Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Disoriented, And Unable To Walk.
0

20 posts in this topic

My name is Erin. I'm twenty, going to be twenty-one in September. I'm 5"3 and weigh 132ibs. My mother has celiac disease, and I always knew I had it but I just felt sick if I tried to drink alcohol, or eat too much junk food, so I didn't eat out much.

Within the past month I have found it difficult to breathe, sudden of my heart racing non stop. It gets so bad I feel like I might throw up or pass out. I get confused and can't focus well on anything, and feel well and nothing will calm the fast heart beat. I went to the hospital yesterday and have been a few times recently. They said my RHR was 130, blood test were normal,the lowest my heart rate went to was 100. I haven't been able to sleep I have constant insomnia and fatigue. I'm so tired.

I used to go walking every night and sometimes jog. Now I cannot even get up the stairs to my apartment, without having to come in panting and wheezing and having to lay on the bed. I am practically always laying in bed. I never want to go anywhere because I'm scared to have my heart beat as heavy as it gets. It no matter what all the time usually 90+ heart rate even while I'm laying around not doing excessive anything.

I thought possibly I have gotten Canida from have Celiac disease, so I got Actiiva yogurt, and now I cannot even eat it. I feel nausea eating practicully anything. It makes me very sick, I get dizzy my heart races and I feel very sick. I have trouble eating and if I eat too much or drink too much liquid it seems to sit on my stomach very heavy and I get palpitations. I started taking magnesium because my palpitations were so bad when all of this first started they were like 30 times a day, and would happen so intensively. I'm not sure what to do.. My doctor said my heart rate was fast, but no murmur.

I'm just very scared because I never have a normal resting heart rate. I don't think it's been normal for the past two months. I break out in a full body sweat if I even walk outside, and my heat intolerence is VERY high. I try not to eat much of anything (I've eaten miso soup) but I'm scared to eat anything else because my heart racing as much as it is now, if I eat something I don't want to worsen it. What can I eat? I'm starving :(

I'm scared that this is going to harm my heart before I go back in to the doctors and they figure it out. If anyone has any ideas about it please let me know, any information or any experience of their own I would truly apperciate it more than I can begin to express.

More symptoms I've had are:

Chest pain

Chest tightness

Stabbing feeling in stomach

Sore joints

Headache/Migraine

Tingling all over hands feet and random spots

Severe Nausea

Flaking nails

Cold sweat on hands and feet

heat intolerant

ringing in ears

insomnia

fatigue

slowed walking/moving

arms feel heavy/dead/tired

inability to conprehend

pressure behind left eye

0

Share this post


Link to post
Share on other sites


Ads by Google:

Oh Honey! I had this, too. Found out I was extremely anemic ( iron deficient) . You do not make the blood cells that carry oxygen properly. This makes your heart beat extra to get Oxygen to your body. It means you breathe hard to try to suck up O2 . When you have Celiac, your intestines can't absorb nutrients as well as a healthy body. I took massive doses of iron , vit c, B 12 to get my blood healthy again. Get your blood tested for vit d, b12 & iron. The other problem could be thyroid, so get that checked with blood tests.

2

Share this post


Link to post
Share on other sites

Welcome Erin! A few things about your post confused me. When you say you had a negative blood test, did they test you for celiac? With your mother having it, it's very likely you have it too. You need to follow up with a heart doctor to rule out any heart condition, but I will tell you that I had some similar symptoms. Mine included chest pain and difficulty breathing rather than just a racing heart beat. I was only 26 when it started and it was scary. Your racing heart beat could also be anxiety if you don't have any heart condition. Many people with celiac or gluten intolerance have anxiety as well.

If you want to go gluten free you can trial the diet right now. Activia is not a good choice for yogurt however. The last time I looked at Activia it said "may contain wheat" on it (I am in the US so it may be different in other countries. If you want to have more testing done for celiac then you should not go gluten free yet (it could make the test results false negatives). However going gluten free will not prevent the doctors from testing for other conditions. Please try to eat something so you don't lose too much weight and end up in the hospital. Try something simple like grilled chicken and steamed vegetables or some plain rice may calm your system. I hope you can figure it out soon and feel free to ask any other questions you have here.

