Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

  • Announcements

    • admin

      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.

Night Sweats
0

Do you have night sweats?   132 members have voted

  1. 1. Do you have night sweats?

    • Yes, all the time.
      79
    • Only when glutened.
      38
    • No.
      15

Please sign in or register to vote in this poll.

147 posts in this topic

I'm just wondering how many people have night sweats. I have them mildly every night (only since Celiac's began). they have gotten better since going gluten-free (when I get golutened, I literally soak the bed). I'm wondering if they go away eventually or if there's a supplement I should be taking that might help. I'm only 38 and my doctor assures me it's not menopause.

0

Share this post


Link to post
Share on other sites


Ads by Google:

Berneses,

Have you had your cholesterol checked? When my daughter was younger (30's)

she had them and got tested and found her cholesterol was elevated, she changed her diet and her numbers dropped.

0

Share this post


Link to post
Share on other sites

No- I'm actually having it checked this week. That's good to know. Thanks!

0

Share this post


Link to post
Share on other sites

I used to get them so bad I had to put a plastic cover on my mattress and would wake up in a puddle of sweat an inch or more deep :blink: . Since going gluten-free I haven't had them at all except for one time I got glutened.

0

Share this post


Link to post
Share on other sites

Yes!Before going gluten-free my hubbie used to get them terrible!

He would have to get up and change his t-shirt and put a towel on the mattress to lay on.Since going gluten-free it's only happened a couple of times,nowhere near as bad though.

0

Share this post


Link to post
Share on other sites




I got them ALL the time before I was diagnosed. Since being gluten-free (1 1/2 years) I do not get night sweats anymore. ;)

0

Share this post


Link to post
Share on other sites

Thanks Everyone- it helps to know all this! Beverly

0

Share this post


Link to post
Share on other sites

A couple of years ago I got them every once in a while...But I never connected them to being Glutened!

However, looking back that was probably the reason.

Good topic Berneses!

0

Share this post


Link to post
Share on other sites

Thanks! I get them so bad when glutened but I also get them mildly on a regualr basis and I'm just trying to figure it all out!

0

Share this post


Link to post
Share on other sites

I have them all the time. Bloodwork shows that my hormone levels are changing with perimenopause, so that is what causes mine.

0

Share this post


Link to post
Share on other sites

Hugh, that's interesting... I've never had full-blown sweats perhaps, but I always get hot at night, while my husband is on the other side with a heated blanket. I don't get hot during the day though...its weird.

0

Share this post


Link to post
Share on other sites
I'm just wondering how many people have night sweats. I have them mildly every night (only since Celiac's began). they have gotten better since going gluten-free (when I get golutened, I literally soak the bed). I'm wondering if they go away eventually or if there's a supplement I should be taking that might help. I'm only 38 and my doctor assures me it's not menopause.

Please see your gyno, I started perimenopause at about your age and by 41 my periods had stopped. I was told it (the peri) was 'in my head', just like my IBS, fibromyalgia and incontinence. Everything has resolved in the 2 years since diagnosis and my gyno told me he sees signs my periods may start again. (at 48!) Stay gluten-free and talk to your doctor.

0

Share this post


Link to post
Share on other sites

Thanks- that's good to know as I'm 37 and haven't had kids yet. But lately, I've noticed something interesting. I've been house sitiing for the last three weeks and they have much lighter bedding (I have a light down comforter at home but maybe it's too much- I used to be cold ALL the time before I went gluten-free) and I haven't been sweating so I think it's time to buy some new bedding and see what happens. But you're right, I should see my gynecologist because I don't want to find myself in a situation where I CAN"T have kids. What exactly did you experience during perimenpause? You can email me anytime.

0

Share this post


Link to post
Share on other sites

Yes, before going gluten-free and now when glutened.

0

Share this post


Link to post
Share on other sites

Ummm, this is very interesting. I went through a bad spell of sweating during the day and night that ended about a week ago. I never put it down to gluten though. I am only 8 months off a one year taper off of a 25 year use of antidepressants and benzodiazapines, and 55 years old, so didn't know if it was benzo w/d or menopause. Who knows. But I will surely keep track of my gluten intake and watch the sweating thing. I also have horrible problems with insomnia, and have for years, and never put it down to gluten either. I live in Northern Canada, and have a terrible time finding gluten-free products, have to stick pretty much to meat and potatoes. It seems that gluten is in everything.

On the subject of withdrawing from benzos. For any of you out there who are using Ativan or any other benzo for sleep, PLEASE PLEASE, be careful. They are so very addictive, and the w/d is hell on earth. I will never touch another one as long as I live. They almost cost me my life.

