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"gluten Free Is All The Rage Now"


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#1 sandsurfgirl

 
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Posted 15 August 2010 - 10:04 PM

A friend of mine was being supportive and said "Well the gluten free diet is all the rage now. People are feeling so healthy when they do it."

Part of me is thrilled that people are catchign on, there's awareness and lots of products and gluten free menus at restaurants.

Part of me is terrified that people are treating it like a fad, so it STILL will not be taken seriously and the fad will go away when they get bored, maybe go the way of the fat free or Atkins fad, while those of us who have a true autoimmune disorder are still stuck with the disease.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

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#2 Skylark

 
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Posted 15 August 2010 - 10:14 PM

I have that fear too. On the bright side, it's still pretty easy to find lowfat/fat free products and that craze was a solid 20 years ago so stuff that is popular does linger on the market. I think we'll always have the niche brands like Glutino and Kinnikinnick and with an estimated 1 in 100 celiac rate, there will probably always be celiac-friendly restaurants and businesses around even if it isn't as mainstream in another ten years.
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#3 sandsurfgirl

 
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Posted 15 August 2010 - 10:16 PM

It was sweet that she was being so supportive. I live in OC, and people tend to be health conscious and into natural health, etc. so I think there is a lot of awareness of celiac and the diet than maybe in some other places. There are gluten free products everywhere, even at all the regular grocery stores.

But I just don't want people to think this is a fad because for us, obviously, it's not.
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Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#4 GlutenFreeManna

 
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Posted 16 August 2010 - 02:11 AM

I think I wouldn't have any problem with a friend making this comment to me as long as they understood that this wasn't just a fad diet for ME. We have to admit that, yes, it is a fad diet for some, but also use that as an opportunity to explain that for many others it is a medical requirement. It's the people that are diagnosed and yet still cheat that irk me. Or the people that suggest that I could cheat because they think it's just a a fad I'm doing. But as long as your friend understands your reasons for being strict, then it's great that she is aware and being supportive.
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A simple meal with love is better than a feast where there is hatred. Proverbs 15:17 (CEV)

#5 srall

 
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Posted 16 August 2010 - 03:42 AM

I have to be honest here. I found out I was gluten intolerant by doing a detox. That's a little "faddy" But oh do I feel better. It's life changing. But my husband will make comments like..."Oh, Stacey (me) and her special diet" when in the meantime I've been bedridden from being accidentally glutened, and years of health problems have corrected including hair loss, brain fog, fatigue, rashes, arthritis, major stomach issues etc...
Maybe more people will figure out they feel better off gluten even if they are just doing it because it's "the thing to do" right now.
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#6 curiousgirl

 
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Posted 16 August 2010 - 06:34 AM

I have to be honest here. I found out I was gluten intolerant by doing a detox. That's a little "faddy" But oh do I feel better. It's life changing. But my husband will make comments like..."Oh, Stacey (me) and her special diet" when in the meantime I've been bedridden from being accidentally glutened, and years of health problems have corrected including hair loss, brain fog, fatigue, rashes, arthritis, major stomach issues etc...
Maybe more people will figure out they feel better off gluten even if they are just doing it because it's "the thing to do" right now.


I'm single and have been single for 15 years or so. I date periodically and enjoy the company of others (so I'm not unsocial). When I read so much about significant others, family and friends, being condisending (sp) or not believing we have this disease, it just IRKS me! If you all have asked them to take a gander at this website and commit to spending 2-4 hours (not even that many) reading some of these POSTS, NOT just the info about the disease, but the posts from real people, and they still act that way, i'm so sorry you have to deal with that....well, you don't really HAVE to deal with them...if you know what I mean. There's divorce due to disrespect (and I don't mean to be disrespectful saying that). Divorce (or separation) could be less time spent together with ANYONE (go to a movie where you don't have to talk, a play, a sports event, etc.). Maybe I'm oversimplifying it? My new friends have presented a challenge because I'll suggest we meet for coffee and of course to them it means something to eat too. Just yesterday, she said, "You're not going to make me eat alone are you??" I just said I'm on an elimination diet to find out what the h_ll I'm allergic to. I'll see how it goes from there.

