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Is Cancer Inevitable For Me?
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with the constant burden of leaky gut, parasites, bacterial overgrowth and food allergies should i just accept the fact that I will be getting cancer at some point in the next 10-15 years? my problems cant be corrected because nothing is working...i may feel better for a few months but i then relapse and all my symptoms return in full force. is it juts a matter of time?

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unfortunately the "c" word can strike anyone. i battle with that thought daily. i hope it doesn't. harder to do than say but being positive and optimistic can help your physical health tremendously. prayer, meditation, faith and hope are important too. just keep staying away from what you *know* makes you sick. try to sleep, exercise and find people/things/hobbies that make you happy regularly. that's all anyone can do really. best wishes. :)

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Nothing is inevitable - it's amazing what the human body can endure and survive and there are many people on this board who are a testament to that. From what I understand, there is a slightly elevated risk of cancer for celiacs but that's all. If you believe the worst will happen, you may miss out on the chance to make the most of all the time you have left, whether that's 15 years or 50. All you can do is take the best care of yourself that you can - and the rest is left to chance.

Sorry - this is a string of cliches! - but I'm sure other people will reassure you too.

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I went over 40 year mis- and undiagnosed. I am cancer free. Will it develop down the line either from being misdiagnosed, working with chemicals without gloves, smoking for so many years, a occasional drink or not drinking well who knows.

I will not spend time worrying about it. Now making a left hand turn in heavy traffic and getting broadsided that I will worry about. :D

I have a plaque in my kitchen that says:

"Worrying does not empty tomorrow of it's troubles,

It empties today of it's strength."

A very wise saying, just wish I knew who to credit for it.

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with the constant burden of leaky gut, parasites, bacterial overgrowth and food allergies should i just accept the fact that I will be getting cancer at some point in the next 10-15 years? my problems cant be corrected because nothing is working...i may feel better for a few months but i then relapse and all my symptoms return in full force. is it juts a matter of time?

Awe I just want to give you a great big hug. I wish there was a hugging emoticon.

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is this risk elevated for celiacs who continue to consume gluten or people w/ celiac in general?

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For starters, no you are not guaranteed cancer. Celiac related cancer is very rare and I am not aware of any cancer risk associated with infections or allergies. Risk is only elevated in celiacs who continue to consume gluten.

That said, I am concerned about your state of mind. You sound very stressed out and very worried. Is there a possibility that your relapse has made you depressed? (Remember, our minds and bodies are linked and when one is not working right, the other often follows.)

You could try a test like the Hamilton Depression Scale. If you come up depressed, you might want to seek some help coping while you get through this round of GI trouble.

http://www.real-depression-help.com/hamilton-depression-scale.html

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with the constant burden of leaky gut, parasites, bacterial overgrowth and food allergies should i just accept the fact that I will be getting cancer at some point in the next 10-15 years? my problems cant be corrected because nothing is working...i may feel better for a few months but i then relapse and all my symptoms return in full force. is it juts a matter of time?

I sure hope not! You were a lot younger than I was, when you were diagnosed with celiac and started the gluten free diet. However, I've had about as many gut bug infections as you had. I also have obvious leaky gut symptoms (very sensitive to sorbitol, 7 food allergies, etc.). Nevertheless, I focus on how much healthier I am and will be in the future, because I've dealt with all those problems, rather than accepting the 'ibs' misdiagnosis and letting those things go untreated.

I also get the same kind of symptoms (gastrointestinal pain, bloating and irregularity) whether I have a bacteria, parasite or fungus, whether I accidentally eat an allergen or whether I just react to one of my sensitivities (like sorbitol in prunes or other dried fruit). I consider myself lucky to have obvious though painful symptoms, rather than have other somatic symptoms like joint pain, headaches, fatigue, etc., which docs readily misdiagnose as autoimmune conditions, for which they quickly prescribe drugs to treat the symptoms, rather than eliminating the cause. I've also learned to only see my naturopath for gut problems, but leave the broken bones, ob/gyn exams, etc. to my traditional doc. Ultimately we can be our own health advocate with how we live as well as how we treat our symptoms.