1

Share this post


Link to post
Share on other sites

Oh Honey! I had this, too. Found out I was extremely anemic ( iron deficient) . You do not make the blood cells that carry oxygen properly. This makes your heart beat extra to get Oxygen to your body. It means you breathe hard to try to suck up O2 . When you have Celiac, your intestines can't absorb nutrients as well as a healthy body. I took massive doses of iron , vit c, B 12 to get my blood healthy again. Get your blood tested for vit d, b12 & iron. The other problem could be thyroid, so get that checked with blood tests.

As soon as I read your reply I went and took Vitamin C and Iron, I already took B12. Thank you sooo so much. My mom is also Anemic but no one has told me if I was or not. I feel so awful. I hope that this will at least lighten some of the effects I'm having my chest hurts right now :(

Will this harm my heart? I've been so scared I could have a heart attack and my heart hurts a lot..thank you thank you very much..

0

Share this post


Link to post
Share on other sites

Welcome Erin! A few things about your post confused me. When you say you had a negative blood test, did they test you for celiac? With your mother having it, it's very likely you have it too. You need to follow up with a heart doctor to rule out any heart condition, but I will tell you that I had some similar symptoms. Mine included chest pain and difficulty breathing rather than just a racing heart beat. I was only 26 when it started and it was scary. Your racing heart beat could also be anxiety if you don't have any heart condition. Many people with celiac or gluten intolerance have anxiety as well.

If you want to go gluten free you can trial the diet right now. Activia is not a good choice for yogurt however. The last time I looked at Activia it said "may contain wheat" on it (I am in the US so it may be different in other countries. If you want to have more testing done for celiac then you should not go gluten free yet (it could make the test results false negatives). However going gluten free will not prevent the doctors from testing for other conditions. Please try to eat something so you don't lose too much weight and end up in the hospital. Try something simple like grilled chicken and steamed vegetables or some plain rice may calm your system. I hope you can figure it out soon and feel free to ask any other questions you have here.

They didn't test me for Celiac at the hospital but they are at my doctor. I just went to the hospital last night, but the doctor blood test is Monday. The blood test at the hospital they said normal for anything like heart problem, or any reason for what was happening.

The chest pain is very awful at times, but only if I'm getting too anxious or scared about the palps, or my heart racing. If it gets really intense the heart pain starts, and sometimes without reason.

I didn't think about the activia having wheat in it :( I wont eat it again though. That's for sure. I just thought if I had canida that was harming my body it would cleanse it. I have tried to eat meat and it feels like it may come back up? I feel very full of water, but I'm dehydrated. I will try to get some grilled chicken tonight. Thank you so much for this suggestion. I've been practically sucking down vitamins and liquid for two months!

0

Share this post


Link to post
Share on other sites




Forgot, get vitamin D checked too. Here's the problem. You may not be able to absorb much of the vitamins. Also, when taking iron, it must be by itself. That means no food, vitamins, tea ( just water) at least 1 hour before and 2 hours after. If it bothers your stomach, no dairy or grain. A little banana or apple. What do we need to do to get you tested for Celiac and all the vitamin deficiencies? Do you have insurance? Can your Mom help you? I'll try to help you figure this out. As will other here.

1

Share this post


Link to post
Share on other sites

Forgot, get vitamin D checked too. Here's the problem. You may not be able to absorb much of the vitamins. Also, when taking iron, it must be by itself. That means no food, vitamins, tea ( just water) at least 1 hour before and 2 hours after. If it bothers your stomach, no dairy or grain. A little banana or apple. What do we need to do to get you tested for Celiac and all the vitamin deficiencies? Do you have insurance? Can your Mom help you? I'll try to help you figure this out. As will other here.

I don't think I have Vitamin D at home..I took folic acid, B12, baby asprin.

I have medicaid because I've been epileptic since I was 17. It seems like I have the chest pain and panic attacks every day even with nothing really on my mind.

