Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Night Sweats


Guest BERNESES

Do you have night sweats?  

143 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

nikki-uk Enthusiast

It's not just the ladies that get the night sweats! ;)

Pre-diagnosis my dh suffered terrible from these,they were bad-he used to have to get up and change and put a towel down on the bed.Soggy pillows-the works.

Only gets them occasionally now.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 151
  • Created
  • Last Reply
ms-sillyak-screwed Enthusiast
It's not just the ladies that get the night sweats! ;)

Pre-diagnosis my dh suffered terrible from these,they were bad-he used to have to get up and change and put a towel down on the bed.Soggy pillows-the works.

Only gets them occasionally now.

<{POST_SNAPBACK}>

What is dh? :o

Link to comment
Share on other sites
nikki-uk Enthusiast

Husband! ;)

Link to comment
Share on other sites
misskris Apprentice
It's only perimenopause if there are other symptoms like changes in menstrual cycle, mood swings, hot flashes during the day, etc and now that it seems to be subsiding, I'm less concerned.

<{POST_SNAPBACK}>

Well now I'm frightened. I'm 23 and have all these problems. I knew it was hormonal, but just figured it was kinda normal.

Link to comment
Share on other sites
Rachel--24 Collaborator

Kris,

All these symptoms can be caused by an overactive thyroid as well. I had all those sypmtoms due to thyroid issues.

-Rachel

Link to comment
Share on other sites
  • 2 weeks later...
jknnej Collaborator

I'm 29 and lately I've been getting night sweats a LOT. It sucks cus' after I wake up I'm freezing cold while the sweat condenses off my body. I have to get up and change and then the bed is all wet-ick!!

I never really had this before except sometimes during the winter when I wore too much to bed and had a huge blanket on me.

It's hot in Phoenix but cool in our house and i only sleep in shorts a tshirt and there's a fan blowing on me.

I don't get why I'm getting this but it is very annoying.

Link to comment
Share on other sites
thomas3000 Rookie

Parasitic infections cause night sweats. What other symptoms do you have?

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest BERNESES

general Celiac symptoms- I was tested for parasites when this whole thing began and nothing showed up. They seem to have let up quite a bit but I have an appointment with my primary tomorrow and my OB?GYN Friday (lucky me!). Beverly

Link to comment
Share on other sites
  • 1 month later...
Guest BERNESES

I have been having the same thing since I developed the Celiac symptoms. I go through bouts where I am freezing during the day (I'm pretty sure it's when I get gluten in my system) and sweat horribly at night. last night I woke up three times to change my shirt then finally had to change the sheets. I've had my thyroid tested multiple times and it always comes back fine. It has improved since I went gluten-free but it still happens so I'm trying to see if there's a pattern to it. Lactose maybe? I don't know. I think I need to be tested for more allergies/intolerances. Hang in there and talk to your doctor- the squeaky wheel gets the grease! Best, Beverly

Link to comment
Share on other sites
  • 2 weeks later...
outlier Newbie

Since 1993 when I was "inexplicably" sick. I've obviously had celiac ever since, but only got diagnosed two years ago.

I from excessive covers to stay warm to sleeping on top of the covers and then back under several times a night.

It is wholly unrelated to whether I get gluten or not.

Link to comment
Share on other sites
sonjaf Rookie

WOW! I think this is the most interesting post I have read so far about celiac disease. I am so surprised that this seems to be a trend with everyone. I never connected it. I started getting hot flashes about 5 years ago, and thought it was because I had gained weight after having my kids. I have them during the day mostly, but I have woken up at night recently (to go to the potty) and I felt I was burning up. Sure enough, I took my temperature, and I had a fever. I didn't feel cold like you do when you are sick and have a fever. I think my blood pressure might have been high. I suggest having it checked too if you are experiencing hot flashes. It's one of those overlooked things... that's why they call high blood pressure the slient killer. :ph34r:

Sonja

Link to comment
Share on other sites
FaithInScienceToo Contributor
I sometimes get numbness in my hands, arms and feet along with the night sweats. It sucks to wake up and have to change clothes all the time  :angry: .

-Rachel

<{POST_SNAPBACK}>

So do I...

I am 48, though, and have thought that the night sweats were just part of what to expect now...

Anyone try a soy supplement yet?

I am thinking of trying Revival.