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Jason, you asked, "Is cancer inevitable for me?"

I don't really know. How many packs a day do you smoke? Oh, wait, not every smoker develops lung cancer.

A celiac who continues to eat gluten is at a higher risk for certain types of cancer. Higher risk does not equate to a guarantee.

A celiac who follows a strict gluten-free diet is at no greater risk for cancer than a non-celiac in the long term.

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It's not inevitable for anyone and I think you are depressed if you're thinking this way. That's not a normal or healthy thought process to be going through.

The body just keeps on kicking against tremendous odds. My mother is diabetic but eats sugar like it's going out of style and weighs about 350 pounds. She's still going and has never had cancer. Lots and lots of other health issues and you'd think she wouldn't even be alive but here she is.

My old boyfriend's mother was a raging alcoholic and chain smoker. She put vodka in her coffee, I'm not kidding. She would then drink all day long, hard alcohol and smoke all those cigarettes. Every year when she went for her physical the doc would say how healthy she was. My boyfriend would get so mad because he hoped there would be something wrong to kick her in the butt and get her to stop all the drinking.

Of course it's not inevitable. Stop thinking about it and enjoy your new girlfriend.

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OK Jason, it's time for an intervention. Now I say this with care and concern, but YOU HAVE GOT TO GET SOME PROFESSIONAL HELP NOW. This is interfering with every part of your life. You're in a place where you can't see the forest for the trees. People here are really trying to help, but you can only see why the advice won't work.

You've got to spend the energy you currently spend "awfulizing" everything into therapy. Please, don't come up with all the reasons you can't or won't go. Just do it. If you haven't realized by now that this endless worrying is affecting your health, consider yourself told.

Go. Get. Help. Now.

It's time to do this for yourself.

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Jason, even the CDC agress that 85% of diseases are based on emotion. Meaning negative thoughts and behaviors will lead to disease. I suggest you do whatever it is you need to do to get in a better frame of mind. That's one of the best ways to fight ever getting it.

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I know it's very easy to be down and feel this way Jason but if I think of all the bad things, I'll miss out on the good things. I'm grateful for each day I get to live my life, despite the celiac and my other health problems. I think it's important to have a support system. It helps me also that I have a daughter who has multiple food allergies(though most of the time I'm sad about her as well). I tell myself that I have to be strong for her(and for me), that no one else is going to take care of her, she depends on me. I know my faith in God has helped me also. And most of all I believe in miracles.

Please try and talk to a counselor, get some help, nothing wrong with that. Sometimes we just need a little push. Please do what you need to find some joy in living again. I don't believe in reincarnation so for me, it's best to live this one life we've been given to the fullest, no matter what our lot in life is.

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I'm no expert but I think I read that the risk returns to normal after five years gluten free - that is, it is untreated coeliac disease/eating gluten which carries the slightly higher risk.

That said, I would expect someone with coeliac disease who knowingly continues to eat gluten to also be neglecting their health and lifestyle in other ways which might also affect well-being.

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Sorry Jason, I should've posted that further up. Another brain mush day. Sigh.

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Awe I just want to give you a great big hug. I wish there was a hugging emoticon.

I have been told by doctors that I should not be alive but, I am still here. With all the seven disorders and illnesses I have, I was told most people do not make it to their 50th birday. I am 57 years old now and still here. Yes, my weight is way down low at the bottom but, I am still here and alive. I have beaten the odds and lived when the government doctors expected to me die.

All I can say is live each day until you die however long that takes.

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    • I just now saw the second reply and I see what you mean. Again, the issue is that I may have to go with the gluten until close to the end of the year.

      However, an idea did just come to mind, and that is, can my primary care doctor do such a test? I had normal blood work done, but they didn't really say anything about testing for celiacs. I can get an appointment with my primary care doctor much sooner than a GI.