I'll try to eat something in a couple of hours since I just took an iron a bit ago after you suggested it :)

0

Share this post


Link to post
Share on other sites

As soon as I read your reply I went and took Vitamin C and Iron, I already took B12. Thank you sooo so much. My mom is also Anemic but no one has told me if I was or not. I feel so awful. I hope that this will at least lighten some of the effects I'm having my chest hurts right now :(

Will this harm my heart? I've been so scared I could have a heart attack and my heart hurts a lot..thank you thank you very much..

I can see why you are scared, it must be a horrible feeling. You have been the hospital, which is good. If the pain was from your heart being damaged, they can pick that up using blood tests, which I imagine they looked in to at the start to make sure you weren't having a heart attack. Due to the pain you are in you also may have strained muscles in your chest, which can be very painful.

The state your body is in right now will make you feel much more anxious, which in turn could be making you panicky. I'm not saying it's in your head, just that the original pain puts your body in a state of stress, which can then feed in to eachother. In a young and otherwise healthy person, I don't think that the problems you are having right now will be damaging your heart, but of course you should ask your dr about that and get any testing recommended. There are people who sufffer from panic attacks very frequently where the heart races, and that doesn't damage the muscle.

I have been very low in iron and B12 at points, and my heart could pound and race, I was airless and would gasp and I could hardly climb the stairs. It also put me in a weird disconnected state, which was pretty distressing. I definitely second getting your full iron (that's at least ferratin, circulating iron and your saturation), b12 and folate tested, as that could be part of the problem. Get printouts of the tests and post them here if you dont get a clear answer from the dr. If you are low in b12, get the injections, as it will make you feel better much sooner.

If you aren't gluten free already, I would do that right now, in case this is the start of you reacting to gluten. It can cause some extremely weird reactions in people. Also, make sure you are getting some nutrition, otherwise you will stress your body even more. If you can handle dairy, try a liquid meal replacement, here in Australia I know of ensure and sustagen. You will at least get some nutrition to help you out. Otherwise, have you tried pureeing food and eating small amounts? Or soup? Even a few mouthfulls here and there will help.

Hope you start to feel better soon.

0

Share this post


Link to post
Share on other sites

i was thinking Anemia too- which is very common with Celiac. i really hope you're getting to a doc REAL SOON-

please get in soon- and keep us posted.

0

Share this post


Link to post
Share on other sites

Erin, honey, a couple of quick questions. Does your stomach feel really bloated and distended when your heart races and your have the problems breathing? This sounds like something I get, and it is a food reaction which causes my heart to go haywire. For me it is the pressure from the gas and bloating pressing on my lungs and heart. If you do get the pressure, can you force yourself to burp to relieve it?

0

Share this post


Link to post
Share on other sites

@Mushroom I do get bad pressure under my ribs like fullness. But cannot make myself burp.. Not really had much food lately just maybe the Activia cause a food reaction? I've had the pressure under my ribs for a while causing my heart to race and difficult breathing though, no gasiness right now. Stomach isn't so much distended as just kind of feeling very full and nausea really -_-

0

Share this post


Link to post
Share on other sites

@Mushroom I do get bad pressure under my ribs like fullness. But cannot make myself burp.. Not really had much food lately just maybe the Activia cause a food reaction? I've had the pressure under my ribs for a while causing my heart to race and difficult breathing though, no gasiness right now. Stomach isn't so much distended as just kind of feeling very full and nausea really -_-

Yes, this is what I get, the pressure under the ribs; sometimes it feels like a have on a too-tight bra and someone is pulling it tighter :o You start eating dinner, have a couple of mouthfuls and feel nauseous and can't eat any more because there's no room for anything else. It is all related to what you eat.

Can you go on a very basic diet? Eat things like applesauce, rice, bananas, some white fish, maybe some swiss chard? And drink nothing but water??? Or you could even try some jars of babyfood that have no gluten. Something to get you some nutrition while not making you sick until we can figure out what is doing this to you?

