Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Do Probiotics And Enzymes Help You For The Most Part?
0

14 posts in this topic

After suffering for close to 20 years of IBS, bloating, distension, cramps, acid reflux, brain fog, headaches, teary eyes, numb cheeks, fatigue after eating, joint pain, muscle pain, all that typical stuff I was fed up. I completely eliminated dairy - (milk, ice cream, etc) almost completely eliminated wheat and gluten for a few months now and have been eating simple foods like fresh fruits (blueberries, strawberries) and white meat and seafood like shrimp) I've seen a remarkable improvement in my symptoms! I used to "go into a coma" after having macaroni and cheese, get excrutiating stomach cramps after eating ice cream or would have a two inch difference in my waistline depending on whether I was bloated or not from eating a bowl of Cheerios. I feel so much better! Not 100 percent but so much better that I had to brag.

But also I take Primal Defense Ultra probiotic 3 times a day with lots of water, and Primal Defense Ω-Zyme before I eat a meal, and I was wondering if these maybe were the answer........more so than just eliminating dairy gluten and wheat.........

Do you take probiotics and enzymes in addition to eliminating your trigger foods and do you think they've really helped too?

What else, in addition, can I do to maintain things with my symptoms.

0

Share this post


Link to post
Share on other sites


Ads by Google:

good for u!!! i havent been able to give up the dairy yet <_<

in my personal opinion- i've noticed more positive change from actually eliminating wheat & gluten from my diet than the probiotics or enzymes.. i think they most definitely help- but i think the biggest change comes from the diet.

0

Share this post


Link to post
Share on other sites

Hey, I know that you feel my malnourished pain! My GI doc told me yesterday to add probiotics...IN ADDITION to cutting out the offensive foods. He said that a damaged gut allows bad bacteria to build up and be greater than the good bacteria, and could potentially cause a gut infection. So... I'm on 2 antibiotics for 2 weeks, along with 2 probiotics. I've read that other people on here say that the probiotics really help them, but that you need to find a good one. I don't know what they are though, and I'd like to know that for myself. I don't plan on staying on the ones that were given to me.

0

Share this post


Link to post
Share on other sites

I am a little more than a year gluten free. If I go more than 2 days without my pro-b's, I bloat up like a balloon. I am fairly certain I am on them for life. I actually take HCL before meals, and enzymes after. That has improved my digestion drastically.

HTH

0

Share this post


Link to post
Share on other sites

I have been gluten-free for 4 years, and dairy free mostly for 2. I have gone through phases where I feel better, and then don't. But I definitely notice a difference taking probiotics.

I was recommended Align by my GI. It's a probiotic specifically for people with IBS-like symptoms - gas, bloating, cramps, etc. Lately I was wondering if it was working, so I stopped taking it for a couple weeks. Boy, did I notice a difference! Definitely helping!

I would look into Align, see if it sounds like it would help you. It has a minute amount of dairy in it, but that really hasn't bothered me.

0

Share this post


Link to post
Share on other sites




thanks for the replies. Align was recommended to me from the pharmacist at CVS. I tried it, and was ten times worse with the cramps after taking it for two days. The cramps were so horrible I couldn't stand up straight without doubling over. But then again, there are people who say it worked for them fine. I don't know why it didn't work for me. So anyways I went to the vitamin shoppe, the guys there have been so helpful, answering a ton of questions. I've really noticed a difference, especially in my distended "Santa Claus" stomach. Its deflated and stayed that way, lol

0

Share this post


Link to post
Share on other sites

thanks for the replies. Align was recommended to me from the pharmacist at CVS. I tried it, and was ten times worse with the cramps after taking it for two days. The cramps were so horrible I couldn't stand up straight without doubling over. But then again, there are people who say it worked for them fine. I don't know why it didn't work for me. So anyways I went to the vitamin shoppe, the guys there have been so helpful, answering a ton of questions. I've really noticed a difference, especially in my distended "Santa Claus" stomach. Its deflated and stayed that way, lol

When I started taking Align, my GI warned me it can cause some bloating/flare up of symptoms, which I noticed for probably the first week. Definitely nothing as bad as what you experienced. That's horrible. I hope you find something that works for you.