It seems that I have so much to say, but need to edit, edit, edit, before I post because I don't want to offend anyone here...then after all that editing, I need a nap...ha!
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I love what I do, and feel that it matters. How could anything be more fun?

#7 mommyto3

 
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Posted 16 August 2010 - 11:49 AM

I hate that it's labeled a "fad diet" but maybe more demand for gluten free products will mean greater production, development and lower prices (and hopefully more product in Canada)!

I guess we just have to keep educating on person at a time :rolleyes:
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#8 jackay

 
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Posted 16 August 2010 - 12:54 PM

I have to be honest here. I found out I was gluten intolerant by doing a detox. That's a little "faddy" But oh do I feel better. It's life changing. But my husband will make comments like..."Oh, Stacey (me) and her special diet" when in the meantime I've been bedridden from being accidentally glutened, and years of health problems have corrected including hair loss, brain fog, fatigue, rashes, arthritis, major stomach issues etc...
Maybe more people will figure out they feel better off gluten even if they are just doing it because it's "the thing to do" right now.

My guess is that there will be a lot of people that will try this diet because it is the "in thing to do". Some of those people may get very sick when go back to eating gluten and at that point come to realize that it isn't just a fad diet for them. Others will go back to their gluten and be O.K. with it and still believe that it is just a fad.

Stacey, my husband wasn't at all supportive at first but has come a long way in the past eight months. He has started to cook gluten free meals and watches so I am always careful with what I eat. He finally has his wife back after many, many years so it has become important to him, too. At first he thought it was just another one of those things that wasn't going to work, since I have tried so many.

Good luck!
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#9 srall

 
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Posted 16 August 2010 - 01:26 PM

Jackay, I agree. And I shouldn't be too hard on him. He's the foodie in the house and he's saved me in restaurants when I ordered a gumbo...he's the one (or was the one) that knows how food's cooked. I'm getting pretty good though. And also, he's seen the vast difference in my energy level and (tmi) how I have no gas/stomach issues anymore, plus he's nursed me during the gluten reactions which are very intense now that my system is clean, so he is supportive. He just has to make comments to family members to make me seem high maintainence (which I can't spell). We've made some great gluten free meals together. It's just extremely new to him (since March 2010). And new to me too.
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#10 K-Dawg

 
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Posted 16 August 2010 - 02:19 PM

Hey - recently I have had several co-workers make similar comments to me and a few of them are cutting back on their gluten intake. I have mixed feelings about this -- while I appreciate that this means there is some greater access to gluten free foods, I"m also concerned that the seriousness of celiac disease is lost in translation.

Recently I was on vacation in Niagara-on-the-lake, a great little village in Ontario, canada. A tea shop had gluten free food...BUT it was in the same glass cabinet as all the gluten containing muffins, breads, etc...and you could see that cross contamination would be a huge issue. I did not feel safe eating any of the gluten free foods...they were not safe for a celiac, but I'm sure they would have been fine for my friends who are 'trying out' the gluten free diet.

K-Dawg

A friend of mine was being supportive and said "Well the gluten free diet is all the rage now. People are feeling so healthy when they do it."

Part of me is thrilled that people are catchign on, there's awareness and lots of products and gluten free menus at restaurants.

Part of me is terrified that people are treating it like a fad, so it STILL will not be taken seriously and the fad will go away when they get bored, maybe go the way of the fat free or Atkins fad, while those of us who have a true autoimmune disorder are still stuck with the disease.


  • 0
Many autoimmune disorders: Graves Disease in 1998, Psoriasis on or about 2000, Hashimoto's in 2008.

Severely anemic in 2007 (undetectable iron levels)

Elevated liver enzymes (ALT and AST) as of October 2008.

Negative blood test for celiac disease in February 2009, followed by diagnosis of celiac disease in April 2009 after positive biopsy.

#11 georgie

 
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Posted 16 August 2010 - 03:19 PM

Hey - recently I have had several co-workers make similar comments to me and a few of them are cutting back on their gluten intake. I have mixed feelings about this -- while I appreciate that this means there is some greater access to gluten free foods, I"m also concerned that the seriousness of celiac disease is lost in translation.

