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"gluten Free Is All The Rage Now"
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A friend of mine was being supportive and said "Well the gluten free diet is all the rage now. People are feeling so healthy when they do it."

Part of me is thrilled that people are catchign on, there's awareness and lots of products and gluten free menus at restaurants.

Part of me is terrified that people are treating it like a fad, so it STILL will not be taken seriously and the fad will go away when they get bored, maybe go the way of the fat free or Atkins fad, while those of us who have a true autoimmune disorder are still stuck with the disease.

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I have that fear too. On the bright side, it's still pretty easy to find lowfat/fat free products and that craze was a solid 20 years ago so stuff that is popular does linger on the market. I think we'll always have the niche brands like Glutino and Kinnikinnick and with an estimated 1 in 100 celiac rate, there will probably always be celiac-friendly restaurants and businesses around even if it isn't as mainstream in another ten years.

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It was sweet that she was being so supportive. I live in OC, and people tend to be health conscious and into natural health, etc. so I think there is a lot of awareness of celiac and the diet than maybe in some other places. There are gluten free products everywhere, even at all the regular grocery stores.

But I just don't want people to think this is a fad because for us, obviously, it's not.

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I think I wouldn't have any problem with a friend making this comment to me as long as they understood that this wasn't just a fad diet for ME. We have to admit that, yes, it is a fad diet for some, but also use that as an opportunity to explain that for many others it is a medical requirement. It's the people that are diagnosed and yet still cheat that irk me. Or the people that suggest that I could cheat because they think it's just a a fad I'm doing. But as long as your friend understands your reasons for being strict, then it's great that she is aware and being supportive.

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I have to be honest here. I found out I was gluten intolerant by doing a detox. That's a little "faddy" But oh do I feel better. It's life changing. But my husband will make comments like..."Oh, Stacey (me) and her special diet" when in the meantime I've been bedridden from being accidentally glutened, and years of health problems have corrected including hair loss, brain fog, fatigue, rashes, arthritis, major stomach issues etc...

Maybe more people will figure out they feel better off gluten even if they are just doing it because it's "the thing to do" right now.

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I have to be honest here. I found out I was gluten intolerant by doing a detox. That's a little "faddy" But oh do I feel better. It's life changing. But my husband will make comments like..."Oh, Stacey (me) and her special diet" when in the meantime I've been bedridden from being accidentally glutened, and years of health problems have corrected including hair loss, brain fog, fatigue, rashes, arthritis, major stomach issues etc...

Maybe more people will figure out they feel better off gluten even if they are just doing it because it's "the thing to do" right now.

I'm single and have been single for 15 years or so. I date periodically and enjoy the company of others (so I'm not unsocial). When I read so much about significant others, family and friends, being condisending (sp) or not believing we have this disease, it just IRKS me! If you all have asked them to take a gander at this website and commit to spending 2-4 hours (not even that many) reading some of these POSTS, NOT just the info about the disease, but the posts from real people, and they still act that way, i'm so sorry you have to deal with that....well, you don't really HAVE to deal with them...if you know what I mean. There's divorce due to disrespect (and I don't mean to be disrespectful saying that). Divorce (or separation) could be less time spent together with ANYONE (go to a movie where you don't have to talk, a play, a sports event, etc.). Maybe I'm oversimplifying it? My new friends have presented a challenge because I'll suggest we meet for coffee and of course to them it means something to eat too. Just yesterday, she said, "You're not going to make me eat alone are you??" I just said I'm on an elimination diet to find out what the h_ll I'm allergic to. I'll see how it goes from there.

It seems that I have so much to say, but need to edit, edit, edit, before I post because I don't want to offend anyone here...then after all that editing, I need a nap...ha!

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I hate that it's labeled a "fad diet" but maybe more demand for gluten free products will mean greater production, development and lower prices (and hopefully more product in Canada)!

I guess we just have to keep educating on person at a time :rolleyes:

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I have to be honest here. I found out I was gluten intolerant by doing a detox. That's a little "faddy" But oh do I feel better. It's life changing. But my husband will make comments like..."Oh, Stacey (me) and her special diet" when in the meantime I've been bedridden from being accidentally glutened, and years of health problems have corrected including hair loss, brain fog, fatigue, rashes, arthritis, major stomach issues etc...

