Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Post Traumatic Stress Disorder And Celiac
0

9 posts in this topic

I suffer from Post traumatic stress disorder (PTSD). It started 9 years ago when I was in a horrific Amtrak train accident (1 person was killed in my car and we were trapped in the bottom of the car, lying upside down in a ditch in the middle of the night for over 30 minutes). That was absolutely horrible, but fortunately I was not seriously injured. However, I had severe bruising all over my body as well as trauma to my neck and face.

Then in April, I was in my first car accident. It was my fault, as I didn't see the stop sign. I damaged the whole front bumper of the car but was not injured, nor was the other driver. I got my car fixed and had it for 2 months before it happened again on Aug 4.

This car accident was not my fault, rather the other driver failed to yield and we collided head-on. It was 97 degrees outside (115 with the heat index) in the middle of a busy intersection during rush hour. This crash was more severe and the airbags deflated. Those and the seat belt probably saved my life. My nose was bleeding and I was all shaken up. But I managed to call the police and my mom, who lived nearby. At first I was in bad shock. But then I started crying because I was upset that this keeps happening to me and I was scared. By the time I was put on a stretcher, I was hyperventilating. My head felt very heavy and I started feeling sick to my stomach. Now I suffer from a condition called emetophobia (an irrational fear of vomiting or seeing other people vomit) so that just made me panic more. Well, fortunately the nausea went away pretty soon. But I was continuing to hyperventilate. By the time I got to the hospital, my legs were nearly numb and I became extremely weak. They asked me my name over and over again and I was barely able to mutter it. I had a dull headache and stiff neck and was having a hard time stopping the nose bleed (I've suffered from bad nose bleeds ever since I was really little- another symptom of Celiac I suppose). I couldn't stop crying. Most of the people in the ER were not very sympathetic at all, some were just plain rude. Fortunately my parents were with me, except when I was Xrayed.

Well, the good news is that I wasn't severely hurt. Yesterday, my muscles ached (like the flu) and I was very tired and exhausted and upset. Today I've done much better, but still have headache, back aches and some upset feelings.

Anyway, I'm just wondering if Celiac seems to exacerbate PTSD or if I just have a normal reaction. People have told me that I'm taking this amazingly well.

1

Share this post


Link to post
Share on other sites


Ads by Google:

Hi Coolclimates, first of all I hope you get to feeling better. I've had chronic nosebleeds since I was 7, it is a condition called Epitasis. Your PTSD could be flaring up or it could just be your body reacting kind of to being jarred, kind of like being whiplashed. Just my opinion.

Try to relax and take it easy for a few days.

1

Share this post


Link to post
Share on other sites

Ugh, sorry, I spelled that wrong. Here is wikipedia's version of it.

"Epistaxis (or a nosebleed) is the relatively common occurrence of hemorrhage from the nose, usually noticed when the blood drains out through the nostrils. There are two types: anterior (the most common), and posterior (less common, more likely to require medical attention). Sometimes in more severe cases, the blood can come up the nasolacrimal duct and out from the eye. Fresh blood and clotted blood can also flow down into the stomach and cause nausea and vomiting. It is rarely fatal, accounting for only 4 of the 2.4 million deaths in the U.S. in 1999.[1] Perhaps the most well-known Epistaxis-related death was that of Attila the Hun. He drank an extremely large quantity of alcohol on his wedding night after his parley with Pope Leo I, suffered a nosebleed in his sleep and was suffocated by the blood."

That's interesting about Attila I think anyway.

0

Share this post


Link to post
Share on other sites

Interesting, I never knew there was a name for this condition. I've had my nose cauterized with dry ice (ouch!) twice in the past with no success and just a lot of pain. But unless I keep my head up or forward, I do swallow lots of blood. I was swallowing a lot of blood in the hospital because they didn't believe me when I said that it was running down my throat and I needed to be propped up. Luckily, my parents found a way to prop me up. The worst thing you want to do is tilt your head back like a lot of people say. It will just lead to blood going into the stomach, which, like you said, can cause nausea and vomiting. In fact, when I got my wisdom teeth taken out, I had swallowed a lot of blood. On top of that I had a milkshake and had been on strong drugs and I did throw up (one of the only times in my life, like I said I'm terrified of throwing up).

