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How Soon After Getting "glutened" Do You Feel Effects?


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#1 Tidings

 
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Posted 13 August 2010 - 02:09 AM

Hello folks,

Would like to hear some details from those of you who have experienced a "glutened" after-effect, such as:

*How soon after you ingest gluten do you begin to feel "glutened"?

*What after-effects or reactions do you experience?

*How long do/es the "glutened" effect(s) or reaction(s) last?

Had always expected to feel "morning after" effects from ingesting gluten, but lately I've noticed that it seems to take 2-3 days before serious side-effects set in. It also seems to last longer each time it happens, and the effects (intestinal pain, congestion, swelling, etc.) seem to increase in severity.

Am wondering if the repeated exposures to gluten (whether accidental or deliberate) tend to cause increased severity and duration, the more often it occurs?

Hope the questions are clear, and I look forward to hearing some responses.

Thanks and good wishes.
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#2 GlutenFreeManna

 
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Posted 13 August 2010 - 04:02 AM

*How soon after you ingest gluten do you begin to feel "glutened"?

*What after-effects or reactions do you experience?

*How long do/es the "glutened" effect(s) or reaction(s) last?


1. Anywhere from 20 minutes to two days later. It seems to vary for me.

2. If my body "catches" it with 20-30 minutes I get a headache, nausea and sometimes throw up. Then for the next 4-5 days I have bad neurological reactions-- muscle and joint pain, shaking hands, fatigue, brain fog, etc. If my body doesn't react right away and the reaction is delayed by a day or two (I don't throw up), I have C and bloating for a day or so followed by bad cramping and Bloody D. I also have the neurological effects while having the gastro effects so it's ten times worse when I have delayed reaction. Unfortunately delayed reactions seem to happen more often for me, so it's harder to track down the gluten source. I also never had the really bad gastro reactions prior to going gluten free.

3. Whether delayed or immediate I have symptoms anywhere from 4 days to a week. Usually takes me a week to feel better.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#3 Kay DH

 
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Posted 13 August 2010 - 04:07 AM

For me it is variable. CC can hit in 1 hour or the next day and symptoms are D, bloating, sometimes cramps. D is generally one rather massive event (amazing how much can be stored in a GI tract. Next time I have a colonoscopy I'll just have a crouton instead of laxative) and the bloating takes 3-5 days to go away. Massive glutenization can result in the same symptoms, but also include stiff joints, brain fog, lethargy, muscle aches, and mood swings. These other symptoms can take 5-7 days to go away. I, like a lot of people, am self diagnosed for gluten intolerance. My symptoms started last fall after getting the flu, and my blood and other tests were negative but also after I was gluten-free. A really bad gluten hit can cause the area around where my rashes were to be itchy; I had probable DH for a few decades that went away 6 months after gluten-free.
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#4 brendab

 
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Posted 13 August 2010 - 04:32 AM

Very soon after I eat I get a sharp pain in my stomach and I can feel that pain for the rest of the day or so as it travels my digestive system. Later I get gas that just won't stop and constipation. Brain fog, drugged feelings and general stupor. OH, and I quite often get anxious and sometimes RLS.
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#5 cassP

 
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Posted 13 August 2010 - 06:57 AM

omg- i'll try to keep this short- it just depends on how much, what kind, and for how long i eat it... the norm is to feel like i have huge rocks in my stomach & intestines like even 10 min. after eating it. i dont get the "D" or floaty fatty movements unless ive been on gluten regularly. i usually get some "C" & how do i say this.... um... white mucous type stuff... (sorry tmi :( )
also, GERD, congestion, brain fog, and "hangover".
the last time i ingested gluten was right before i got my Enterolab results (one last cheat)-> got fried shrimp, after 15 minutes- had to lay on the couch with an ice pak- my heart rate shot up to like 150 bpm, and i was on the verge of throwing up :(
but as far as minute amounts of CC- im still not sure about my body- still working thru intolerances & allergies with other foods- so im not sure if im getting CC or what?
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1986- Elevated Speckled ANA/no Lupus.negative Sjorgens
2008- AntiGliadin IGA/IGg~ Negative,TTG IGA/IGg~ Weak Positive, Endomysial Antibody~ Positive, IGA Deficient.
no biopsy (insurance denied)
6/2010- Enterolab Gene Test:
HLA-DQB1 Allele 1 0302
HLA-DQB1 Allele 2 0302
HLADQ 3,3 (subtype 8,8)
7/2010- 100% Gluten Free
8/2010- DH
10/2010-Hypothyroid dx-> 12/2010 Hashimoto's dx + 1/11- Graves dx :(