Deb

0

Share this post


Link to post
Share on other sites
<_< I live with hot flashes and night sweats. They went away for a while, however, are back with a vengence, worse than before.
0

Share this post


Link to post
Share on other sites

Marshlakemom- Yep, I recently cut down on a benzo and at first it wasn't so bad but then I got to a certain dosage and I cut down just .25 mg and had horrible muscle spasms through my entire body so i stopped cutting down for now. They do their job, but getting off is next to impossible.

0

Share this post


Link to post
Share on other sites

I've had night sweats as long as I can remember (probably had celiac disease too, but wasn't diagnosed) It doesn't really bother me as much because I'm used to it, but my husband won't let me get near him when I sleep because he says I'm too hot. In fact he says he can tell when I'm starting to fall asleep because I "pre-heat" :lol: The weird thing is the only other person I've talked to with the same issue is my mom. She refuses to get tested but I really think she should. (She has multiple celiac disease symptoms). I guess my dad has the same complaints about her when she sleeps.

0

Share this post


Link to post
Share on other sites

Sounds familiar- my husband can suck the curtains off the windows with his snoring (his whole family- try going away with them for aweekend! :blink: ) but he usually comes to bed later than me and for some reason his snoring doesn't bother me. But he says that when he climbs into bed he can literally feel the heat coming off me.

It's been much better lately since I lightened up the blankets and keep the fan on me. My doctor says I'm OK (saw her Friday) just sometimes as we get older our temperatures start fluctuating. It's only perimenopause if there are other symptoms like changes in menstrual cycle, mood swings, hot flashes during the day, etc and now that it seems to be subsiding, I'm less concerned.

0

Share this post


Link to post
Share on other sites

BERNESES - I had the same problem. It was my THYROID out of wack from being sick to other things. Now I know can't do corn, potatoes, or rice. Took 4 years to find out and did majr damage to colon and etc.

BERNESES have your THYROID LEVELS checked. You might be suprised...

0

Share this post


Link to post
Share on other sites

Oh my gosh! You have been through so much. You are surely a strong person.

Thanks for the advice. I did have my thyroid checked and it was fine. My primary care just sid sometimes we go through periods where we are hotter at night than others and actually, it's stopped (except when glutened). Thank God! It was pretty horrible for awhile there. Thanks, B

0

Share this post


Link to post
Share on other sites

Hi Everybody

My sweats are just awful, they come during the day as well. This has been going on now for about 6 weeks, and it is driving me nutso. I went through a entire year tapering off of benzodiapines, and thought I was through the worst of it. I went through absolute hell, thought I was going to die. If any of you are any sort of benzo, please consider getting off by doing a very slow taper. You will hit tolerance to it eventually, and that is a real nightmare. That is what happened to me. Then I HAD to start a taper. My benzo forum tells me the sweating is quite common in post benzo tapering, but I am also wondering if it is a mixture of benzo w/drawal, gluten or maybe the horrible MENOPAUSE. I thought I had gone through menopause, but now I am wondering if maybe I was just in perimenopause. Took HRT for several years, and I don't remember having these horrible sweats. I had a hysterectomny years ago, so can't use my menstual cycle as a guide to perhaps my entering into menopause. Think I will just keep it a a bit more time and see where this takes me. I have been very diligent in watching my gluten intake for about three weeks now, so don't really think it is gluten. My insomnia has been a problem for me for over twenty years, and see no improvement in it at all. I sometimes get absolutely zero sleep for days on end, and most nights I will get maybe 3 hours intermitently.

Any opinions anybody.

Deborah

0

Share this post


Link to post
Share on other sites

Deborah- You should talk to your primary. There are plenty of good sleep meds you can take that are not benzos. I took one (let me think- I've been on so much crap I can't remember the name)- Ahh... trazodone was it and it worked well. Some of the newer ones like Ambien and Lunestra are supposed to be good too. You NEED sleep! Really.

Ms SillyYak Screwed- Just had my thyroid levels checked again on Tuesday as I'm still getting sick and have had my period three times in the last six weeks. Ugh! PMS times 3. Just what I need! I'll keep you posted. Thanks for all the advice, Beverly

0

Share this post


Link to post
Share on other sites

Yeah....I got crazy night sweats all the time. I would wake up totally soaked, hair, clothes, sheets, pillows...everything. It was like someone poured a bucket of water on me. It hardly happens now that I changed my diet. I don't know if I have celiac disease yet but the night sweats return the same time other symptoms return...probably when I've had gluten. I sometimes get numbness in my hands, arms and feet along with the night sweats. It sucks to wake up and have to change clothes all the time :angry: .

-Rachel

0

Share this post


Link to post
Share on other sites

I believe there is a very strong link between having gyno hormones and thyroid hormone working properly.

I was given a double dose of HRT by accident by my gyno doc. It threw my body in to major shock.