P.S. I take Gas-X - it doesn't help a lot but it does help a bit :)

0

Share this post


Link to post
Share on other sites

Yes, this is what I get, the pressure under the ribs; sometimes it feels like a have on a too-tight bra and someone is pulling it tighter :o You start eating dinner, have a couple of mouthfuls and feel nauseous and can't eat any more because there's no room for anything else. It is all related to what you eat.

Can you go on a very basic diet? Eat things like applesauce, rice, bananas, some white fish, maybe some swiss chard? And drink nothing but water??? Or you could even try some jars of babyfood that have no gluten. Something to get you some nutrition while not making you sick until we can figure out what is doing this to you?

P.S. I take Gas-X - it doesn't help a lot but it does help a bit :)

Ohhh Ohh exactly.. the tightness like someone is pulling something tighter on you about your chest. This is when I thought I had a build up of Canida in my system and got the Activia (haha) :P I am going to make a shopping list. I've been dieing to get fish but around where I live (texas) theres not many places to go and get this for a good price. But I will be on the look out soon now that I have some ideas on what to get! I will also even try the baby food! :)

What did you do to relieve the pressure in your stomache?? Like was it a build up in your body? How long did it last you?..:/ I just thought that by two months this would be gone by now?

0

Share this post


Link to post
Share on other sites

I can see why you are scared, it must be a horrible feeling. You have been the hospital, which is good. If the pain was from your heart being damaged, they can pick that up using blood tests, which I imagine they looked in to at the start to make sure you weren't having a heart attack. Due to the pain you are in you also may have strained muscles in your chest, which can be very painful.

The state your body is in right now will make you feel much more anxious, which in turn could be making you panicky. I'm not saying it's in your head, just that the original pain puts your body in a state of stress, which can then feed in to eachother. In a young and otherwise healthy person, I don't think that the problems you are having right now will be damaging your heart, but of course you should ask your dr about that and get any testing recommended. There are people who sufffer from panic attacks very frequently where the heart races, and that doesn't damage the muscle.

I have been very low in iron and B12 at points, and my heart could pound and race, I was airless and would gasp and I could hardly climb the stairs. It also put me in a weird disconnected state, which was pretty distressing. I definitely second getting your full iron (that's at least ferratin, circulating iron and your saturation), b12 and folate tested, as that could be part of the problem. Get printouts of the tests and post them here if you dont get a clear answer from the dr. If you are low in b12, get the injections, as it will make you feel better much sooner.

If you aren't gluten free already, I would do that right now, in case this is the start of you reacting to gluten. It can cause some extremely weird reactions in people. Also, make sure you are getting some nutrition, otherwise you will stress your body even more. If you can handle dairy, try a liquid meal replacement, here in Australia I know of ensure and sustagen. You will at least get some nutrition to help you out. Otherwise, have you tried pureeing food and eating small amounts? Or soup? Even a few mouthfulls here and there will help.

Hope you start to feel better soon.

I've had like about 2 almost three panic attacks in one day. It's usually suddenly just my heart racing when I try to watch a movie and relax, and then I can't control it and my chest hurts. I'm really glad you told me it wont be damaging my heart :) I was so worried about that. I've thought about it ever since I noticed my irregularity of my heart. How did yours go? Have you already begun treatment or do you still have these feelings?

I took Iron and I feel better, I kind of took it quite late so next time I will try to take it earlier. I try to be pretty cautious about those things. I know it's silly maybe I'm just a little scared about how no doctor can tell me what's wrong with me. But an hour or two after taking the iron pill my heart rate has relaxed. It has gone from being the normal of 100+ to now maybe in the 60 range even?!!??!?! I'm so happy and excited I had iron at my house this whole time and I had no idea it could help my heart.. I was so shocked I was almost weirded out that it was so low. I was like "So low is this even normal?!" Because it's been so high for so long. I can't say how much of a difference I feel.