Recently I was on vacation in Niagara-on-the-lake, a great little village in Ontario, canada. A tea shop had gluten free food...BUT it was in the same glass cabinet as all the gluten containing muffins, breads, etc...and you could see that cross contamination would be a huge issue. I did not feel safe eating any of the gluten free foods...they were not safe for a celiac, but I'm sure they would have been fine for my friends who are 'trying out' the gluten free diet.


That is my worry too. That all these people doing gluten-free on a casual basis because it is 'trendy' are making it look bad for those of us that have Coeliac and need to be zero Gluten.

I have just had 3 days on the couch as a shop sold my hubbie some 'gluten-free' biscuits. ( that were not 100% gluten-free). When he rang back to ask and eventually complain the store owner was like - oh they are not 100% gluten-free but most people do not react to them.... like it was no big deal to eat a gluten-free food that was only 99% gluten-free ..... and had not bothered to train her staff to explain the difference between 99% gluten-free and 100% gluten-free....

If I had bought that biscuit and eaten it immediately before driving the car I could have killed myself by driving off the road. ( I would not eat a new food now before driving but I used to in my early days). As it was I spent 3 days on the couch and been in a lot of pain. Hubbie had to ring back 4x before the store even issued an apology/we will train the staff / store credit....

GRRRRRRRRR...... :angry:
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Diagnosed May 2006 - Hashimotos Thyroid after being diagnosed in 1977 and told it didn't matter.
Diagnosed June 2006 with adrenal insufficiency.
Diagnosed June 2006 as Gluten Intolerant after I failed the Challenge Diet. Negative blood test.No biopsy.
Diagnosed June 2006 as B12 low. Needed weekly injections for a year.Still have them every 2 weeks.
Trialled Dairy Free Diet and reacted positively to that challenge in January 07.
News Flash! Coeliac Genetic Testing done April 08 . DQ2 Positive !
Diagnosed July 2010 FODMAP. Limits on Fructose, lactose, polyols, fructans. NO ONION! But I can have hard cheese, butter and cream again!!!

#12 lucia

 
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Posted 16 August 2010 - 04:32 PM

I'm not convinced that there are health benefits to eating gluten free, unless you're celiac or gluten intolerant. What's the reason for it?

Seems like it'd be more healthy to concentrate on eating a well-balanced diet that includes plenty of fresh foods. I think the same thing though about "low fat" foods. Studies have shown that people eat more of low fat foods. I'd rather just have smaller portions of my yogurt or mayonnaise with all of the fat.
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#13 sandsurfgirl

 
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Posted 16 August 2010 - 07:08 PM

I'm not convinced that there are health benefits to eating gluten free, unless you're celiac or gluten intolerant. What's the reason for it?

Seems like it'd be more healthy to concentrate on eating a well-balanced diet that includes plenty of fresh foods. I think the same thing though about "low fat" foods. Studies have shown that people eat more of low fat foods. I'd rather just have smaller portions of my yogurt or mayonnaise with all of the fat.


I tend to agree. Gluten free is NOT low carb by any means unless you are going low carb. The gluten free stuff has much less whole grain components, more fat and the junk food is just as junky as regular junk food. People who don't have celiac, wheat intolerance, blah blah etc. are better off not being gluten free and getting those whole grains. Barley and rye are especially good if you aren't celiac.

But.... on the other hand.... there is research about gluten causing inflammation in the body, even in non celiacs, so maybe the jury is out on this one.
  • 0
Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!

#14 anabananakins

 
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Posted 16 August 2010 - 07:48 PM

But.... on the other hand.... there is research about gluten causing inflammation in the body, even in non celiacs, so maybe the jury is out on this one.



I went through pretty thorough testing and do not have the genes commonly associated with celiac, so I feel pretty confident that I'm 'just' non-celiac gluten intolerant. I think most of the symptoms that I've had resolve - the bloating, the headaches/brain fog, fatigue etc, are symptoms that I think a lot of people who don't think they have a problem with gluten find resolve when they follow a fad diet like this. Whether it's wheat or gluten, a lot of people feel better when they cut down.

