Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Diagnosis After Age 60
0

7 posts in this topic

I read on an NIH webpage that GI symptoms are more common in childhood celiacs, while non-GI symptoms are more common in adult celiacs. I have a parent investigating celiac disease and that trend would fit. Would anyone diagnosed after age 60 be willing to share what your symptoms were? Since my parent doesn't have noticeable GI symptoms he or she (who doesn't trust Internet annonymity!) is wondering about whether or not celiac disease could really be an issue.

0

Share this post


Link to post
Share on other sites


Ads by Google:

I read on an NIH webpage that GI symptoms are more common in childhood celiacs, while non-GI symptoms are more common in adult celiacs. I have a parent investigating celiac disease and that trend would fit. Would anyone diagnosed after age 60 be willing to share what your symptoms were? Since my parent doesn't have noticeable GI symptoms he or she (who doesn't trust Internet annonymity!) is wondering about whether or not celiac disease could really be an issue.

If I would have waited for a doctor's official diagnosis, I probably would have been in my 60s, when I was diagnosed. However, I self-diagnosed at age 56. Then I did the Enterolab test panel which diagnosed gluten intolerance, casein intolerance, soy intolerance, positive Ttg (consistent with intestinal inflammation) and one of the main celiac genes. When I finally found a celiac naturopath, he agreed with my Elab results and 'officially' diagnosed me 2 years later.

Nevertheless, my self-diagnosis came after years when my symptoms were misdiagnosed as 'gastritis', IBS, malabsorption syndrome and even bulimia! So I suspect I had obvious celiac symptoms at least since age 52 after abdominal surgery, but I had lots of gastrointestinal symptoms, which were misdiagnosed for about 20 years before that.

So I think people can be diagnosed after age 60, especially if they find a doctor who recognizes their symptoms as celiac and will test them. However, many doctors still think celiac disease is a childhood disease and dismiss those symptoms as 'ibs' in middle aged people.

0

Share this post


Link to post
Share on other sites

You will see from my signature that I was over 60 when diagnosed (by me, not by a doctor - they had missed it all these years) and once I found out about the gluten I found out about all the other things. Previous generations have put so much faith in doctors; I had not put my faith in doctors and knew they were misdiagnosing me, I just didn't know what the diagnosis was :angry:

0

Share this post


Link to post
Share on other sites

My father had DH but virtually nothing else in the way of symptoms. Yet he was highly positive at age 70.

richard

0

Share this post


Link to post
Share on other sites

I work with a lady whose husband was just diagnosed about 6 months ago and he is mid 60's. However she said he has had symptoms for at least the past 30 years and was misdiagnosed with everything but celiac. He missed out on alot of school functions and trips because of his debilitating diarrhea. He was a truck driver and always kept plastic bags and a bucket with him on the road. He went in for another EGD and the doctor didn't like how his bowel looked so the took biopsy samples and then sent him for blood work. Both were off the charts positive. What I would like to see is that when people go in for an EGD that a small biopsy becomes standard. As of right now for the most part it isn't unless there is concern from the start. If that was the case he probably would have been diagnosed alot sooner. SAD, but now he is doing great and enjoying trips to visit the grandchildren without bathroom fears according to his wife. Also I suspect my father has it, but according to his doctor his blood tests are normal. He has a very distended abdomen despite his weight, has been on protonix for longer than I can remember, had an operation when I was about 8 for some bowel that twisted and became gangrenous, low vitamin D and phosphorus, neuropathy in his feet, and below normal low cholesterol. He takes so many various "pills" to fix all the "problems". He is almost 64. My mom's doctor (same one as dad) is sending her in for a 72 hour stool fat test because something was wonky on her last blood work. I mentioned to her to get retested (blood) for celiac too. She has arthritis and osteoporosis bad and it is progressing because she can't take any of the medications for it because of bad reactions. She is the same age as dad. My dad has had previous EGD's but no biopsy and mom has never had one. I think they both should get it done with biopsy. I suspect at least my dad's would be positive.

0

Share this post


Link to post
Share on other sites




I am not 60 or even close (I'm 35), but I have no GI symptoms at all (except I have always been gassy- esp when I eat junk food).

My main symptom was that I had this nagging pain in my left upper quadrant near the lower left ribs. I was dx'd with costochondritis after having CT scans, XRAYS, and ultrasounds which all were normal. After the pain seemed to be getting worse I kept going to different Dr's (I've never even heard of celiac) and last week my rheumatologist did some random testing and it came back positive for celiac. Another symptom I missed- I have been iron def anemic for a while and never really knew why, I would take iron and it would go up, but the iron related levels (RDW, HCT, MCV, etc) would always be off, they never all went up to normal and my ferritin was very low (5). I had no clue this was all related. The rheum told me I needed to go to a GI Dr to have an endoscopy for get the official diagnosis.

I had my appt with him this morning. He told me that many celiac's don't get diagnosed until they are in their 50's or 60's.

What symptoms is she having? Is she anemic? I guess that is a biggy.

0

Share this post


Link to post
Share on other sites

I was 60 when diagnosed with celiac. I went to the dermatologist as I had a really wired rash. The Dermo biopsied the rash and called me and referred me to mayo to check for celiac. I could not believe it. So I have been eating gluten free and reading whatever I can get my hands on. Oh btw sure enough after lots of blood work and an endoscope I have celiac.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,404
    • Total Posts
      917,640
  • Topics

  • Posts

    • celiac disease is psychosomatic
      ...and CoQ10 deficiencies can occur in those taking statin drugs.  Really important to monitor that if you are on statins.
    • Starting out
      I guess you must have to be a member then. I don't know because I am a member. It doesn't cost anything & I've never gotten any junk mail from them or anything unpleasant.  Gee, I didn't even think about that when I posted the link. OOPS! Let me know if you need me to copy & paste it because I will if you want.  
    • Starting out
      Hey, do you have to be a member of Medscape to see the article?  I could not get in pass the sign-in page.  
    • Starting out
      Ugh!  Run from that doctor.  Are you located on Mars?  Kidding aside, here's the deal.  If you go gluten free just to test it out and you feel good, then you might think you have a gluten issue.   A few months or a year go by and you realize that this is HARD.  REALLY HARD.  So, you start to cheat.  You get sloppy.  You start sharing a toaster.  Your symptoms come back, but you don't worry about it or maybe you start to get violently ill.  Symptoms so different from your old symptoms that you think you must have something else.  (You could be the type of person who makes a decision and sticks with it.  But those are rare folks.)   I could go on with more stories, but type in lymphoma in our forum's search box.  Look at member's who were misdirected by their physicians and who have had celiac disease all along.  Now they are dealing with cancer.   It is not my intent to scare you into thinking you have cancer.  The odds of you having it are slim and none.  I am trying to scare you into finding another doctor who really CARES about you and follows a normal standard level of care (like reading currant medical journals or checking Dr. Google, like my ER neighbor doctor does because he can not know everything!) It's just a simple blood test.  So easy.  If negative, then give the diet a try!
    • "Celiac disease prevents absorption of iron"
      Well, you are no longer anemic, so that's great!  As long as you are healed, you should be able to absorb iron easily.   Of course, there could be other issues that would prevent you from absorbing iron as villi damage can occur from many things other than celiac disease.   Want to know for sure where you stand?  Ask your doctor to check your iron and iron store levels the next time you have a physical.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,535
    • Most Online
      1,763

    Newest Member
    Sullyn
    Joined