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Howdy From New Hampshire
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Heh... well I'm new here and hoping I can meet with others knowing the same struggle I've been dealing with.

I live in the mountains, and am currently in another doctor-related struggle. Technically I was diagnosed with a blood test, and since being on a gluten-free diet for half a year (at the time), my blood results only proved that I had gotten rid of the gluten in my system. Now a new specialist for some reason is doing genetic testing and well, I haven't even gotten the results back yet.

But I don't think it would matter. Considering I've had cross contamination on multiple accounts... this just proves I do have it. But the struggle lies to be dealt with.

Along with Celiac, I have a horrible anxiety problem. Panic attacks at any little thing and for what reason, I'll never know. And with times being hard enough, I cannot work. I do still live with my parents, although I am 20 years old now. And they've been my biggest support through everything.

I was hoping by perhaps making some penpals here, perhaps it can help me feel more comfortable with Celiac Disease. I'd love to hear about others stories and how they cope/coped with it and so on.

So please feel free to message me. : )

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Welcome RR!

This is a great place for information or just meeting other people who walk in your shoes. ;)

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Hi RozzyRay ( cool name). I'm happy to hear that your parents are supportive. When I first went gluten-free I had a lot of anxiety attacks, not full panic attacks, in regards to food. I would say to not put yourself in scary situations like dinner at someone's house, until you really have a plan and will stick with it -Like bring your own food and not give in. Feel free to vent or ask questions here.

Last advice that helped me when I was feeling bad : find something happy everyday and get out of the house. It might be as simple as watching the birds in the yard or throwing a ball for the dog.

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B-complex (gluten free of course) and fish oil has helped me the most. I forgot to take them a couple of days ago and I could tell a big difference in how I felt. I was on anti-depressants on and off for years.

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Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board

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Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board

Hi Kayba and Welcome!

Here are some New Hampshire Support contacts:

http://www.celiac.org/index.php?option=com_content&view=article&id=69&Itemid=95

This is also a great place to learn, find suppoert or just share your experience. I have made some great, lifelong friends.

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Hello- My first post! I joined today after a painful and emotional accidental experience with a gluten filled nutrition drink. I was looking for someone from NH- just curiosity and maybe someone to understand my surroundings and possible advice on nearby gluten-free stuff. I'm in southern NH but would travel for a good gluten-free meal or event.

I've been gluten-free for 7 months- been sick for over 20 years! YEAY DOCTORS! I have many medical issues beside celiac and I haven't worked in 4 years (I'm a psychiatric nurse) but things are looking up the longer I've been on this diet.

I have anxiety issues too- along with a fun array of other gluten induced mental tortures- I may be able to help you get through :)

Wanted to introduce myself and make my mark on the board

Hi and welcome to the board. As you will see on this board there are many of us that went a very long time from becoming celiac to finally getting diagnosed. For some the anxiety issues resolve a bit gluten free so hopefully that will happen with you. Do feel free to ask any questions you need to and this is a great place for support.

I am thinking about moving to NH, my DD and DS are in Boston and I want to get a bit closer and get away from the highest taxes in the US. How easy is it for you to find gluten-free food where you are? Do you know if there are by any chance any Wegmans stores in NH? I hate to lose the convience of being able to just grab a item and look for the G.

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Hi and welcome to the board. As you will see on this board there are many of us that went a very long time from becoming celiac to finally getting diagnosed. For some the anxiety issues resolve a bit gluten free so hopefully that will happen with you. Do feel free to ask any questions you need to and this is a great place for support.

I am thinking about moving to NH, my DD and DS are in Boston and I want to get a bit closer and get away from the highest taxes in the US. How easy is it for you to find gluten-free food where you are? Do you know if there are by any chance any Wegmans stores in NH? I hate to lose the convience of being able to just grab a item and look for the G.

Never heard of wegmans but it's getting easier to find gluten-free food around here- all the grocery stores have a section or have gluten-free foods labled through the store- the selection isn't top notch. There is an all gluten-free store in Hillsborogh- about an hour from me- new stuff seems to be appearing around the Keene area where I am. I'll fill you in more if you PM me.

Thanks for the hope on the anxiety issues- both my anxiety and depression have improved dramatically since the diet change- both came flooding back at once full force after the gluten incident last week but are lessening again. It will take a little time to undo 20 years worth of learned reactions and behaviors but as I said above- things are looking up and it's only been 7 months!

Feel free to grill me for info on moving to the area- I'll do what I can to help

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    • Marip, Have you been diagnosed with celiac disease or Non-celiac Gluten Intolerance?  I notice you joined in 2014.  Did you ever go guten free?  How can we help?   Sorry, I'm not a stool expert!  You could Google it...  Malabsorption?  Standard lab tests that check for anemia and vitamin deficiencies, etc.  should help make that diagnosis.  
    • You can eat just a slice or two (or equivalent) of bread a day for accurate testing.   I understand about the high deductibles.  We're self-employed and we pay for our health insurance. 
    • Sure, if it's gluten free, then fine.  I am very allergic (like anaphylactic) to ibuprofen and aspirin.  So, in my case, I would just tough it out.  Go to bed.  Sleep it off.....eventually. My money is on the garlic and onions.  I can't consume those either (damn that zonulin/leaky gut -- google it along with Dr. Fasano).  I just season with salt, pepper.  Boring.  But no gut issues.  I'm hoping like my lactose intolerance (resolved), that I will get garlic and onions back.   Finally, sometimes just eating anything can hurt when you still have intestinal damage.  Hopefully, you'll feel better in two or three hours if it's celiac related.  Longer if it's an intolerance (leaky gut thing....) Hugs!      
    • I read on their website that all Advil is gluten free, I had such bad pinching cramping today(which I don't why since I prepared all my food at home today.) I made a pot roast, salt garlic, onions...No gluten but still pain, That's the only thing I ate today..I don't eat breakfast or anything.   Anyways.   Is it a good idea to take Advil for the cramping? That's how I would describe it like someone is reaching inside me and pinching me and twisting my insides.    This is what I took  
    • I'll give my PCP a call tomorrow and see what they can offer. My only worry is the expense as anymore tests will put me behind in being able to afford to see the GI. I have high deductible insurance but get money put into my HSA. I'm still trying to pay off the CT scan though. Which is why I'm trying to pick and choose which poses the greatest risk for me right now and what can wait. (Though I would prefer not to wait on any of it.)

      I really do hope its only IBS. Though I always worry IBS is more or less a doctors way of saying "I have no clue" at that point. :C

      Again, I'll be sure to give my PCP a call tomorrow then and see what the options are. I can feel a lot better trying the blood work first. however, once that is done, do I still need to be on a gluten diet before the endoscopy? Also, is it ok if I still mildly reduce the gluten. As in, can I avoid a whole wheat pasta dinner, but still be eating the peanut butter crackers? That sort of thing. Again I guess that is more of a doctor related question. I just wasn't sure if in order to raise your chance, you have to mass consume gluten or not. (Its already in just about everything to begin with.)   --Edit--
      I just now reread the part that you still need to be on the gluten foods even for biopsy so I'll be sure to do that too.
       
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