Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

Brain Fog
0

11 posts in this topic

I have heard people say they had brain fog before going gluten free. and I was wondering when they say brain fog what do they mean. Is is just being absent minded. Do they feel like they are on drugs or is it like they can't think.

I have very great long term memory, but my short term memory sucks.

I took my grandson to the doctor for his shots about 6 months ago and just about a month ago my daughter wanted to know what they gave him. I honestly can not even remember taking him to the doctor. I have had a lot of memory lapses like that and it scares me. :ph34r:

1

Share this post


Link to post
Share on other sites


Ads by Google:

Yea I know where you're coming from.

My boyfriend often gets MRSA boils and needs them surgically removed. The other day I was asking about the scars and when they all happened. He told me the one on his arm was 2 months ago... and I was there. NO memory what so ever.

And my dad told me that a few months ago he had enlisted my help to fish a frog out of our pool and we spent hours doing it. Can't remember it at all.

1

Share this post


Link to post
Share on other sites

Sherry:

"Brain fog" ... it's something you know you had when it's no longer there.

It's a feeling of not not being very sharp, feeling kind of fuzzy, and generally tired.

But you know more what is was when it's no longer there.

1

Share this post


Link to post
Share on other sites

I also forget words several times a day. I will be talking to people at work and I can not remeber a word that I want to say. It is usually a common word like cup or stappler but I cannot rememer how to say a word.

People usually have to finish my sentence for me. That is so irritating.

1

Share this post


Link to post
Share on other sites

Sherry:

"Brain fog" ... it's something you know you had when it's no longer there.

It's a feeling of not not being very sharp, feeling kind of fuzzy, and generally tired.

But you know more what is was when it's no longer there.

For me it was a vague feeling for a long time, but in the year before my diagnosis, it got so bad that I'd struggle with even the most simple things.

For example:

I'd drive to somewhere I'd driven countless times, and I'd forget how to get there.

I'd work on my computer and try to preform a task that was once easy (like downloading onto my iPod), and I'd get so confused that I'd have to have my husband help me.

I'd misplace things far more often than I do now.

Because I'd forget things so easily, my sense of urgency heightened. Things like I'd find myself interrupting people as they spoke so I wouldn't forget what I wanted to say.

It's gone now, thank goodness . . . however, it does creep back a little bit (just a little) if I get glutened.

Crazy.

1

Share this post


Link to post
Share on other sites




As I sit here remembering, I've remembered a few more symptoms I had:

When I'd type, I'd make TONS MORE typos than what is normal for me. Sometimes I'd even write one completely different word when I'd mean to write another -- instead of writing "I'm going home," maybe I'd write "I'm going town."

Sometimes I'd talk the same way. It was as though I had a mini stroke (which I hadn't).

I'd forget words far more frequently, and often, it was hard to answer questions. If someone asked me "Where are the postage stamps?" I'd have to get up and show them because it was difficult for me to put the answer into words.

I had a very tough time sitting still or focusing on things for prolonged periods. Some of the way I acted mimed Attention Deficit/Hyperactivity Disorder -- back then. Now it's gone.

Years ago, I gave up knitting because it was hard for me to focus on it. Now I knit like the wind and have fallen so in love with it. (I still drop stitches, but so does everyone!) :)

It was horrible pre-gluten-free. I blamed it on age. I blamed it on stress. I blamed it on everything but gluten.

It just breaks my heart to think of all the wonderful folks out there who suffer the same way. They are walking around beating themselves up for "falling apart" and thinking they are helpless to do anything about it, when all it takes is a change of diet.

Anyway, I hope this helps clarify brain fog a little more.

1

Share this post


Link to post
Share on other sites

Wow, so is it a proven symptom to have a horrible memory? I never even thought of that as a symptom. My memory used to be good, but the past few years, when all my other symptoms started it has gotten bad. I can't even remember when my friend visited me, or when a friend slept over 6 months ago, what I just heard in class.. ect... And I'm only 21...

1

Share this post


Link to post
Share on other sites

Wow, so is it a proven symptom to have a horrible memory? I never even thought of that as a symptom. My memory used to be good, but the past few years, when all my other symptoms started it has gotten bad. I can't even remember when my friend visited me, or when a friend slept over 6 months ago, what I just heard in class.. ect... And I'm only 21...

Scuzy,

Brain fog is very common, but with the severity you describe, you might want to ask an expert.

Just wondering: Do you have other neurological symptoms as well? Do you suffer from celiac in addition to gluten-intolerance? Have you gone through testing, etc.?

1

Share this post


Link to post
Share on other sites

Scuzy,

PS: I do not have celiac. I am HIGHLY gluten intolerant -- I am told I am more sensitive to gluten than most, including those who suffer from celiac.