I think I am perpetually dehydrated now, too, due to the night sweats -

I wake in a pool of water - I have even put a waterproof liner under my sheets to protect my new tempurpedic mattress.

I will have to get my thyroid checked, leave the down comfortor off, and not use valium...I hardly ever use it, but I do take only 4 mg now and then for sleep...

I will have to read up on the benzos...

Thanks to all for sharing.

I purposefully avoided reading this thread before, but finally decided that I need to do something about the sweats - my boyfriend stayed over last night, and I woke in 'the pool' two times...it's not only draining on me, but disruptive for him, too...

Gina

Link to comment
Share on other sites
ms-sillyak-screwed Enthusiast
Anyone try a soy supplement yet?

<{POST_SNAPBACK}>

Soy is a huge problem for me. My hair falls out in gobbs.

Soy is bad for people with Thyroid problems. It's in the legume family.

Big NO NO!

Link to comment
Share on other sites
NYCEthan Newbie

I find that since I came down with Celiac, alcohol causes me to have nightsweats. If I have just one cocktail, I sweat terribly, mostly from my neck. If I don't drink, they are very minor.

Link to comment
Share on other sites
Guest GITRDONE

I to have night sweats, but recently they have only been from the waist down, I can't really explain it. I can be laying on the couch with a blanket with my legs exposed and the bottom of my feet are "wet" as well as my legs. this is new to me so I can't say if it is related to celiac.

Susan

Link to comment
Share on other sites
Mr J Rookie

I used to get nightsweats. The pattern was require plenty of bedcovers to get warm enough to sleep, then wake up in early hours of the morning extremely hot and sweating profusely. Would need to get out of bed cool down with my shirt off, then go back to bed and get some sleep.

The dissappearance of the nightsweats coincided with clearing candida out of my intestines. I posted on this subject on the related disorders forum.

I was able to get rid of the nightsweats long before I realised i was gluten intolerant and went gluten-free, so the two things are separable. However theoretically they are linked - having a gluten damaged digestive/intestinal system would make me more susceptible to candida.

Being starved of energy has meant that during the day i'm most likely to be cold. Being cold in the day has persisted for the last 10 years or so.

cheers,

Mike

Link to comment
Share on other sites
Guest BERNESES

That makes a lot of sense! I've noticed when I am able to eat more, I am less cold. i am a lso wondering about candida as well.

Link to comment
Share on other sites
Mr J Rookie

i find that if i can digest a decent amount of protein then that keeps me warm better than a pure carb meal. The problem is that my system takes a long time to digest protein.

A couple of other symptoms that went away along with the dissappearance of the main candida symptoms were:

1. aversion to perfume and cigarette smoke. I still don't like cigarette smoke or the smell of strong perfume but nowhere near the intense dislike that i used to have.

2. aversion to crowds eg in a crowded shopping area.

I know no 2. sounds a bit weird, but its a definate benefit to be able to enjoy shopping with my wife - especially when I'm on holiday like today in crowded Bangkok.

cheers,

Mike

I've noticed when I am able to eat more, I am less cold. i am a lso wondering about candida as well.

<{POST_SNAPBACK}>

Link to comment
Share on other sites
sickofit Newbie
I'm  29 and lately I've been getting night sweats a LOT. It sucks cus' after I wake up I'm freezing cold while the sweat condenses off my body. I have to get up and change and then the bed is all wet-ick!!

I never really had this before except sometimes during the winter when I wore too much to bed and had a huge blanket on me.

It's hot in Phoenix but cool in our house and i only sleep in shorts a tshirt and there's a fan blowing on me.

I don't get why I'm getting this but it is very annoying.

<{POST_SNAPBACK}>

I get nightsweats from anything that turns into sugar in my system-carbs. A friend of mine who is not celiac used to get terrible nightsweats until he quit drinking coffee. Try eliminating sugar and carbs for a few days and if that does not work then try eliminating caffeine. good luck.