Maybe more people will figure out they feel better off gluten even if they are just doing it because it's "the thing to do" right now.

My guess is that there will be a lot of people that will try this diet because it is the "in thing to do". Some of those people may get very sick when go back to eating gluten and at that point come to realize that it isn't just a fad diet for them. Others will go back to their gluten and be O.K. with it and still believe that it is just a fad.

Stacey, my husband wasn't at all supportive at first but has come a long way in the past eight months. He has started to cook gluten free meals and watches so I am always careful with what I eat. He finally has his wife back after many, many years so it has become important to him, too. At first he thought it was just another one of those things that wasn't going to work, since I have tried so many.

Good luck!

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Jackay, I agree. And I shouldn't be too hard on him. He's the foodie in the house and he's saved me in restaurants when I ordered a gumbo...he's the one (or was the one) that knows how food's cooked. I'm getting pretty good though. And also, he's seen the vast difference in my energy level and (tmi) how I have no gas/stomach issues anymore, plus he's nursed me during the gluten reactions which are very intense now that my system is clean, so he is supportive. He just has to make comments to family members to make me seem high maintainence (which I can't spell). We've made some great gluten free meals together. It's just extremely new to him (since March 2010). And new to me too.

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Hey - recently I have had several co-workers make similar comments to me and a few of them are cutting back on their gluten intake. I have mixed feelings about this -- while I appreciate that this means there is some greater access to gluten free foods, I"m also concerned that the seriousness of celiac disease is lost in translation.

Recently I was on vacation in Niagara-on-the-lake, a great little village in Ontario, canada. A tea shop had gluten free food...BUT it was in the same glass cabinet as all the gluten containing muffins, breads, etc...and you could see that cross contamination would be a huge issue. I did not feel safe eating any of the gluten free foods...they were not safe for a celiac, but I'm sure they would have been fine for my friends who are 'trying out' the gluten free diet.

K-Dawg

A friend of mine was being supportive and said "Well the gluten free diet is all the rage now. People are feeling so healthy when they do it."

Part of me is thrilled that people are catchign on, there's awareness and lots of products and gluten free menus at restaurants.

Part of me is terrified that people are treating it like a fad, so it STILL will not be taken seriously and the fad will go away when they get bored, maybe go the way of the fat free or Atkins fad, while those of us who have a true autoimmune disorder are still stuck with the disease.

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Hey - recently I have had several co-workers make similar comments to me and a few of them are cutting back on their gluten intake. I have mixed feelings about this -- while I appreciate that this means there is some greater access to gluten free foods, I"m also concerned that the seriousness of celiac disease is lost in translation.

Recently I was on vacation in Niagara-on-the-lake, a great little village in Ontario, canada. A tea shop had gluten free food...BUT it was in the same glass cabinet as all the gluten containing muffins, breads, etc...and you could see that cross contamination would be a huge issue. I did not feel safe eating any of the gluten free foods...they were not safe for a celiac, but I'm sure they would have been fine for my friends who are 'trying out' the gluten free diet.

That is my worry too. That all these people doing gluten-free on a casual basis because it is 'trendy' are making it look bad for those of us that have Coeliac and need to be zero Gluten.

I have just had 3 days on the couch as a shop sold my hubbie some 'gluten-free' biscuits. ( that were not 100% gluten-free). When he rang back to ask and eventually complain the store owner was like - oh they are not 100% gluten-free but most people do not react to them.... like it was no big deal to eat a gluten-free food that was only 99% gluten-free ..... and had not bothered to train her staff to explain the difference between 99% gluten-free and 100% gluten-free....

If I had bought that biscuit and eaten it immediately before driving the car I could have killed myself by driving off the road. ( I would not eat a new food now before driving but I used to in my early days). As it was I spent 3 days on the couch and been in a lot of pain. Hubbie had to ring back 4x before the store even issued an apology/we will train the staff / store credit....

GRRRRRRRRR...... :angry:

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I'm not convinced that there are health benefits to eating gluten free, unless you're celiac or gluten intolerant. What's the reason for it?

