Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Lectin Intolerance
0

6 posts in this topic

For those of you who are Lectin intolerant, I would be very curious to know what specific symptoms you had, and how eliminating lectins has made a difference for you.

I've read lots of articles, so I am not really looking for links, but rather anecdotal stories from those who have experienced it. I am particularly interested in if eliminating lectins helped any of you to finally lose some weight. TIA

Janie

0

Share this post


Link to post
Share on other sites


Ads by Google:

For those of you who are Lectin intolerant, I would be very curious to know what specific symptoms you had, and how eliminating lectins has made a difference for you.

I've read lots of articles, so I am not really looking for links, but rather anecdotal stories from those who have experienced it. I am particularly interested in if eliminating lectins helped any of you to finally lose some weight. TIA

Janie

I don't know if I can truly say that I have a specific lectin intolerance...but the foods that I have the greatest reaction to are all high in lectins. When I read the krispin report http://www.krispin.com/lectin.html he mentions the following: grains-especially wheat and wheat germ, but also quinoa, rice, buckwheat, oats, rys, barley, millet, and corn; legumes--all dried beans including soy and peanuts; dairy; and nightshade vegetables--including potato, tomato, eggplant, and peppers as being the most "toxic" lectin food groups.

My specific symptoms before going off of gluten, milk, eggs, soy, nightshades, legumes, and yeast were as follows: GERD, IBS, depression, night sweats, irregular periods (too frequent), leg and foot cramping, body pain, headaches, anxiety, diarrhea, gas, hypoglycemia, and low energy. Now, having been off of these foods for 10 months I can say that I have seen a resolution in the great majority of these symptoms. I have been able to get off of 6 daily medications...my doctor says my depression and IBS are "in remission" (how nice) and I am no longer suffering from the night sweats, body pain, headaches, diarrhea, or gas. I have still had some issues with anxiety (it's hard to be on this damn diet!) and occasional heartburn but I can honestly say that I feel SO MUCH BETTER! In fact, I've had family, friends, and co-workers all comment on how good I look now, and this includes people who didn't know that I changed anything in my diet.

For me weight loss wasn't a problem (I've always been on the thin side) but I have been able to stabilize my weight and found that I am no longer quite as hungry all of time time. I also do better if I stay away from too much sugar as that will cause me to become light-headed and woozy if I don't balance it out with some protein.

Hope this helps. Hang in there! It's totally worth all the hard work!

0

Share this post


Link to post
Share on other sites

Thanks, Daniknik! Anyone else?

0

Share this post


Link to post
Share on other sites

Thank you for sharing. I am looking into lectins as an issue my fiancee may have in addition to her gluten intolerance. Have you heard of or used any to the techniques or products by Dr. D'Adamo (www.4yourtype.com)? I'm looking at a couple of different products but I was hoping somebody could speek to their effectiveness before I purchased them.

0

Share this post


Link to post
Share on other sites

I missed this thread (on a subject I have pursued endlessly) when it cycled through last year. I am a great believer in the lectin intolerance theory and everything I am intolerant of is high in lectins.

For me, lectins cause what a former member of this forum called a "cytokine storm" which causes terrible bloating and gas, putting extreme pressure on my heart and lungs. It used to cause me to faint (vaso-vagal syncope) and then it set off atrial fibrillation (again coming from the vagus nerve) from which I still suffer (now, sometimes, indepently of lectins). My lectin foods are corn, soy, legumes, citrus, nightshades (in addition there are lectins in gluten). Fortunately the dairy lectins don't bother me at all. If you have not read the Krispin Report mentioned, do so. You can regain the ability to eat some lectin foods. I can now tolerate some potato starch in breads, and also corn starch, but haven't pushed the boundaries too much yet.

I have also tried the product Lectin Lock which can be ordered online and found it to be effective. I take it with me when I eat out in case I get some accidental lectin exposure, and I find that it prevents the cytokine storm by giving them ( in my gut) the sugars they are seeking when they go storming through my body :lol: .

0

Share this post


Link to post
Share on other sites




Thanks for the feedback. I will take a look at the article mentioned.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,096
    • Total Posts
      920,334
  • Topics

