Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Symptoms, Celiac Testing, And What To Do If The Tests Come Back Negative Advice Please?
0

9 posts in this topic

My daughter is just over 3 years old, and is having the following symptoms:

Mushy poop – like Weetabix soaked in milk. Often leak out of nappies, frequently to the extent have to shower her off & change all her bedding.

Very smelly poop

‘Wee’ potty trained easily. Not poop potty trained at all, and is very anxious about it because of the tummy pain.

Constipation – at least once a month

Thin hair – thickening now, but bald until about 2

Extremely smelly flatulance in really excessive amounts

Belly flattish at start of day before eating, and often noticeably much larger by the evening

Very poor appetite – has to be coaxed/reminded to eat food

Pale complexion with dark shadows under eyes

Very prone to being tearful/having dramas about things (but she is 3!)

Petite child – 25th centile

Light/restless sleeper

‘Itchy bottom’ & complains of ‘pain inside’ at times

Dry skin, and is always absent mindedly scratching

Eczema

She also had bad silent reflux as a baby, and refused to eat any solid foods until 13 months old (saw a Ped, he wasn’t concerned as long as she ate before 18 months). When she actually started eating solids, her weight gain then remained pretty static for about 6 months before she picked up and started gaining weight well again.

We’ve got an appointment for blood tests for celiac, anaemia and general infections next week. My mother and aunt both have diagnosed celiac (diagnosed as adults), and there’s a ton of milk intolerances/allergies across my side of the family. I have IBS and am prone to mouth ulcers and cracked corners of the mouth, which I’ve read can be celiac symptoms, but I had a blood test about 12 years ago when my mom was diagnosed and tested negative for celiac back then.

My worry is: what happens if the blood tests come back negative? Where should I go from there? I don’t think my daughter is desperately ill, but I do think that there’s something going on with her, you know? The locum GP I saw said that, if the tests came back negative, then perhaps my daughter just needs more vegetables and more sleep! I know that’s not going to be the answer, as she sleeps a long time and eats loads of fruit and veg, but I don’t know where I should go next?

I'm just concerned - does this sound like celiac in a young child, and if it turns out not to be celiac, then what is it??? Do her symptoms ring any bells with anyone here as to what might be going on with her? Who should we see and what should we do, if we do get a negative test result?

Thank you very much! Any and all help is gratefully received! :)

1

Share this post


Link to post
Share on other sites


Ads by Google:

Hugs Mama!

A lot of what you are saying sounds like it could be celics bit I also see a lot of things we experienced with food allergies. Has she been tested for them?

1

Share this post


Link to post
Share on other sites

Hugs Mama!

A lot of what you are saying sounds like it could be celics bit I also see a lot of things we experienced with food allergies. Has she been tested for them?

No, she's not been tested for anything so far. We've just reached the 'okay, we've given it some time, it's not resolving by itself, let's look into it' stage with the doctors, so the celiac test/anaemia tests are the first ones.

How did you discover the food allergies your child has?

1

Share this post


Link to post
Share on other sites

While I was nursing my son he had MAJOR sleep issues, poop issues and the red allergy rings around his eyes and anus :( I did 2 dairy trials (6 weeks each) with little to no improvement. At 1, we gave him daily and he was very ill. Tried eggs and was VERY ill. Took him for epi pens and a referral for an allergist. We found out he has a long list of allergies. Within 3 days of taking out all of his allergens (him and I as he was still nursing), he was sleeping through the night, no more butt ring, lessening poop issues. This was when he was about 14 months old.

We were still (at 3) having poop issues and that along with a very low (actually non existent) Vit. D level, they tested him for Celiacs. + blood but inconclusive biopsy but has been responding well to a gluten-free diet (along with all the other allergen free).

If it sounds anything like what you are going though and you have ANY questions, let me know! It is so hard when they are so little and can't really tell you what's going on! My son has NEVER verbally complained about ANY of this. Celiacs was a diagnosis we really tripped upon due to the low Vit. D level!

1

Share this post


Link to post
Share on other sites

My daughter is just over 3 years old, and is having the following symptoms:

Mushy poop

1

Share this post


Link to post
Share on other sites




We are VERY new to celiac, just getting the positive test results last week and biopsy done today. GI doc will be surprised if biopsy comes back negative based on what he saw. So I don't have too too much to add, but:

The reason we tested my daughter at her 3yo well visit was due to her bowel issues that they are always soft and every 6-8 weeks turn into liquid for no reason. She also complained of stomach pain throughout the day and especially during the 1 of 5 daily bowel movements; she's been potty trained for almost a year. Now that I know she has celiac, some things are explained: her horrible diaper rashes even when pt'd b/c of the acid on her bum, distended belly and small growth.