But the symptom most people just doing this as a fad diet wouldn't consider but the one that interests me most is my balance problems. I have consistently failed the Romberg test (where you put your feet together, close your eyes and if you're me, promptly tip over) for years. My GP did a bunch of other neurological tests and didn't seen anything that concerned her so it didn't go any further. But in all my research I kept finding examples of people who tested negative to celiac but showed an improvement to their balance problems when they went strictly gluten free. Since eliminating gluten I get D, stomach cramps and overwhelming fatigue if I get glutened so I've been very careful and I'm confident I'm as 100% as I can be. And it's made a startling difference to my balance. A month ago I re-tried the test and I was better - and I did it again last night and was amazed, it was nearly normal.

So if 1 in 133 people have celiac, and many more know from symptoms that they are gluten intolerant and there are all those autistic kids seeing marked improvement on Gluten-free Casein-free diets and people with MS and then people like me with the balance problems... I really wonder just how many people truly are completely unaffected by gluten*?? Sure a lot of the gluten free products are a lot more refined and sugary than the originals so everyone swapping them isn't idea, but I don't think either they or the originals are vital in our diets. Bread sure is tasty but there are other more nutritious foods. It's popular because it's tasty, pretty cheap, easy to use and filling - it's not vital to anyone's diet, not like vegetables are.

(*Or maybe it's wheat that's the culprit, I might be picking on rye and barley unnecessarily but since I don't at all miss them - never drank beer, can live without malt, all the rye stuff seems to have wheat in it anyway - I don't care to trial them again).
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#15 sandsurfgirl

 
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Posted 16 August 2010 - 07:51 PM

I went through pretty thorough testing and do not have the genes commonly associated with celiac, so I feel pretty confident that I'm 'just' non-celiac gluten intolerant. I think most of the symptoms that I've had resolve - the bloating, the headaches/brain fog, fatigue etc, are symptoms that I think a lot of people who don't think they have a problem with gluten find resolve when they follow a fad diet like this. Whether it's wheat or gluten, a lot of people feel better when they cut down.

But the symptom most people just doing this as a fad diet wouldn't consider but the one that interests me most is my balance problems. I have consistently failed the Romberg test (where you put your feet together, close your eyes and if you're me, promptly tip over) for years. My GP did a bunch of other neurological tests and didn't seen anything that concerned her so it didn't go any further. But in all my research I kept finding examples of people who tested negative to celiac but showed an improvement to their balance problems when they went strictly gluten free. Since eliminating gluten I get D, stomach cramps and overwhelming fatigue if I get glutened so I've been very careful and I'm confident I'm as 100% as I can be. And it's made a startling difference to my balance. A month ago I re-tried the test and I was better - and I did it again last night and was amazed, it was nearly normal.

So if 1 in 133 people have celiac, and many more know from symptoms that they are gluten intolerant and there are all those autistic kids seeing marked improvement on Gluten-free Casein-free diets and people with MS and then people like me with the balance problems... I really wonder just how many people truly are completely unaffected by gluten*?? Sure a lot of the gluten free products are a lot more refined and sugary than the originals so everyone swapping them isn't idea, but I don't think either they or the originals are vital in our diets. Bread sure is tasty but there are other more nutritious foods. It's popular because it's tasty, pretty cheap, easy to use and filling - it's not vital to anyone's diet, not like vegetables are.

(*Or maybe it's wheat that's the culprit, I might be picking on rye and barley unnecessarily but since I don't at all miss them - never drank beer, can live without malt, all the rye stuff seems to have wheat in it anyway - I don't care to trial them again).



Now that is fascinating! Good for you for keeping up the diet despite the lack of testing evidence for it.

The guy who diagnosed me treats his RA with gluten free diet. He isn't celiac. He is off RA meds entirely and totally pain free on a gluten free diet.
  • 1
Lots of doctors diagnosed me with lots of things including IBS, lactose intolerance, wheat intolerance, and quite a few of them threw up their hands in total confusion.

Had GI symptoms, allergy symptoms and unexplained illness my whole life.

Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!




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