Seems like it'd be more healthy to concentrate on eating a well-balanced diet that includes plenty of fresh foods. I think the same thing though about "low fat" foods. Studies have shown that people eat more of low fat foods. I'd rather just have smaller portions of my yogurt or mayonnaise with all of the fat.

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I'm not convinced that there are health benefits to eating gluten free, unless you're celiac or gluten intolerant. What's the reason for it?

Seems like it'd be more healthy to concentrate on eating a well-balanced diet that includes plenty of fresh foods. I think the same thing though about "low fat" foods. Studies have shown that people eat more of low fat foods. I'd rather just have smaller portions of my yogurt or mayonnaise with all of the fat.

I tend to agree. Gluten free is NOT low carb by any means unless you are going low carb. The gluten free stuff has much less whole grain components, more fat and the junk food is just as junky as regular junk food. People who don't have celiac, wheat intolerance, blah blah etc. are better off not being gluten free and getting those whole grains. Barley and rye are especially good if you aren't celiac.

But.... on the other hand.... there is research about gluten causing inflammation in the body, even in non celiacs, so maybe the jury is out on this one.

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But.... on the other hand.... there is research about gluten causing inflammation in the body, even in non celiacs, so maybe the jury is out on this one.

I went through pretty thorough testing and do not have the genes commonly associated with celiac, so I feel pretty confident that I'm 'just' non-celiac gluten intolerant. I think most of the symptoms that I've had resolve - the bloating, the headaches/brain fog, fatigue etc, are symptoms that I think a lot of people who don't think they have a problem with gluten find resolve when they follow a fad diet like this. Whether it's wheat or gluten, a lot of people feel better when they cut down.

But the symptom most people just doing this as a fad diet wouldn't consider but the one that interests me most is my balance problems. I have consistently failed the Romberg test (where you put your feet together, close your eyes and if you're me, promptly tip over) for years. My GP did a bunch of other neurological tests and didn't seen anything that concerned her so it didn't go any further. But in all my research I kept finding examples of people who tested negative to celiac but showed an improvement to their balance problems when they went strictly gluten free. Since eliminating gluten I get D, stomach cramps and overwhelming fatigue if I get glutened so I've been very careful and I'm confident I'm as 100% as I can be. And it's made a startling difference to my balance. A month ago I re-tried the test and I was better - and I did it again last night and was amazed, it was nearly normal.

So if 1 in 133 people have celiac, and many more know from symptoms that they are gluten intolerant and there are all those autistic kids seeing marked improvement on Gluten-free Casein-free diets and people with MS and then people like me with the balance problems... I really wonder just how many people truly are completely unaffected by gluten*?? Sure a lot of the gluten free products are a lot more refined and sugary than the originals so everyone swapping them isn't idea, but I don't think either they or the originals are vital in our diets. Bread sure is tasty but there are other more nutritious foods. It's popular because it's tasty, pretty cheap, easy to use and filling - it's not vital to anyone's diet, not like vegetables are.

(*Or maybe it's wheat that's the culprit, I might be picking on rye and barley unnecessarily but since I don't at all miss them - never drank beer, can live without malt, all the rye stuff seems to have wheat in it anyway - I don't care to trial them again).

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I went through pretty thorough testing and do not have the genes commonly associated with celiac, so I feel pretty confident that I'm 'just' non-celiac gluten intolerant. I think most of the symptoms that I've had resolve - the bloating, the headaches/brain fog, fatigue etc, are symptoms that I think a lot of people who don't think they have a problem with gluten find resolve when they follow a fad diet like this. Whether it's wheat or gluten, a lot of people feel better when they cut down.

But the symptom most people just doing this as a fad diet wouldn't consider but the one that interests me most is my balance problems. I have consistently failed the Romberg test (where you put your feet together, close your eyes and if you're me, promptly tip over) for years. My GP did a bunch of other neurological tests and didn't seen anything that concerned her so it didn't go any further. But in all my research I kept finding examples of people who tested negative to celiac but showed an improvement to their balance problems when they went strictly gluten free. Since eliminating gluten I get D, stomach cramps and overwhelming fatigue if I get glutened so I've been very careful and I'm confident I'm as 100% as I can be. And it's made a startling difference to my balance. A month ago I re-tried the test and I was better - and I did it again last night and was amazed, it was nearly normal.