I stopped HRT at the same time I developed Celiac and as a result my thyroid problem now. I eat strict gluten & dairy free for 4 years (I'm so intolerent I have seizures) However, I did eat CORN, RICE and POTATOES okay. Then with major stress bla bla bla stressed me out totally. I thought I was doing okay then out of nowhere B-A-M! It came back and hit with a vengence this time. No more CORN, RICE and POTATOES. I'll really miss you... Bye Bye! Since, I have developed more and more food allergies with time. I wonder how I can thrive?

Is it only :angry: woman, or are :blink: men :wacko: experiencing the night sweats problems? :huh:

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      103,367
    • Total Posts
      917,516
  • Topics

  • Posts

    • TTg IAG > 100 but also Hasimoto's
      Thanks for pointing all that out Gemini! I look forward to finally getting off gluten for good to see how much everything changes.  I never thought about the absorption of my synthroid with all my other issues.  I just see my primary dr. for all my thyroid, perhaps I will ask for a referral to an endo dr for further evaluation and treatment.  Thanks for all the information! 
    • Gluten And Vertigo
      Christiana, I just felt to look at the site. I thought I had clicked to get email alerts. But, actually my email has been 'fritzing' sort of.  Thank you for your note. It is important for my diagnosis. I was diagnosed with chondritis of the collar bone a few months before the fall that resulted in the immobile right arm. The osteo surgeon gave me a cortosol shot that helped a lot. That MRI showed a rotator cuff tear nearly 2/3 thru the strip of tissue that connects the muscle tissue to the bone and makes the shoulder 'rotate' in place.  That was almost a year ago now. I have been learning to be very very mindful about how I use that arm, when I reach, carefully, how I rest it and sleep position. Interesting that I did see a search answer that said ' they are saying now that there could be a connection btn rotator cuff tear and inflammed collar bone. My primary doctor also said I could have an inflammed chest wall that resulted in the chondritis. I remembered that word from a child's diagnosis years ago. That was in his knees and was treated by this same osteo surgeon, by casting the legs over summer holiday, which ended in healed x-rays. That was osteo chondritis desicans. He said then, 'if it is horses, we would have to shoot them.'  I tried to get a blood test three weeks ago for the same antibody we were treating that child with thru his then pediatritian, for rheumatoid antibodies/ recurring strep throat. I had gotten a 'sort of' diagnosis, or agreement from that primary care doctor, allowing me to get the recommended antibiotics (one of the few treatments that it is allowed, because of the need to keep the hearing). But, his new nurse did not relay the request properly. I hate doctor office politics. I hope this newbie is not going to mess with this doctor's little family as well. Last month when researching Meniere's one of the things listed about it was that autoimmune disease is connected to it also. I was hurt before the falls and the inflammation and the collar bone chondritis and the rotator cuff tear. I was very very concerned about it setting off some kind of autoimmune inflammation reaction or worse that can happen when tissue cells are being repaired rapidly and it felt like lots of toxins were being cleansed and processed over a period of many months. The only similar feeling I have ever experienced was when I had a 'deep tissue massage' to release and cleanse a cortisol 'hump' I had after a prolonged period of high family stress situation. Right now, my primary (an O.D. , or osteopath) is working with me. There are two ENTs in this area he offered for Meniere's and has given me Physical Therapy at his complex for Balance Therapy. It is great that that therapist has a MIL that is also dealing with Meniere's and getting exercises from a major hospital complex in the city. I was able to give her some celiac's diagnosis information. Sounded like her MIL and her son were likely to be candidates.  I did not know what the definition was of the term 'vestibular' as in vestibular migraine, another connection to Meniere's. I just typed www.bing.com and then typed 'definition of vestibular.' That had information about the connections btn hearing and sitting positions. I will look up costochondritis. Thank you, again. Best wishes, Anne
    • What Are Your Brands & Flavors Of Gluten Free Ice Cream ?
      I don't worry about the same facility, but I check if it is on the same lines. I think it is usually a good idea to find out if things are made on shared lines. And if they are made on the same line as gluten-containing products how good is the cleaning in between? Chocolate is a good example of this. For example, I contacted a company whose chocolate I used to eat before being diagnosed and they outright told me they are not good about cleaning on shared lines and it is not safe for allergies or celiac. I have had this response from other companies as well (especially when it comes to chocolate sadly). I think this is why Godiva is not safe. Its just a good idea to check.
    • TRUSTING OTHERS about GLUTEN! how do you know if someone has used gluten free flour?