I just wanted to add this info because you refer to wondering if you have celiac in your posts.

So, if you are gluten-intolerant, it doesn't necessarily mean you also have celiac disease.

1

Share this post


Link to post
Share on other sites

My Celiac test came back negative, but if you read my post: , it explains my situation (to much typing) :). Not sure what other neurological symptoms you might be referring too. I personally always chocked up my horrible memory to having such a traumatic child hood. But then again a friend sleeping over is not traumatic, so in theory my mind should remember it, right? Thanks for your input.

1

Share this post


Link to post
Share on other sites

I also forget words several times a day. I will be talking to people at work and I can not remeber a word that I want to say. It is usually a common word like cup or stappler but I cannot rememer how to say a word.

People usually have to finish my sentence for me. That is so irritating.

I was the same way! I also couldn't think clearly, easy confused. I also would wake up in the morning and could not seem to fully wake up. My mind was "sleepy" until about noon.

1

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,874
    • Total Posts
      919,420
  • Topics

  • Posts

    • So I've been glutened....
      Yeah I did all the bone broths and sauerkraut after my challenge. Although I wasn't very good at making sauerkraut... Its summer here now so I've eased up on the bone boiling, plus my local butcher is struggling to obtain them. As you say healing to the point where microscopic cross contamination doesn't get you would be a big win.  I was ok with coffee until last few days. I drank decaff black and would have several cups a day without issue. I'll be gutted if I can't handle it any more. I hadn't realised you could get gluten-free miso soup. Will have to look for that    
    • So I've been glutened....
      Coffee is a no-no for me!  I actually gave up coffee since my diagnosis back on 2/2016.  I was diagnosed by a biopsy in the stomach...no villi.   Coffee is a stimulant to the GI system and it really irritates your GI when you are having a flare up.  I was tested by stools and was informed I barely had good bacteria in my gut which is typically for people with celiac. I went on a high dose of probiotic (just started) twice a day, multivitamin, lots of fermented vegetables like sauerkraut, kimchi, miso soup and tons of bone broth.  I am going to a local farm today to pick up organic bones to make my broth.  I am so desperate to heal my gut, not to introduce gluten but to be able to tolerate an exposure without being knocked out by it....Eat very light, I stick to vegetable juice, resistance starch food such as banana, apples, potatoes boiled until my diarrhea subsides.  I am currently in a flare up stage; did something and I have been glutened I am on day 7 and my symptoms peak after a few days, around day 4-5 and it last a few days of Diarrhea, nausea, sensation of feeling full, back pain in the rib cage on left side and hip/lower back pain on left side.  Its horrible!  I feel weak right now due to the diarrhea and since I am not hungry it makes it worse.  Hope this gets better.
    • DNA Testing
      I got the print out and took it to my new dr because what my RA was saying didn't seem to add up.  When I pressed him for more info, he said I didn't have any of the markers. Turns out he read the test wrong!  Since then, my new doc also questioned all my previous bloodwork and asked why I hadn't been told that my counts were really low or tested for ferritin levels. My ferritin was at 10, so, yeah, 4 other Dr's missed anemia on my labs. It's been frustrating to say the least, but I am finally feeling a little bit hopeful with my new primary doc. She's just referred me to a specialist focusing on celiac. Considering my former gp told me "that whole celiac thing is just a fad", I'm feeling a bit more secure. 
    • So I've been glutened....
      Thanks for the kind responses  Last night I went out and had a black coffee, non decaf.   Big mistake... I started getting gas almost immediately and it went on for the rest of the evening. It seems like anything which might annoy my stomach at the moment results in churning and an uncomfortable feeling. the weird thing is that I ate a huge lunch including gluten-free bread earlier with no effects whatsoever. Just as well as I couldn't face food last night and am not enthused with breakfast now.  C i think I'll dig out some probiotics and try and eat simply for a few days and hope things settle down. I'm just worried that something has changed and this is the new normal... That would suck...  
    • Toblerone
      It's on the safe list here in the uk and I eat it without a problem. theres also a really nice almondy toblerone cake available now. 
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Jmg  »  admin

      Hello Admin!
      I don't know whether this is of interest to post on your articles feed:
      http://pratt.duke.edu/about/news/window-guts-brain
      Kind Regards,
      Matt
      · 2 replies
    • celiac sharon  »  cyclinglady

      Hello cycling lady, have you noticed my picture is showing up as you?  Have no idea why but it's rather disconcerting to see my picture and your words 😉  Do you know how to fix it?  You seem to have far more experience with this board than I do
      · 1 reply
    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,909
    • Most Online
      1,763

    Newest Member
    Fourpeople
    Joined