0

Share this post


Link to post
Share on other sites

When I started taking Align, my GI warned me it can cause some bloating/flare up of symptoms, which I noticed for probably the first week. Definitely nothing as bad as what you experienced. That's horrible. I hope you find something that works for you.

I have just had recommended to me by a nutritionist, and have started taking VSL#3, which can be ordered from Sigma-Tau Pharmaceuticals. It is a sprinkle that comes in a small packet and contains lactic acid bacteria (450 billion of them) and cornstarch. She thinks my gut is still leaking and wants me to take it for at least 90 days (along with other stuff she has prescribed). It is pretty expensive and has to be fed-exed because it must be kept refrigerated, but you do get a price break with ordering two boxes. She asserts it is without doubt the best probiotic on the market - used for people with Crohn's and ulcerative colitis, as well as an ileal pouch. Don't know if your budget will stretch that far but check it out.

0

Share this post


Link to post
Share on other sites

question............... if I take too much probiotics will it be bad for me? I mean, I have been eating gluten free, wheat free, lactose free, egg free, casein free for the past two weeks, and taking probiotics before every meal, and I was feeling better for a short while, but this week my stomach still feels pretty yucky and the diarrhea and stomach upset is still there, it feels like like a relapse. Could it be I am putting something into my body that I don't need and that's why the diarrhea? Or maybe I need to take it for a few months?

0

Share this post


Link to post
Share on other sites

Oh and also..............I asked my gp if she ever heard of Nystatin, and she said Kind of, but you don't need Nystatin. Stay away from that.

Anybody here ever take Nystatin? What was that like

0

Share this post


Link to post
Share on other sites

After suffering for close to 20 years of IBS, bloating, distension, cramps, acid reflux, brain fog, headaches, teary eyes, numb cheeks, fatigue after eating, joint pain, muscle pain, all that typical stuff I was fed up. I completely eliminated dairy - (milk, ice cream, etc) almost completely eliminated wheat and gluten for a few months now and have been eating simple foods like fresh fruits (blueberries, strawberries) and white meat and seafood like shrimp) I've seen a remarkable improvement in my symptoms! I used to "go into a coma" after having macaroni and cheese, get excrutiating stomach cramps after eating ice cream or would have a two inch difference in my waistline depending on whether I was bloated or not from eating a bowl of Cheerios. I feel so much better! Not 100 percent but so much better that I had to brag.

But also I take Primal Defense Ultra probiotic 3 times a day with lots of water, and Primal Defense Ω-Zyme before I eat a meal, and I was wondering if these maybe were the answer........more so than just eliminating dairy gluten and wheat.........

Do you take probiotics and enzymes in addition to eliminating your trigger foods and do you think they've really helped too?

What else, in addition, can I do to maintain things with my symptoms.

I suggest abstaining from your diagnosed allergies/intolerances AND taking probiotics to restore gut health. Probiotics alone will not prevent or ease painful allergy/intolerance reactions to gluten or anything else. However many people with gluten intolerance or other food sensitivities also have depleted beneficial gut bacteria which can cause symptoms like constipation, diarrhea and intestinal cramping pain, even when they abstain from problem foods. If you've ever taken antibiotics, you definitely need probiotics.

However, if you're truly deficient, just eating yogurt or taking a low dose probiotic won't help much. You need a pretty high dose probiotic (20-50 billion live cells per capsule) to improve your intestinal health (the higher the better). However, you don't need FOS (fructooligosaccharides) to feed those probiotics. So you don't have to endure FOS side effects (bloating, gas and pain) by taking probiotics with FOS. Also if you need to increase your beneficial gut bacteria, take probiotics on an empty stomach like before breakfast or bedtime. Taking probiotics with a meal can decrease their potency, because stomach acid can destroy some live cells.

Finally, if you need other digestive supplments and digestive enzymes don't help, you may need to test your stomach acid production. Many people have low, rather than high stomach acid. Low stomach acid can cause reflux, indigestion, susceptibility to intestinal infections (bacteria, parasites and fungus). However, don't take HCl supplements without getting tested.

