Posted 21 November 2005 - 05:19 PM
I just finished two rounds of allergy testing and I am officially allergic to ...NOTHING! I guess that's good.
Posted 21 November 2005 - 08:35 PM
Posted 25 November 2005 - 05:45 AM
I am not only hot at night. I also keep a fan on under my desk at work all year long. I've had people sit down at my desk to do something (wearing a skirt) ...and you hear OOOH! coming from my office .
One year my fan broke in February. Do you know how hard it is to buy a new fan in February? Fortunately, I did find a store that was already putting out it's spring merchandise. I don't think I could have survived! I just need some air moving around me all of the time.
Edited by kevsmom, 25 November 2005 - 05:47 AM.
Posted 26 November 2005 - 11:23 AM
So, I was taking the phenergan but it was making me so incredibly tired. I started taking acidopholus and a suplement called IntestiNEW by Renew Life. I just got it at the health food store. It has L glutamine and ginger in it. It works just as well as the phenergan without the drowsiness for me.
i've also found that if I sleep with just a t-shirt and the comforter only up to my waist with the fan on, my night sweats are much better.
Posted 28 November 2005 - 05:14 PM
I know it sounds weird, but it is a symptom. Can't hurt to check.
diagnosed on May 31, 2005
orange county, california
"Laziness will cause you pain." (Unknown)
Posted 28 November 2005 - 05:52 PM
Posted 28 November 2005 - 08:53 PM
"If you love the life you live, you will live the life of love"
Posted 30 November 2005 - 08:20 PM
Then the day before yesterday -- I ate a dark chocolate candy bar, I've eaten them before without a problem, but its been a few months (around the same time the night sweats stopped.) I have a major probelm with SOY, soy anything, soy lethin (sp) too. Well, the nightsweats are back since. My thyroid levels are perfect the doc says -- so what can it be? I will say this -- I did notice this morning (I get them the few hours before waking or that is when I notice it) when I sleep on my tummy, not on my side or back, that is when I get them really bad. It might be my imagination but its like when my body is in a horizontal and not on my back, it triggers it.
It only happens when I'm horizontal...
celiac disease and all these food allergies are so complex and docs don't get it. They don't want to get it, they can't profit there is no magic pill.
The last few days I have been feeling really bad. And in my private time alone with myself, I fear dying like my Auntie with a feeding tube. I weight 100LBS (dressed) I should be 115 at 5'5", I'm in my early 40s and don't know how I can live like this until old age. I'm [all alone], no hubby or kids and etc. Well, I value my celiac-cyber-space friends. I have many days when I think I'm dying. Maybe it's my post tramic stress? My mind playing trick? Or not enough sleep from the night sweats?
Posted 01 December 2005 - 07:20 AM
It's interesting that you mention soy because yesterday I was in CVS looking at all the peri/menopause stuff that supposedly helps with hot flashes/night sweats/mood swings etc. (I'm 38) and I looked at the ingredients on every single one and they all had soy. It's supposed to be good for us chicks unless you're intolerant. But the other ingredient that they also had was magnesium. I know, from research on another disorder I have, that magnesium is supposed to help you sleep so last night I took my calcium/magnesium supplement before bed and I did sleep a little better with a little less sweating. It's worth a shot and I'll keep you posted.
I remember that there were many times for me when I would go to bed at night and think I wasn't going to wake up either. But so far, for the last 38 years I have. And you know you always have us, your Celiac cyber friends (sometimes i wish we could all take a cruise together somewhere warm!). Feel free to email me anytime. My email is under my board profile. Best, Beverly
Posted 02 December 2005 - 08:20 PM
email is Zoeysfat@comcast.net
Posted 04 December 2005 - 11:53 PM
My sweats are just awful, they come during the day as well. This has been going on now for about 6 weeks, and it is driving me nutso. I went through a entire year tapering off of benzodiapines, and thought I was through the worst of it. I went through absolute hell, thought I was going to die. If any of you are any sort of benzo, please consider getting off by doing a very slow taper. You will hit tolerance to it eventually, and that is a real nightmare. That is what happened to me. Then I HAD to start a taper. My benzo forum tells me the sweating is quite common in post benzo tapering, but I am also wondering if it is a mixture of benzo w/drawal, gluten or maybe the horrible MENOPAUSE. I thought I had gone through menopause, but now I am wondering if maybe I was just in perimenopause. Took HRT for several years, and I don't remember having these horrible sweats. I had a hysterectomny years ago, so can't use my menstual cycle as a guide to perhaps my entering into menopause. Think I will just keep it a a bit more time and see where this takes me. I have been very diligent in watching my gluten intake for about three weeks now, so don't really think it is gluten. My insomnia has been a problem for me for over twenty years, and see no improvement in it at all. I sometimes get absolutely zero sleep for days on end, and most nights I will get maybe 3 hours intermitently.
