Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

I Need An Answer


L-NO

Recommended Posts

L-NO Newbie

I just started reading about celiac yesterday because Im at my wits end. Im tired of getting diarrhea after most meals, Im tired of having to worry about where there are public restrooms. And mostly, im just really tired! About 10 years ago I was diagnosed with IBS after an incident of dizziness, blood in stools (i was told it was hemorrhoids), and diarrhea. I went on to have a colonoscopy, which showed juvenile polyps. ( I have had 2 subsequent colonoscopies that were normal). Ive been able to tolerate the IBS over the years, sometimes getting diarrhea for no reason...or being able to eat the same thing on numerous occasions and then have it give me diarrhea. About 2 years ago I started having really bad sinus infections (about 5 in a year), and at one point they prescribed me augmentin which gave me colitis.) In June of this year, I went to the Dominican Republic and came back with really bad diarrhea (like...really bad!). I was put on 2 rounds of antibiotics ,and while the consistancy of the diarrhea has changed, the frequency is still ridiculous. It is interfering with my work, social life and everything else. I get diarrhea multiple times daily, even after eating plain/bland foods. If it were IBS, would plain pasta cause diarrhea? Yesterday I had to leave work early after having severe cramps, sweating, nausea and diarrhea multiple times. Im afraid Im going to lose my job! I started looking online and celiac seems to match alot of my symptoms. Also, I have underlying medical conditions...which REALLY suck.

My Medical History:

Asthma since 8 months old (for several years wheat, yeast and chocolate would exacerbate asthma)

Third degree burns (Not related to anything except depression)

Polycystic Ovarian Syndrome (havent had normal periods for almost 15 years)

Gene positive for Huntington's Disease (ya..my futures real bright...)

Depression

Sleep disturbances

Night Sweats

Chronic Diarrhea

Bloating

Gas

Stomach Cramps

Chronic sinus infections requiring surgical intervention

Tonsil stones requiring tonsillectomy

Chronic costochondritis

low back pain

chronic fatigue

headaches

weird rashes on both forearms that dermatology couldnt diagnose (def not dermatitis herpatiformis)

and the list goes on....

I also have fam history of:

Colon Cancer

Breast Cancer

Huntingtons Disease

Kidney Failure

Multiple Sclerosis

Dementia

Diverticulitis

i had the blood testing done today for the celiac panel. I hope that this is what I have, because I am so tired of no answers. I already have enough medical conditions, I dont really need another. but at least with celiac there is a treatment! Do my symptoms sound like celiac to you? Im just tired of being depressed. And Im ONLY 27!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Dixiebell Contributor

That is quite a history. Do you plan on having an endoscopy to check for celiac or other issues? If not you could try going gluten free for a few weeks and then try a gluten challenge and see how your body responds.

Link to comment
Share on other sites
L-NO Newbie

That is quite a history. Do you plan on having an endoscopy to check for celiac or other issues? If not you could try going gluten free for a few weeks and then try a gluten challenge and see how your body responds.

I forgot that I've had barium swallows that show I have bad gerd. When I layed down, the pill came back up. So they told me to take over the counter pepcid (which isn't cheap!) i have an appointment with GI next month, and if he suggests doing a biopsy I'm all for it. At this point, I'd do anything to feel better and enjoy life.

Link to comment
Share on other sites
Atrapos Newbie

Have you been tested for Crohn's disease? It can cause all sorts of nastiness.

Link to comment
Share on other sites
L-NO Newbie

Have you been tested for Crohn's disease? It can cause all sorts of nastiness.

aside from a CBC to look for low rbc, hemoglobin and hematocrit or a stool sample to check for blood what are the other tests fo crohns? I haven't had any obvious signs of bloody stools ( other than black stools thanks to my friend pepto bismal). And I def don't have an issue with weight loss... What other symptoms of crohns should I look for?

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,472
    • Most Online (within 30 mins)
      7,748

    Jessiehags91
    Newest Member
    Jessiehags91
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      We offer a ton of recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/ and have done some articles on fast food places, but keep in mind that eating out is a common source of gluten contamination: https://www.celiac.com/search/?q=fast food&quick=1&type=cms_records2 Many colleges now offer allergen-friendly, and sometimes gluten-free options in their student cafeterias: https://www.celiac.com/search/?&q=colleges&type=cms_records2&quick=1&search_and_or=and&sortby=relevancy PS - Look into GliadinX, which is a sponsor here, but many studies have been done on it which show that it may break down small amounts of gluten in the stomach, before it reaches the intestines.
    • JustGemi
      Thank you! What do you recommend in the next 7 weeks until I see my Doctor?  Just start my Gluten free diet?
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      So if the normal range for your tests is below 15.0 U/mL, and your results are 120.9 U/mL HIGH, it definitely looks like you could have celiac disease. Your doctor may want to schedule an endoscopy to confirm this, but with such high results it is also possible that the diagnosis might be made on your blood test results alone (more info on that is below). This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.  In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
×
×
  • Create New...