0

Share this post


Link to post
Share on other sites

Oh and also..............I asked my gp if she ever heard of Nystatin, and she said Kind of, but you don't need Nystatin. Stay away from that.

Anybody here ever take Nystatin? What was that like

After stool tests diagnosed candida, I took Nystatin for 3 months to eliminate that fungus. Rather than try to follow very restrictive candida diets, because I already have 7 diagnosed food intolerance/allergies, I chose Nystatin, which was one of the recommended treatments for my specific strain of candida (indicated by my stool test results).

For the first 3 days on Nystatin I experienced dizziness and nausea. After my body adjusted to that drug, I didn't feel any side effects until after I finished the treatment. Then I went through another 2-3 days of nausea perhaps from Nystatin withdrawal. However, I could easily tolerate the dizziness and/or nausea by drinking ginger tea. Nevertheless, I'd also recommend taking high dose probiotics while taking Nystatin. Even though that's an antiFUNGAL (rather than antibacterial) drug, it still upsets the microfloral intestinal balance, which makes you vulnerable to new bad gut bugs, if you don't add good bacteria from probiotics while you take Nystatin.

0

Share this post


Link to post
Share on other sites

I really am quite surprised that my doctor didn't recommend Nystatin, (and specifally said "You don't want to take that") I've seen a lot of people on here and on this other board I go to, mention they have taken it. I'm going to have to specifally go to a gastro specilaist I guess. I mean, a doctor who treats me for a sinus infection and a sore back is not the doctor I really need to see for chronic stomach problems.

0

Share this post


Link to post
Share on other sites

I really am quite surprised that my doctor didn't recommend Nystatin, (and specifally said "You don't want to take that") I've seen a lot of people on here and on this other board I go to, mention they have taken it. I'm going to have to specifally go to a gastro specilaist I guess. I mean, a doctor who treats me for a sinus infection and a sore back is not the doctor I really need to see for chronic stomach problems.

I didn't read anything saying that you had been diagnosed with candida by stool test. (Did I miss that??) If your doc doesn't really know whether you have candida or doesn't do stool tests for candida, I'm not surprised that she would discourage you from taking Nystatin. Any antifungal (antibacterial or antiparasitic) drug will deplete your intestine's good bacteria and leave you vulnerable to new infections. Also without a diagnostic stool test, you won't know whether your specific strain of candida is sensitive to (can be killed by) nystatin. So you could take Nystatin, destroy your good bacteria and still have candida or some other bacterial infection.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,588
    • Total Posts
      918,276
  • Topics

