Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I Cheated , Bigggg Time!

scratch-n-eat

By scratch-n-eat
in Dermatitis Herpetiformis

Recommended Posts

scratch-n-eat Newbie
scratch-n-eat
Posted

So here goes. In 2002 I started getting painful pimples all over my scalp. I took the enterolab test that was positive, but barely. I went gluten-free, and POOF....the pimples went away. I have always been suspicious of my whole gluten-free/DH status. I didn't get the typical symptoms (itching on knees and elbows, intestinal issues, ect.) I even took a blood test at the derm for the antibody markers for celiac, but came up negative. I was gluten-free at the time of the test. Probably why.... don't know.

So here we go...I have been gluten-free (religiously, for 7 years) since 2003, and no pimples. About a month and a half ago , I said screw it... I got an extra large pizza, a six pack of beer , and went to town. Matter of fact...I have been eating gluten every day for the last 6 weeks with no probs ....UNTILL last week. I started getting the scalp pimples again.

Look, here's my beef. Does DH normally take 6 weeks of eating gluten, before it flares back up?!?! What the hell.... Anyone got anything? I'm lost....

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RideAllWays Enthusiast
RideAllWays
Posted

Not sure about the DH, but have you noticed any other symptoms for the past 6 weeks? Maybe you're more tired, moody, scatterbrained, sore? If you are doubting diagnosis because of you not reacting for 6 weeks, maybe stay on gluten and then get a biopsy? But if you know that the rash went away with gluten might as well stick to it and have happy skin! :)

Link to comment
Share on other sites
ksymonds84 Enthusiast
ksymonds84
Posted

Look, here's my beef. Does DH normally take 6 weeks of eating gluten, before it flares back up?!?! What the hell.... Anyone got anything? I'm lost....

When I did the gluten challenge last year for my endoscopy it took 1 1/2 months for the symptoms to come back and they came back worse than ever!

Link to comment
Share on other sites
scratch-n-eat Newbie
scratch-n-eat
  • Author
Posted

But God the beer and pizza are so good. LOL

Link to comment
Share on other sites
Skylark Collaborator
Skylark
Posted

DH can take a while. Your body had to build up all those antibodies in your skin again!

Do you have a BJ's in town? They have gluten-free pizza and beer. :)

Link to comment
Share on other sites
lovegrov Collaborator
lovegrov
Posted

As with so many things and with a lot of things to do with celiac, it all depends on the person. We're not all alike and we don't all react the same way, so there's no "normal" or average. My father's DH disappeared for a few years without going gluten-free and then suddenly returned again. Is that "normal?" No, not really, but that's what happened to him.

richard

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,086
    • Most Online (within 30 mins)
      7,748
    Brooke123
    Newest Member
    Brooke123
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Tanner L
      Bad Reaction To Regular Ruffles Cheddar and Sour Cream

      By Tanner L · Posted

      Constantly! I don't want everything to cost as much as a KIND bar, as great as they are.  Happy most of the info is available to us to make smart decisions for our health, just need to do a little more research. 
    • Scott Adams
      Weak positive anti-ttg igA?

      By Scott Adams · Posted

      Be sure to keep eating gluten daily until all testing is completed.  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Finding out I’m coeliac whilst pregnant

      By Scott Adams · Posted

      You can always to the gluten challenge later, after your pregnancy, should you need a formal diagnosis. I think it's best to play it safe in this case.
    • Jesmar
      Weak positive anti-ttg igA?

      By Jesmar · Posted

      Very true. I also suffered from candidiasis which had affected my intestines and toes. I think this might have triggered my gluten intolerance/celiac.
    • trents
      Weak positive anti-ttg igA?

      By trents · Posted

      Welcome to the forum community, @Jesmar! The HLA DQ2 and DQ8 genes were the original halotypes identified with the potential to develop celiac disease. Since then, other genes have been discovered that apparently afford a predisposition to celiac disease. As is always the case, these new discoveries are not yet common knowledge and not yet widely dispersed in the medical community. It is not genetically as black and white as we once thought.
×
×
  • Create New...