Diagnosis After Age 60
Posted 19 August 2010 - 06:49 PM
Posted 19 August 2010 - 08:34 PM
I read on an NIH webpage that GI symptoms are more common in childhood celiacs, while non-GI symptoms are more common in adult celiacs. I have a parent investigating celiac disease and that trend would fit. Would anyone diagnosed after age 60 be willing to share what your symptoms were? Since my parent doesn't have noticeable GI symptoms he or she (who doesn't trust Internet annonymity!) is wondering about whether or not celiac disease could really be an issue.
If I would have waited for a doctor's official diagnosis, I probably would have been in my 60s, when I was diagnosed. However, I self-diagnosed at age 56. Then I did the Enterolab test panel which diagnosed gluten intolerance, casein intolerance, soy intolerance, positive Ttg (consistent with intestinal inflammation) and one of the main celiac genes. When I finally found a celiac naturopath, he agreed with my Elab results and 'officially' diagnosed me 2 years later.
Nevertheless, my self-diagnosis came after years when my symptoms were misdiagnosed as 'gastritis', IBS, malabsorption syndrome and even bulimia! So I suspect I had obvious celiac symptoms at least since age 52 after abdominal surgery, but I had lots of gastrointestinal symptoms, which were misdiagnosed for about 20 years before that.
So I think people can be diagnosed after age 60, especially if they find a doctor who recognizes their symptoms as celiac and will test them. However, many doctors still think celiac disease is a childhood disease and dismiss those symptoms as 'ibs' in middle aged people.
Gluten, dairy, soy, egg, cane sugar, vanilla and nutmeg free. Enterolab diagnosed gluten/casein intolerant 7/04; soy intolerant 8/07. ELISA test diagnosed egg/cane sugar IgG allergies 8/06; vanilla/nutmeg 8/06. 2006-10 diagnosed by DNA Microbial stool tests and successfully treated: Klebsiella, Enterobacter Cloaecae, Cryptosporidia, Candida, C-diff, Achromobacter, H. Pylori and Dientamoeba Fragilis. 6/10 Heidelberg capsule test diagnosed hypochloridia. Vitamin D deficiency, hypothyroiditis, hypochloridia and low white blood cells caused vulnerability to infections. I now take Betaine HCl, probiotics, Vitamin D and T3 thyroid supplement to maintain immunity.
Posted 19 August 2010 - 09:33 PM
"Everything that can be counted does not necessarily count; everything that counts cannot necessarily be counted." - Albert Einstein
"Life is not weathering the storm; it is learning to dance in the rain"
"Whatever the question, the answer is always chocolate." Nigella Lawson
Caffeine free 1973
Lactose free 1990
(Mis)diagnosed IBS, fibromyalgia '80's and '90's
Diagnosed psoriatic arthritis 2004
Self-diagnosed gluten intolerant, gluten-free Nov. 2007
Soy free March 2008
Nightshade free Feb 2009
Citric acid free June 2009
Potato starch free July 2009
(Totally) corn free Nov. 2009
Legume free March 2010
Now tolerant of lactose
Celiac.com - Celiac Disease Board Moderator
Posted 20 August 2010 - 04:39 AM
Posted 20 August 2010 - 05:15 AM
Celiac disease(positive blood work/biopsy- 10/2008), gluten free oat intolerent, Hashimoto's Thyroiditis/Disease, Raynaud's Disease
celiac disease(positive IgA tTG, no biopsy- 11/2010)
repeated negative bloodwork and negative EGD/biopsy. Started on a gluten free trial(8/2011). He has decided to stay gluten free due to all of the improvements he has experienced on the diet.
Posted 20 August 2010 - 08:20 AM
My main symptom was that I had this nagging pain in my left upper quadrant near the lower left ribs. I was dx'd with costochondritis after having CT scans, XRAYS, and ultrasounds which all were normal. After the pain seemed to be getting worse I kept going to different Dr's (I've never even heard of celiac) and last week my rheumatologist did some random testing and it came back positive for celiac. Another symptom I missed- I have been iron def anemic for a while and never really knew why, I would take iron and it would go up, but the iron related levels (RDW, HCT, MCV, etc) would always be off, they never all went up to normal and my ferritin was very low (5). I had no clue this was all related. The rheum told me I needed to go to a GI Dr to have an endoscopy for get the official diagnosis.
I had my appt with him this morning. He told me that many celiac's don't get diagnosed until they are in their 50's or 60's.
What symptoms is she having? Is she anemic? I guess that is a biggy.
Endoscopy confirmed 8/31/10
Started gluten-free diet 9/1/10
Posted 20 November 2012 - 03:25 PM
0 user(s) are reading this topic
0 members, 0 guests, 0 anonymous users