Since August 2nd, we've put her largely on a gluten-free diet and have seen so many improvements almost immediately. Tummy pain is gone and BM's are more formed and only 1xday, if that. Even though she's a newly 3yo, she notices the difference to the gluten-free diet.

I would definitely suggest doing food allergy panels to cross things off your list. I would also consider going gluten-free/CF to test for intolerences that won't show up in the allergy panels. My 5yo has an intolerence to dairy (not sure if it's cassein or lactose), but didn't test positive for that allergy. We took her off all dairy a year ago and it's amazing the improvements in her bowels and stomach pains. She had very similar reactions & responses to dairy as my younger daughter has to gluten.

Good luck! I know it's difficult to hang in there, but get the bloodwork done and go from there. In the meantime, try cutting out your typical allergen foods.

1

Share this post


Link to post
Share on other sites

Thank you so much for your replies. :) Very interesting to read other people's experiences and especially to see that other children are having the same symptoms my daughter is! 50% of me is expecting the tests to come back negative, and the other 50% is growing more and more convinced that it could indeed be celiac. Although my mom radar is telling me that something's not right, the vagueness of her symptoms has been making me second guess myself for a while, so reading your replies and others on this site has helped me clarify my thoughts that there is something going on that needs investigating.

I think, if the tests do come back negative, that I'm going to have to push very hard to get any further tests done. The vibes I've got already from the locum doctor are that it's either celiac or 'just how she is', and from everything I've been reading on here, how she is right now isn't 'normal' at all. And although obviously I don't want her to have celiac at all, I do want to know what's causing all these symptoms and resolve them, you know? Hopefully the doctors will be willing to listen and take my concerns seriously...

1

Share this post


Link to post
Share on other sites

Thank you so much for your replies. :) Very interesting to read other people's experiences and especially to see that other children are having the same symptoms my daughter is! 50% of me is expecting the tests to come back negative, and the other 50% is growing more and more convinced that it could indeed be celiac. Although my mom radar is telling me that something's not right, the vagueness of her symptoms has been making me second guess myself for a while, so reading your replies and others on this site has helped me clarify my thoughts that there is something going on that needs investigating.

I think, if the tests do come back negative, that I'm going to have to push very hard to get any further tests done. The vibes I've got already from the locum doctor are that it's either celiac or 'just how she is', and from everything I've been reading on here, how she is right now isn't 'normal' at all. And although obviously I don't want her to have celiac at all, I do want to know what's causing all these symptoms and resolve them, you know? Hopefully the doctors will be willing to listen and take my concerns seriously...

Follow your mommy gut!!!! Mine has never ever steered me wrong. It's taken me some time to get to the right answer, but eventually we get there. My 7yo had a skin disease that the peds wrote off as this viral thing; it didn't sit well, I followed up with a derm and though it wasn't the severe version that can affect various organs, it was something that wasn't what the ped's said it was and needed follow-up from 2 different specialists over 4.5 years. My 7yo also had some developmental delays that no one could ever diagnose but things just did not sit right with me until we got him a dx of SPD and barely on the autism spectrum; he's been in OT and speech starting at age 3 and has made amazing improvements. My 5yo had bowel issues, we tested for celiac (negative) but pulled her off diary and her bowels improved as did her frequent bouts of pneumonia. My 3yo has had bowel/tummy issues since she started table food ~ 14mos, it's been so unsettling I've questioned SPD and autism to the point of delaying her vax's, but finally I think I have an answer in celiac. Making her CF like her brother and sister didn't work. We'll go gluten-free and I'll know for sure.

Good luck!!!!

0

Share this post


Link to post
Share on other sites

wow i am actually crying.

My son has many of the same symptoms.

I have a very sleepy toddler and yes everyone says how wonderful but i just knew.

He poops up to 6 times a day, wakes up often in the morning and his sheets need to be changed.

He letsw out a bottom burp and it smells really bad but he was also doing this 2 days after birth.

His tummy gets really big and he screams until he poops.

He hasnt grown for 8/9 months and is now under the bottom centile.

I am actually taking him back to the doctors tomorrow and demanding they do something can u believe we have been waiting 5 weeks for a hospital appointment for him to have tests.