      Wow you all have more balls than I do. I've been gluten free since 2007 and I'm still afraid of offending people. It gives me lots of troubles, really. I'm more like rockstarkate I guess...the "people pleasing" aspect.  I love how you all just have the flat out rule I Will Not Eat It Unless I or a Celiac Made it. (Or a trusted family member).  I still simper and grovel and cringe and apologetically turn things away.  People still put dishes in my face and say "This should be gluten free..."  and I have to awkwardly not eat it and then seem rude.  I've done the whole...checking the bottles thing too.  I do try to dart out of things more though now. I volunteered in other countries in recent years and I felt as vulnerable as all heck, having to rely on them to make food, as well as definitely feeling like I offended people who didn't get it at all. I was feeling brave when I signed up for those but after the second time I was like okay, the fear/anxiety/stress about the food is too much. I managed to dodge out of getting sick, and for the most part people humored me...but it was pretty difficult because I don't like offending people, especially other cultures, with them trying to be nice and make food for me...pretty sure I did offend people as well as annoy many others.  Anyway...no OP, you are not alone. For sure I have trust issues eating other people's food. They say they know but I do truly doubt they are as strict as I would be.   A few times I will still brave eating something...like some little mozzarella balls with vinegar...though, I did still look at the labels.  Someone had to give me a persuasive speech and show me all ingredients (just salt and pepper) after making me chicken wings once. I do tell people, basically, NOT to make me stuff. But they still do.  Another time a friend had worked really hard and was having a terrible time and offered me a burger patty when I arrived, assuring me it was gluten free. I knew I hadn't been there to watch whether she used the "bun spatula" on it or not...but I just didn't feel like giving her a fight about it since she was having a rough time and hosts like to feel they are feeding guests, blah blah. So I ate it. And got glutened. And wailed and gnashed my teeth haha. Lesson learned.  I need to stick to my guns more. I just always feel like I'm being too "difficult" as it is. But...sigh.  It is refreshing for me to read these empowered no BS responses though. You all remind me of where I'm coming from, and not that I'm just being some kind of high maintenance, rude, crazy person. You'd think after, what, nine years now, I wouldn't still be bothered by it...
    • Mashed potato soup during healing
      I was on pretty much a liquid diet for 8 months waiting for my nausea to go away completely. I mostly had mashed potato soup, 1/2 fat ice cream (mostly whey, not milk), chocolate drink (no added milk) and gummy vitamins. The soup tasted yummy and I'm still alive so I figured I'd share it for people not feeling well in the beginning. I've been noticing people with alot of trouble keeping food down in recent posts. I couldn't have milk or eggs, but the cheese in the recipe didn't bother me at all. Notice the lack of spices. Makes it easy on the stomach.   Mashed potato soup: Boiled yukon gold potatoes (5lb bag) 1 package cauliflower, steamed 4-6 slices of Land O'Lakes white American cheese 4 tablespoons butter salt 16 cups homemade chicken broth, salted   Chop steamed cauliflower into teensy bits (pureed is better). Put in mixer with butter, cheese and a potato or two. Blend while slowly adding potatoes. Keep whipping for a few minutes to insure the cauliflower and potatoes are not lumpy at all. Salt to taste.   Combine 1/2 cup mashed potatoes to 1 cup salted chicken broth. Mix with spoon until mashed potatoes have completely dissolved. Enjoy. Individual servings can be frozen.   Homemade chicken broth: makes 8 - 10 cups of broth   1 organic chicken (regular chickens are too big) 1 stalk celery 1 carrot 1 large bay leaf 1/2 package fresh thyme from the  herb section of the vegetables area   Put all ingredients in pressure cooker along with 1.5 liters water. Bring to pressure. Cook for 35 minutes. Separate broth from solids. Separate broth from fat. Add ridiculous quantities of salt until it tastes like soup. Sorry I use a salt grinder so I don't have precise salt quantities.    
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

    • Larry Gessner  »  cyclinglady

      Hi There, I don't know if there is a place for videos in the forum. I just watched "The Truth About Gluten" I think it is a good video. I would like to share it somewhere but don't know where it should go. Any help would be greatly appreciated.
      Here is the link if you have never watched it.
      https://youtu.be/IU6jVEwpjnE Thank You,
      Larry
      · 2 replies
    • ChiaChick  »  Peaceflower

      Hi Peaceflower, Just wanted to say thank you for the chat.
      · 0 replies
    • ukuleleerika

      Hello! I am new to this Celiac website... Is there anyone out there with Celiac AND extensive food allergies? My allergies include shellfish, dairy, eggs, cantaloupe, kiwi, mango, nuts, oranges, red dye, and more I can't think of. I went to the allergist about a year ago to see why I wasn't feeling well, and once everything was eliminated, I still didn't feel well. We did more testing to find out I had celiac as well as allergies to cattle as well as rye grass (I live on a farm basically). This was back in January 2016. I recently had my endoscopy with the gastroenterologist a week ago. I have no idea what to do or what to eat... So fish and potatoes for me!
      · 2 replies
  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      60,513
    • Most Online
      1,763

    Newest Member
    ajrosales
    Joined