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Howdy From New Hampshire


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7 replies to this topic

#1 RozzyRay

 
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Posted 13 August 2010 - 01:41 PM

Heh... well I'm new here and hoping I can meet with others knowing the same struggle I've been dealing with.

I live in the mountains, and am currently in another doctor-related struggle. Technically I was diagnosed with a blood test, and since being on a gluten-free diet for half a year (at the time), my blood results only proved that I had gotten rid of the gluten in my system. Now a new specialist for some reason is doing genetic testing and well, I haven't even gotten the results back yet.

But I don't think it would matter. Considering I've had cross contamination on multiple accounts... this just proves I do have it. But the struggle lies to be dealt with.

Along with Celiac, I have a horrible anxiety problem. Panic attacks at any little thing and for what reason, I'll never know. And with times being hard enough, I cannot work. I do still live with my parents, although I am 20 years old now. And they've been my biggest support through everything.

I was hoping by perhaps making some penpals here, perhaps it can help me feel more comfortable with Celiac Disease. I'd love to hear about others stories and how they cope/coped with it and so on.

So please feel free to message me. : )

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#2 Lisa

 
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Posted 13 August 2010 - 02:55 PM

Welcome RR!

This is a great place for information or just meeting other people who walk in your shoes. ;)
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Lisa

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"Not all who wander are lost" - JRR Tolkien

#3 kareng

 
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Posted 13 August 2010 - 03:22 PM

Hi RozzyRay ( cool name). I'm happy to hear that your parents are supportive. When I first went gluten-free I had a lot of anxiety attacks, not full panic attacks, in regards to food. I would say to not put yourself in scary situations like dinner at someone's house, until you really have a plan and will stick with it -Like bring your own food and not give in. Feel free to vent or ask questions here.

Last advice that helped me when I was feeling bad : find something happy everyday and get out of the house. It might be as simple as watching the birds in the yard or throwing a ball for the dog.
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#4 Dixiebell

 
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Posted 13 August 2010 - 05:03 PM

B-complex (gluten free of course) and fish oil has helped me the most. I forgot to take them a couple of days ago and I could tell a big difference in how I felt. I was on anti-depressants on and off for years.
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Started on this journey w/ my 9 yr old son after a bout w/ the flu in the fall of 2009.
2 neg celiac blood tests, mine was also neg. No endo done. Son had x-ray, showing severe constipation. Son has latex allergy. KP for both of us.
Long family history of bowel problems, auto-immune and all sorts of cancers. My G-mother informed me that she was put on a gluten free diet after she had my mom (1950's), of course she stopped when she felt better. She has had problems ever since I can remember.
So here we are! I do have my son's Dr to thank for even bringing up celiac! Thank You Dr.B!
My adult daughter also has been helped by eating gluten-free.

#5 Kayba

 
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Posted 10 September 2010 - 10:12 AM

Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board
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#6 Lisa

 
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Posted 10 September 2010 - 01:53 PM

Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board



Hi Kayba and Welcome!

Here are some New Hampshire Support contacts:

http://www.celiac.or...id=69&Itemid=95

This is also a great place to learn, find suppoert or just share your experience. I have made some great, lifelong friends.
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Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

#7 ravenwoodglass

 
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Posted 11 September 2010 - 04:34 AM

Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board


Hi and welcome to the board. As you will see on this board there are many of us that went a very long time from becoming celiac to finally getting diagnosed. For some the anxiety issues resolve a bit gluten free so hopefully that will happen with you. Do feel free to ask any questions you need to and this is a great place for support.
I am thinking about moving to NH, my DD and DS are in Boston and I want to get a bit closer and get away from the highest taxes in the US. How easy is it for you to find gluten-free food where you are? Do you know if there are by any chance any Wegmans stores in NH? I hate to lose the convience of being able to just grab a item and look for the G.
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Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying
"I will try again tommorrow" (Mary Anne Radmacher)


celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007

Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15

Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom


Positive to Soy and Casien also Aug 2007

Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

#8 Kayba

 
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Posted 13 September 2010 - 09:17 AM

Hi and welcome to the board. As you will see on this board there are many of us that went a very long time from becoming celiac to finally getting diagnosed. For some the anxiety issues resolve a bit gluten free so hopefully that will happen with you. Do feel free to ask any questions you need to and this is a great place for support.
I am thinking about moving to NH, my DD and DS are in Boston and I want to get a bit closer and get away from the highest taxes in the US. How easy is it for you to find gluten-free food where you are? Do you know if there are by any chance any Wegmans stores in NH? I hate to lose the convience of being able to just grab a item and look for the G.


[font="Trebuchet MS"]Never heard of wegmans but it's getting easier to find gluten-free food around here- all the grocery stores have a section or have gluten-free foods labled through the store- the selection isn't top notch. There is an all gluten-free store in Hillsborogh- about an hour from me- new stuff seems to be appearing around the Keene area where I am. I'll fill you in more if you PM me.

Thanks for the hope on the anxiety issues- both my anxiety and depression have improved dramatically since the diet change- both came flooding back at once full force after the gluten incident last week but are lessening again. It will take a little time to undo 20 years worth of learned reactions and behaviors but as I said above- things are looking up and it's only been 7 months!

Feel free to grill me for info on moving to the area- I'll do what I can to help
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