So if 1 in 133 people have celiac, and many more know from symptoms that they are gluten intolerant and there are all those autistic kids seeing marked improvement on Gluten-free Casein-free diets and people with MS and then people like me with the balance problems... I really wonder just how many people truly are completely unaffected by gluten*?? Sure a lot of the gluten free products are a lot more refined and sugary than the originals so everyone swapping them isn't idea, but I don't think either they or the originals are vital in our diets. Bread sure is tasty but there are other more nutritious foods. It's popular because it's tasty, pretty cheap, easy to use and filling - it's not vital to anyone's diet, not like vegetables are.

(*Or maybe it's wheat that's the culprit, I might be picking on rye and barley unnecessarily but since I don't at all miss them - never drank beer, can live without malt, all the rye stuff seems to have wheat in it anyway - I don't care to trial them again).

Now that is fascinating! Good for you for keeping up the diet despite the lack of testing evidence for it.

The guy who diagnosed me treats his RA with gluten free diet. He isn't celiac. He is off RA meds entirely and totally pain free on a gluten free diet.

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The guy who diagnosed me treats his RA with gluten free diet. He isn't celiac. He is off RA meds entirely and totally pain free on a gluten free diet.

I would put him in the category of gluten intolerant. His body is clearly reacting to gluten.

I guess, then, the question is if Gwyneth Paltrow and others who inconsistently follow a gluten-free diet have a medical benefit from it. I would never discourage someone from abstaining from gluten, but I wouldn't encourage it as a health priority either unless there was a good reason for it.

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I went through pretty thorough testing and do not have the genes commonly associated with celiac, so I feel pretty confident that I'm 'just' non-celiac gluten intolerant. I think most of the symptoms that I've had resolve - the bloating, the headaches/brain fog, fatigue etc, are symptoms that I think a lot of people who don't think they have a problem with gluten find resolve when they follow a fad diet like this. Whether it's wheat or gluten, a lot of people feel better when they cut down.

But the symptom most people just doing this as a fad diet wouldn't consider but the one that interests me most is my balance problems. I have consistently failed the Romberg test (where you put your feet together, close your eyes and if you're me, promptly tip over) for years. My GP did a bunch of other neurological tests and didn't seen anything that concerned her so it didn't go any further. But in all my research I kept finding examples of people who tested negative to celiac but showed an improvement to their balance problems when they went strictly gluten free. Since eliminating gluten I get D, stomach cramps and overwhelming fatigue if I get glutened so I've been very careful and I'm confident I'm as 100% as I can be. And it's made a startling difference to my balance. A month ago I re-tried the test and I was better - and I did it again last night and was amazed, it was nearly normal.

So if 1 in 133 people have celiac, and many more know from symptoms that they are gluten intolerant and there are all those autistic kids seeing marked improvement on Gluten-free Casein-free diets and people with MS and then people like me with the balance problems... I really wonder just how many people truly are completely unaffected by gluten*?? Sure a lot of the gluten free products are a lot more refined and sugary than the originals so everyone swapping them isn't idea, but I don't think either they or the originals are vital in our diets. Bread sure is tasty but there are other more nutritious foods. It's popular because it's tasty, pretty cheap, easy to use and filling - it's not vital to anyone's diet, not like vegetables are.

What you are describing so well is gluten ataxia. Gluten can attack many organs other than the gut for years before gut symptoms show up, if they do. Doctors unfortunately don't realize this. You can be celiac with no gut symptoms and it sounds like you are someone who fits in this catagory. I think the blood test and biopsy are likely more accurate for folks that have gut symptoms rather than stuff like joint or brain impact so alot of folks that could be helped aren't.