I didn't feel like I was getting oxygen at all to even when I was breathing (the air would even feel hot even if it wasnt?) and I would panic at that, and now when I breath I feel fine! And I don't feel as disoriented. Maybe still hard to walk, but maybe my braincells are trying to recooperate after the loss of all the air! if I have any left now! ;D

I ate soup earlier I had Miso soup that's what I've been eating. I'm going to try some Fish and baby food, and some steamed vegs that everyone sugested. I don't mind going completely gluten free. I don't even like bread or anything. Just every time I got something, even a drink I would get really sick. So I will probably be eating mainly fish and vegs from now on! :)

0

Share this post


Link to post
Share on other sites

Hi Erin,

You should get your thyroid checked for Hashimotos' thyroiditis antibodies, and also check for Grave's disease. Hashimotos' thyroiditis is a condition where the body makes antibodies to the thyroid and attacks it. Hashimoto's can cause symptoms of Grave's disease (hyper-thyroid) and also hypo-thyroid symptoms (low thyroid). People with celiac disesae tend to get other auto-immune diseases more often. including Hashi's. Hashimoto's damages the thyroid but sometimes people on here have reported their Hashimoto's symptoms get a little better on the gluten-free diet. Not always though.

It might help to get some sub-lingual B-12. That's usually either a liquid or a small pill that dissolves under the tongue. Make sure to check all you vitamins for gluten-free.

0

Share this post


Link to post
Share on other sites

My name is Erin. I'm twenty, going to be twenty-one in September. I'm 5"3 and weigh 132ibs. My mother has celiac disease, and I always knew I had it but I just felt sick if I tried to drink alcohol, or eat too much junk food, so I didn't eat out much.

Does this mean you are still eating gluten and just avoiding junk food and alcohol?

If you are still eating gluten when you get done with celiac screening stop. The symptoms you are describing sound like gluten reactions. The problems with balance and the difficulty walking could be gluten ataxia. Even if your celiac screening is negative you would be wise IMHO to be strictly gluten free.

0

Share this post


Link to post
Share on other sites

Thanks for adding those other symptoms to your first post, Erin. You say you know you have celiac; I guess I just assumed you were eating as a celiac, but maybe not? Do give us the answer to that - you said you were eating only miso soup??? Have you also been eating gluten products?

0

Share this post


Link to post
Share on other sites

When I took my dad to a heart Arrhythmia specialist at Mayo Clinic we were told the best way to help a fast beating heart was to drink a sports drink like Gatorade. Since I have the same problem of my heart racing at times I found this worked for me. Another note, some people find they have seizures when eating gluten.

0

Share this post


Link to post
Share on other sites

I've had like about 2 almost three panic attacks in one day. It's usually suddenly just my heart racing when I try to watch a movie and relax, and then I can't control it and my chest hurts. I'm really glad you told me it wont be damaging my heart :) I was so worried about that. I've thought about it ever since I noticed my irregularity of my heart. How did yours go? Have you already begun treatment or do you still have these feelings?

I took Iron and I feel better, I kind of took it quite late so next time I will try to take it earlier. I try to be pretty cautious about those things. I know it's silly maybe I'm just a little scared about how no doctor can tell me what's wrong with me. But an hour or two after taking the iron pill my heart rate has relaxed. It has gone from being the normal of 100+ to now maybe in the 60 range even?!!??!?! I'm so happy and excited I had iron at my house this whole time and I had no idea it could help my heart.. I was so shocked I was almost weirded out that it was so low. I was like "So low is this even normal?!" Because it's been so high for so long. I can't say how much of a difference I feel.

I didn't feel like I was getting oxygen at all to even when I was breathing (the air would even feel hot even if it wasnt?) and I would panic at that, and now when I breath I feel fine! And I don't feel as disoriented. Maybe still hard to walk, but maybe my braincells are trying to recooperate after the loss of all the air! if I have any left now! ;D

I ate soup earlier I had Miso soup that's what I've been eating. I'm going to try some Fish and baby food, and some steamed vegs that everyone sugested. I don't mind going completely gluten free. I don't even like bread or anything. Just every time I got something, even a drink I would get really sick. So I will probably be eating mainly fish and vegs from now on! :)

That's great that you've had improvements from the iron. I had a rollercoaster of low iron and B12 for about a year, until I got a good GP. We were monitoroing both at 2-3 week intervals for a while, as my levels would just totally crash. It got to the point where i could walk in there and say I feel low in iron, and she would just inject me, as she knew that I could identify them 100%.