Thank you all so much.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,358
    • Total Posts
      920,531
  • Topics

  • Posts

    • Here's another thing.  Feeling deprived?  Order two of the same item.  I was hungry by the time dinner arrived! 
    • The doctors just made me feel like I was crazy because they did not have a clue of what was wrong with me. I did a stool test (positive) and I did a genes test (positive for two gluten sensitive genes, one in each chromosome).  Blood test are not so foolproof, if you read the comments/experiences in such topic you will see the problems. Biopsy can give a false negative if taken from an undamaged area. If you have medical problems that go away once on a gluten free diet then gluten is the problem. The medical establishment profit from managing your medical problems and big pharma makes money by pushing pills so we need to be careful because they won't benefit if a gluten-free diet solve your problems. Since I started a Gluten free diet I have been free of the following: (all related to Celiac)  Irregularity, Intestinal noise, Irregular stool, Tooth enamel defects, Rash in upper arms, Abdominal swelling, depression, fatigue, irritability, lactose intolerance, 
      loss of memory, dandruff, uncontrollable bladder, suicidal thoughts, unable to sleep, Canker sores/ Mouth ulcers, high blood pressure, and probably others that I did not realize. I was at the end of my rope, thanks to Google and the people that are able to talk about this I was able to get my life back. I am passionate about this because I know how bad its can get. 
    • Well, I have never cruised on Carnival, but I am sure they can accommodate you.  I assume that you have already alerted them that you require gluten free meals.  If not, please contact Carnival immediately. Here are my own tips.  Some folks eat off the buffet line, but not me or hubby except for coffee/drinks and baked potatoes (jacketed) and fruit that we wash in the restroom (people touch everything!)  Okay, I am OCD, but my last glutening which occurred the previous summer made me sick for three months (GI tested my antibodies to prove it).   When we board, I go to the buffet restaurant ASAP and ask to speak to the Head Waiter (they are usually there greeting customers and often trying to up sell to specialty restaurants.   Let them know you have celiac disease and must be gluten free.  They may try to tell you that each dish is clearly marked gluten free, but really?  Who's to say that some other passenger is not going to switch spoons (or I have seen passengers wandering around with serving spoons...I kid you not!  The staff usually will  go downstairs and fetch a gluten free meal for me from the main dining room's kitchen as there is usually a dedicated area for allergies.  We have to wait up to 20 minutes or so but it is worth it.  Starving?  Get a baked potato wrapped in foil until your gluten-free meal arrives.  Now, do not do this every single time.  Those folks have to go down several levels to fetch food and you don't want to be a pain.  But if the main dining area is closed, they need to make an effort to keep you safe.  On our last cruise, we were advised not to eat anywhere but the main dining room and that included room service (they are not trained to handled allergies).  My headwaiters have sent goodies (prepackaged gluten free rolls and cookies for us to keep in our room.  We can always grab whole fruit (I wash it first) to snack on.  I bring gluten-free non-perishable items with me to eat while at port in case we can't find anything (which can be often).  Again, when we get back to our ship, we contact our headwaiter and he/she can prepare some snacks until we have dinner.   Be grateful and not picky.   We eat all meals in the dining room (or at least as much as possible).  Our headwaiter had a few other celiacs on our cruise this summer, so they prepared some gluten-free waffles, etc. for our breakfast!  What a treat!  At breakfast, we'd have different waiters, so our headwaiter would always instruct our waiters each and every time!  They even let me tour the kitchen and showed me the allergy section.   The only time I did not feel safe was at the buffet.  We once ordered gluten-free pizza and I realized (I watched) that that restaurant didn't really have the gluten-free thing down), do I called him on it.  Got the manager etc.  So, be careful.  Other cruises made us frozen Udi"s which was just fine with us.  They covered it up in foil so that we would not get any cross contamination from their pizza oven. So, have fun!   Tipping?  We prepaid our gratuities, but we gave our headwaiter an extra $200.00 for his time.  For us, it was well worth the service and safety of our food.  It does not hurt to slip some of the tip ahead of time (like after your first meal!)   Oh, I checked your ship.  You must eat in the diningroom if you have special dietary needs.
    • French Celiac / Coeliac Gluten Free Restaurant Card <strong>What is ... What to know about celiac disease, gluten sensitivity, and gluten-free diets. View the full article
    • <strong>Celiac Disease & Gluten-free Diet Information at Celiac.com. Gluten Free Diabetes ::The 3 Step Trick that Reverses Diabetes Permanently in ... View the full article
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,432
    • Most Online
      1,763

    Newest Member
    rbeckler60
    Joined