  • Posts

    • Last posted 2013 - Improving health
      I am glad you are feeling so much better!  Your posting will encourage others.  Thank you!
    • Last posted 2013 - Improving health
      When I first started this journey, roughly 11 yrs ago with symptoms, I had no clue. Eventually, having no luck with doctors (hypochondriac or psychosomatic), I googled my symptoms over and over looking for something... ANYTHING... that would give me a clue. Among other issues, my insides would not move, I was turning gray, felt like death, and had a persistent cough. I can't remember who but someone had posted on the forum and I found some of my symptoms. Eureka, I immediately began a gluten-free diet to see if it made any difference. Of course that was a journey, not realizing what products contained gluten. Long story shorter – first I went gluten-free, symptoms began to reappear, then it was soy (first organic was okay, then not), symptoms reappeared, took out corn, symptoms reappeared, then it was all grains. So the last couple of years I have been grain-free plus no sulphates. Actually, truth be told, my Celiac pharmacist gave me the recipe for health. I asked her if she liked a certain product. She answered, “I don't know, I have never tried it.” I asked her what she did use. She replied, “Nothing out of a box, a bag, or a bottle.” And that has pretty much been my life for the last couple of years. There is the odd product I try but it always has an after effect and I have to way the consequences against the enjoyment of it. I am one of those who react to 1 crumb in the butter, flour dust in the air, sulphates in anything, sometimes things that don't even seem like they would be a problem, like avocados and blueberries when I am contaminated. January 2016 I began this recitation. It is now May 5th, 2016 - Here I am 4 months later and I feel like screaming to anyone who will listen, “Things are improving!! My gut is healing!!” So what happened?? Someone suggested digestive enzymes. My insides were so compromised that I couldn't eat much besides fruit, veggies, and meat; all plain, all without being touched by people other than me. I could barely stand salt at times when I was compromised. Haven't been to a restaurant in years since I am not in a city that would have one to cater or understand this much of a problem. I started digestive enzymes but I read the label wrong and started with 5 first thing in the morning. Whatever... I began to notice improvements in what I could eat. Not anything different but just that I could eat without feeling ill or having my gut shut down. I stayed on those for a month and a half.. then I picked up a parasite from someone living in a very unclean apartment and visiting there and helping to clean. Well, that was a huge battle. I had to eat to discourage parasites. But in the process my insides began to heal dramatically. I was eating blackberries, drinking garlic keefir (which I couldn't have done 5 mths ago and gave me the first clue my insides had improved substantially), drinking oil of oregano or peppermint oil drops in a glasses of water, eating cabbage and green roughage. Drinking water with apple cider vinegar in it and Aloe Vera juice. After a couple of weeks my insides were a whole different story. I had a feeling of wellness that I hadn't had for years! I FELT like trying to eat something different. So I decided to try Gluten-free Rice Chex. Haven't had them in years.... and I am so happy! I can eat them!! (Not to say they are healthy, cause they are processed crap) but I didn't get sick and that was the amazing part. So now I am beginning to try a few things that would have set me back previously, I have made my own crème brulee because I have always been able to eat eggs. But the sugar was causing problems, but now it's okay. The issue I have now is that I want to try things too fast so I am having to exercise restraint. So here is it – parasites are very common, everyone has them however whether they cause problems depends on your immune system. Does it not makes sense that they would cause leaky gut? An over abundance in the gut would destroy gut tissue and take nutrients from a person and possibly put holes in the gut leading to food reactions? Digestive enzymes help to destroy the protective coating around parasites. Foods that discourage them or kill them are blackberries, garlic, cabbage, oil of oregano, peppermint oil, aloe vera juice, Braggs apple cider vinegar and more (google to find). I found medication didn't do anything so I turned to all the other. So this is how it is today. I don't suggest it is the answer to anyone else's problems but when I found this site, hidden in the posts was the beginning of the answers for me.  I may still be gluten, soy, corn intolerant but I am feeling so good now and I just thought I would tell someone.  I just wanted to share. Thanks for reading.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      Not to mention my hips and knees are killing me and I have really bad calf pains and horrible bloating after just 3 days of glutening. I don't think I could live like this for a whole week.
    • Endoscopy in 9 days after being low-gluten for a year. What to eat?
      I saw my gi today and he said to not worry about eating gluten. I have abdominal pain in the small intestine area and referred pain in my back, indicating pretty bad damage. So I'll just go without the gluten and do the genetic testing if needed.
    • Vagus Nerve Attack
      Hello All: I came across this series of posts from as Google search on "Wheat Vagus Nerve". I find all of your replies very interesting and would like to add mine for those searching for information but with differing symptoms. I have struggled with the vagus nerve impact to breathing as Maria mentioned in the original post, but only an impact to breathing and nothing else.  But my symptoms were brought on not only by wheat, but also by other ingredients such as dark chocolate, probiotics, caprylic acid, mustard, fluoride in toothpaste/mouthwash just to name a few.  I found when I sat down my breathing would return to normal, but as soon I got up, the impact would return. The impact to breathing would come 4-6 hours after ingestion and last for about the same amount of time.  At times I could not even take ten steps without having to stop, not being able to breath even moderately.  The symptoms now are decreasing in severity but not in duration. My doctor checked my blood for celiac and results were negative. A number of chest x-rays to rule out COPD.  I am waiting on an appoint with an allergy specialist in a few weeks to see what they have to say.  Needless to say, it is difficult to maintain a healthy weight. Thanks for your posts, and I hope my contribution is of benefit to others also.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
  • Who's Online (See full list)

    There are no registered users currently online

  • Member Statistics

    • Total Members
      60,683
    • Most Online
      1,763

    Newest Member
    Rainbow60
    Joined