Link to comment
Share on other sites
sickofit Newbie
Hi Everybody

My sweats are just awful, they come during the day as well.  This has been going on now for about 6 weeks, and it is driving me nutso.  I went through a entire year tapering off of benzodiapines, and thought I was through the worst of it.  I went through absolute hell, thought I was going to die.  If any of you are any sort of benzo, please consider getting off by doing a very slow taper.  You will hit tolerance to it eventually, and that is a real nightmare.  That is what happened to me.  Then I HAD to start a taper.  My benzo forum tells me the sweating is quite common in post benzo tapering, but I am also wondering if it is a mixture of benzo w/drawal, gluten or maybe the horrible MENOPAUSE.  I thought I had gone through menopause, but now I am wondering if maybe I was just in perimenopause.  Took HRT for several years, and I don't remember having these horrible sweats.  I had a hysterectomny years ago, so can't use my menstual cycle as a guide to perhaps my entering into menopause.  Think I will just keep it a a bit more time and see where this takes me.  I have been very diligent in watching my gluten intake for about three weeks now, so don't really think it is gluten.  My insomnia has been a problem for me for over twenty years, and see no improvement in it at all.  I sometimes get absolutely zero sleep for days on end, and most nights I will get maybe 3 hours intermitently.

Any opinions anybody.

Deborah

<{POST_SNAPBACK}>

I too have had insomnia for over 40 years and brain fog, bloat, etc. and when I read The Yeast Connection was sure it was candida, not celiac. Carbs and sugar not gluten is what causes all these things for me, and I could go weeks without sleep as a teen. People say you can't but I learned to go into a daydream state at night, just never fell asleep. Had no idea it was french fries and candy bars that was causing it and unless I have lots of fiber with carbs to slow the conversion to sugar I will still get nightsweats or just not fall asleep. I don't even know what it is like to deep sleep.

Link to comment
Share on other sites
Guest BERNESES

Oh my God- that's horrible! That can't be good for you.

Well, I had an eye-opener this weekend. I realized I do not sweat nearly as much at other places. My husband and I went away for the weekend for our anniversary and I didn't sweat at all. I had noticed this too when I visited my sister, in-laws etc. Got back Sunday night to our place and sweat horribly.

So, I'm down to two things (well- three actually- I'm convinced this has something to do with where I live- it's possessed and my landlord feeds hundreds of pigeons!). My husband and I have both noticed that I feel better when I am not at home. So, yesterday I bought a new comforter- not down- just cotton. No night sweats. Also, I am switching my cats over to a gluten-free cat food and a different litter. I've noticed that I feel OK when I wake up in the a.m. I, but after I clean the cat box and feed the cats, I get nauseous.

I've also noticed that when I take phenergan (a drug that was prescribed for my nausea but also has an antihistamine in it) I feel MUCH better. I'm wondering if I have a wheat allergy on top of a gluten intolerance. It might explain why I am so sensitive to it. I'm going to talk to my doctor this week.

Link to comment
Share on other sites
jerseyangel Proficient

Berneses, I don't know if this helps at all but for years Drs. said my nausea and dizziness was because of sinus problems and allergies. The thing was I never had any classic nasal symptoms but I don't think they could come up with anything else! (these 2 symptoms were the main ones for me until 2 yrs. ago when the celiac disease came on big time.) Anyway, I was put on antihistimes, antibiotics, and steriod injections which it turns out I didn't need and now I'm allergic to all but one class of antibiotic but the point of this is that when I took the antihistimes, I'd find that my nausea went away most of the time. I actually took Claritan for almost 10 yrs. straight to try and keep my stomach at bay. Back then I also had night sweats which I don't have anymore-I'm 5 mo. gluten-free. When I read your post, I saw some similarities==for the life of me its all so confusing :angry:

Link to comment
Share on other sites
Guest BERNESES

I know- I'm so confused too. I'll let you know what I "find out". Ugh.

Link to comment
Share on other sites
Fluffyblue Newbie

I have had nightsweats for years, and have had "IBS" (undiagnosed) for about 15 years.

I have noticed that I have nightsweats when I overeat, or just before and during my period - so for me it could be linked to gluten, and it also seems to be linked to hormones. My doctor tested me for perimenopause about two years ago (I'm now 33) and that showed nothing.

I've never been tested for Coeliacs, but I have been diagnosed as having Candida by an alternative therapist. I'm getting some bloodwork done on Monday though to test for gluten intolerance, as my therapist says that now my candida is cleared up I still have a wheat intolerance.

I definitely think nightsweats are food related (at least partly).

Link to comment
Share on other sites
elisabet Contributor
i find that if i can digest a decent amount of protein then that keeps me warm better than a pure carb meal. The problem is that my system takes a long time to digest protein.

