146 replies to this topic

[jerseyangel]

Before I was gluten-free I had terrible night sweats. They were much worse when I was in my 30's. I would wake up in the middle of the night totally drenched. That was during the time I was taking lots of antibiotics and steriods. Now, I'm getting them due to menopause--and intrestingly, these are not anywhere near as bad as the ones I used to get.

[Sagesmama]

I can't even believe that the night sweats that I've been having for 3 years are Celiac related! I haven't gone gluten-free yet because I have an endoscopy on the 31st but this is one major symptom that has been plaguing me (and my poor husband who I share a sweat soaked bed with ).
I love how the more that I read all of your experienced, the more "AHA! moments" (as Oprah calls them ) I have.
Also- I have periodic insomnia... my last bout of it lasted 6 months... SIX MONTHS! And now I find out that THAT could be Celiac related? Whoa- this information is all so overwhelming and wonderful at the same time... you know what I mean?

[ms_sillyak_screwed]

I had an experience the other night that I never had before.

I get night sweats, not really bad. Not like some of you. I just get a little clamie, and sweaty. Well the other night I am trying to reintroduce rice and potatoes back into my diet. I had meatball soup. I made from scratch. I cooked the meatball in a skillet, added them to a soup pot with water, celery, grated carrots, a few spices (noting major) like basil and tarragon and I added some rice. I made the rice with a cap of olive oil and some saffron. The soup was really yummy.

In the middle of the night about 4:30 a.m. I thought I wet the bed... (I didn't) but the bed was wet. My PJ's were dripping wet. And as I stood up I was shivering cold. I got up changed the bed and my bed clothes went back to bed. Around 6:30 a.m. it happened again.

Do you think the rice caused it? Did I eat too much? Or what do you think?

I have asked this question here before, and I have also asked my thyroid doc and still no answer. Why do we get them?

Is there something we can take to stop it?

[gointribal]

oh man after I eat gluten I sweat like I've been working out(literaly driping)! I wake up cold because I am wet but I'm hot; its horrible, I'm thinking I am going to swear off gluten for life!

[Green12]

Boy do i hate the fact that I'm reviving this thread, but I had to stop the Evening Primrose Oil and now my night sweats are back with an EVIL vengeance. so, I think for me, if the Evening Primrose Oil stopped them, they're probably hormonal. Ugh!

How do people cope? do you get up and shower? change your clothes?

Basically, I've been getting up, changing my clothes, having a cool drink and then laying a towel down over my wet sheets and going back to sleep with just the comforter over me. It's actually just a quilt. I can fall back to sleep most of the time, but it's still pretty disruptive. We have a ceiling fan in the bedroom which is always on.

How do other people sleep with them?

Oh no, I thought they were a thing of the past for you! So sorry Berneses.

[Lauren M]

OK forgive me for not reading the entire thread (I will though!) but YES I get terrible nightsweats! I'm only 24, but I think mine is hormonal (my hormones are all messed up). I've noticed also that if I eat something big before going to bed I get nightsweats. My nutrionist thought it might be my metabolism going into overdrive. Who knows.

How do I cope? Nothing original, just a lot of sheet washing, pajama washing/changing, etc. I hope mine will clear up; I got them off and on for a couple years, but the past few months they have been pretty much every night, no fail. I usually do sleep through them, as I take sleeping medication, but I wake up in the morning and I'm usually pretty well soaked.

Not much help, just letting you know you're not alone. I'll have to give that primrose oil a try.

- Lauren

PS - THANK YOU for reviving this thread, otherwise I wouldn't have ever found it!

[Green12]

Boy do i hate the fact that I'm reviving this thread, but I had to stop the Evening Primrose Oil and now my night sweats are back with an EVIL vengeance. so, I think for me, if the Evening Primrose Oil stopped them, they're probably hormonal. Ugh!

How do people cope? do you get up and shower? change your clothes?

Basically, I've been getting up, changing my clothes, having a cool drink and then laying a towel down over my wet sheets and going back to sleep with just the comforter over me. It's actually just a quilt. I can fall back to sleep most of the time, but it's still pretty disruptive. We have a ceiling fan in the bedroom which is always on.

How do other people sleep with them?

I just thought of this Berneses,

I don't have as many night sweats as I used to. They used to be a frequent occurrence for me, now just occasional, but I started doing some detective work and they changed according to my diet. I noticed if I had more sugar and starches they would be worse. This made me think there was a blood sugar connection involved, along with the hormone cycle. As I cleared more and more out of my diet and up until more recently, I have noticed that in times of reactivity- or eating something that I am intolerant to/allergic to, the night sweats come back with a vengeance. If that makes sense?

Of course every body is different, but it made me think there is something else involved with my night sweats.

[Green12]

I'm trying to figure out if there's a food connection too. I don't eat soy (except very small amounts occasionally), lactose doesn't effect them. So you found eating a lot before bed (try not to do this, but sometimes I do) and sugar and starches? What else are you allergic to or intolerant of? maybe that will help me if you don't mind sharing.

I don't do soy at all, that really gets my system all whacky. Grains are a problem for me, if I eat any I have to eat them in small amounts. I also try to stay away from dairy, I do have an occasional indulgence. If I have sugar in combination with grains and/or dairy this is what I notice affects if I have a night with sweating or not. I think it has a synergistic effect in my body.


In Rachel's thread "OMG.. I might be on to something" in the Post Diagnosis and Treatment category, it is interesting that several posters discuss having night sweats when they have eaten something that they are reacting to and then when they clear these things out of their diet, no night sweats. We have figured the commonality is MSG and/or corn derivatives and that it seems like a reaction and the body trying to "sweat" it out.

Again, like I said, everybody is different, and I am sure night sweats can come from all different sources, but it was an interesting connection.

[dionnek]

wow, this is a lot of information! I've been trying to get rid of these night sweats for years to no avail! I'm thinking the gluten-free diet might do it, or maybe I'll try evening primrose if that doesn't work. Anyway, the way I "cope" is to just take off my soaking wet pjs, turn on the ceiling fan, and try to go back to sleep on a wet bed, then change the sheets in the morning (my husband would not like it if I woke him up everynight to change the sheets!)