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I went through pretty thorough testing and do not have the genes commonly associated with celiac, so I feel pretty confident that I'm 'just' non-celiac gluten intolerant. I think most of the symptoms that I've had resolve - the bloating, the headaches/brain fog, fatigue etc, are symptoms that I think a lot of people who don't think they have a problem with gluten find resolve when they follow a fad diet like this. Whether it's wheat or gluten, a lot of people feel better when they cut down.

But the symptom most people just doing this as a fad diet wouldn't consider but the one that interests me most is my balance problems. I have consistently failed the Romberg test (where you put your feet together, close your eyes and if you're me, promptly tip over) for years. My GP did a bunch of other neurological tests and didn't seen anything that concerned her so it didn't go any further. But in all my research I kept finding examples of people who tested negative to celiac but showed an improvement to their balance problems when they went strictly gluten free. Since eliminating gluten I get D, stomach cramps and overwhelming fatigue if I get glutened so I've been very careful and I'm confident I'm as 100% as I can be. And it's made a startling difference to my balance. A month ago I re-tried the test and I was better - and I did it again last night and was amazed, it was nearly normal.

So if 1 in 133 people have celiac, and many more know from symptoms that they are gluten intolerant and there are all those autistic kids seeing marked improvement on Gluten-free Casein-free diets and people with MS and then people like me with the balance problems... I really wonder just how many people truly are completely unaffected by gluten*?? Sure a lot of the gluten free products are a lot more refined and sugary than the originals so everyone swapping them isn't idea, but I don't think either they or the originals are vital in our diets. Bread sure is tasty but there are other more nutritious foods. It's popular because it's tasty, pretty cheap, easy to use and filling - it's not vital to anyone's diet, not like vegetables are.

(*Or maybe it's wheat that's the culprit, I might be picking on rye and barley unnecessarily but since I don't at all miss them - never drank beer, can live without malt, all the rye stuff seems to have wheat in it anyway - I don't care to trial them again).

As Ravenwoodglass said, you very likely have gluten ataxia. Here's a couple articles you might find interesting about neurologic diseases related to gluten in the absence of GI involvement. I'm happy to hear you figured it out!

http://www.ncbi.nlm.nih.gov/pubmed/19406584

http://www.ncbi.nlm.nih.gov/pubmed/19018335

Researchers like Maki think that a lot more people than just folks with a formal celiac diagnisis tend to feel better off gluten. Nobody has a firm number, but I bet it's as high as 1 in 10 among people of Northern European descent who have the genetic tendencies for celiac.

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This is my POV and this may have been said but I didn't read all the responses. I think people are confusing gluten-free with Low or no carb because of the correlation between breads in general and carbs. I am rather irked that they think this is some fun new toy to play with to loose weight when people like you or me struggle to not eat gluten because we have very painful and embarassing consequences.

HMPH!

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My issue with the fad diet of gluten-free is restaurants assuming when you ask for gluten-free that you are doing it as a fad and not a medical requirement. I have had 50% of the restaurants (that do not offer gluten-free menu) ask me if I really needed gluten-free or if I was just opting to be gluten-free. And this may seem like are looking at out for me, but the tone and body language isn't that, it's pure annoyance on their end.

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As Ravenwoodglass said, you very likely have gluten ataxia. Here's a couple articles you might find interesting about neurologic diseases related to gluten in the absence of GI involvement. I'm happy to hear you figured it out!

http://www.ncbi.nlm.nih.gov/pubmed/19406584

http://www.ncbi.nlm.nih.gov/pubmed/19018335

Researchers like Maki think that a lot more people than just folks with a formal celiac diagnisis tend to feel better off gluten. Nobody has a firm number, but I bet it's as high as 1 in 10 among people of Northern European descent who have the genetic tendencies for celiac.

Thank you both, and for the links too! Very interesting reading. There are so many pieces to this puzzle.

I fit very solidly in to the Northern European category... I'm of english and irish background. Given my symptoms, I was quite surprised I didn't share the gene. Maybe it'll be clearer after a few more decades of research. I'm only 33 - who knows what we'll know when I'm twice this age.

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Researchers like Maki think that a lot more people than just folks with a formal celiac diagnisis tend to feel better off gluten. Nobody has a firm number, but I bet it's as high as 1 in 10 among people of Northern European descent who have the genetic tendencies for celiac.