Anyway, thanks for the support.

1

Share this post


Link to post
Share on other sites

When I was pregnant with my first child. Bad Bad sick with preclampsia. He was born 2 months early then had 7 miscarriages on top of that, my nose would go to bleeding and after a while I could feel the blood going down the back of my throat and every time my heart beat I could feel the blood pump into my stomach. That was a scary, weird feeling.

0

Share this post


Link to post
Share on other sites




When I was pregnant with my first child. Bad Bad sick with preclampsia. He was born 2 months early then had 7 miscarriages on top of that, my nose would go to bleeding and after a while I could feel the blood going down the back of my throat and every time my heart beat I could feel the blood pump into my stomach. That was a scary, weird feeling.

That sounds really disturbing. Once I took a nap and woke up to find my nose was bleeding. Half of my pillow was covered in blood! Needless to say, I was scared. I almost always wake up if my nose starts bleeding.

I'm doing better from my accident. But last night I had a bad headache and cried a bit. It's just hard to deal with all the PTSD.

0

Share this post


Link to post
Share on other sites

I can remember from the age of about 7, I could be watching tv, reading a book or sleeping and my nose would just start gushing. We lived with my paternal grandmother at the time and she would grab me and stick my head under a water faucet, whether it was in the house or outside. She scared me. I thought she didn't like me and was trying to drown me. No one told me that cold water on the back of the neck would slow the blood flow down. Didn't learn that till I was in high school in biology.

As for PTSD. I know exactly what you mean. I was raped almost 25 years ago. I still have episodes every once in awhile. Not something you get over very easily. But hang in there, It will get better I promise. May take a while, you just have to be patient. I know, easier said than done, right. :)

0

Share this post


Link to post
Share on other sites

I can remember from the age of about 7, I could be watching tv, reading a book or sleeping and my nose would just start gushing. We lived with my paternal grandmother at the time and she would grab me and stick my head under a water faucet, whether it was in the house or outside. She scared me. I thought she didn't like me and was trying to drown me. No one told me that cold water on the back of the neck would slow the blood flow down. Didn't learn that till I was in high school in biology.

As for PTSD. I know exactly what you mean. I was raped almost 25 years ago. I still have episodes every once in awhile. Not something you get over very easily. But hang in there, It will get better I promise. May take a while, you just have to be patient. I know, easier said than done, right. :)

Yeah, I've had similar problems with nosebleeds, although they almost always happen in the winter when it's so dry. I try to keep a humidifier going in my room all the time in the winter but it still doesn't always prevent them. Also, I used to put vaseline inside my nose but some docs have said it's a bad idea. Others say it's ok. Yeah, in the winter, I have been known to have about one nosebleed every day. And they are hard to stop! I had no idea about cold water on the back of my neck! I should try that next time I get a bloody nose. How long do you have to put the cold water on the neck?

I'm so very sorry to hear that you were raped. Fortunately I'm very lucky and have never been raped or in a physically abusive relationship (although I've had very little luck with men, but those are due to other reasons). I can only imagine how traumatic that is. I had a best friend who was raped at age 13 and it changed her life forever. Her parents actually took her out of school as she was being ostracised and teased so much by kids. The whole "blame the victim" mentality. Eventually, they moved out of my town all together to try to get her a fresh start. But unfortunately she has led a very traumatic life as she is a real risk taker and seems to thrive on dangerous situations. She also makes poor judgement. Not that that is any excuse for her to be raped, it isn't. But she seems headed for trouble no matter what. I know other people like that too and it's sad because you just want to stop them and have life get better for them, but they keep going down a destructive path.

Anyway, back to the post traumatic stress disorder thing. i've been feeling better generally, but still having issues with headaches, fatigue and upset feelings. I'm sure this is all pretty normal and in some ways I think I'm doing incredibly well considering what I've been through in the past. But it's also frustrating because I've been on the gluten-free diet for 3 months now and have noticed little improvement with my symptoms. Very frustrating.

