Posted 03 August 2010 - 10:34 AM

Yes, glutenings can feel different. I get any random combination of stomach ache, diarrhea, anxiety, fatigue, and canker sores. Roll the dice, pick at least two. :lol:

There is an element of malice in your description which is troublesome. There is a difference between living with someone who just doesn't believe you but humors you (been there, done that) and someone who is actively trying to poison you. You could try giving him articles on all the problems gluten can cause for people. Be sure you include some on the celiac-related intestinal cancers. (The cancers are actually rather rare but the scare factor is useful.)

Moving out so you can have a completely gluten-free kitchen would be the best solution. If you are in circumstances where you can't get away, you need to put your foot down and stop eating anything he cooks. If someone had put rat poison in food, you wouldn't ever trust their food again. This is essentially the same thing.

Also, as far as diagnosis if you don't need one for yourself, I wouldn't recommend the gluten challenge. As you say, it's stupid to get a test that is less reliable than the diet. I totally agree and was never tested myself. My current doctor agrees as well. He says he wishes more people would just try the diet instead of wanting unreliable tests. Besides, you have to eat four slices of bread worth of gluten for 4-6 weeks to have a shot at a positive result. If you go on gluten for a month it sounds like you risk athletic injuries. Torn ligaments can give you a lifetime of trouble.
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#9 GFinDC

 
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Posted 03 August 2010 - 02:31 PM

I am going to agree with everyone who said to make your own food. Only eat what you make yourself. Why trust someone who doesn't get it?
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Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul

#10 Janelee63

 
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Posted 03 August 2010 - 04:09 PM

The fact is......you feel better when you don't eat these things. That is all that should manner. You don't/should not have to prove your diagnosis! My husband is a bit the same....I have psoriatic arthritis and take injections twice a week....he seems to think that good old exercise and a few of his twigs and berry pills will fix it. What I keep telling him...is that the medication STOPS the progression of the disease. He has finally shut up about it. I've got news for him...I am waiting for my biopsy results from my endoscopy I had on Friday. If it shows Celiac...he will be gluten free also. I never have to worry about him poisening me because he NEVER cooks. Luckily he understands food issues...as our child is allergic to soy, wheat, oats, corn, dairy, eggs and peanuts. It can be very severe and cause death. Now I know that allergies and Celiac are different...but regardless...it still makes you sick. Ask him/her....wouldn't you rather have me feeling good and being happy? Who does the grocery shopping? In our house it's me...and I do all the cooking too. Definately cook your own food and consider getting rid of all products that contain gluten.
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#11 Janelee63

 
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Posted 03 August 2010 - 04:59 PM

I had one more thought. What is it with people? Do they seriously think that Celiac is a disease you WANT to have? It would be easier if they had a pill you could take to counteract the gluten...it's much harder to go gluten-free. And I can't think of anyone that WANTS to have this diagnosis. But...it is what it is....if you get sick eating the stuff...you have to stop.
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#12 pammygb

 
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Posted 04 August 2010 - 08:10 AM

So sad to hear that people just don't understand. My daughter is allergic to gluten and my mother in law insists I have her on a fad diet.
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