I got iron injections, which is quite uncommon, but I just can't digest the iron pills. Iron injections obviously help quicker than the pills, I think when I was at my worst I had weekly iron and B12 injections for about 2 months, and after about 1 month the breathlessness and pounding heart went away. I never had panic attacks luckily, but the airless feeling is pretty distressing!

OH!! I just remembered something! A couple of months ago I got really breathless a lot, it was worse than usual and my iron/b12 wasn't that low. It seems a bit nuts but I stopped taking a medication (the pill) and i noticed a couple of days later that my entire stomach and diaphram had been totally locked up. I only realised when it was better. The breathlessness also went away, it turns out I had been cramped up solid, and so was breathing really shallowly, causing the airless feeling. That ties in with some of the other posters who have mentioned stomach pain and cramping leading to the pains in the chest.

When you pay attention to how you are breathing, are you moving your shoulders and the tops of your ribs, or can you feel the bottom of your ribcage move too? Often when people get panicky they can start breathing shallowly, which can bring on hyperventilation. If you aren't already, it's a great idea to spend some time practising breathing deeply and slowly. It helps get your oxygen levels up too.

Hopefully with iron and B12, and a easy to digest diet, you may find a way to reduce the pain you are in, and the stress with it. It's a very primal thing to freak out when you feel you can't breathe, but if you know what's going on it should help to break the panic response that kicks in. If you can afford it, psychologists have a lot of techniques to help manage panic attacks, it could be a good option if they are happening frequently or stopping you from doing things.

I think the gluten-free diet is a great idea, as it may be the villain behind any low nutrient levels and possible pain from the stomach? I definietly recommend keeping regular food and symtpom diaries, it helps so much to know whether things are improving, or to identify triggers for problems.

0

Share this post


Link to post
Share on other sites

Sometimes epilepsy is just caused by gluten, by the way.

Can you list all the tests you had? Please?

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,344
    • Total Posts
      917,398
  • Topics