A couple of other symptoms that went away along with the dissappearance of the main candida symptoms were:

1. aversion to perfume and cigarette smoke. I still don't like cigarette smoke or the smell of strong perfume but nowhere near the intense dislike that i used to have.

2. aversion to crowds eg in a crowded shopping area.

I know no 2. sounds a bit weird, but its a definate benefit to be able to enjoy shopping with my wife - especially when I'm on holiday like today in crowded Bangkok.

cheers,

Mike

<{POST_SNAPBACK}>

My son had both these symptomes,and both are much better now.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - BluegrassCeliac replied to lasthope2024's topic in Food Intolerance & Leaky Gut
      7

      This forum might be the last hope I have in my life. Please I beg you

    2. - Scott Adams replied to Nacina's topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    3. - Nacina posted a topic in Related Issues & Disorders
      1

      14 year old with Celiac & EOE still suffering...

    4. - trents replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.

    5. - Fluka66 replied to Fluka66's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      Waiting for urgent referral.



  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,067
    • Most Online (within 30 mins)
      7,748

    myneckmybackmyceliac
    Newest Member
    myneckmybackmyceliac
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BluegrassCeliac
      Hi,   Not saying Thiamine (B1) couldn't be an issue as well, but Mg was definitely the cause of my problems. It's the only thing that worked. I supplemented with B vitamins, but that didn't change anything, in fact they made me sick. Mg stopped all my muscle pain (HCTZ) within a few months and fixed all the intestinal problems HCTZ caused as well. Mom has an allergy to some sulfa drugs (IgG Celiac too), but I don't think I've ever taken them. Mg boosted my energy as well. It solved a lot of problems. I take 1000mg MgO a day with no problems. I boost absorption with Vitamin D. Some people can't take MgO,  like mom, she takes Mg Glycinate. It's one of those things that someone has try and find the right form for themselves. Everyone's different. Mg deficiency can cause anxiety and is a treatment for it. A pharmacist gave me a list of drugs years ago that cause Mg deficiency: PPIs, H2 bockers, HCTZ, some beta blockers (metoprolol which I've taken -- horrible side effects), some anti-anxiety meds too were on it. I posted because I saw he was an IgG celiac. He's the first one I've seen in 20 years, other than my family. We're rare. All the celiacs I've met are IgA. Finding healthcare is a nightmare. Just trying to help. B  
    • Scott Adams
      It sounds like you've been through a lot with your son's health journey, and it's understandable that you're seeking answers and solutions. Given the complexity of his symptoms and medical history, it might be beneficial to explore a few avenues: Encourage your son to keep a detailed journal of his symptoms, including when they occur, their severity, any triggers or patterns, and how they impact his daily life. This information can be valuable during medical consultations and may help identify correlations or trends. Consider seeking opinions from specialized medical centers or academic hospitals that have multidisciplinary teams specializing in gastrointestinal disorders, especially those related to Celiac disease and Eosinophilic Esophagitis (EOE). These centers often have experts who deal with complex cases and can offer a comprehensive evaluation. Since you've already explored alternative medicine with a nutrition response doctor and a gut detox diet, you may want to consider consulting a functional medicine practitioner. They take a holistic approach to health, looking at underlying causes and imbalances that may contribute to symptoms. Given his low vitamin D levels and other nutritional markers, a thorough nutritional assessment by a registered dietitian or nutritionist specializing in gastrointestinal health could provide insights into any deficiencies or dietary adjustments that might help alleviate symptoms. In addition to routine tests, consider asking about more specialized tests that may not be part of standard screenings. These could include comprehensive stool analyses, food intolerance testing, allergy panels, or advanced imaging studies to assess gut health.
    • Nacina
      Hello, I am a 45 year old mom, who was diagnosed at 29 with Celiac. My now 14 year old son was diagnosed just before his 4th birthday. Needless to say, we are old pros with the diet. He was experiencing some issues, overall health took a major plummet a year ago, and through a bit of work, was diagnosed with EOE. Tried diet alone, but his follow up endoscopy didn't show the improvements his DR. wanted to see, so I tried the medication. (Steroid). He became extremely backed up, and they had him taking Miralax daily. His health plummeted. He is a straight A honor's 8th grader who plays club soccer very competitively. His health continued to decline and at 13 had a colonoscopy and another upper gi. (He was still compacted even with the prep). I finally pulled him off all meds and mira lax, after reading much negative literature online, and put him on a gut detox