That's a really high number. Thanks, Skylark.

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I know that before I was diagnosed with celiac, I thought about doing gluten-free for my autistic son, but couldn't bring myself to change so much for something that there was no guarantee would help. Now i have no choice, and its not as hard as I thought, but I think for someone to do this diet just for it being all the "rage", seems like so much work lol. My whole life has been altered, everything has been shifted to another planet and I'm learning how to do things all over again. I probally would have got the gluten-free stuff from the cabinet next to the regular stuff and been proud that I found gluten-free muffins, only to have an unexplained tummy ache and nausea for days after. I do agree that I hope foods become more readily available and cheaper. I have 5 kids, so its cook gluten-free for all or cook 2 meals, I'd rather only have to cook once. We live on chicken, rice and veggies lol :)

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That's a really high number. Thanks, Skylark.

That's just my own guess from observing friends and family. So far, I have four gluten-free folks among my close friends and three more friends of friends I know of. Counting myself, that's eight and only one is diagnosed celiac. I know three have negative celiac bloodwork.

One of these people might be "fadliac" and he is eating grain-free. The rest have noticeable health problems from gluten. and range anywhere from avoidance to strict gluten-free.

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I have mixed feelings about this. Oh and it really irritates me when people think it's just a fad diet. I explain to people this is not a "fad diet"(because they say I'm skinny) for me. I do this to survive.

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    • So I've been glutened....
      Hi JMG, Since it's easy, and always fun, I'd blame your sister. That's what I do.  But seriously, if it's an ongoing problem, rather than an isolated incident stick with your first guess.  Then test it.   So get rid of the oat bread or the sister (her food) or anything that is a consistent part of your diet and you suspect could be the problem.  Of course processed foods are the most likely issue always. It's easy enough to drop back to a very few foods for a few days and see if things improve.  Eating with celiac isn't about having the most exciting diet, it's about eating a medically safe diet.  So it can be boring sometimes.  That's ok, being in pain is exciting but not so fun.   Boring is fine. You might ask your sister what brands of flour she used, and other ingredients.  Then check on those products for possible gluten issues.  If they turn out to be possible problems, make a note of it so you can avoid them in the future. My own sister has been gluten-free for years but she has made me sick several times with her "creations".  It really is best to trust your own cooking and nobody else's for at least 6 months as you are getting used to the diet and healing.  Then slowly branch out and add things in maybe 1 new item in a week.  Slow and controlled diet changes are the way to go.  Boring but safe.  Happy but slow.    
    • So I've been glutened....
      Jmg I am sorry to hear you are unwell. You have been so kind and helpful to me on the boards here. You deserve the time to rant too.   Everyone's suggestion of probiotic is helpful. I have taken them since the 1990's in spurts as needed but was told by my DC after this March glutening I should take it daily "for life". My local store ran out, (I buy the type that must be refrigerated so the manufacturer does not ship direct to customer.) I was ok first day without it but by day 3 I knew I had to locate some for the probiotic/ enzyme blend was necessary for me. I have still not healed well enough yet to be without. As others said it could be cc from sis or the food  industry. Within the food industry even with parameters in place errors can be made- hopefully not too often.  Often rare though especially if not designated facility.  It is hard to know some days what it was. I do hope you get better soon. Yes I do think it can affect the brain/mood. Happens to me a large amount can be immediately,  but a smaller amount by day 2 after glutening. I want to ban gluten everywhere in my environments, unrealistic I know,  but have only been able to do that at home.  Be kind and patient with yourself at this time as you would tell me. ((((((Hug)))))
    • So I've been glutened....
      Yeah I did all the bone broths and sauerkraut after my challenge. Although I wasn't very good at making sauerkraut... Its summer here now so I've eased up on the bone boiling, plus my local butcher is struggling to obtain them. As you say healing to the point where microscopic cross contamination doesn't get you would be a big win.  I was ok with coffee until last few days. I drank decaff black and would have several cups a day without issue. I'll be gutted if I can't handle it any more. I hadn't realised you could get gluten-free miso soup. Will have to look for that    
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    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
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    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
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    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
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