      When I was talking to my PCP last, I asked her what I should expect as far as testing goes or what she may have been concerned about. Her reply was about a HIDA scan for the gallbladder but also any test needed in case of IBS or Celiacs. Just the way she threw that in there like an after thought and left me hanging kinda had me worried.
    • I am not a doctor that's for sure.  So, I can't even answer your questions.  If you know you have pre-diabetes, you probably are working with a doctor.  Can you email them and ask for a celiac blood panel?   You can work on the weight loss and diabetes -- that you can handle yourself now and take action.  I have diabetes and my glucose readings are fairly normal now without medication and I'm thin.  Being overweight does not cause diabetes.  It's either autoimmune (type 1) or you become insulin resistant (type 2).  You can cut out all sugar and  processed stuff ASAP to help take action and start walking 10,000 steps (helps with the insulin resistance).    But the prediabetes is not going to kill you in the next year.  Whatever's in your gut is more likely going to get you much sooner.  But heck, I'm not a doctor and I don't even know you!    
    • Hi Steph, Yes, celiac disease can cause a myriad of symptoms and damage to the body,  Have you completed all celiac disease testing?  Usually they do the blood antibodies test first and then do an endoscopy.   You shouldn't go gluten-free until all testing is completed. Gluten is in many processed foods.  But if you stick with whole foods it is not hard to avoid gluten.  Getting used to eating gluten-free may take some time, as we need to adjust our preferences in diet.  But there are many foods that are naturally gluten-free.  Gluten is the protein found in wheat, rye and barley.  Some celiac disease organizations recommend avoiding oats also for the first 18 months of the gluten-free diet. Celiac disease impairs the ability of the body to absorb nutrients (including vitamins).  That can make it hard for the body to maintain itself and heal/repair damage.  So celiac can easily impact any part of the body. Sardines, tuna, mackeral and salmon have good amounts of vitamin D in them.  There are supplements available also, but not all are good.  You can check them at the labdoor website.  Nature Made is a good one and not expensive.  Internal damage from celiac can cause liver issues.  Those will probably clear up after being on the gluten-free diet a while. Recovery from celiac can take  months, and can be a rocky road.  The more you stick with whole foods and avoid cross-contamination issues the sooner you will heal IMHO. You may find that dairy causes problems for your digestion at first.  But it make stop being a problem after you have healed up some. welcome to the forum!
    • Will this be dangerous considering how long I have to wait for any testing? I may not even get a blood test in November but here is hoping. I just worry having to wait so long will cause serious issues, not to mention delay of weight loss which I need for the pre-diabetes. Do ulcers have a chance to cause yellow stools though? I suppose a stool test will be needed for that for any signs of blood in stools but visually it does not seem so. The biggest issue is not knowing what else could be causing the yellow stools as this would not be a diabetic or ulcer thing. And without negative signs on the gallbladder or liver, it is narrowing down the list.

      At the very least this is making me assume I can wait on a final scan of gallbladder and attempt blood tests and endoscopy if they recommend it.
    • The first step is getting a celiac blood panel.   Any medical doctor can order one.  Live near Chicago?  They are do free screenings this month (check their website).  The cost is less than $400 for the complete panel.  If you get a positive on any one of them, then you should be referred to a GI for an endoscopy to obtain intestinal biopsies.   Here's more information from a reliable source and not just some lady on the internet: http://www.cureceliacdisease.org/screening/ Having had my gallbladder removed (probably ruined from undiagnosed celiac disease, but I don't know that for sure), I would recommend a HIDA scan.  I have no idea how expensive that one is.  It's a nuclear test that checks for functionality.  Basically, is your gallbladder squeezing bile into your small intestines when those fries or bacon come down the tube.  Mine happened to actually be rotting (infected).  ER suspected appendicitis, but it was a rotten gallbladder.  I never had any stones (that's what the CT or the ultrasound can find).  I am sorry that you are ill.  Keep eating gluten until all testing is complete.  This is important.  Go gluten free now?  Here's why you shouldn't..... http://theceliacmd.com/2013/04/six-reasons-to-test-for-celiac-disease-before-starting-a-gluten-free-diet/  
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