#6 JCastro

 
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Posted 13 August 2010 - 09:09 AM

For me, it depends on how much and what I eat but I know within about 20 min, that's when my neuro symptoms start. Then 3 days later I get a migraine and my gastro symptoms start (cramping, stomach pain, and D). I am sick and extremely tired and anxious for a few days to a week.
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#7 alissar

 
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Posted 18 August 2010 - 07:07 AM

About 20 min after eating gluten my hands feel puffy. Thats always the first sign. Then, my stomach starts gurgling and I get really gassy. Sometimes, I start to feel like I can't see quite right and I am high or something (Brain fog?). About 2 hours later I get really bloated and it hurts. I wake up the following morning with a swollen face and swollen eyelids (its embarrassing). The swelling normally lasts 8-10 days. It normally takes 1-2 days before I get D (oddly). But, that normally sticks around for about 3 days. I seem to get glutened all the time...esp. when I go out to eat.
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#8 Fey

 
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Posted 19 August 2010 - 11:02 AM

- Within the first couple of hours: major C, followed by random anxiety attacks that aren't justifiable and come out of nowhere.
- First 24-48 hours: extreme moodiness, and headaches that don't go away with my trustworthy Excedrin Migraine... if 4 Excedrins don't get rid of the headache, I know I have a major gluten-triggered migraine on its way.
- Next few days: body aches (fibro flare) & nausea.

Typically I'll feel better anywhere from 2-3 days after being glutened, but it can take as long as 5 days.
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Newbie - Trying out the gluten-free diet since 6/08/10.

#9 Cheryl_C

 
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Posted 20 August 2010 - 04:44 PM

I'm currently experience my first real glutening since going gluten-free.

For me, my symptoms seemed to start about 30, 45 minutes after eating the food. I was suddenly cramped and gassy, and ended up with one instance of really bad D. (graphic, I know, sorry lol) The remainder of the evening and night last night I had really bad pain in my stomach, like very sore, and also low energy and some emotional agitation.

Today, my stomach is still out of whack and I had to bail on going to the bar <_< I just had dinner (homemade dinner) and am still feeling cramped/gassy/sore stomach.

Ugh.
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#10 anabananakins

 
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Posted 21 August 2010 - 05:24 AM

*How soon after you ingest gluten do you begin to feel "glutened"?


Usually two hours later, but I start feeling very tired within about 20 minutes.

*What after-effects or reactions do you experience?


Stomach ache which sends me running to the bathroom than D. Then more extreme tiredness.

*How long do/es the "glutened" effect(s) or reaction(s) last?


The worst time was cc through cooking oil and I fell asleep on the sofa that evening for about 3 hours (which was crazy, my sofa is short) and then slept another 12 hours. I just could not wake up.

Other times it's been milder - I don't know what got me - and my stomach is mostly ok the next day. I haven't been able to work out exactly what else goes wrong and that time frame, but I do feel wobbly for a few days.
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#11 Lynayah

 
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Posted 21 August 2010 - 07:04 PM

For me it is variable. CC can hit in 1 hour or the next day and symptoms are D, bloating, sometimes cramps. D is generally one rather massive event (amazing how much can be stored in a GI tract. Next time I have a colonoscopy I'll just have a crouton instead of laxative) and the bloating takes 3-5 days to go away. Massive glutenization can result in the same symptoms, but also include stiff joints, brain fog, lethargy, muscle aches, and mood swings. These other symptoms can take 5-7 days to go away. I, like a lot of people, am self diagnosed for gluten intolerance. My symptoms started last fall after getting the flu, and my blood and other tests were negative but also after I was gluten-free. A really bad gluten hit can cause the area around where my rashes were to be itchy; I had probable DH for a few decades that went away 6 months after gluten-free.


