Stupid Lady At Work
Posted 04 August 2010 - 09:07 AM
Me: We don't have wraps that are gluten free but I can make you a stir fry in our dedicated pan
Her: Oh, I can have a bit of gluten
Me: The wraps have a high gluten content just to let you know, they are all made from wheat. I wouldn't want you to get sick...
Her: I have had Celiac for 5 years, I think I know what I'm talking about.
REALLY? Either she knows she is poisoning herself or she's one of those fad dieters. It made me mad.
Posted 04 August 2010 - 09:37 AM
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Posted 04 August 2010 - 09:50 AM
These folks are killing themselves slowly and make it harder for those of us who are as strict as we need to be.
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 04 August 2010 - 09:53 AM
When I was first diagnosed, my husband's aunt told me that her husband's cousin has Celiac and that after a while I could have a litle gluten now and then and it wouldn't bother me.
All we can do is offer to help, as you ladies did--and beyond that, it's their choice....however wrong it may be.
"Life is what happens while you're busy making other plans"
"When people show you who they are, believe them"--Maya Angelou
"Bloom where you are planted"--Bev
Posted 04 August 2010 - 10:00 AM
She's fulla beans if ya ask me.
Posted 04 August 2010 - 10:27 AM
Posted 04 August 2010 - 10:27 AM
Maybe she was a mystery shopper? Do you get mystery shops at your restaurant? I worked at a coffee place years ago where the mystery shop people had to ask about ingredients in something and then they had to special order it somehow other than what was on the standard menu. We could almost always spot the mystery shopper because they would ask odd questions...Just an idea. If it's not that then I'd write her off as a crazy person and hope she doesn't return.
Posted 04 August 2010 - 10:39 AM
Posted 04 August 2010 - 10:55 AM
By the end of the day she will say she has a headache from work or traffic or looking at the computer screen. She will feel tired and say it's because she over did it. She doesn't put the dots together because she doesn't want to. Well you can lead a horse to the gluten-free foods.....
Posted 04 August 2010 - 10:55 AM
Posted 04 August 2010 - 11:07 AM
Posted 04 August 2010 - 11:20 AM
Some people, I swear! I hate that some celiacs are asymptomatic because they truly believe they can continue to eat wheat with "no problems".
Humph. They're deluding themselves. I'm technically asymptomatic in that I don't have gut response to it, but if I get a bit of gluten, I go all autoimmune towards my thyroid. My Dr. and I have seen it in my bloodtests. Takes between one and three months for it to subside. Pretty sure its doing a bunch of damage in the meantime. You better believe I do my damndest to stay away from gluten. I'm already on thyroid meds because this wasn't diagnosed until I was 40, so it has been chipping away at my health for years. Thyroid problems were what sent my doc looking for Celiac and yep! Found it. These people who think they can cheat have no idea what damage is going on inside them.
I've spent two years gluten free and am much healthier than I've been in a loooong time.
Posted 04 August 2010 - 11:42 AM
And that is why so many of us aren't taken seriously...UGH! My mom was getting her gluten-free info from my Aunt because my cousin put her kids on a gluten-free diet. I come to find out that the gluten-free diet is because they are on the Autism spectrum and she does occasionally allow them a treat and doesn't worry about cross contamination. So of course my mother thinks I'm going off the deep end by not accepting her old breadmaker. Sheesh.
YES! People keep trying to give me their old bread machines!! I was like "No...I'm good..." I don't even explain anymore because I never get anywhere!
Posted 04 August 2010 - 12:15 PM
I wish there were a way to educate these people, so they know the risk of what they do. It would be awful to have a celiac diagnosis, not take it seriously because your doctor gives bad information, or you lack willpower, or you're just plain stubborn, and later discover you are severely and irrecoverably osteoporotic at age 60 or you have developed intestinal cancer.
If I run across another celiac who says I can eat wheat, I say "Are you crazy? I don't want cancer!" It usually gets people's attention, because everyone is familiar with carcinogens that don't cause any symptoms, and everyone is afraid of cancer. (Celiac-caused cancers are rare, but hey - whatever works.)
Posted 05 August 2010 - 01:41 PM
I wish there were a way to educate these people, so they know the risk of what they do.
They need to read these forums! This place helped me so much. I so many posts here while I was doing my gluten challenge and it meant so much more to read people's personal stories - and ways of handling things - than it did to read boring information sheets full of facts. By time my tests had come back negative for celiac I didn't have to worry about what to do next, I knew - go gluten free and to trust how I felt. And so I did and I feel so much better.
Of course, it took a heck of a lot of time. When I was sitting exams last June I really wished they were on how to handle gluten and celiac disease since I knew way more about that topic than what I was going to be assessed on ;-)
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