diet and took him to a nutrition response dr. Finally things have improved. However...over a year later and he is having relapse stomach pain, debilitating stomach pain. Missing a day of school a week, to three this week. This is where we downward spiral with him. He says it doesn't feel the same as when he has gotten backed up before. He is eating prunes, taking his supplements, drinking water...all of the things. Yet, he is feeling horrible. Pain is abdomen, headache, lethargy, diarrhea . He is on a strict gluten dairy, egg free diet. He has adapted well in regards to diet. But I feel like we are missing something here. He is too active, too outgoing to be feeling sick all of the time. His Bilirubin is constantly high. His white blood count always runs slightly low. His vitamin D was very low last time he ran tests, (last month) when he was sick for a week. His celiac markers show negative, so it isn't that. His last endoscopy showed no Eosinaphils in his esophagus.  I have taken him to multiple Ped. Gastro specialists. They run tests, and we get zero answers. I meticulously go through labs, hoping to make some sense and maybe catch something. Any thoughts or ideas would greatly be appreciated. 
    • trents
      But if you have been off of wheat for a period of weeks/months leading up to the testing it will likely turn out to be negative for celiac disease, even if you actually have celiac disease. Given your symptoms when consuming gluten, we certainly understand your reluctance to undergo  the "gluten challenge" before testing but you need to understand that the testing may be a waste of time if you don't. What are you going to do if it is negative for celiac disease? Are you going to go back to merrily eating wheat/barley/rye products while living in pain and destroying your health? You will be in a conundrum. Do I or do I not? And you will likely have a difficult time being consistent with your diet. Celiac disease causes inflammation to the small bowel villous lining when gluten containing grains are consumed. This inflammation produces certain antibodies that can be detected in the blood after they reach a certain level, which takes weeks or months after the onset of the disease. If gluten is stopped or drastically reduced, the inflammation begins to decrease and so do the antibodies. Before long, their low levels are not detectable by testing and the antibody blood tests done for diagnosing celiac disease will be negative. Over time, this inflammation wears down the billions of microscopic, finger-like projections that make up the lining and form the nutrient absorbing layer of the small bowel where all the nutrition in our food is absorbed. As the villi bet worn down, vitamin and mineral deficiencies typically develop because absorption is compromised. An endoscopy with biopsy of the small bowel lining to microscopically examine this damage is usually the second stage of celiac disease diagnosis. However, when people cut out gluten or cut back on it significantly ahead of time before the biopsy is done, the villous lining has already experienced some healing and the microscopic examination may be negative or inconclusive. I'm not trying to tell you what to do I just want you to understand what the consequences of going gluten free ahead of testing are as far as test results go so that you will either not waste your time in having the tests done or will be prepared for negative test results and the impact that will have on your dietary decisions. And, who are these "consultants" you keep talking about and what are their qualifications? You are in the unenviable position that many who joint this forum have found themselves in. Namely, having begun a gluten free diet before getting a proper diagnosis but unwilling to enter into the gluten challenge for valid testing because of the severity of the symptoms it would cause them.
    • Fluka66
      Thank you very much for your reply. I hadn't heard of celiac disease but began to notice a pattern of pain. I've been on the floor more than once with agonising pain but this was always put down to another abdominal problem consequently I've been on a roundabout of backwards and forwards with another consultant for many years. I originally questioned this diagnosis but was assured it was the reason for my pain. Many years later the consultant gave up and I had a new GP. I started to cut out certain food types ,reading packets then really started to cut out wheat and went lactose free. After a month I reintroduced these in one meal and ended screaming in agony the tearing and bloating pain. With this info and a swollen lymph node in my neck I went back to the GP.  I have a referral now . I have also found out that acidic food is causing the terrible pain . My thoughts are this is irritating any ulcers. I'm hoping that after a decade the outlook isn't all bad. My blood test came back with a high marker but I didn't catch what it was. My GP and I have agreed that I won't go back on wheat just for the test due to the pain , my swollen lymph node and blood test results.  Trying to remain calm for the referral and perhaps needed to be more forceful all those years ago but I'm not assertive and consultants can be overwhelming. Many thanks for your reply . Wishing you all the best.
×
×
  • Create New...