0

Share this post


Link to post
Share on other sites

I also have PTSD very severe because of protracted dehumanizing abuse. I will never recover so I have had to go into a different direction and make a life other than the one I was going to have. But I am doing OK and fight on like all of us have to do. Where there is breath, there is a chance at a new beginning and new day! :-)

And I see it as a cycle, with the celiac and all this. I think that whatever makes us senstive to these foods, be in the gene or the intolerance, also makes us sensitive to emotional things. There are threads on here about the neuro effects of it all.

I also have vaso vagal reaction whereby I faint and have even gone into seizures after having blood taken. So I am sensitive to a lot of stuff.

When I am glutened, it makes me much more depressed. It also fogs up my brain and sets it on an obsessive run away horse. I can't think straight.

When I am healthy, I am still a bit spacey and anxious because of it all, but I feel like I can find my way around and make plans.

I am so sorry about what you have gone through. It must have been awful!! And to have no help by the hospital staff? That is just awful!!! But you are doing all the right things. Don't give up! Use it all to make you a better, more educated soul!! And thanks for sharing your story, too.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,403
    • Total Posts
      917,630
  • Topics

  • Posts

    • Eating food cooked on a grill (eg, quesadillas, fish)
      In Mexican restaurants, I ask them to heat the corn tortillas in foil.  Also, make sure you ask if the chips are made in a dedicated fryer.
    • Starting out
      Your GI is sadly mis-informed!  You should be tested for Celiac Disease before embarking on a gluten free diet.  Celiac Disease should be ruled out first!  So many doctors think that you have to be malnourished and wasting away to have celiac disease -- not true!  You can develop celiac disease at ANY age.  Do you have any other autoimmune disorders?   Celiac disease is also genetic.  So, if you have it, your kids and sibliings should be tested even if they are symptom free!  Celiac Disease has so many other issues that come with having it.  That's why having a proper diagnosis is important.  You will get the care you need.  Also, sticking to a life-long especially when you are older and it is hard to make changes in general (hey, I'm there!).    Your GP can actually order the celiac blood panel.  In addition, I would search around for another GI (one who is celiac savvy).   Here's a link regarding the exact tests: http://www.cureceliacdisease.org/screening/ I encourage you to read up on celiac disease.  Only you can be your best health advocate!  I wish you well!  Feel free to ask any questions!  
    • Enjoy Life/ Perky's Cereal
      I am super bummed. I just went to order my breakfast staple for the last 10 years from Amazon  - my case of Enjoy Life's Crunchy Rice - over the last number of years it has gone though name and packaging changes but it has always been there for me for breakfast There is no more in stock at  Amazon so I contacted the company and found out that they are no longer going to be making any cereals. No Crunchy Rice or Crunchy Flax .  Super sad.  I need to find a replacement and i am very picky. I am looking for a simple cereal not sweet and not mushy in milk. I am not able to eat corn so it can not contain corn.  Any ideas for me? Michele
    • celiac disease is psychosomatic
      CoQ10 deficiency can also cause balance issues.
    • Starting out
      Hi, as a Noob, I am a little intimidated by what may come to be a major change in my eating habits. My middle has been uncomfortable for a couple of years and I got no help or input from my GP so I went to a GI Dr who checked me throughly and found nothing out of sorts other than some minor irritation in my esophogus and prescribed a medication. My stomach/mid section still is uncomfortable and really disturbingly big. The GP finally suggested that I try being gluten free for 6 weeks to see if it made a difference. I have no other symptoms of gluten intolerance, as far I know. I've had anxiety issues longer than the stomach discomfort but I am having depression and lethargy so I guess I will try to rule this out. My question is, how strict does this have to be in order to ascertain that there is a correlation between my discomfort and possible gluten allergy? How stringent is the cross contamination issue, like using a toaster oven and other daily food prep precautions. Right now, eating like this for 6 weeks feels like 6 years. But if I start to feel better in a few weeks, I guess I'll make the transistion permanently, and I'd really like my gut to be normal looking, or at least not 7 months pregnant.  Female, nearly 70, 5'8", overweight at 170 lbs.  Thanks.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,535
    • Most Online
      1,763

    Newest Member
    Sullyn
    Joined