  • Posts

    • Weird Reaction
      Hi Richard Glad you are feeling better!   Sorry - DX is an abbreviation for diagnosis.   Thanks so much  for the info about MSG, broccoli and IBS.  Like you say, there is v. little bad press about broccoli. My aunt, who is a farmer's wife, put forward another theory that it might not have been the broccoli itself but rather some insecticide a farmer sprayed on it.   I just can't bring myself to try organic broccoli however...  Thankfully cauliflower is fine.  I just can't figure it out as I thought they were the in the same vegetable family?  So maybe it is MSG. Regarding anemia, there can be a link with iron anemia and anxiety. http://www.livestrong.com/article/471225-iron-anxiety/ And I was definitely breathless before my diagnosis; I remember finding myself  walking up a hill behind a  huge crowd of friends on a church walk, and many of them were at least 20 years older than me, and wondering why I was in last place! My B12 levels were very low at DX and I found B12 supplements helped enormously with anxiety.   I remember drinking Berroca and feeling so much better within hours of drinking it, on more than one occasion, before even understanding the link. I have just been told however that I can't take any more iron because my hemoglobin is on the high side.  It is a good thing my doctor was monitoring my supplementation as I gather too much iron can be dangerous.  Have you been told to supplement by your doctor?  If you are supplementing make sure you get your levels monitored. All the very best - and welcome to the forum!    
    • Weird Reaction
      Thank  you Flowerqueen and Cristiana for your replies. I'm actually feeling much better today. I got my appetite back yesterday lunchtime (a few hours after I typed the original post) and managed to keep in/hold down some chicken and lettuce!!! I also had a "fat" coffee (as I call it) before work with MCT Oil and butter (your probably going "yuk" right now but it's really nice...really haha) and started feeling a bit better after that. The nausea went away almost immediately after that although just the thought of having all that fat nearly made me sick but I just wanted to get back to normal asap. I usually have a lot of fat in my diet anyway which is normal for me so the coffee choice isn't unusual. Plus it was also the third day which was when I started feeling better after the first time. I didn't eat til lunchtime and I was good and hungry by then so I knew I was coming out of it. That nausea and trembling feeling is something I don't want ever again. I think after the workout and tearing down muscle tissue (which is a form of stress) and then not being able to hold the nutrients in for repair affected my nervous system. My theory only but to me it makes sense. Although Vitargo also comes in flavors I always get the Natural / Unflavored one so the barley is the only ingredient. As for there being something wrong with that particular batch, well, you be on to something there. Also I'm not knocking the product because as I said, I have used it before and it did exactly what it was supposed to do. But, I will never have it again. Cristiana, my last blood test revealed I had slight anaemia which really surprised me with the amount of red meat I've eaten during my life and the anxiety thing is also new as I'm usually a happy, positive person. Life is good but after this recent reaction I think it is an indirect cause of the glutening. I'm also surprised at how sensitive I've become to it and how quickly. Also what is DX? I also follow a FODMAP eating plan (I can give you more info if you haven't heard of it) which also eliminates certain foods. It's a plan directed mostly at IBS but is well worth looking into if you are suffering any gut health, digestion issues or any ailment you may have which you can't get to the bottom of. Broccoli was one of the foods which I have cut back on and I've eaten HUGE amounts of broccoli so it is a superfood for some but apparently not for others. (I even think I read somewhere it has MSG naturally in it) It's hard to find any bad articles on broccoli so this also really surprised me. It also answered a few other questions I had. Many, many thanks again to you both for your replies. It actually settled me just reading them. I'm glad I found these forums so I don't think i'll be a stranger around here for long.   Richard
    • Confused
      Okay, I get that you are not going to follow the advice from some stranger on the internet, but please read the links that I gave you.  Your doctor is not following the standard level of care.  I am dead serious.  I have Kaiser.  My own GP doesn't have a clue about celiac disease, but my Kaiser GI does.  Please, I urge you to get properly diagnosed.  All celiac testing requires you to be on a gluten diet.  If you go gluten free even for two weeks (it will take time to get the referral and appointment), it will mess up the tests.  Your GI will put you back on a gluten diet (called a gluten challenge) for 8 to 12 weeks.    Chances are (almost 100%) you will feel more miserable!  That will just delay your diagnosis.   Symptoms not bad you say?  I had pretty severe anemia, but no tummy issues.  Two months after my diagnosis, I fractured my back DOING NOTHING!  Yep, I have osteoporosis from undiagnosed celiac disease and I am an athlete!   Please take this seriously!    
    • Silent Celiac or Non-digestive symptoms
      Oh, you might learn how to tell if you had been glutened.  I just had anemia as my main symptom.  I did not have any tummy issues at all.  I was in shock when my doctor even suggested testing me for celiac disease!   Glutenings can vary as we are all different.  For some it is just a few days, others a few weeks and others months (that would be me).  My last official glutening as supported by follow-up antibody testing lasted for three months.  Guess what?  I had vomiting, abdominal pain, the works!  Funny how celiac disease can change and evolve over time.   Welcome to the forum!  Have some patience and learn all that you can.  The good news is that you can feel better and no medications are required!  
    • Confused
      Thank you for the information. I've been not sure if I should eat gluten or not right now. Dr. said I should watch what I eat when I emailed him the question. My symptoms aren't very bad (I understand that doesn't matter for celiac disease), so I can definitley tolerate the food. But I have been starving myself the last few days due to not knowing what the heck is going on. Thanks again.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
    • SLLRunner

      Week 4 of the gluten challenge- wheat cereal every morning, regular bread every day, and wheat tortillas for my lunch wraps. Right now, body aches that seem exercise related (weight lifting and running), even though I am doing the same intensity of weight lifting and running I've always done.  Just a few more weeks until my blood test. Counting down the days.
      · 0 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,478
    • Most Online
      1,763

    Newest Member
    Andrew Miller
    Joined