  • Posts

    • Awok, Welcome to the forum.  Have you considered trace gluten?  Here is a study on the topic: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3598839/pdf/1471-230X-13-40.pdf It could explain why you felt good for a while.  I personally was glutened badly last summer.  I have no idea what got me.  I suspect either a prescription medication or one gluten free product (not certified).  I ended up on a whole foods diet and avoided even certified processed gluten-free foods including grains until I was healed (three to six months).  
    • I've had a range of symptoms in the last 2 months and in the past few weeks I have discovered that my TTG abs (igA) levels were 41 (my igA tests were fine). The doctor said that he is pretty much certain that it is celiac disease and I am awaiting an endoscopy to confirm it.  Before I found out that my TTG abs (igA) levels were high, I noticed that my body was reacting really badly to dairy products. I went on an elimination diet and stopped all gluten and dairy products and felt much better. I carried this on after my results and thought that I must have developed a dairy intolerance due to my celiac. 2 days ago I accidentally consumed a glass of wine which I thought was dairy free but it contained Milk. I have not had any gluten.  I am currently in the middle of a flare up. All of a sudden rashes have started to appear on my hands and my anxiety has returned (usually not a anxious person). No diarhhoea, vomiting or digestive issues. I am currently suffering from muscle twitching, rashes predominantly on hands and feet, brain fog, pins and needles/numbness on hands, feet and arms. However, I have been tested for milk allergy and this came back negative. Is it possible that it is dairy that is causing my symptoms/autoimmune reaction and could this be a reason for elevetated TTG abs (igA) levels. Or has the doctor only picked up my celiac and missing something else. If it was dairy intolerance then I would have digestive issues but I don't seem to have any. Could it be the casein protein?  Anyone been in a similar situation or can anyone provide some insight? 
    • Hello Everyone, This is my first post here and I am writing to seek help from experienced people here. I have been suffering for over 4 years now and still no where close to having a solution/ satisfactory diagnosis of my problem. My problems started in Mar 2012 with sudden diarrhea which would not go away for days. At first, I was given general antibiotics medication which would help bring down the frequency for some days and then it would come back. Since then it has been going on. I am giving a time line and the series of tests and procedures I have gone through. Would like opinion from experienced and experts here. I can send the scans and reports if required. Would really appreciate the help. Male, Indian origin Mar 2012 - onset of symptoms - multiple bouts diarrhea - spaced 3-4 weeks, bloating, weight loss (to start with I was 74 Kgs), GP managed with antibitocs and loperamide for months Dec 2012 - consulted a GI doc towards end of 2012, Colonoscopy done - conclusion was "IBS" - was advised to manage stress. use Rifaximin and immodium Jan 2013 - Aug 2013 kept moderately fine for 3-4 months ..again started getting frequent diarrhea + weight loss (was around 70 Kgs) Oct 2013 - Consulted another doc, MD - stool and blood test - Ecoli and high Eosinophil Count, medication done for 5-6 months, montinored eosinophil from nov - Mar: always kept high.. came down but then again shot up in a month Mar 2014 - Consulted another GI expert - Endoscopy and duodenal biopsy done - H Pylori and Unremarkable Villious pattern, (weight 68 Kgs) - On and Off diarrhea continued. Given: Ivermectin July 2014 - again same doc - Blood test done: High Eosinophil count,  Colonoscopy and Ileum biopsy - preserved villous architecture, features of eosinophilic enteritis; Endoscopy  + duodenal biospy again - numerous H pylori bacteria, Preserved villous crypt ratio, features of eosinophilic enteritis > conclusion: I have eosinophilic enteritis. Started on Prednisolone (steroids) Aug 2014 - 3-4 days of severe diarrhea> weight came down to 65 Kgs. Hospitalised for 3 days - continued on Prednisolonerios Sep 2014 - After 10 days only again a serious bout of diarrhea - hospitalized again - put on IV fluid for 8 days - weight 59 Kgs. Colonoscopy + biopsy done: features of superimposed c. difficile colitis, non-specific mild colitis > c. difficle test came out negative. CT Enterolysis +Scan done: mesenteric lymphadenopathy > nothing wrong acc to docs. IgA deficiency found - diagnosed Celiac - advised for Gluten free diet.   Sep 14 - May 16: continued gluten-free diet, gained weight upto 63 Kg in Jan 16, but then started losing again and came to 59 Kgs in May. No signficant diarrhea. Minor issues. June 16 onwards: Again diarrhea started, still on gluten-free diet, weight lost - 54 Kgs now. hospitalised again under same GI doc - blood test - eosinophil high, CT Enterolysis done: Showing mucosal thickening in Jejunum and Ileum; Enteroscopy (going in jejunum) + jejunal biopsy - jejunal erosions + villous blunting, marked atrophic with V:C ratio of 0.5: 1 to 0:1. HttG blood test done - Came out negative> Conclusion : No gluten exposure (how?) + Refractory Celiac disease. June - July - have been suffering from continuous diarrhea (goes off for 5-6 days and comes back, bloating, trappings in abdomen - waiting for I don't know what. On Rifaximin + Ivermectin + Codeine Sulphate (for diarrhea) I am very depressed and have no clarity on what's going on. If it is celiac, why am I not doing better on gluten-free diet. If the villous damage is still there in small intestine, then why did I kept fine for Sep - May period? HTTG - negative now but was NOT taken in Sep when I was first diagnosed with celiac. Can we trust negative HTTG now and conclude that it has come down? I am 20 kgs down from my ideal weight and still going down. Have no clue what NOT to eat to stop this. Why is eosinophil always high. Can any of you expert help me to put my case to docs in other countries? With lots of hope, Alok          
    • So, I know I'm obsessing but...... University of Chicago Celiac Disease Center website says any total IgA result over 20 won't affect the celiac test.   If this is so,  I'm still confused as to what a weak positive ttg iga means even though her result was barely in this category.  Why bother having a weak positive anyway?   I just don't get it and our doc is on vacation so I won't know what he'll recommend for another week.  I'll be finding out this week if we can see a GI without a referral. Our lyme doc (she's had lyme, may still have it, like I said it's a long story) is having her do an IgG wheat test but I don't think that has any bearing on celiac does it?    
    • Hi!  I've had good luck at the Minnesota state fair because most food booths are only doing one thing so there is no cross-contamination. For example: french fries or chocolate covered bacon or Indian kebabs.   But I live in California and I am heading to the state fair today! Does anybody have any great food suggestions that are definitely gluten-free there? Thanks, Celiac C.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,131
    • Most Online
      1,763

    Newest Member
    Feralgurl
    Joined