Well I Finally Did It
Posted 27 August 2010 - 11:42 PM
July 2010 - Blood and biopsy -ve, went gluten free after testing which completely relieved symptoms
July 2011 - 1 year gluten free, food intolerances (Chicken, eggs, olives, goat milk) gone!
2012 - Soy no longer a problem
Posted 28 August 2010 - 02:58 AM
"I will try again tommorrow" (Mary Anne Radmacher)
celiac 49 years - Misdiagnosed for 45
Blood tested and repeatedly negative
Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002
Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis
All bold resoved or went into remission with proper diagnosis of Celiac November 2002
Some residual nerve damage remains as of 2006- this has continued to resolve after eliminating soy in 2007
Mother died of celiac related cancer at 56
Twin brother died as a result of autoimmune liver destruction at age 15
Children 2 with Ulcers, GERD, Depression, , 1 with DH, 1 with severe growth stunting (male adult 5 feet)both finally diagnosed Celiac through blood testing and 1 with endo 6 months after Mom
Positive to Soy and Casien also Aug 2007
Gluten Sensitivity Gene Test Aug 2007
HLA-DQB1 Molecular analysis, Allele 1 0303
HLA-DQB1 Molecular analysis, Allele 2 0303
Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)
Posted 28 August 2010 - 05:48 AM
I now hit In-And-Out Burger frequently to get their protein style burger and dedicated fryer french friend. As far as sit down places are concerned, I'm in love with Outback Steakhouse. They have a special menu, and seemed to know their stuff!
Isn't it exciting to feel a little bit "normal"? Congrats!
July, 2010: Diagnosed with Celiac Disease via elimination diet and strong Lactose Intolerance via blood work. My symptoms of glutening include 1. extreme abdominal distention, 2. severe abdominal pain, 3. gas, 4. mood swings/generally negative and unpleasant to be around!
Posted 28 August 2010 - 10:09 AM
Posted 28 August 2010 - 05:51 PM
I'm glad good things are coming back at you.
Posted 28 August 2010 - 06:09 PM
Ravenwoodglass, your posts have made a big difference to me. And I'm sure that's true for many people on this board. You often have just the right thing to say - sometimes comforting, and other times honest (when that's needed). I think that often the people who have struggled the most are the most qualified to support others on similar journeys.
I'm glad good things are coming back at you.
Yes, what lucia said! Very true.
I went to Olive Garden for my dad's birthday the other night. They have a gluten-free menu, and our server was great. i asked him about cross contamination. He asked how bad my "allergy" was, and when I told him that any gluten would "ravage my intestine," he was extremely helpful and reassuring! I think I may have to keep using that phrase... And I did appear to come out unscathed, as well.
GI quote: profound atrophy of the villous.
Scared me to death. Still very new at this.
Posted 29 August 2010 - 03:43 PM
There is hope! Gluten-free since Sept. '09, and I have my life back - I feel better than in many, many years!
Favorite quotation: "You must do the thing you think you cannot do." - Eleanor Roosevelt
Posted 29 August 2010 - 05:13 PM
We went to PF Changs last night and it was so good and yummy! Totally without fear of being glutened and had a great time with friends. Just like before diagnosis!
Doing the happy dance for you and your family!!
Diagnosed with Celiac Disease April 2010. After endoscopy doc said "Aren't you glad?"
DD #1 ('99) tested negative on bloodwork but positive on 2 genetic markers. Went gluten free in July 2010 and has been symptom-free ever since!
DD #2 ('98) tested negative and has no symptoms. Didn't fork out money for genetic testing. Will watch and test regularly.
Husband tested positive in July 2010 and has refused to go gluten free. Uh huh, that's gonna bite him in the a** one day! (Pun intended!)
Posted 29 August 2010 - 06:32 PM
Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.
Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, and hard work. have a good day! :-) Paul
Posted 29 August 2010 - 07:00 PM
Posted 01 September 2010 - 04:53 AM
Gluten-free (Nov. 2008), dairy-free (June 2009), soy-free (Aug. 2009), all-grains-and-grasses-but-rice-free (Nov. 2011); double HLA-DQ7
"'Always remember, Bilbo, when your heart wants lifting, think of pleasant things.' 'Eggs, bacon, a good full pipe, my garden at twilight....'" (The Hobbit, animated movie, 1977)
Posted 04 September 2010 - 11:09 PM
I am very sensitive. Got glutened from kissing once. Got glutened from running my fingers through my hair and then eating crackers without washing hands first when I had wheat conditioner in my hair.
But I eat out a lot. Many times per week. And I've only gotten glutened at a restaurant once. I call ahead when I can. Tell them what I can't have and remind them about CC.
It is possible!! I'm so thrilled for you.
Had GI symptoms, allergy symptoms and unexplained illness my whole life.
Jan. 2010 Diagnosed celiac at the age of 40.
Ready to get well and get on with my life!
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