Any opinions anybody.
Posted 05 December 2005 - 07:44 AM
As far as the benzo thing goes, you're right, getting off them is a nightmare. My advice would be to see a psychopharmacologist (long word) which is what my sister did when she had to go off klonopin when she got pregnant. She went through a lot but seeing the psych. helped a lot. Supposedly, it takes about a year to taper off. They're good when they work but going off is a nightmare.
Posted 31 December 2005 - 04:28 PM
I'm going to try taking a better probiotic, I've also been taking InsteniNEW but not religiously .........
Thanks for all your help- eat lots of Thai for me and enjoy being with your wife! Best, Beverly
hello Bernese, just revisiting the yeast/candida link to night sweats, i started with pro-biotics only but really i was just sending my expensive allies down the shute to be slaughtered by the fungus, on their own they weren't strong enough, but with the herb or plant eating enzymes combined they do make a difference.
i'm on quite a lot of supplements now, about as many as i can reliably schedule with consistency and fit in to my system. your mention of InstniNEW intrigued me and i spent a bit of time re-arranging the anagram puzzle you set until google came up with "intestiNEW". I realise the marketing dept would have come up with that name but the implication of new intestines was too hard to resist and i ordered some. I wouldn't go so far as to say it "tastes great" as suggested by the product description but its quite acceptable and i take it just before i go for my morning cycle, closely followed by my pro-biotic powder mixed into another 1/2 glass of water. Even with my stomach motility problems low concentration of nutrient liquids empty normally with me so they both flush into my gut before eating brekky.
as to whether my latest supplement addition is renewing my intestines i'm not sure but just recently i've decided that perhaps i may be getting a bit better - about a year ago i thought i was dying. Also a couple of months ago i was accidentally ingesting small amounts of gluten in a product containing soy sauce over the period of about a week and my stomach completely ceased all motility and rumbling, took one week before any sign of motilitty returned and that experience really frightened me - i don't get immediate glutening symptoms. Recently I seem to be doing well with carb brekky, protein lunch, protein evening meal and carb late nite snack. 3 to 4 hrs separate each meal but even so the carbs or veges with protein can cause some abdominal bloating and my doc has readily agreed to sign any authorisation forms for outside lab testing which i order and wouldn't be covered by my healthcare plan. I'm planning on getting tested for dysbiosis - a general term i think for intestinal imbalance which could be either fungus or bacteria. there are all sorts of feedback mechanisms which tell the stomach to delay emptying (my main problem known as gastroparesis) so i'm going to chase the theory that some intestinal imbalance is sending signals to slow my stomach. after seeming to abandon me due to a panel of routine tests showing everything looking normal they are fortunately showing a renewed interest in me after the doc who did a round of IgE type allergy tests noticed that one of my tests indicated my body was leaking chloride, 2 borderline results for cystic fibrosis and 2 negatives so they decided i don't have that. But the missing hormones and osteoperosis has convinced them that something is quite wrong, so they are pursuing my case. One doc noticed that i was freezing cold and i said yes thats what happens coz i'm starved of calories - can't eat much. Sometimes my blood pressure drops right down in an attempt to conserve energy.
however my wife has noticed i have got warmer, so with the docs following up my case i'm feeling more optimistic now
happy new everyone,
HLA-DQB1*0602, 0604 - sensetivity genes
Antigliadin IgA and Transglutaminase igA positive
Casein IgA positive
primary problem - gastroparesis - paralysis of the stomach
under control with the right drugs
Posted 01 January 2006 - 02:42 PM
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