"Next time I have a colonoscopy I'll just have a crouton instead of laxative" -- lauging so hard here I can hardly stand it! Great line! And yes, that crouton would indeed work wonders. Thank you for the smile.
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Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

#12 Lynayah

 
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Posted 21 August 2010 - 07:07 PM

For me, within 15-20 minutes. BAM! There is no doubt I'm having a reaction. Big D. If I'm lucky, I catch it before I have to go home and change clothes.

I'll get delayed reactions, but I'm learning that, for me, it may be from another food that I may be sensitive to, such as egg yolk or soy.
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Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

#13 Marz

 
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Posted 22 August 2010 - 01:30 AM

Usually almost instantly to 20 minutes later I'll have a sore stomach - I call it a "punched in the gut" feeling, and it usually induces a run to the loo, even if not D.

A few hours later to a day later I'll have a bad headache, one of those vice-like grip headaches, with or without back-ache. Around this time I'll also start getting random pains in my wrists, knees, legs. I also get muscle twitches/spasms/cramps.

2 days to 4 days later I'll usually have massive amount of D. Sometimes preceded by C.

So yeah, highly variable :) Oh, and I'll have at least one incident of crying over nothing, or tingling in my hands or anxiety. If I start crying over nothing even without any other issues I know I've been glutened.
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Feb 2010 - Start of continuous GIT problems and panic attacks
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!

2012 - Soy no longer a problem
*************************************************************
Gluten intolerant

#14 Lynayah

 
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Posted 23 August 2010 - 05:19 PM

Usually almost instantly to 20 minutes later I'll have a sore stomach - I call it a "punched in the gut" feeling, and it usually induces a run to the loo, even if not D.

A few hours later to a day later I'll have a bad headache, one of those vice-like grip headaches, with or without back-ache. Around this time I'll also start getting random pains in my wrists, knees, legs. I also get muscle twitches/spasms/cramps.

2 days to 4 days later I'll usually have massive amount of D. Sometimes preceded by C.

So yeah, highly variable :) Oh, and I'll have at least one incident of crying over nothing, or tingling in my hands or anxiety. If I start crying over nothing even without any other issues I know I've been glutened.


Crying, anxiety: I can so relate! My husband says he can tell if I've been glutened almost immediately afterwards.

For lack of a better term, I turn into a COMPLETE witch. Oh, how I love my husband for having put up with me.

For a couple of years (or more) before I was diagnosed, I was extremely difficult to live with-- not impossible, but (at least for me) a lot more difficult.

I had heightened sensitivity about everything. It was really tough, especially since I've always been known for being understanding, accepting, loving, caring, nuturing . . the whole bit.

Not with severe gluten symptoms, though. With my reactions to gluten, I was a different person.

When I look back on it, I can see so clearly how it was gluten.

Thank heaven, I am a different person now. Thank heaven, people around me stuck by me . . . at least most of them. Thank heaven, I found a doctor who understood and diagnosed me CORRECTLY.

I have said this on the forums here so many times, but I have to keep saying it:

It kills me to think of all the other people out there who could get to the positive side of happiness, if only they changed their diet.

It kills me to think that they do not know what their problem is.

It kills me to think they are being told they have countless other problems when it is, in fact, gluten-intolerance.

I am doing all I can to spread the word to others, and I am always looking for more ways to help.

All of us here can make a difference in the lives of so many others, if only we keep spreading the word.

Thanks for letting me rant!
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Gluten Intolerant with double HLA-DQ6. Pre-diagnosis: Weight gain, swelling, diarrhea, mouth sores, back pain, body aches, fatigue, muscle weakness, BRAIN FOG, runny nose, recurrent sinus infections, bruising, low white cell count (whole life), and more. My feet were so bad, I could hardly walk. Toward the end: Chronic Vit. D deficiency (almost no D in my body despite a quality multi-vit. each day).

There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!

Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt

#15 MotoMommy

 
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Posted 19 July 2012 - 12:59 PM

I have been gluten-free since Sept. 2011 and on the 4th of July 2012 I cheated for the first time and ate some homemade cake I made for a potluck. (Not gluten-free cake.) I am soooooo regreting this! 3 days after the cake I came down with masssive back/neck pain, extreme migraine, belly bloat, blurred vision, and weakness/tiredness. It's been almost 2 weeks and I am just now seeming to come out of it! It has been horrible. The migraines have been unbearable. Does this sound familiar to anyone?
Sonja
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